ME/CFS South Australia Inc supports the needs of sufferers of Myalgic Encephalomyelitis, Chronic Fatigue Syndrome and related illnesses. We do this by providing services and information to members. Disclaimer ME/CFS South Australia Inc aims to keep members informed of various research projects, diets, medications, therapies, news items, etc. All communication, both verbal and written, is merely to disseminate information and not to make recommendations or directives. Unless otherwise stated, the views expressed on this Web site are not necessarily the official views of the Society or its Committee and are not simply an endorsement of products or services. |
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UK Fibromyalgia sufferer to stand as an MP in forthcoming electionWednesday 24 September 2014
From UK political blog Getting Ready for 2015:
DISABLED PEACEHAVEN MAN TO STAND AS INDEPENDENT MP. Joe Neilson, who has Fibromyalgia and macular degeneration, is standing as an independent MP for Brighton Kemptown constituency in the scheduled 2015 general election. Possibly the only disabled person standing in the election, Joe Neilson has received a grant under the ‘Access to Elected Office for Disabled People Fund’ to help finance his election campaign; Joe said, “Without this grant I could have become a candidate.” This little known fund, ‘The Access to Elected Office for Disabled People Fund’ can pay a disabled person up to £40,000.00 per year to stand for public office. Amazon explorer Joe Neilson from Peacehaven said, “I want to bring integrity and honesty to public office and be a voice to the people of the Brighton Kemptown constituency.” Joe Neilson is the fifth candidate to throw his hat in the ring to be MP of Brighton Kemptown. Other candidates include:
The Liberal Democrats Party have yet to propose a candidate. To find out more about Joe Neilson and to support his election campaign please contact him by:
Candidates Brighton Kemptown Constituency Joe Neilson has come under attack for standing as a disabled candidate for Brighton Kemptown. Joe told us he has received phone calls and emails. From "He’s not disabled" to "Disabled people are not fit to stand as an MP" to "You are only in it for the money." Joe is very distressed over this. He has given us this reply: Firstly, the Access to Elected Office for Disabled People Fund has awarded me a grant to stand for public office. With this money I can employ a P.A. to help me to do tasks I cannot do because of my disabilities. I have had Fibromyalgia for 11 years it is a bad type of M.E. (myalgic encephalomyelitis) and Macular degeneration. This has left me with word blindness and CFS Chronic Fatigue Syndrome plus other problems. I have 1 to 4 hour days. Anyone with FMS CFS ME will understand what it means. The idea of the fund is to help people who have a disability and with out extra help could not stand for public office. So in my case I will have a P.A. to help with paperwork and at times I need to use a wheelchair. I say that, for me, Chronic Fatigue Syndrome is the worse part of FMS this is where having a PA really helps. The Access to Elected Office for Disabled People Fund is not a free ride. By accepting the grant I must stand as a candidate. I have signed the following statement ‘I confirm that in standing for election, my activities will uphold the rule of law, democracy, individual liberty and mutual respect and tolerance for different faiths and beliefs.’ Joe Neilson
FIBROMYALGIA UK ACCESS-TO-ELECTED-OFFICE-FUND.ORG.UK
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