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UK Teenager With Severe ME Threatened With Forced Institutionalization

Sunday 28 July 2019


From #MEAction:




By #MEAction
July 24, 2019
© 2019 The Myalgic Encephalomyelitis Action Network, All Right Reserved.

The ME community is rallying around 17-year-old Jehan “Gigi” who has been hospitalized with severe myalgic encephalomyelitis (ME) in the UK, and is now being threatened with being sectioned – forced institutionalization – against her will to a psychiatric hospital for her inability to eat, speak or walk due to the effects of severe ME against her will.

Gigi’s doctor has dismissed her symptoms of severe ME and has, instead, diagnosed her with Pervasive Refusal Syndrome, meaning that she is either consciously, or subconsciously withdrawing from the world because of some trauma, real or imagined. Pervasive Refusal Syndrome is not a formally recognised mental illness and has no empirical basis or agreed-upon treatment. The doctor has told Gigi’s family to stop “colluding” with their daughter. ME, meanwhile, has been recognised by the World Health Organization (WHO) as a neurological disease since 1969.

The horror of Gigi’s situation is not an isolated incident as dozens of children with severe ME have been threatened with being sectioned in the UK and throughout Europe for being unable to snap out of their debilitating illness.

“Gigi is now desperate to come home,” writes her mother on the GoFundMe page she set up for Gigi. “We, her family, are desperate to have her home. We believe Gigi can best recover in the bosom of her family and not in a hospital ward, or God forbid, a psychiatric unit.”


Full article…



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