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ME/CFS South Australia Inc supports the needs of sufferers of Myalgic Encephalomyelitis, Chronic Fatigue Syndrome and related illnesses. We do this by providing services and information to members.
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ME/CFS South Australia Inc aims to keep members informed of various research projects, diets, medications, therapies, news items, etc. All communication, both verbal and written, is merely to disseminate information and not to make recommendations or directives.
Unless otherwise stated, the views expressed on this Web site are not necessarily the official views of the Society or its Committee and are not simply an endorsement of products or services.
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Sussex ME Sufferer: 'I Had To Give Up My Business'
Wednesday 5 August 2020
 Colin Barton |
Sussex ME sufferer: 'I had to give up my business'
Concerns have been raised some Covid-19 patients could develop chronic fatigue syndrome in the long term if their recovery is not properly managed. Sussex ME Society chairman Colin Barton talks about his experiences with the condition.
BEFORE I became ill I used to manage a number of clubs and bars in Brighton and led a full and active life.
I became very ill in 1981 due to a mix of a viral illness and stress when I was running my own successful hotel business that I had to give up due to the physical and mental symptoms of the illness that often rendered me bedbound and in need of care. I well remember having to be helped around by our elderly housekeeper.
It took six years before I received the correct medical diagnosis after viewing the author and former yachtswoman Clare Francis interviewed on TV when she went public about having ME. I believe that this saved my life as by this time I was in a very sorry state of health and much of my capital had dried up due to being unable to work.
Although I am really much better now after learning how to manage the illness I still cannot function physically or mentally for any useful period of time and have to avoid stress. I had to accept that I would not be able to live as I used to and reduce my ambitions.
Although I felt rather let down by the medical profession I don’t believe I am bitter and am pleased that things have changed for the better over recent times for many people affected by the illness.
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Registered Charity 3104
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