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ME/CFS Australia Ltd
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Registered Charity 3104


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PO Box 322,
Modbury North,
South Australia 5092

1300 128 339

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ME/CFS South Australia Inc supports the needs of sufferers of Myalgic Encephalomyelitis, Chronic Fatigue Syndrome and related illnesses. We do this by providing services and information to members.


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How Chronic Illness Has Changed Me – And How I've Stayed The Same

Sunday 14 April 2019


From ProHealth:



How Chronic Illness Has Changed Me – And How I’ve Stayed The Same

By Suzan L. Jackson
April 9, 2019
Copyright © 2019 ProHealth, Inc. All rights reserved.

Seventeen years ago on March 2, 2002, I suddenly became ill with what I thought was the flu. In a story that is probably familiar to most people reading this, I had no idea that my life had just dramatically changed, forever divided into “Before” and “After.” I went through all the usual stages: searching for a diagnosis, disbelief that I was still sick, anger and frustration that I couldn’t do the things I needed to do, and confusion that I felt OK on some days and debilitated on others. When a new primary care doctor diagnosed me correctly with ME/CFS (chronic fatigue syndrome) a year later, I was both relieved to have a name for my disease and also horrified that I was now “chronically ill.”

Although there’s no cure, over the past 17 years, I have gradually found, with the help of my doctors, various ME/CFS treatments and symptom management techniques that have each provided small benefits, adding up over time to enough improvement that I can live my life again. I am writing, taking care of my family, getting together with friends, and managing the enormous and convoluted mess that is my illness (and my son’s, too). I am not completely well and ME/CFS recovery is still a dream, but I am functioning fairly well compared to where I was, and I am living an active and happy life and doing things I enjoy, albeit with restrictions.

It’s not just my physical body that has changed, though. Living within the limits of chronic illness every day for almost two decades has changed me in other ways, too, though my essence is still the same. Some of these changes have been difficult or even heartbreaking, but most of them have been positive—things I never would have experienced if I had continued my hectic pre-illness life.


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