|
ME/CFS South Australia Inc supports the needs of sufferers of Myalgic Encephalomyelitis, Chronic Fatigue Syndrome and related illnesses. We do this by providing services and information to members.
Disclaimer
ME/CFS South Australia Inc aims to keep members informed of various research projects, diets, medications, therapies, news items, etc. All communication, both verbal and written, is merely to disseminate information and not to make recommendations or directives.
Unless otherwise stated, the views expressed on this Web site are not necessarily the official views of the Society or its Committee and are not simply an endorsement of products or services.
| Become a Member | ||||
|
||||
Society Reponse To Advertiser Article
Sunday 4 September 2016
An article entitled "'Yuppie flu' is real, say researchers" appeared in South Australian newspaper The Advertiser on Wednesday 31 August. (A longer version of that article appeared in the Scottish Daily Mail.)
The Society wrote the following Letter to the Editor in reply, but it was not published.
 |
Letter To The Editor
Thank you for reporting on the latest ground breaking research into Myalgic Encephalomyelitis / Chronic Fatigue Syndrome (ME/CFS).
It is disappointing that headings like yours, It is real, and the use of Yuppie Flu are recycled when the US Institute of Medicine stated in their Feb 2015 report, after looking at over 9,000 scientific papers, ME/CFS is a serious, chronic, complex, systemic disease that often can profoundly affect the lives of patients. South Australian scientists who contribute to ME/CFS research have long understood how real it is.
For over 7,000 South Australians with ME/CFS, 25% of whom are housebound or bedbound, everyday tasks like showering, sitting up or reading can exacerbate symptoms. The ability to participate in life is severely restricted and can be profoundly isolating. The author of this new research lists seven affected bodily systems, including metabolism, immunity, and the autonomic nervous system, each of which produces disabling symptoms. For people with this illness, every aspect of functioning is disrupted.
Please consider introducing ME/CFS news with the same respect you would afford other disabling conditions.
blog comments powered by Disqus
Previous Page |
Registered Charity 3104
Email:
sacfs@sacfs.asn.au
Mailing address:
PO Box 322,
Modbury North,
South Australia 5092
Phone:
1300 128 339
Office Hours:
Monday - Friday,
10am - 4pm
(phone)