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ME/CFS AUSTRALIA (SA) INC

Registered Charity 3104

Email:
sacfs@sacfs.asn.au

Mailing address:
PO Box 322,
Modbury North,
South Australia 5092

Office:
Suite 506,
North Terrace House,
19 North Terrace,
Hackney, SA, 5069


Phone:
1300 128 339

Office Hours:
Wednesdays, 11am-3pm

ME/CFS Australia (SA) Inc supports the needs of sufferers of Myalgic Encephalomyelitis, Chronic Fatigue Syndrome and related illnesses. We do this by providing services and information to members.

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ME/CFS Australia (SA) Inc aims to keep members informed of various research projects, diets, medications, therapies, news items, etc. All communication, both verbal and written, is merely to disseminate information and not to make recommendations or directives.

Unless otherwise stated, the views expressed on this Web site are not necessarily the official views of the Society or its Committee and are not simply an endorsement of products or services.

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This Life With Gracie: What Is Chronic Fatigue Syndrome?

Wednesday 29 November 2017

 

From US newspaper The Atlanta Journal-Constitution:

 

Liz Burlingame
Liz Burlingame of Dunwoody is pictured near her wheelchair
at the state Capitol, where a Millions Missing rally was held
last year to increase awareness about chronic fatigue
syndrome, also known as myalgic encephalomyelitis
or ME/CFS. Burlingame, 49, was diagnosed
with the disease when she was 24.
(CONTRIBUTED)
 

This Life with Gracie: What is chronic fatigue syndrome?

By Gracie Bonds Staples
Tuesday, November 28, 2017
© 2017 Cox Media Group.

Chronic fatigue syndrome.

For more than two decades, those three words have consumed Liz Burlingame because, well, words mean something.

They convey feelings and connote action. They can comfort or cause pain. They can be our best friend or our worst enemy, failing us completely.

That’s how Burlingame feels every time she tries to explain this thing that sent her back to her parents’ home in her 20s, unable to work, and barely able to get out of bed.

“The words are all wrong,” she said during a bedside interview at her home in Dunwoody recently.

Not only do they fail to describe the utter exhaustion she lives with, Burlingame, 49, believes those three little words could one day cost her her life.

Why?

 

Full article…

 


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