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ME/CFS Australia Ltd
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ME/CFS AUSTRALIA (SA) INC

Registered Charity 3104

Email:
sacfs@sacfs.asn.au

Mailing address:
PO Box 322,
Modbury North,
South Australia 5092

Office:
Suite 506,
North Terrace House,
19 North Terrace,
Hackney, SA, 5069


Phone:
1300 128 339

Office Hours:
Wednesdays, 11am-3pm

ME/CFS Australia (SA) Inc supports the needs of sufferers of Myalgic Encephalomyelitis, Chronic Fatigue Syndrome and related illnesses. We do this by providing services and information to members.

Disclaimer

ME/CFS Australia (SA) Inc aims to keep members informed of various research projects, diets, medications, therapies, news items, etc. All communication, both verbal and written, is merely to disseminate information and not to make recommendations or directives.

Unless otherwise stated, the views expressed on this Web site are not necessarily the official views of the Society or its Committee and are not simply an endorsement of products or services.

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To Survive Chronic Illness, I Needed Permission To Grieve For Myself

Saturday 13 May 2017

 

From The Sydney Morning Herald:

 

Naomi Chainey
The author, Naomi Chainey, needed to grieve for
the woman she once was in order to accept the future
of the woman she became once she had ME/CFS.
 

To survive chronic illness, I needed permission to grieve for myself

Naomi Chainey
May 12, 2017
Copyright © 2017 Fairfax Media

I will never forget the abject fear I felt when I first fell ill with ME/CFS – the illness also known as myalgic encephalomyelitis, or chronic fatigue syndrome. My mind and body were losing function. The time I could spend on any given activity before collapsing was reducing rapidly. Everything was heavy, as though gravity had been dialled up to a thousand. My digestive system came close to a total halt. I was nauseated and dizzy and aching.

The world was louder and brighter and moving faster than I could physically process anymore, and everything from eggs to shampoo suddenly smelled awful. My throat and eye sockets hurt. I couldn't concentrate and struggled to recall numbers and names. I remember staring at my sister in horror one day, unable to put a name to her face.

I was genuinely afraid that I was dying, but the tests all came back normal and medical professionals were only able to offer a collective shrug. My distress was met with confusion rather than empathy. Screaming and waving for help in a crowded room, I was invisible and no one could hear.

 

Full article…

 


 

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