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US couple wins national scholarships to help people with chronic painWednesday 19 November 2014
From US news outlet The Progress-Index:
Local couple wins national scholarships to help people with chronic pain in Virginia PRINCE GEORGE — County residents Louis and Kristen Ogden recently won scholarships to attend the National Fibromyalgia & Chronic Pain Association’s national training program, Leaders Against Pain, to learn how to effectively advocate for the 110 million people with chronic pain illnesses in the United States. Louis is one of those 110 million chronic pain sufferers. The national training program was held in Salt Lake City, Utah, Oct. 23-26. While there the couple learned from leading experts the skills needed to advocate on behalf of people with chronic pain for faster diagnosis, better treatments, more research funding and ultimately a cure for these conditions. The couple, citing the Institute of Medicine’s congressionally mandated study, “Relieving Pain in America,” said that chronic pain affects an estimated one in four, or 110 million U.S. adults, which is more than the number affected by heart disease, diabetes, and cancer combined. “It was an honor for me and my wife to be among the 29 people chosen from across the country to attend Leaders Against Pain,” Louis Ogden said. “I was diagnosed with fibromyalgia in 1990. I have lived with chronic severe pain for most of my adult life, and it has been life-altering for me and my wife. "I spent many years seeking effective treatment and it has been a very difficult journey," he said. "I wanted to be a Leader Against Pain so that I can help to raise awareness about the challenges faced by people who suffer from chronic pain illnesses.” Kristen Ogden recently retired from DeCA at Fort Lee. She said, “Louis and I hope to inform and influence the general public, legislators, policymakers and regulators in order to bring about better understanding and more effective care for people who suffer from constant, severe pain.” The Ogdens will be reaching out to members of the local community and across the commonwealth to help create the change people in pain have desperately needed. For information on resources available to area residents affected by fibromyalgia or chronic pain, visit the Hopewell Fibromyalgia and Chronic Pain Support Group on Facebook or email sue@richmondfibro.org. The Ogdens can be reached for additional information at louisogden@prodigy.net or kristenogden@prodigy.net. Leaders Against Pain teaches skills that address creating fibromyalgia and chronic pain awareness events, leading effective support groups, and working with policymakers to improve access to healthcare and mobilize the state on important state and national policies that affect chronic pain patients. Upon completion of the training, participants join the Leaders Against Pain Action Network, which is a national working group of individuals across the country partnering to be the voice for millions on critical issues. Dr. Lynn Webster, MD, conference speaker and immediate past president of the American Academy of Pain Medicine, stated at the end of the conference, “We are just a seed. We cannot be it. We must disseminate the information learned here in our communities and create change together.” About the National Fibromyalgia & Chronic Pain Association: The National Fibromyalgia & Chronic Pain Association (NFMCPA) is a 501(c)3 nonprofit organization headquartered in Logan, Utah. The NFMCPA’s mission is to build a united patient and medical community that will execute advocacy programs regarding access to care, scientific research, diagnosis and treatment for people suffering with fibromyalgia and chronic pain. Fibromyalgia is a common and complex chronic pain disorder that affects about 10 million Americans and can be disabling. Researchers believe it is a central nervous system disorder. For more information: FMCPaware.org.
The full article can be found here.
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