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ME/CFS South Australia Inc supports the needs of sufferers of Myalgic Encephalomyelitis, Chronic Fatigue Syndrome and related illnesses. We do this by providing services and information to members.
Disclaimer
ME/CFS South Australia Inc aims to keep members informed of various research projects, diets, medications, therapies, news items, etc. All communication, both verbal and written, is merely to disseminate information and not to make recommendations or directives.
Unless otherwise stated, the views expressed on this Web site are not necessarily the official views of the Society or its Committee and are not simply an endorsement of products or services.
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Suffering In Silence: Residents Struggle With Mysterious, Overlooked Chronic Illness
Wednesday 16 October 2019
From US newspaper the Leader-Telegram (via newswires):
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Suffering in Silence: Residents struggle with mysterious, overlooked chronic illness
Oct. 13--MENOMONIE -- Deborah Smith's life revolves around her family. Spending the past 19 years in Menomonie, the outgoing Smith home-schooled her children, encouraged their interests and helped them become involved at their local church.
For the past several years, though, Smith has taken a less active role in her family members' lives due to a draining, mysterious biological disease. Smith suffers from myalgic encephalomyelitis chronic fatigue syndrome, an illness without a known cause or cure.
She has a debilitating form of ME/CFS that makes it nearly impossible to speak and confines Smith to her bed. She cannot stand on her own and has not left home in more than two years.
Smith, a 52-year-old married mother of four, is not alone. According to a 2015 report from the Institute of Medicine -- now called the National Academy of Medicine -- an estimated 836,000 to 2.5 million Americans suffer from ME/CFS.
The World Health Organization and U.S. Centers for Disease Control and Prevention have acknowledged the illness for decades, but patients like Smith have often felt ignored by the medical community.
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Registered Charity 3104
Email:
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