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ME/CFS South Australia Inc supports the needs of sufferers of Myalgic Encephalomyelitis, Chronic Fatigue Syndrome and related illnesses. We do this by providing services and information to members.
Disclaimer
ME/CFS South Australia Inc aims to keep members informed of various research projects, diets, medications, therapies, news items, etc. All communication, both verbal and written, is merely to disseminate information and not to make recommendations or directives.
Unless otherwise stated, the views expressed on this Web site are not necessarily the official views of the Society or its Committee and are not simply an endorsement of products or services.
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Living With Chronic Illnesses A Daily Battle
Thursday 10 September 2020
From New Zealand news outlet SunLive:
 Arlene Olson with her daughter who also lives with the same illnesses. (Supplied photo.) |
Living with chronic illnesses a daily battle
There are tears in Arlene Olson’s eyes as she describes the past few years she’s been through.
“My mother died, then my sister and brother in law died, I got diagnosed with my illnesses, and now I could be losing my job because of that.”
Arlene was diagnosed in June with Chronic Fatigue Syndrome, Myalgic Encephalomyelitis, Fibromyalgia. They’re not well known, but they are lifelong conditions that are often debilitating, and invisible to the world.
Arlene has lived with them for around 10 years. She describes the symptoms as like having a constant flu.
“I can’t control my body temperature, I can’t breathe properly, I have no energy, I get extremely shaky and dizzy, and I’m in constant pain – it’s like there are metal rods jabbing into my muscles.”
Only recently with the stress of the family deaths have the symptoms become unbearable and she’s crashed. Now, she is struggling to get back up.
With her sick days racking up, her employer has become concerned that she is taking too much time off, and could now face losing her job. Arlene says it feels like she is being constantly judged.
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