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ME/CFS Australia Ltd
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ME/CFS SOUTH AUSTRALIA INC

Registered Charity 3104

Email:
sacfs@sacfs.asn.au

Mailing address:

PO Box 322,
Modbury North,
South Australia 5092

Phone:
1300 128 339

Office Hours:
Monday - Friday,
10am - 4pm
(phone)

ME/CFS South Australia Inc supports the needs of sufferers of Myalgic Encephalomyelitis, Chronic Fatigue Syndrome and related illnesses. We do this by providing services and information to members.

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ME/CFS South Australia Inc aims to keep members informed of various research projects, diets, medications, therapies, news items, etc. All communication, both verbal and written, is merely to disseminate information and not to make recommendations or directives.

Unless otherwise stated, the views expressed on this Web site are not necessarily the official views of the Society or its Committee and are not simply an endorsement of products or services.

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UniSA Seeking Participants For Adelaide ME/CFS Research

Wednesday 9 September 2015

 

From James Hackett, president of ME/CFS Australia (SA) Inc (via email):

 

University of South Australia
 

UniSA: Seeking Participants for New, Adelaide ME/CFS Research

From the keyboard of ME/CFS Australia (SA) president and eBulletin co-writer, James Hackett

Tuesday, 8th September 2015.

UniSA: Seeking Participants for New, Adelaide ME/CFS Research.

Dear members and friends,

We are very pleased to announce that there are a few new ME/CFS studies about to start in Adelaide and we hope we can assist them to find participants from amongst our readers. It seems that the number of positive results over the recent years have given researchers confidence to do more, and hopefully this will quickly lead to new treatment options and better understanding of the mechanisms of the illness.

Today we are contacting you regarding a research study titled ‘Physical activity and time use patterns of adults with chronic fatigue syndrome, which is being undertaken through the University of South Australia. Our society is very supportive of this study. We would greatly appreciate it if you could please take the time to read the following information, and consider being involved in the study.

There could be some interesting results from this, and its results will be helpful for a larger study which is currently being planned, and also sounds very promising.

We recently met with Dr Katia Ferrar at UniSA to discuss the research to be conducted by honours student Minh Pham. Dr Katia Ferrar, Dr Kade Davison, and Dr Lucy Lewis are supervising. We were really impressed by how much consideration they have given to the difficulties sufferers can have with research requirements, and how they can make participation as accessible as possible, even the more severely affected, housebound sufferers with very low energy.

From the researchers:

----------------------

Dear ME/CFS sufferers,

The aim of this project is to gather information about how people with chronic fatigue syndrome use their time and how this might be associated with physical activity, pain and fatigue. This information may allow modifications to current management therapies to increase their effectiveness.

If you are 18-50 years old and have been diagnosed by a GP or medical practitioner as having Chronic Fatigue Syndrome (CFS) and have experienced your symptoms for more than 6 months – you may be eligible.

If you are willing to participate in the study, you will be invited to complete several questionnaires during a face to face visit (approximately ½ hour duration) at a convenient time and place for you. You will also be asked to wear an activity monitor on your wrist (a bit like a watch) for seven days and complete two telephone interviews recalling how you have spent your time (approximately ½ hour each).

If would like to participate or have any questions about the study, please contact Minh Pham from the University of South Australia (phamt005@mymail.unisa.edu.au) or Dr Katia Ferrar from the University of South Australia (ph. 8302 2554).

We are looking forward to hearing from you.

Kind regards,
UniSA Research Team

 

The above originally appeared here.

 


 

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