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ME/CFS South Australia Inc supports the needs of sufferers of Myalgic Encephalomyelitis, Chronic Fatigue Syndrome and related illnesses. We do this by providing services and information to members.
Disclaimer
ME/CFS South Australia Inc aims to keep members informed of various research projects, diets, medications, therapies, news items, etc. All communication, both verbal and written, is merely to disseminate information and not to make recommendations or directives.
Unless otherwise stated, the views expressed on this Web site are not necessarily the official views of the Society or its Committee and are not simply an endorsement of products or services.
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Please Stop Trying To 'Fix' My ME/CFS
Monday 22 July 2019
From The Mighty (via Yahoo! Lifestyle):
 photo of the author wearing a pink scarf and a jacket indoors |
Please Stop Trying to 'Fix' My ME/CFS
When you become ill, all you want is for others to be compassionate and understanding. Yet when you come down with something like ME (myalgic encephalomyelitis), that not even your doctor comprehends, it’s a different story. Others are quick to pass judgment, believing you are somehow causing your misfortune or not trying hard enough to turn it around. In brutal terms, they see you as failing at life. (I know this, as I was healthy once and conditioned to think this way, too.) Worse still, people think they know better than us because they are well – so they must be doing things right and we must be doing something wrong – but I believe we were dealt a bad hand and they were lucky.
They patronize us by offering bits of trivia they’ve read in women’s magazines: “You should eat more turmeric… Have you tried juicing carrots?… What about acupuncture?” Seeing me use a wheelchair intermittently, onlookers assume I am simply deconditioned, and suggest physiotherapy, as if I don’t have the sense to come up with that myself. The fundamental flaw in that plan is that exercise can exacerbate symptoms of ME! Or more commonly, friends guess I am “just depressed,” and pressure me with positive psychology and sermons on the mind-body connection (yes, I’ve heard of it, thanks!).
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Registered Charity 3104
Email:
sacfs@sacfs.asn.au
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Modbury North,
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