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'My Daughter, 21, Who Died Weighing Five-And-A-Half Stone, Had ME On Her Death Certificate – Yet Some Still Say It's Not Real'

Wednesday 8 May 2019


Please note: This article contains references to death. If you have feelings of helplessness, or of suicidal thoughts, seek help immediately. Lifeline is an excellent starting point: Lifeline – Suicide Prevention resources and links.


From UK news outlet iNews:


Merryn Crofts
Merryn Crofts had an agonising six-year battle
with severe myalgic encephalomyelitis.
(Photo: Clare Norton)

‘My daughter, 21, who died weighing five-and-a-half stone, had ME on her death certificate – yet some still say it’s not real’

The mother of Merryn Crofts believes attitudes about the disease haven't changed since her daughter's death two years ago

By Claudia Tanner
Saturday May 4th 2019
© 2019. All rights reserved.

In brief

  • Merryn was bed-bound for the last three years of her life
  • Then she suffered problems with her stomach and ability to swallow
  • Her neurologist told her mother 'ME is not a real disease'
  • Only second person in the UK to have ME listed on a death certificate

Clare Norton struggles to talk about the day her “beautiful” and “energetic” daughter took her last breaths just days after her 21st birthday.

As a mother, she’d felt helpless as she watched Merryn’s agonising six-year fight with severe myalgic encephalomyelitis, known as ME.

The disease had left her bed-bound for the last three years and forced to lie permanently in the dark in her bedroom with ear plugs in – hyper-sensitivity to noise, sound and touch caused her agony.

Problems swallowing and with her stomach meant that her weight plummeted to just five-and-a-half stone, and she needed to be tube fed.

Last year, Merryn, became only the second person in the UK to have ME – also known as chronic fatigue syndrome – listed on a death certificate.


Full article…



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