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ME/CFS Australia Ltd
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ME/CFS South Australia Inc supports the needs of sufferers of Myalgic Encephalomyelitis, Chronic Fatigue Syndrome and related illnesses. We do this by providing services and information to members.


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Raising Awareness On Myalgic Encephalomyelitis

Friday 19 April 2019


From US newspaper the Moultrie News:



Raising awareness on Myalgic Encephalomyelitis

Apr 8, 2019 Updated Apr 14, 2019
© 2019, Moultrie News, an Evening Post Industries company. All rights reserved.

On April 23, at 5 p.m. at Charleston City Hall, 80 Broad Street, in council chambers, Mayor John Tecklenburg will read the Proclamation declaring May as ME Awareness Month and May 12, as ME Awareness Day. Councilman White recognized the importance of raising awareness about ME and introduced the Proclamation.

ME, previously known as Chronic Fatigue Syndrome, is a severe, chronic neuro-immune disease manifest by dysfunction of the neurological, immune, endocrine and energy metabolism systems. There are no available diagnostic tests, no FDA-approved treatments and no cure. ME affects 16 to 39 thousand SC residents, up to 2.5 million Americans and 17-20 million worldwide. Despite its prevalence, ME has long lived in the shadows and has been stigmatized as a psychogenic illness, with those afflicted viewed as lazy or malingering rather than having a serious medical disease.

All of this changed in 2015 when the Institute of Medicine, now the National Academy of Medicine, declared that “ME is a serious, chronic, complex, systemic disease that can profoundly affect the lives of patients.” And according to Dr. Francis S. Collins, Director of the National Institutes of Health, “Of the many mysterious illnesses that science has yet to unravel, ME has proven to be one of the most challenging.”

Securing a City Proclamation was a grassroots effort by people with ME to raise awareness about the lack of health equality for ME patients, many of whom have spent decades homebound and bedridden with little or no assistance. Some patients are so weak they cannot feed themselves.


Full article…



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