ME/CFS Australia (SA) Inc supports the needs of sufferers of Myalgic Encephalomyelitis, Chronic Fatigue Syndrome and related illnesses. We do this by providing services and information to members.
ME/CFS Australia (SA) Inc aims to keep members informed of various research projects, diets, medications, therapies, news items, etc. All communication, both verbal and written, is merely to disseminate information and not to make recommendations or directives.
Unless otherwise stated, the views expressed on this Web site are not necessarily the official views of the Society or its Committee and are not simply an endorsement of products or services.
Fibromyalgia: UK MP Suggests Soap Operas Could Raise Awareness
Thursday 9 July 2015
Fibromyalgia: Reading West MP suggests soap operas could raise awareness
Reading West MP Alok Sharma is urging writers of hospital soap operas to consider storylines about fibromyalgia.
Mr Sharma led a debate Westminster Hall on Wednesday, July 1, about the treatment of fibromyalgia, a long-term condition that causes increased sensitivity to pain, fatigue, muscle stiffness, difficulty sleeping, problems with mental processes, headaches and irritable bowel syndrome.
The exact cause of fibromyalgia is unknown, but it is thought to be related to abnormal levels of certain chemicals in the brain and changes in the way the central nervous system processes pain messages carried around the body. There is currently no cure for fibromyalgia.
As the condition is relatively unknown, Mr Sharma used the debate as an opportunity to help raise awareness of fibromyalgia and praised the work of the Reading Fibromyalgia Support Group in helping sufferers locally.
He outlined the stories of a number of his constituents living in Reading with the condition and how it has affected their lives.
Speaking in the debate, Mr Sharma also suggested that:
He said in the debate: “My final point is about raising awareness of the condition more generally. Jeanne Hambleton, a freelance journalist and health writer, has informed me that last year she wrote to two well-known TV soap operas and asked whether one of the characters could be diagnosed with fibromyalgia to raise viewers’ awareness of the condition.
“Sadly, she did not hear back from the producers of either programme. I have no doubt that many people watch debates on Parliament TV, but it is safe to venture that many, many more watch soap operas. If the producers of ‘Casualty’ or ‘Holby City’ are watching the debate, they may want to get back to Ms Hambleton about her suggestion.”
After the debate, Mr Sharma said: “I am very pleased to have had the opportunity to raise the issue of fibromyalgia in Parliament.
“Despite being a little-known disease, fibromyalgia is not uncommon and deserves to be spoken about more. The more we do to raise awareness amongst clinical staff and the general population of fibromyalgia the better chance that sufferers can get proper treatment and the more likely we will eventually find a cure.”
George Freeman MP, the Parliamentary Under-Secretary of State of Life Sciences responded to the debate by saying he would write to Martin McShane, the head of long-term conditions at NHS England, to ask whether “more formal networks can be established and whether, with the support of active patients and charities, there is more we can do to develop such groups and to help them to support research into developing new treatments and pathways”.
Alice Gostomski, leader of the Reading Fibromyalgia Support Group, said: “Everyone at the Reading Fibromyalgia Support Group would like to thank Alok, who has been a fantastic supporter of the group, for leading this debate. Alok read out some very moving testimonials from people who have to deal with fibromyalgia every day and we support Alok’s call for more GPs to be made aware of the condition and for more fibromyalgia clinics to be set up across the country.”
Anyone interested in attending a support meeting in Reading should email: firstname.lastname@example.org.
The above originally appeared here.
blog comments powered by Disqus