ME/CFS South Australia Inc: Canada - Officials Turn Down Grant Application Because CFS "Isn't Real"

ME/CFS SOUTH AUSTRALIA INC

Registered Charity 3104

Email:
sacfs@sacfs.asn.au

Mailing address:
PO Box 322,
Modbury North,
South Australia 5092

Phone:
1300 128 339

Office Hours:
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10am - 4pm
(phone)

ME/CFS South Australia Inc supports the needs of sufferers of Myalgic Encephalomyelitis, Chronic Fatigue Syndrome and related illnesses. We do this by providing services and information to members.

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Canada: Officials Turn Down Grant Application Because CFS "Isn't Real"

Monday 29 August 2016

CANADA: OFFICIALS TURN DOWN GRANT APP BECAUSE CFS “ISN’T REAL”

By Jaime S
August 26, 2016
Copyright © 2015 The Myalgic Encephalomyelitis Action Network, All Rights Reserved

For many months the Canadian Institutes of Health Research, the Canadian equivalent to the NIH, has advised that:

“The IMHA [the Institute of Musculoskeletal Health and Arthritis] has committed to supporting the creation of a national network for translational research in ME/CFS in 2016-2017. This network will facilitate capacity building and provide a forum to discuss ideas and share best practices. It will also provide the infrastructure needed to undertake therapeutic and diagnostic clinical studies in Canada. In addition, this network will set the stage for future international collaborations. The IMHA continues to participate in ongoing discussions with the National Institutes of Health to synergize research activities in ME/CFS in Canada and the United States.”

The catalyst grant for ME/CFS offered $200,000 each year for three years. There was only one application for the grant, which was rejected: “The committee’s main concern with the application was that the focus on biomarkers (vs. psychosocial and non-biomarker influences) might produce information with limited value in terms of its impact on outcomes and care,” said Margaret Palor, President of the ME/FM National Action Network.