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ME/CFS SOUTH AUSTRALIA INC

Registered Charity 3104

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Anna Spends 22 Hours A Day In Bed. But Experts Hope They're Close To A Cure

Thursday 15 August 2019

 

From Australian newspaper The Age:

 

Anna Kerr
Anna Kerr has myalgic encephalomyelitis, a
highly-stigmatised and misunderstood condition
also known as chronic fatigue syndrome.
She spends more than 20 hours a day in bed.
(Photo Credit: Eddie Jim.)
 

Anna spends 22 hours a day in bed. But experts hope they're close to a cure

By 
August 14, 2019
Copyright © 2019.

Anna Kerr often spends up to 22 hours a day in a darkened room unable to get out of bed.

Following her first pregnancy, the Thornbury mother-of-two felt something was amiss. At first, it was a newfound reaction to wine and coffee, triggering nausea, weakness and heart palpitations.

Then came the endless and unexplained bouts of illness, like a re-occurring flu or virus that she couldn't shake, compounded by a sensitivity to bright light and sound. Some episodes were so severe she was bedridden.

Ms Kerr has myalgic encephalomyelitis (ME), a profoundly stigmatised and widely misunderstood condition, also known as chronic fatigue syndrome (CFS).

"I literally dropped out of life," Ms Kerr said. "I couldn't stand up. I couldn't cook. I couldn't put washing on. I couldn't even be with my kids very much because I was just so ill. It was devastating."

The complex condition affects up to 250,000 people in Australia, about a quarter of whom are so unwell they are confined to their beds and homes. But there is new hope for sufferers with the creation of Australia’s first biobank and registry.

 

Full article…

 


 

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