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Epidemiology Of Paediatric Chronic Fatigue Syndrome In Australia

Tuesday 26 February 2019


From Archives of Disease in Childhood:



Epidemiology of paediatric chronic fatigue syndrome in Australia

Sarah Knight1,2,3, Shane Elders1, Jill Rodda1, Adrienne Harvey1, Lionel Lubitz4, Kathy Rowe5, Colette Reveley4, Sabine Hennel6, Susan Towns7, Kasia Kozlowska7, Donald N Payne8,9, Sonya Marshall-Gradisnik10, Adam Scheinberg1,2,3
Copyright © 2018 BMJ Publishing Group Ltd & Royal College of Paediatrics and Child Health. All rights reserved.


Objective To estimate the paediatrician-diagnosed incidence of chronic fatigue syndrome (CFS) in Australia, and describe demographic and clinical features, as well as approaches to diagnosis and management.

Methods The Australian Paediatric Surveillance Unit facilitates monthly national surveillance of uncommon conditions seen by paediatricians. Data from young people aged <18 years diagnosed with CFS were collected. Incidence was estimated based on new cases reported from April 2015 to April 2016.

Results A total of 164 cases of newly diagnosed CFS in young people aged 4–17 years were identified for inclusion. The estimated national incidence for children aged 4–9 years was 0.25 per 100 000 per annum. In children aged 10–17 years, the estimated incidence of paediatrician-diagnosed cases for Victoria (17.48 per 100 000) was substantially greater than other Australian states (range 1.31–5.51 per 100 000). Most cases were female and Caucasian, most commonly presenting after an infectious illness with symptoms gradual in onset. The majority were diagnosed at least 13 months after symptom onset. Symptoms, associations, investigations and management strategies were highly variable.

Conclusions Current findings suggest that, consistent with other countries, the Australian incidence of CFS in children aged <10 years is very low. In contrast, the national incidence of CFS in older children and adolescents (aged 10–17 years) is more unclear, with marked variability between geographical regions apparent. This may be due to variation in service accessibility and clinician understanding of CFS. Accordingly, national initiatives to improve equity of care for children with CFS may be required.


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