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ME/CFS SOUTH AUSTRALIA INC

Registered Charity 3104

Email:
sacfs@sacfs.asn.au

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When 'The Horrible Monster' Called On Kaye

Sunday 21 April 2019

 

From New Zealand news outlet SunLive:

 

Bev and Kaye Dickson
Kaye Dickson (right) and her rock, Mum Bev.
“She fought for me and supported me.”
 

When ‘the horrible monster’ called on Kaye

Saturday 20 April, 2019
Copyright © Sun Media Ltd 2019.

“Yeah, yeah, we know that.”

Bev Dickson has just been reminded of some desperately dark times in her daughter’s 30-year struggle with ME, myalgic encephalomyelitis or chronic fatigue syndrome.

Wretched times that took daughter Kaye, right to the brink. Bev doesn’t really want to go back there. The head goes down.

“You have to understand that 30 years ago we went to a doctor who hinted Kaye had Tapanui Flu,” says Bev. Colloquially called Tapanui flu after a cluster of people in the Otago town suffered debilitating fatigue in the 1988s, it wasn’t recognised as a genuine medical condition. “The doctor hinted, but wouldn’t acknowledge she had it,” says Bev. “He wouldn’t diagnose it. He was frightened to.”

And it caused confusion, frustration and fear for both mother and daughter. “It got very close,” admits Kaye. “And I am certain that had it not been for my parents, I would not be here today.” She had been considering a way out.

Bev nods. She knew about it. “You just wish the ME would go away.” The ‘horrible monster’ she calls it. “But at the same time we have always been here for Kaye.”

Bev’s role changed forever in 1989. The mother to a bubbly, carefree spirit suddenly became a carer when Kaye got glandular fever – often viruses are precursors to chronic fatigue syndrome.

 

Full article…

 


 

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