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When My 4-Year-Old Inadvertently Summed Up What It's Like To Live With Chronic Illness

Thursday 31 October 2019


From The Mighty (via Yahoo! Lifestyle):


Woman and child
Mother and child daughter reading books in bed

When My 4-Year-Old Inadvertently Summed Up What It's Like to Live With Chronic Illness

By Ali
The Mighty
October 30, 2019
© 2019 Yahoo-HuffPost Lifestyles Network.

My 4-year-old has been sick for the last few days. There has been a lot of vomit, trips to the toilet and lethargy. It has really taken its toll on her little body, but there have also been a couple of moments where she has gently played and seemed to be getting better, until another wave of sickness hits.

My daughter has big emotions and loves to explain what she is thinking and feeling. In the midst of caring for her and listening to her, it struck me that her thoughts, feelings and explanations resonated strongly with me. I have been living with myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS) for almost four years now, and she was talking my language.

She came up to me looking pale and said, “Mum, I’m sick.”

“Where do you feel sick?” I asked.

All over me, every part of me is so so sick.”

I felt like replying “me too.” A common misconception is that ME is just about the fatigue and feeling tired part. Most days every part of me feels so sick all over. There are a few hours or sometimes days where I am having a good run, my symptoms subside and I can get out of the house. These are the islands of hope I cling to in the ocean of ME/CFS pain, fatigue and brain fog.


Full article…



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