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ME/CFS SOUTH AUSTRALIA INC

Registered Charity 3104

Email:
sacfs@sacfs.asn.au

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ME/CFS South Australia Inc supports the needs of sufferers of Myalgic Encephalomyelitis, Chronic Fatigue Syndrome and related illnesses. We do this by providing services and information to members.

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12th IACFSME Conference Report

Friday 11 November 2016

 

From IACFS/ME (via email):

 

Dr. Rosamund Vallings
Dr. Rosamund Vallings
 

12th IACFSME CONFERENCE

October 27-30, 2016

By Dr. Rosamund Vallings
October 27-30, 2016
© 2016 IACFS/ME

The conference, opened by the president Fred Friedberg (NY, USA), was a day for patients, while the medical and research professionals could attend a series of workshops.

The keynote speaker for the opening address at the patient conference was given by Vicky Whittemore from the NIH, where she heads the National Institute of Neurological Disorders and Stroke, (USA). She explained how the NIH is set up with 27 institutes and centres. She has been there for 5 years, and is a programme director in the extramural division.

A current study is recruiting 40 ME/CFS patients who are within 5 years of diagnosis. There will be an extensive analysis with bio-specimen collection. (www.mecfs.ctss.nih.gov/). There will be seminars for education of staff. The whole programme was revitalised in October 2015. They are developing goals involving: collaboration, research, awards, fostering international collaboration etc.

If applying for funding, there would be a request for information – short term, intermediate term and long-term. (www.nih.gov/mecfs). There is a power point presentation on the NIH website. The top 14% of applicants get accepted and then the next 14-24% are good quality applications, but are usually turned down.

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