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ME/CFS SOUTH AUSTRALIA INC

Registered Charity 3104

Email:
sacfs@sacfs.asn.au

Mailing address:

PO Box 322,
Modbury,
South Australia 5092

Phone:
1300 128 339

Office Hours:
Monday - Friday,
10am - 4pm
(phone)

ME/CFS South Australia Inc supports the needs of sufferers of Myalgic Encephalomyelitis, Chronic Fatigue Syndrome and related illnesses. We do this by providing services and information to members.

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ME/CFS South Australia Inc aims to keep members informed of various research projects, diets, medications, therapies, news items, etc. All communication, both verbal and written, is merely to disseminate information and not to make recommendations or directives.

Unless otherwise stated, the views expressed on this Web site are not necessarily the official views of the Society or its Committee and are not simply an endorsement of products or services.

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Jodi Bassett

Tuesday 14 June 2016

 

Please note: This article contains references to death. If you have feelings of helplessness, or of suicidal thoughts, seek help immediately. Lifeline is an excellent starting point: Lifeline – Suicide Prevention resources and links.

 

ME/CFS sufferer Jodi Bassett, founder of A Hummingbird's Guide To M.E., has died.

From Australian newspaper The West Australian:

 

Hummingbirds
 

Jodi BASSETT

Obituary

BASSETT (Jodi Lyn):

Our darling, beautiful Jodi, left us on June 11, at home, with her family beside her.

She was a talented artist, author and HFME activist. She was the most amazing, caring, intelligent, and funny person and we will miss her always.

Her beautiful spirit is now flying free.

May the winds of love blow softly And whisper for you to hear That we will always love you And forever keep you near.

All our love Mum, Dad, Claire Dan and Leila, Mark Betty and Reece.

Published in The West Australian on June 13, 2016.

'The West Australian' is a trademark of West Australian Newspapers Limited 2014. All rights reserved.

 

Full article…

 

And from Health Rising:

 

Jodi Bassett
 

Jodi Bassett : Creator of Hummingbirds Foundation For M.E. Is Dead at the Age of 39*

By Cort Johnson
June 14, 2016

Jodi Basset, longtime Australian M.E. patient, author and advocate has died. She was either 39/40 years old*. She had been illl with a severe case of M.E. for over 20 years. Her cause of death was not stated.

Jodi Basset came down with M.E. in 1995 at the age of 19. She described her onset on the Hummingbird's website:

I went from feeling normal one day to having horrific cognitive and physical problems to deal with the next. It just came out of nowhere. My brain, my body and my whole life changed in an instant.

"I suddenly had severe problems sleeping, thinking and remembering, speaking and understanding speech, eating many foods that I previously tolerated perfectly well, coping with even low levels of noise and light and vibration, coping with warm weather, sitting, with my heart and blood pressure, with any type of physical or cognitive activity causing severe relapse unless within very strict limits as well as memory loss, facial agnosia, learning difficulties, severe pain, alcohol intolerance, blackouts and seizures, intense unusual headaches, burning eyes and ear pain, rashes (and other skin problems), severe nausea and vertigo, total loss of balance when I closed my eyes or the room was dark, muscle weakness and paralysis, and so on."

I felt like I had had a stroke or been in a car accident and sustained a lot of serious brain damage. Of course it wasn't a stroke or a car accident but it was sudden and severe brain damage - 10 years later I even have the MRI scans to prove it.

After being prescribed exercise therapy her disease rapidly progressed until she was severely ill. For the past 15 years or so she had to spend most of her time in bed.

"What was initially a mild/moderate case of M.E. ended up as a severe one around 4 years later (and remains so today). I am still paying the price for that terrible advice more than 10 years later and probably will for the rest of my life unfortunately."

 

Full article...

 


 

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