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Solve ME/CFS Initiative Bulletin: Tom Camenzind

Wednesday 30 August 2017


From the Solve ME/CFS Initiative (via email):


Tom Camenzind
Tom Camenzind

Solve ME/CFS Initiative News Bulletin

August 30, 2017

In 2015, Tom Camenzind appeared to have it all. He was an accomplished sophomore at Stanford University. But one day, things went horribly wrong. His health deteriorated rapidly and the diagnosis was heartbreaking: he had ME/CFS.

Today, Tom cannot speak. He is frozen in time, bedridden and unable to stand light, sound or touch. But if there is one tiny silver lining, it is that the world is about to learn of his plight – shedding light on this disease well beyond our ME/CFS community.

Severely ill patients like Tom cannot speak for themselves; we are determined to speak to the world for them.

A national, televised program on Tom’s plight airs this weekend on the show, “The White House Chronicles,” with host Llewellyn King. This new, half-hour program includes heartrending interviews with Tom’s parents and powerful comments from SMCI President Carol Head.

This half-hour feature will air nationally this weekend. To find out where you can watch or hear the program this weekend, go HERE.


Full article…



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