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ME/CFS Australia Ltd
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Registered Charity 3104


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PO Box 322,
Modbury North,
South Australia 5092

1300 128 339

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ME/CFS South Australia Inc supports the needs of sufferers of Myalgic Encephalomyelitis, Chronic Fatigue Syndrome and related illnesses. We do this by providing services and information to members.


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Why I'm Disappointed In The Lack Of Awareness About ME/CFS Almost 20 Years Post Diagnosis

Wednesday 18 September 2019


From The Mighty (via Yahoo! Lifestyles):


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of colors coming through it

Why I'm Disappointed in the Lack of Awareness About ME/CFS Almost 20 Years Post Diagnosis

Emma Tierney

September 12, 2019
© 2019 Yahoo-HuffPost Lifestyles Network.

We are 19 years on now from the year I was diagnosed with myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS). The year a GP said to me in the most patronizing of voices, “you need an exercise bike” during an appointment that I’d been carried into by my stepfather as I couldn’t walk or hold my own body up.

During the years I have lived with ME/CFS, this illness has seen me at varying levels. On one end of the spectrum I have been bedridden and completely unable to care for myself. A stage where I remember wondering how it was possible to feel so unwell and still be alive, every moment was excruciating and I literally felt trapped in my own body. This time saw me unable to feed myself, hold a conversation or sit up unaided.

I have also seen myself at higher functioning levels, stages were I can live a fuller life. Perhaps I’m able to take a gentle stroll in the countryside or meet a friend for a coffee, as long as I pace myself and take care not to over do it. At this level I can often appear perfectly OK to an outsider, especially with my hair and make up done, but beneath the surface symptoms and fatigue are always present. The slightest overexertion beyond my boundaries will see me relapse back into being unable to function once again.

ME/CFS can ruin lives; it can rob people of their dreams. It can stop people from living the life they yearn for. Yet, there is still a huge misunderstanding about the severe physical and psychological implications it imposes on people’s lives.


Full article…



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