ME/CFS South Australia Inc supports the needs of sufferers of Myalgic Encephalomyelitis, Chronic Fatigue Syndrome and related illnesses. We do this by providing services and information to members. Disclaimer ME/CFS South Australia Inc aims to keep members informed of various research projects, diets, medications, therapies, news items, etc. All communication, both verbal and written, is merely to disseminate information and not to make recommendations or directives. Unless otherwise stated, the views expressed on this Web site are not necessarily the official views of the Society or its Committee and are not simply an endorsement of products or services. |
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UK support group will help Fibromyalgia sufferersSunday 13 July 2014
From the UK's North London Today:
Support group will help fibromyalgia sufferers A SUPPORT group for people in the borough suffering from a life-altering illness will launch later this year. Fibromyalgia and Me, will aim to provide a detailed network of information and support for people living with the long-term condition that causes pain all over the body. Fibromyalgia sufferer and founder of the group Sally Ainsworth told the Gazette: “I wanted to start this group because locally there is not any other support group for sufferers. “I want to pass on knowledge to the group of things that I have found to have helped me.” Fibromyalgia leaves sufferers unable to carry out everyday tasks without a resulting period of intense pain all over the body. Other symptoms include muscle stiffness, headaches, sleeping and memory problems and the condition can leave some sufferers housebound. Run in conjunction with charity the Fibromyalgia Association, the group also aims to raise awareness among the general public and with local GPs about the condition. Initially, four group meetings will be held a year, starting on September 6, at 9.30am, at the Lancaster Centre, in Lancaster Road, Enfield. Sufferers and their families, GPs and specialists will be invited to contribute. “You have got to be positive. It’s not about ‘I can’t, it’s about I can’. If you try you will have a better life with this illness,” added Ms Ainsworth. “I have learnt how to pace myself to avoid severe pain. It’s easier to live with the illness if you get massages, stay active and go to work.” A Facebook page named Sally Ainsworth, Fibromyalgia and Me, has been set up allow people to share their feelings with those in similar situations both publicly and privately. To join the group, email fibromyalgiaandme@outlook.com
The above originally appeared here.
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