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ME/CFS SOUTH AUSTRALIA INC

Registered Charity 3104

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Young Woman Spends 20 Hours A Day In Bed To Avoid Internal Decapitation

Wednesday 9 October 2019

 

Please note: This article contains references to death. If you have feelings of helplessness, or of suicidal thoughts, seek help immediately. Lifeline is an excellent starting point: Lifeline – Suicide Prevention resources and links.

 

From Australian TV news website 10 daily:

 

Erin Meegan
Erin before she became unwell.
(Image: Supplied.)
 

Young Woman Spends 20 Hours A Day In Bed To Avoid Internal Decapitation

By Siobhan Kenna
10 daily News Reporter
Tuesday 8 October 2019
© 2019 Network Ten Pty Limited.

Erin Meegan has been bedridden since 2017.

The 34-year-old, who's originally from Molesey in the UK and is now based in Perth, risks internal decapitation -- the severing of the ligaments that attach the spine to the skull -- every time she moves her body.

To limit her chance of death, Erin spends 20 hours a day lying flat on her back.

After years of seeking answers, Erin has been diagnosed with a series of serious illnesses that could result in paralysis or death the longer they stay untreated.

Erin, together with her husband and primary carer Issac, are desperately fundraising to travel to Spain where she will receive life-saving surgery in November.

But their lives weren't always like this.

Erin is known by those that love her as a happy, active and determined individual. She relocated to Perth in 2013, where she met Issac.

In 2015 the pair married and embarked on a four-month-long honeymoon encompassing South-East Asia and the east coast of Australia.

Once Erin and Issac returned from their honeymoon they found a place to live and landed jobs in HR and engineering, respectively. Soon after Erin started to notice some issues with her health.

"It's not something that we would have anticipated. We were having fun, we were travelling and her health went downhill," Isaac told 10 daily.

Eventually, Erin was diagnosed with Chronic Fatigue Syndrome (CFS) but the treatments she was prescribed made her condition worse. Chronic Migraine and Cerebral Spinal Fluid Leak were also investigated and after countless MRI, X-Ray and CT scans the results were inconclusive.

 

Full article…

 


 

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