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ME/CFS Australia Ltd
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ME/CFS SOUTH AUSTRALIA INC

Registered Charity 3104

Email:
sacfs@sacfs.asn.au

Mailing address:

PO Box 322,
Modbury North,
South Australia 5092

Phone:
1300 128 339

Office Hours:
Monday - Friday,
10am - 4pm
(phone)

ME/CFS South Australia Inc supports the needs of sufferers of Myalgic Encephalomyelitis, Chronic Fatigue Syndrome and related illnesses. We do this by providing services and information to members.

Disclaimer

ME/CFS South Australia Inc aims to keep members informed of various research projects, diets, medications, therapies, news items, etc. All communication, both verbal and written, is merely to disseminate information and not to make recommendations or directives.

Unless otherwise stated, the views expressed on this Web site are not necessarily the official views of the Society or its Committee and are not simply an endorsement of products or services.

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Resignation Notice

Monday 9 May 2016

 

From ME/CFS Australia (SA) Inc's president James Hackett:

 

ME/CFS Australia (SA) Inc
 

Resignation Notice

From the keyboard of ME/CFS Australia (SA) President, James Hackett

Sunday, 8th May 2016

Dear members and friends,

It is with some disappointment that health and personal reasons are causing me to need to resign my position as president.

I have had ME for ten years. I have been volunteering for the society for nine of those, and president for nearly seven.

When the president’s position became vacant, the committee encouraged me to take it. I cautiously accepted, as a kind of caretaker president, on the basis that my health was not good, and that I would do the best I could under that constraint, while hoping that a non-sufferer living in Adelaide could be found to take over.

As we all know too well, the ME/CFS environment is complex and often difficult. A lot of the work has been challenging and often not good for my health or wellbeing; the same goes for many volunteering ME/CFS sufferers. A lot goes on behind the scenes. However, I have also had a lot of satisfaction from the work we have done, and I’ve enjoyed a lot of it. Over the last seven years, we have introduced a number of successful initiatives, some of which have been adopted by other ME/CFS organisations. I’ve made a lot of great friends and I’ve enjoyed being a part of a team working to help people who generally don’t get a lot of support, despite their desperate need.

When I started, we had just lost the regular $12,000 donations (from Mrs Miller) that had been previously keeping us afloat. We needed to adapt to avoid running out of funds – we had 5 years left, at the rate we were going. The Membership by Donation system, with the generosity of our membership, meant that we are now in a better financial position than we were, while relieving the burden on those who need our help but can’t afford to pay more. Ideally, we’d prefer not to charge for membership at all, but we need to find corporate or government funding to support that.

There is still a long way to go and I’m sorry I can’t stay any longer to help further, but I intend to continue volunteering in another capacity, if and when circumstances permit.  Most of the work has been prepared for a political and public campaign to promote the illness and the society’s need for support, and I think that has potential to make a significant difference.

I’ve always enjoyed volunteering and I recommend it, if your health permits. There are a number of small jobs that can be done from home at a time that suits you. If you can volunteer or know someone else who can help, please let the society know. We have a good group of long-serving volunteers, but could do with more and new committee members, and in particular of course a new president. My own feeling is that an ideal president would be a relative of a sufferer with a professional background, someone who has the energy we lack, to follow through with some of the great ideas and initiatives already in the pipeline. If you know of someone who may fit the bill, please ask them to talk to us.

Finally, I’d like to thank everyone who has shown their appreciation and support for our efforts, and my friends in the society for all of their help and support over the years. I wish you all the best and I hope the society can continue to provide the services it does while adapting to the difficulties, and continuing to grow.  I will remain in contact and attend the seminars when able, so look forward to maintaining the many friendships I’ve made during my time with the society.

There are so many people I’m grateful to. I can’t thank them all here but I'm particularly thankful to the stalwart regulars. Aside from my gratitude for them, I’m sure the Nordic Noir discussions and musical detours will continue with the Peters and Mel. There’s no stopping John and his perpetual, pun machine’s comic relief. The Langmans’ (?Langmen) Polish delicacies and hospitality, and Emma’s constant, selfless support has also been greatly appreciated. Thank you, to you all.

Best wishes,

James Hackett

 

 


 

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