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ME/CFS South Australia Inc supports the needs of sufferers of Myalgic Encephalomyelitis, Chronic Fatigue Syndrome and related illnesses. We do this by providing services and information to members.
Disclaimer
ME/CFS South Australia Inc aims to keep members informed of various research projects, diets, medications, therapies, news items, etc. All communication, both verbal and written, is merely to disseminate information and not to make recommendations or directives.
Unless otherwise stated, the views expressed on this Web site are not necessarily the official views of the Society or its Committee and are not simply an endorsement of products or services.
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Book: A Girl Behind Dark Glasses
Thursday 4 July 2019
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A Girl Behind Dark Glasses
Synopsis
From a darkened world, bound by four walls, a young woman called Jessica tells the tale of her battle against the M. E. Monster. The severest form of a neuroimmune disease called Myalgic Encephalomyelitis went to war with her at just 15 years old. From beneath her dark glasses, Jessica glimpses a world far different from the one she remembers as a teenage schoolgirl. This true story follows her path as she ends up living in a hospital for years with tubes keeping her alive.
This harrowing story follows the highs and lows of the disease and being hospitalised, captured through her voice-activated technology diary called “Bug” that enables her to fulfil her dream of one day becoming an author. It provides a raw, real-time honesty to the story that would be impossible to capture in hindsight.
Authors Biography
At the age of 15, she became acutely unwell with an illness called Myalgic Encephalomyletis (M.E). She was continuously hospitalised from 2006-2010, suffering with the most severe form of the condition. This included her being bedridden, unable to move, speak, eat and more. She began to write in her mind, and when finally able to speak again, she began to write through her audio diary ‘Bug’. Jessica released her debut bestselling book ‘A Girl Behind Dark Glasses’ in 2017.
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