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ME/CFS AUSTRALIA (SA) INC

Registered Charity 3104

Email:
sacfs@sacfs.asn.au

Mailing address:
PO Box 322,
Modbury North,
South Australia 5092

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North Terrace House,
19 North Terrace,
Hackney, SA, 5069


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ME/CFS Australia (SA) Inc supports the needs of sufferers of Myalgic Encephalomyelitis, Chronic Fatigue Syndrome and related illnesses. We do this by providing services and information to members.

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I Made A Film From My Bed To Show My Illness Is Real

Friday 10 November 2017

 

From BBC News:

 

Jennifer Brea
Jennifer Brea
(Photo: Jason Franks)
 

I made a film from my bed to show my illness is real

By Natasha Lipman
9 November 2017
Copyright © 2017 BBC

Five years ago, Jennifer Brea was struck down by ME (Myalgic Encephalomyelitis), and found herself bed-bound, a prisoner in her own body. Now, she has invited the world on an intimate journey into a condition that some deny even exists, interviewing fellow patients from all over the world - from her sickbed. She spoke to the BBC's Natasha Lipman.

As the opening credits roll on the documentary, Unrest, we see filmmaker Jennifer Brea lying on the floor of her bedroom, eyes glazed over, as she stares apparently peacefully at the camera. Then, with arms shaking, gasping for breath, she tries to pull herself up, managing only a few inches before she collapses back on the floor. Eventually she is able to crawl slowly to her bed, before dropping the camera, collapsing with relief and fatigue.

Episodes like this initially came as a shock for Brea. Seemingly out of nowhere, she would suddenly lose all muscle force, unable to move her body, or even lift her head. She struggled to get words out, let alone form sentences, and even the smallest exertion would have knock-on effects that lasted for days, weeks, or even months.

"I'd never been sick before and so I had this sense of abundance of health and body and life. I had never really heard about ME or people becoming ill in their 20s - it just wasn't a part of my awareness. So I never imagined that something like this could happen to me."

 

Full article…

 


 

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