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ME/CFS South Australia Inc supports the needs of sufferers of Myalgic Encephalomyelitis, Chronic Fatigue Syndrome and related illnesses. We do this by providing services and information to members.
Disclaimer
ME/CFS South Australia Inc aims to keep members informed of various research projects, diets, medications, therapies, news items, etc. All communication, both verbal and written, is merely to disseminate information and not to make recommendations or directives.
Unless otherwise stated, the views expressed on this Web site are not necessarily the official views of the Society or its Committee and are not simply an endorsement of products or services.
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DiseaseMaps: Put Yourself On The Map!
Friday 29 April 2016
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We have put ME/CFS Australia (SA) Inc. on this world map of disease prevalence and would love you to join us in this endeavour to help spread the word and assist the push for more research funding. Every head adds more weight!
Mark Camenzind (PhD, Research & Development Advocate to Cure ME and father of a son with ME) is leading an international drive to put a million ME/CFS people, organisations, doctors and friends on the map (10 days ago <1000 – now over 1800 people with ME/CFS listed).
He suggests that you get onto map (with pseudonym or just first name), near your home but not exactly, preferably with the option “able to contact”. For many around the world, this will help to organise regionally, so people can meet to share or advocate, coordinated with #MEAction for May 12th and May 25th, #MillionsMissing global campaign in various cities (Washington DC, San Francisco, Seattle, London, etc.). You can also encourage your doctors, family, friends and other ME organisations to add their names.
It’s very simple to do: Just find “Chronic Fatigue Syndrome/M.E.”, have a look at the current map, then click on “Join the map” button, top right. The rest is quick and easy. You can add as much or as little to your profile as you like, choose to have your age shown, whether to allow others to contact you, etc.
If you have Fibromyalgia then add this too.
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Registered Charity 3104
Email:
sacfs@sacfs.asn.au
Mailing address:
PO Box 322,
Modbury North,
South Australia 5092
Phone:
1300 128 339
Office Hours:
Monday - Friday,
10am - 4pm
(phone)