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ME/CFS South Australia Inc supports the needs of sufferers of Myalgic Encephalomyelitis, Chronic Fatigue Syndrome and related illnesses. We do this by providing services and information to members.
Disclaimer
ME/CFS South Australia Inc aims to keep members informed of various research projects, diets, medications, therapies, news items, etc. All communication, both verbal and written, is merely to disseminate information and not to make recommendations or directives.
Unless otherwise stated, the views expressed on this Web site are not necessarily the official views of the Society or its Committee and are not simply an endorsement of products or services.
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Severely Ill Galiano Island Woman Turned Away From Assisted Living Due To 'Unscheduled Care Needs'
Wednesday 10 July 2019
 Jemma Lee stands in front of her small home on Galiano Island. She suffers from a debilitating illness called myalgic encephalomyelitis, and has had four applications for assisted living rejected. (Jemma Lee (Submitted)) |
Severely ill Galiano Island woman turned away from assisted living due to 'unscheduled care needs'
'I’m a prisoner in my own home,' says Jemma Lee, who has a neuroinflammatory disease.
Jemma Lee says she's had problems with fatigue her entire life, but in the last decade migraines and frequent bouts of the flu have turned that fatigue into a new beast.
The 52-year-old was diagnosed three years ago with extreme myalgic encephalomyelitis (M.E.), a neuroinflammatory disease known to many as chronic fatigue syndrome. It causes extreme tiredness and affects various body systems to the point where Lee says she is "unable to move."
Lee was shocked to learn recently that her four applications for assisted living in Victoria have been declined by the Vancouver Island Health Authority due to "unscheduled care needs."
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Registered Charity 3104
Email:
sacfs@sacfs.asn.au
Mailing address:
PO Box 322,
Modbury North,
South Australia 5092
Phone:
1300 128 339
Office Hours:
Monday - Friday,
10am - 4pm
(phone)