ME/CFS South Australia Inc supports the needs of sufferers of Myalgic Encephalomyelitis, Chronic Fatigue Syndrome and related illnesses. We do this by providing services and information to members. Disclaimer ME/CFS South Australia Inc aims to keep members informed of various research projects, diets, medications, therapies, news items, etc. All communication, both verbal and written, is merely to disseminate information and not to make recommendations or directives. Unless otherwise stated, the views expressed on this Web site are not necessarily the official views of the Society or its Committee and are not simply an endorsement of products or services. |
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"A chance to lead the way in treatment of ME and FMS"Saturday 12 July 2014
‘A chance to lead the way in treatment of ME and FMS’ – Bradley SDLP Newry and Armagh MLA Dominic Bradley says Northern Ireland has “a chance to lead the way” by developing a more sympathetic and paced approach to the treatment of the debilitating illness, ME-Fibromyalgia for local patients. The illness causes widespread chronic pain and, according to Bradley, an estimated 7,000 ME and FMS patients in Northern Ireland are unable to access specialist medical care. “Approximately 25% are unable to leave their homes or beds. Something needs to be done,” said Bradley, who recently presented a petition to the Assembly Speaker on behalf [of] Newry & Mourne ME-Fibromyalgia Support Group and ME and FMS patients in N. Ireland. The petition, which will be handed on to the Health Minister, Edwin Poots, calls for full adoption of the Canadian Consensus Criteria for ME in Northern Ireland. “I will not go into the technicalities of the Canadian Consensus Criteria being called for Northern Ireland, suffice to say that they form an approach to both ME and FMS which is more enlightened, and which is much more likely to bring progress to the patient than the current approach here,” said Bradley. “Fifty international ME experts agree the Canadian Consensus Criteria (CCC) should be immediately adopted both for medical diagnosis and for clinical research for ME. “Further to that, they say the Canadian Consensus Criteria should be used as the basis for future revisions in the light of ongoing research. Northern Ireland is in a unique situation, in that it can independently choose to adopt the CCC for ME. “This move would give local doctors the best means to accurately identify patients with ME and this could potentially lead to better prospects for patient recovery and hopefully an earlier return to a productive life.” Bradley added, “Unfortunately, current NICE guidelines recommend that ME patients should have Graded Exercise Therapy (GET) to help them recover. GET is now known to be harmful for ME patients.”
The above originally appeared here.
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