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ME/CFS Australia Ltd
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ME/CFS South Australia Inc supports the needs of sufferers of Myalgic Encephalomyelitis, Chronic Fatigue Syndrome and related illnesses. We do this by providing services and information to members.


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One in three PCTs 'failing people with chronic fatigue syndrome'

Sunday 12 August 2012


From the UK's NetDoctor:


Woman with book on couchOne in three PCTs 'failing people with chronic fatigue syndrome'

Last updated 10 August 2012

Primary care trusts (PCTs) across the country are not doing enough to support people with myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS), a report has claimed.

The charity Action for ME says that more than 30 per cent of PCTs do not provide adequate services for people with the condition, with more than a third of English trusts either not commissioning specialist services or not confirming that they do.

Less than a quarter of trusts provide specialise home care for patients who are unable to travel, while just ten per cent knew how many children there were in the area with ME.

Action for ME says the situation is even worse in Scotland, Wales and Northern Ireland, with many trusts and health boards ignoring national standards and clinical guidelines for the chronic neurological illness.

Chief executive Sir Peter Spencer said: 'These figures are a disgraceful indictment of institutionalised discrimination and neglect.

'Health services in all of the four home nations are still not even beginning to address the needs of this vulnerable patient group properly.'

NHS figures suggest that around 250,000 people in the UK have ME/CFS.


The above originally appeared here.



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