|
ME/CFS South Australia Inc supports the needs of sufferers of Myalgic Encephalomyelitis, Chronic Fatigue Syndrome and related illnesses. We do this by providing services and information to members.
Disclaimer
ME/CFS South Australia Inc aims to keep members informed of various research projects, diets, medications, therapies, news items, etc. All communication, both verbal and written, is merely to disseminate information and not to make recommendations or directives.
Unless otherwise stated, the views expressed on this Web site are not necessarily the official views of the Society or its Committee and are not simply an endorsement of products or services.
| Become a Member | ||||
|
||||
Young Woman Spends 20 Hours A Day In Bed To Avoid Internal Decapitation
Wednesday 9 October 2019
Please note: This article contains references to death. If you have feelings of helplessness, or of suicidal thoughts, seek help immediately. Lifeline is an excellent starting point: Lifeline – Suicide Prevention resources and links.
From Australian TV news website 10 daily:
 Erin before she became unwell. (Image: Supplied.) |
Young Woman Spends 20 Hours A Day In Bed To Avoid Internal Decapitation
Erin Meegan has been bedridden since 2017.
The 34-year-old, who's originally from Molesey in the UK and is now based in Perth, risks internal decapitation -- the severing of the ligaments that attach the spine to the skull -- every time she moves her body.
To limit her chance of death, Erin spends 20 hours a day lying flat on her back.
After years of seeking answers, Erin has been diagnosed with a series of serious illnesses that could result in paralysis or death the longer they stay untreated.
Erin, together with her husband and primary carer Issac, are desperately fundraising to travel to Spain where she will receive life-saving surgery in November.
But their lives weren't always like this.
Erin is known by those that love her as a happy, active and determined individual. She relocated to Perth in 2013, where she met Issac.
In 2015 the pair married and embarked on a four-month-long honeymoon encompassing South-East Asia and the east coast of Australia.
Once Erin and Issac returned from their honeymoon they found a place to live and landed jobs in HR and engineering, respectively. Soon after Erin started to notice some issues with her health.
"It's not something that we would have anticipated. We were having fun, we were travelling and her health went downhill," Isaac told 10 daily.
Eventually, Erin was diagnosed with Chronic Fatigue Syndrome (CFS) but the treatments she was prescribed made her condition worse. Chronic Migraine and Cerebral Spinal Fluid Leak were also investigated and after countless MRI, X-Ray and CT scans the results were inconclusive.
blog comments powered by Disqus
Previous Page |
Registered Charity 3104
Email:
sacfs@sacfs.asn.au
Mailing address:
PO Box 322,
Modbury North,
South Australia 5092
Phone:
1300 128 339
Office Hours:
Monday - Friday,
10am - 4pm
(phone)