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ME/CFS South Australia Inc supports the needs of sufferers of Myalgic Encephalomyelitis, Chronic Fatigue Syndrome and related illnesses. We do this by providing services and information to members.
Disclaimer
ME/CFS South Australia Inc aims to keep members informed of various research projects, diets, medications, therapies, news items, etc. All communication, both verbal and written, is merely to disseminate information and not to make recommendations or directives.
Unless otherwise stated, the views expressed on this Web site are not necessarily the official views of the Society or its Committee and are not simply an endorsement of products or services.
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Will Lasting COVID Symptoms Shine A Spotlight On Those Battling ME/CFS?
Friday 30 October 2020
 Evan has been living with ME/CFS for a decade. (Source: Supplied) |
Will lasting COVID symptoms shine a spotlight on those battling ME/CFS?
OPINION: The long-term symptoms reported by those who've had COVID sound exactly like the ones experienced by people such as myself who live with chronic fatigue syndrome (CFS). I hope the attention on this will finally throw the stigma about CFS out the door.
Migraines so penetrative it feels like your head is splitting open from the inside. Fatigue so ubiquitous it washes over you the second you wake up in the morning. Brain fog so thick you briefly forget where you are or what you’re reading. I remember it like it was yesterday. And that’s because it was.
No, I don’t have COVID-19. I’m not a coronavirus long hauler, either. I have myalgic encephalomyelitis, often referred to as chronic fatigue syndrome (ME/CFS).
The invisible symptoms that fall under the umbrellas of ME/CFS and long COVID are starkly similar: crippling fatigue, joint and head pain, anxiety, memory loss and more. I’ve been watching with sadness and solidarity during the pandemic as I read articles about people yet to make a full recovery from coronavirus. They have had to come to terms with how their once robust bodies now operate.
Just as I did, they’ve struggled to reconcile how what used to be the breeziest of tasks now poses an Everest-sized challenge. Just as I did, they’ve joined Facebook groups for support, desperate to talk with others going through something similar and find some brief respite in the comfort of a shared experience. Just as I did, with few others to stand up for them, they’ve become self-made activists, chipping away as energy permits at the stigma they’re facing, one social media post at a time.
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Registered Charity 3104
Email:
sacfs@sacfs.asn.au
Mailing address:
PO Box 322,
Modbury North,
South Australia 5092
Phone:
1300 128 339
Office Hours:
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(phone)