| November |
• |
'It Just Doesn't Want To Seem To Go Away:' Patients Suffer Lingering Symptoms Months After Initial COVID Infection
An increasing number of people who become ill from the coronavirus have physical, mental and emotional symptoms that linger well after an initial infection. |
• |
Online Wellbeing Survey For Chronically Ill Young People
A survey for chronically ill 16-to-25-year-old Australians. |
• |
Petition: #NotEnoughForME
A petition from ME Action. |
• |
Donate To SAHMRI
A request for donations to the South Australian Health & Medical Research Institute (SAHMRI). |
• |
Society Seminar: "Pain & Pain Management" – 28 November 2020
Dr Barbara True (Rheumatologist) will be joining us via a Zoom video call to discuss managing pain in ME/CFS. |
• |
Chronic Illness Manifesto Survey
The UK's Chronic Illness Inclusion Project aims to capture the experiences and views of people living with chronic illness. |
• |
Donate To SAHMRI
A request for donations to the South Australian Health & Medical Research Institute (SAHMRI). |
• |
$1 Million Received To Study COVID-19 To ME/CFS
The Open Medicine Foundation (OMF) has announced an anonymous, $1,000,000 grant to fund a collaborative investigation of the relationship between COVID-19 and the possible trajectory to ME/CFS. |
• |
Donate To SAHMRI
A request for donations to the South Australian Health & Medical Research Institute (SAHMRI). |
• |
Proposed British Guidelines Reject Useless Chronic Fatigue Syndrome Treatments
An article by US ME/CFS advocates David Tuller and Steven Lubet. |
• |
Survey: Making The Invisible Visible
A survey from South Australian researcher Dr Maria Alejandra Pinero de Plaza. |
• |
Donate To SAHMRI
A request for donations to the South Australian Health & Medical Research Institute (SAHMRI). |
• |
The Whitewashing Of ME Just Continued. Long Covid Patients Could Be Next.
An article by ME/CFS advocate Steve Topple. |
• |
Donate To SAHMRI
A request for donations to the South Australian Health & Medical Research Institute (SAHMRI). |
• |
Think Twice Before Asking Parents If They'll Have More Kids
A profile of Australian mother and ME/CFS sufferer Elizabeth Wenzler. |
• |
Study: Impact Of Fatigue In CFS – Call For Research Participants
The University of Tasmania is overseeing a study assessing the impact of fatigue in people with Chronic Fatigue Syndrome. |
• |
Participants Needed For Online Survey
Researchers from University of SA and Flinders University are looking to understand consumer health care needs. |
• |
Donate To SAHMRI
A request for donations to the South Australian Health & Medical Research Institute (SAHMRI). |
• |
Society Seminar: "Pain & Pain Management" – 28 November 2020
Dr Barbara True (Rheumatologist) will be joining us via a Zoom video call to discuss managing pain in ME/CFS. |
• |
ME/CFS South Australia Inc Co-Signs International Open Letter
ME/CFS South Australia Inc has serious concerns about methodological design flaws in the PACE trial. |
• |
Donate To SAHMRI
A request for donations to the South Australian Health & Medical Research Institute (SAHMRI). |
• |
Jonathan Hawkins: COVID-19 And Chronic Fatigue Syndrome
An article by US ME/CFS sufferer Jonathan Hawkins. |
• |
Online Wellbeing Survey For Chronically Ill Young People
A survey for chronically ill 16-to-25-year-old Australians. |
• |
Petition: #NotEnoughForME
A petition from ME Action. |
• |
Donate To SAHMRI
A request for donations to the South Australian Health & Medical Research Institute (SAHMRI). |
• |
Study Shows Cannabis Oil Improves Fibromyalgia Symptoms
A small placebo-controlled trial shows that daily doses of cannabis oil rich in THC (tetrahydrocannabinol) significantly improves pain, fatigue and quality of life in people with Fibromyalgia. |
• |
Chronic Illness Manifesto Survey
The UK's Chronic Illness Inclusion Project aims to capture the experiences and views of people living with chronic illness. |
• |
Donate To SAHMRI
A request for donations to the South Australian Health & Medical Research Institute (SAHMRI). |
• |
New Study Shows Therapy Dogs Benefit From Their Jobs
An article from the American Kennel Club. |
• |
Donate To SAHMRI
A request for donations to the South Australian Health & Medical Research Institute (SAHMRI). |
• |
My Husband Kept Our Marriage Counselling Secret – But I'm Speaking Up
An article by Australian ME/CFS sufferer Ashley Kalagian Blunt. |
• |
Survey: Making The Invisible Visible
A survey from South Australian researcher Dr Maria Alejandra Pinero de Plaza. |
• |
Donate To SAHMRI
A request for donations to the South Australian Health & Medical Research Institute (SAHMRI). |
• |
Hockeyroo Taylor Looks Forward To Tokyo
A profile of Australian professional hockey player and ME/CFS sufferer Sophie Taylor. |
• |
Fibromyalgia Study Seeking Participants To Complete An Online Survey
Researchers doctors Andrea Pfalzgraf and Kim Jones are looking into whether people with Fibromyalgia feel invalidated or stigmatized, and if so, how that is affecting their lives. |
• |
Donate To SAHMRI
A request for donations to the South Australian Health & Medical Research Institute (SAHMRI). |
• |
How Cooking Helped Ian Get His Life Back
A profile of Isle of Man cookbook author and Fibromyalgia sufferer Ian Taverner. |
• |
Study: Impact Of Fatigue In CFS – Call For Research Participants
The University of Tasmania is overseeing a study assessing the impact of fatigue in people with Chronic Fatigue Syndrome. |
• |
Participants Needed For Online Survey
Researchers from University of SA and Flinders University are looking to understand consumer health care needs. |
• |
Donate To SAHMRI
A request for donations to the South Australian Health & Medical Research Institute (SAHMRI). |
• |
Fatigue Syndrome Exercise Therapy Loses NICE Recommendation
A controversial exercise technique used to manage Chronic Fatigue Syndrome is no longer being recommended by the UK's National Institute for Health and Care Excellence (NICE). |
• |
ME/CFS South Australia Inc Co-Signs International Open Letter
ME/CFS South Australia Inc has serious concerns about methodological design flaws in the PACE trial. |
• |
Donate To SAHMRI
A request for donations to the South Australian Health & Medical Research Institute (SAHMRI). |
• |
A New Test For Chronic Fatigue Syndrome
Researchers in Montréal have developed an innovative diagnostic test that makes it possible for the first time to test ME/CFS patients who cannot participate in clinical studies due to the severity of their condition. |
• |
Online Wellbeing Survey For Chronically Ill Young People
A survey for chronically ill 16-to-25-year-old Australians. |
• |
Petition: #NotEnoughForME
A petition from ME Action. |
• |
Donate To SAHMRI
A request for donations to the South Australian Health & Medical Research Institute (SAHMRI). |
• |
Evidence Lacking For Current Fibromyalgia Therapies
Research published in the medical journal JAMA Internal Medicine. |
• |
Chronic Illness Manifesto Survey
The UK's Chronic Illness Inclusion Project aims to capture the experiences and views of people living with chronic illness. |
• |
Donate To SAHMRI
A request for donations to the South Australian Health & Medical Research Institute (SAHMRI). |
• |
Halloween Nightmare: The Long-Hauler Tragedy
An article in Psychology Today about the physical aspects of COVID-19 "long-haulers". |
• |
Donate To SAHMRI
A request for donations to the South Australian Health & Medical Research Institute (SAHMRI). |
• |
'ME Has Impacted My Entire Life, But Not On My Ability To Paint… That In Itself Is An Absolute, Glorious Joy'
A profile of Scottish artist and ME/CFS sufferer Stephen Redpath. |
• |
Survey: Making The Invisible Visible
A survey from South Australian researcher Dr Maria Alejandra Pinero de Plaza. |
• |
Donate To SAHMRI
A request for donations to the South Australian Health & Medical Research Institute (SAHMRI). |
• |
Symptoms, Function And Quality Of Life In ME/CFS: An Australian Based, Cross-Sectional Study
Research from the University of Tasmania. |
• |
Fibromyalgia Study Seeking Participants To Complete An Online Survey
Researchers doctors Andrea Pfalzgraf and Kim Jones are looking into whether people with Fibromyalgia feel invalidated or stigmatized, and if so, how that is affecting their lives. |
• |
Donate To SAHMRI
A request for donations to the South Australian Health & Medical Research Institute (SAHMRI). |
• |
Fireside Zoom Chat With Citizen Scientist, Marian Lemle & ME/CFS Researcher, Bindu Paul MSc, PhD
A video featuring citizen scientist, Marian Lemle & ME/CFS researcher, Bindu Paul MSc, PhD., in a discussion about how community leaders have impacted the landscape of ME/CFS research. |
• |
Study: Impact Of Fatigue In CFS – Call For Research Participants
The University of Tasmania is overseeing a study assessing the impact of fatigue in people with Chronic Fatigue Syndrome. |
• |
Participants Needed For Online Survey
Researchers from University of SA and Flinders University are looking to understand consumer health care needs. |
• |
Donate To SAHMRI
A request for donations to the South Australian Health & Medical Research Institute (SAHMRI). |
• |
'I Felt Less Alone': How Australians With Disabilities Are Fearing Life After The Pandemic
A profile of Australian ME/CFS sufferer Erin Kyan. |
• |
With Long-Haul COVID-19, Important Advice For Patients, Doctors And Researchers
An article by US ME/CFS sufferers. |
• |
ME/CFS South Australia Inc Co-Signs International Open Letter
ME/CFS South Australia Inc has serious concerns about methodological design flaws in the PACE trial. |
• |
Donate To SAHMRI
A request for donations to the South Australian Health & Medical Research Institute (SAHMRI). |
• |
Artists Living With Disability Retreat To The Australian Bush To Find Inspiration Post COVID-19 Lockdown
Profiles of Australian artists with disabilities, including landscape artist and ME/CFS sufferer Michell Teear. |
• |
Nova Southeastern University The Only Institution To Receive $4 Million From CDC For 'COVID Long Haulers' Study
An article from Nova Southeastern University's Newsroom. |
• |
Online Wellbeing Survey For Chronically Ill Young People
A survey for chronically ill 16-to-25-year-old Australians. |
• |
Petition: #NotEnoughForME
A petition from ME Action. |
• |
Donate To SAHMRI
A request for donations to the South Australian Health & Medical Research Institute (SAHMRI). |
• |
COVID Live Webinar Series: Dr Anthony Fauci, MD
A video interview with Dr Anthony Fauci. |
• |
Clinical Trial: Plant-Derived Cannabis Oil Effective For Patients With Fibromyalgia
Research published in the medical journal Pain Medicine. |
• |
Chronic Illness Manifesto Survey
The UK's Chronic Illness Inclusion Project aims to capture the experiences and views of people living with chronic illness. |
• |
Donate To SAHMRI
A request for donations to the South Australian Health & Medical Research Institute (SAHMRI). |
• |
An Evening With Jennifer Brea, Luminary Behind Knockout Film 'Unrest'
An interview with US ME/CFS activist Jennifer Brea. |
• |
Help Is Out There For COVID 'Long Haulers'
Clinicians should draw on knowledge surrounding Chronic Fatigue Syndrome in treating patients suffering from the lingering effects of COVID-19. |
• |
Donate To SAHMRI
A request for donations to the South Australian Health & Medical Research Institute (SAHMRI). |
• |
Susanna Clarke Returns With Mystery Novel 'Piranesi' 16 Years After Epic Debut
A review of Piranesi, the second novel by UK author and ME/CFS sufferer Susanna Clarke. |
• |
Living With Long COVID: What Happens When Coronavirus Just Won't Go Away
An article in Cosmopolitan. |
• |
Survey: Making The Invisible Visible
A survey from South Australian researcher Dr Maria Alejandra Pinero de Plaza. |
• |
Donate To SAHMRI
A request for donations to the South Australian Health & Medical Research Institute (SAHMRI). |
• |
ME/CFS Alert, Episode 120: Interview With Leonard A. Jason Of DePaul University
An interview with US ME/CFS researcher Leonard A. Jason. |
• |
The Lonely, Isolating, And Alienating Implications Of ME/CFS
Research published in the medical journal Healthcare. |
• |
Fibromyalgia Study Seeking Participants To Complete An Online Survey
Researchers doctors Andrea Pfalzgraf and Kim Jones are looking into whether people with Fibromyalgia feel invalidated or stigmatized, and if so, how that is affecting their lives. |
• |
Donate To SAHMRI
A request for donations to the South Australian Health & Medical Research Institute (SAHMRI). |
• |
Goth Legends Red Lorry Yellow Lorry Back Leeds Musician's Fundraising DVD In Aid Of Fibromyalgia Support Group
Red Lorry Yellow Lorry are among a string of bands featured on a new music DVD compiled by a Leeds musician during lockdown to raise funds for a Fibromyalgia support group. |
• |
'It Massively Affects Day-To-Day Life' - Living With Chronic Fatigue Syndrome
A radio interview with Irish ME/CFS sufferer Sarah O'Connell. |
• |
Study: Impact Of Fatigue In CFS – Call For Research Participants
The University of Tasmania is overseeing a study assessing the impact of fatigue in people with Chronic Fatigue Syndrome. |
• |
Participants Needed For Online Survey
Researchers from University of SA and Flinders University are looking to understand consumer health care needs. |
• |
Donate To SAHMRI
A request for donations to the South Australian Health & Medical Research Institute (SAHMRI). |
• |
Long Covid Could Actually Be FOUR Different Syndromes
Long Covid could actually be four different syndromes but scientists admit 'we still don't know' who is most at risk or how to treat it. |
• |
ME/CFS South Australia Inc Co-Signs International Open Letter
ME/CFS South Australia Inc has serious concerns about methodological design flaws in the PACE trial. |
• |
Donate To SAHMRI
A request for donations to the South Australian Health & Medical Research Institute (SAHMRI). |
• |
COVID-19 'Long-Haulers': Symptoms Persist For Some Patients
An article from US news outlet WTTW. |
• |
Online Wellbeing Survey For Chronically Ill Young People
A survey for chronically ill 16-to-25-year-old Australians. |
• |
Petition: #NotEnoughForME
A petition from ME Action. |
• |
Donate To SAHMRI
A request for donations to the South Australian Health & Medical Research Institute (SAHMRI). |
| October |
• |
Long COVID: Just How Common Is It?
An article from the BBC's Science Focus. |
• |
Chronic Illness Manifesto Survey
The UK's Chronic Illness Inclusion Project aims to capture the experiences and views of people living with chronic illness. |
• |
Donate To SAHMRI
A request for donations to the South Australian Health & Medical Research Institute (SAHMRI). |
• |
Will Lasting COVID Symptoms Shine A Spotlight On Those Battling ME/CFS?
An article by ME/CFS sufferer Evan Young. |
• |
Donate To SAHMRI
A request for donations to the South Australian Health & Medical Research Institute (SAHMRI). |
• |
Have We Been Thinking About Long-Haul Coronavirus All Wrong?
Crowdfunding for US ME/CFS researcher David Tuller. |
• |
Survey: Making The Invisible Visible
A survey from South Australian researcher Dr Maria Alejandra Pinero de Plaza. |
• |
Donate To SAHMRI
A request for donations to the South Australian Health & Medical Research Institute (SAHMRI). |
• |
Cytokine Profiling Of Extracellular Vesicles Isolated From Plasma In ME/CFS: A Pilot Study
Research published in the Journal of Translational Medicine. |
• |
Fibromyalgia Study Seeking Participants To Complete An Online Survey
Researchers doctors Andrea Pfalzgraf and Kim Jones are looking into whether people with Fibromyalgia feel invalidated or stigmatized, and if so, how that is affecting their lives. |
• |
Donate To SAHMRI
A request for donations to the South Australian Health & Medical Research Institute (SAHMRI). |
• |
Australian Tribunal: Chemical Sensitivity Not An 'Injury' But Employee's Claim Gets Up
A tribunal case reported by Australian law firm HBA Legal. |
• |
Study: Impact Of Fatigue In CFS – Call For Research Participants
The University of Tasmania is overseeing a study assessing the impact of fatigue in people with Chronic Fatigue Syndrome. |
• |
Participants Needed For Online Survey
Researchers from University of SA and Flinders University are looking to understand consumer health care needs. |
• |
Donate To SAHMRI
A request for donations to the South Australian Health & Medical Research Institute (SAHMRI). |
• |
At 12, She's A Covid 'Long Hauler'
A profile of US COVID-19 long-hauler Maggie Flannery. |
• |
ME/CFS South Australia Inc Co-Signs International Open Letter
ME/CFS South Australia Inc has serious concerns about methodological design flaws in the PACE trial. |
• |
Donate To SAHMRI
A request for donations to the South Australian Health & Medical Research Institute (SAHMRI). |
• |
COVID-19 Effects Can Be Persistent And Serious Say Doctors Suffering 'Long COVID'
A profile of Australian COVID-19 long-hauler Nathalie MacDermott. |
• |
Online Wellbeing Survey For Chronically Ill Young People
A survey for chronically ill 16-to-25-year-old Australians. |
• |
Petition: #NotEnoughForME
A petition from ME Action. |
• |
Donate To SAHMRI
A request for donations to the South Australian Health & Medical Research Institute (SAHMRI). |
• |
AMA COVID-19 Daily Video Update: Patient, Physician Share Their Experiences As COVID-19 Long Haulers
A video from the American Medical Association. |
• |
Chronic Illness Manifesto Survey
The UK's Chronic Illness Inclusion Project aims to capture the experiences and views of people living with chronic illness. |
• |
Donate To SAHMRI
A request for donations to the South Australian Health & Medical Research Institute (SAHMRI). |
• |
'I Very Quickly Went Downhill': Casey Stoner Opens Up On Chronic Fatigue Syndrome Battle
A profile of Australian professional motorcyclists Casey Stoner. |
• |
Donate To SAHMRI
A request for donations to the South Australian Health & Medical Research Institute (SAHMRI). |
• |
Crowdfunding: David Tuller - Trial By Error Fall 2020
Crowdfunding for US ME/CFS researcher David Tuller. |
• |
Survey: Making The Invisible Visible
A survey from South Australian researcher Dr Maria Alejandra Pinero de Plaza. |
• |
Donate To SAHMRI
A request for donations to the South Australian Health & Medical Research Institute (SAHMRI). |
• |
An Autoimmune-Like Antibody Response Is Linked With Severe COVID-19
An article by medical researcher Matthew Woodruff. |
• |
Fibromyalgia Study Seeking Participants To Complete An Online Survey
Researchers doctors Andrea Pfalzgraf and Kim Jones are looking into whether people with Fibromyalgia feel invalidated or stigmatized, and if so, how that is affecting their lives. |
• |
Donate To SAHMRI
A request for donations to the South Australian Health & Medical Research Institute (SAHMRI). |
• |
What Is Post-Viral Fatigue Syndrome, The Condition Affecting Some COVID-19 Survivors?
An article by South Australian ME/CFS researcher Michael Musker. |
• |
Study: Impact Of Fatigue In CFS – Call For Research Participants
The University of Tasmania is overseeing a study assessing the impact of fatigue in people with Chronic Fatigue Syndrome. |
• |
Participants Needed For Online Survey
Researchers from University of SA and Flinders University are looking to understand consumer health care needs. |
• |
Donate To SAHMRI
A request for donations to the South Australian Health & Medical Research Institute (SAHMRI). |
• |
These Doctors Got COVID-19, Now They're Suffering The Serious, Mysterious Symptoms Of 'Long COVID'
A podcast on ABC Radio National's Science Friction program. |
• |
ME/CFS South Australia Inc Co-Signs International Open Letter
ME/CFS South Australia Inc has serious concerns about methodological design flaws in the PACE trial. |
• |
Donate To SAHMRI
A request for donations to the South Australian Health & Medical Research Institute (SAHMRI). |
• |
Long Covid: 'I Don't Have A Life, I Currently Have An Existence'
A profile of UK long-term COVID-19 sufferer Annette Shelford. |
• |
Online Wellbeing Survey For Chronically Ill Young People
A survey for chronically ill 16-to-25-year-old Australians. |
• |
Petition: #NotEnoughForME
A petition from ME Action. |
• |
Donate To SAHMRI
A request for donations to the South Australian Health & Medical Research Institute (SAHMRI). |
• |
Being A Carer During A Pandemic And Living With Chronic Fatigue Syndrome
A podcast on ABC Radio's Life Matters program. |
• |
Chronic Illness Manifesto Survey
The UK's Chronic Illness Inclusion Project aims to capture the experiences and views of people living with chronic illness. |
• |
Donate To SAHMRI
A request for donations to the South Australian Health & Medical Research Institute (SAHMRI). |
• |
Finding Hope For Those Living With Chronic Fatigue Syndrome
A podcast on ABC Radio's Life Matters program. |
• |
Donate To SAHMRI
A request for donations to the South Australian Health & Medical Research Institute (SAHMRI). |
• |
Major Australian Study To Unravel Secrets Of Chronic Fatigue Syndrome
A Deakin University research team will begin a world-first study into the causes and possible treatment of Chronic Fatigue Syndrome. |
• |
Survey: Making The Invisible Visible
A survey from South Australian researcher Dr Maria Alejandra Pinero de Plaza. |
• |
Donate To SAHMRI
A request for donations to the South Australian Health & Medical Research Institute (SAHMRI). |
• |
What It's Like To Have 'Long Covid' – Six Cases With Very Different Symptoms
An article from UK newspaper The Telegraph. |
• |
Fibromyalgia Study Seeking Participants To Complete An Online Survey
Researchers doctors Andrea Pfalzgraf and Kim Jones are looking into whether people with Fibromyalgia feel invalidated or stigmatized, and if so, how that is affecting their lives. |
• |
Donate To SAHMRI
A request for donations to the South Australian Health & Medical Research Institute (SAHMRI). |
• |
Six Months After Virus, King Still Battling Illness
A profile of US long-term COVID-19 sufferer Greta King. |
• |
Study: Impact Of Fatigue In CFS – Call For Research Participants
The University of Tasmania is overseeing a study assessing the impact of fatigue in people with Chronic Fatigue Syndrome. |
• |
Participants Needed For Online Survey
Researchers from University of SA and Flinders University are looking to understand consumer health care needs. |
• |
Donate To SAHMRI
A request for donations to the South Australian Health & Medical Research Institute (SAHMRI). |
• |
Disabled Couple In Their Sixties Find Love After Moving Into The Same Sheltered Accommodation
A UK couple who moved into sheltered accommodation in their sixties fell for each other when their eyes met over the handlebars of a mobility scooter. |
• |
ME/CFS South Australia Inc Co-Signs International Open Letter
ME/CFS South Australia Inc has serious concerns about methodological design flaws in the PACE trial. |
• |
Donate To SAHMRI
A request for donations to the South Australian Health & Medical Research Institute (SAHMRI). |
• |
Parkour, COVID, And Fitness
A discussion about long-term COVID-19 on a podcast on ABC Radio program Sporty. |
• |
Online Wellbeing Survey For Chronically Ill Young People
A survey for chronically ill 16-to-25-year-old Australians. |
• |
Petition: #NotEnoughForME
A petition from ME Action. |
• |
Donate To SAHMRI
A request for donations to the South Australian Health & Medical Research Institute (SAHMRI). |
• |
Dr. Fauci Says These COVID Symptoms Could Last For Months
During Senate testimony, Dr. Anthony Fauci, the US's top infectious-disease expert, spotlighted a disturbing lesson experts have learned from the coronavirus pandemic: For some people, COVID-19 has essentially become a chronic illness. |
• |
Chronic Illness Manifesto Survey
The UK's Chronic Illness Inclusion Project aims to capture the experiences and views of people living with chronic illness. |
• |
Donate To SAHMRI
A request for donations to the South Australian Health & Medical Research Institute (SAHMRI). |
• |
UK Residents Claim Disabled Drivers' Concerns Ignored
Disabled residents on a Southampton street have revealed their anger after their parking permits were revoked. |
• |
Donate To SAHMRI
A request for donations to the South Australian Health & Medical Research Institute (SAHMRI). |
• |
Long COVID Patient, 57, 'Not The Same Person She Was Pre-Coronavirus'
A profile of long-term COVID-19 sufferer Liz Walker. |
• |
Survey: Making The Invisible Visible
A survey from South Australian researcher Dr Maria Alejandra Pinero de Plaza. |
• |
Donate To SAHMRI
A request for donations to the South Australian Health & Medical Research Institute (SAHMRI). |
• |
UK Teen's 'Cool Vision' Hailed By US TV Stars After Creating Ugly Betty Characters In Crochet
A profile of UK ME/CFS sufferer Ellen Siegert. |
• |
Fibromyalgia Study Seeking Participants To Complete An Online Survey
Researchers doctors Andrea Pfalzgraf and Kim Jones are looking into whether people with Fibromyalgia feel invalidated or stigmatized, and if so, how that is affecting their lives. |
• |
Donate To SAHMRI
A request for donations to the South Australian Health & Medical Research Institute (SAHMRI). |
• |
US Woman Shares Her Battle With Chronic Fatigue Syndrome
A profile of US ME/CFS sufferer Melanie Lusnak. |
• |
Study: Impact Of Fatigue In CFS – Call For Research Participants
The University of Tasmania is overseeing a study assessing the impact of fatigue in people with Chronic Fatigue Syndrome. |
• |
Participants Needed For Online Survey
Researchers from University of SA and Flinders University are looking to understand consumer health care needs. |
• |
Donate To SAHMRI
A request for donations to the South Australian Health & Medical Research Institute (SAHMRI). |
• |
What Illnesses Does The Talk's Carrie Ann Inaba Have?
A profile of US talk show host and Sjögren's Syndrome and Fibromyalgia sufferer Carrie Ann Inaba. |
• |
ME/CFS South Australia Inc Co-Signs International Open Letter
ME/CFS South Australia Inc has serious concerns about methodological design flaws in the PACE trial. |
• |
Donate To SAHMRI
A request for donations to the South Australian Health & Medical Research Institute (SAHMRI). |
• |
NIH Study Details Self-Reported Experiences With Post-Exertional Malaise In ME/CFS
First publication from a National Institutes of Health ME/CFS study takes a deep dive into key feature of the disease. |
• |
Online Wellbeing Survey For Chronically Ill Young People
A survey for chronically ill 16-to-25-year-old Australians. |
• |
Petition: #NotEnoughForME
A petition from ME Action. |
• |
Donate To SAHMRI
A request for donations to the South Australian Health & Medical Research Institute (SAHMRI). |
• |
Brits Describe Their Long-Covid Symptoms That Cause Crippling Pain For Months
A profile of UK nurse and long-COVID sufferer Sophie Evans. |
• |
Chronic Illness Manifesto Survey
The UK's Chronic Illness Inclusion Project aims to capture the experiences and views of people living with chronic illness. |
• |
Donate To SAHMRI
A request for donations to the South Australian Health & Medical Research Institute (SAHMRI). |
• |
COVID-19 Long-Haulers: 'Infuriated' And Unheard
For the 6.7 million Americans already infected with COVID-19, the realization of what recovery might entail is troubling. |
• |
Donate To SAHMRI
A request for donations to the South Australian Health & Medical Research Institute (SAHMRI). |
• |
Healthcare Workers With 'Long Covid' Say 'We Can't All Be Making It Up'
Healthcare professionals with so-called 'long Covid' are urging the government to take the condition seriously as they add their voices to the thousands of people suffering from lasting effects of the virus weeks, and even months, after their first symptoms. |
• |
Survey: Making The Invisible Visible
A survey from South Australian researcher Dr Maria Alejandra Pinero de Plaza. |
• |
Donate To SAHMRI
A request for donations to the South Australian Health & Medical Research Institute (SAHMRI). |
| September |
• |
Researchers At Columbia University Publish First ME/CFS Study Of Proteins In Blood
Research from The Solve ME/CFS Initiative. |
• |
Fibromyalgia Study Seeking Participants To Complete An Online Survey
Researchers doctors Andrea Pfalzgraf and Kim Jones are looking into whether people with Fibromyalgia feel invalidated or stigmatized, and if so, how that is affecting their lives. |
• |
Donate To SAHMRI
A request for donations to the South Australian Health & Medical Research Institute (SAHMRI). |
• |
'I Had To Leave The Nursing Job I Love Because Of Long-Covid'
A profile of UK nurse and long COVID-19 sufferer Michaila Tyson. |
• |
Study: Impact Of Fatigue In CFS – Call For Research Participants
The University of Tasmania is overseeing a study assessing the impact of fatigue in people with Chronic Fatigue Syndrome. |
• |
Participants Needed For Online Survey
Researchers from University of SA and Flinders University are looking to understand consumer health care needs. |
• |
Donate To SAHMRI
A request for donations to the South Australian Health & Medical Research Institute (SAHMRI). |
• |
GoFundMe Page Set Up For Canadian Man Suffering From CFS
A GoFundMe page has been set up to help a Canadian man who is suffering from ME/CFS. |
• |
ME/CFS South Australia Inc Co-Signs International Open Letter
ME/CFS South Australia Inc has serious concerns about methodological design flaws in the PACE trial. |
• |
Donate To SAHMRI
A request for donations to the South Australian Health & Medical Research Institute (SAHMRI). |
• |
NIH Study Details Self-Reported Experiences With Post-Exertional Malaise In ME/CFS
First publication from a National Institutes of Health ME/CFS study takes a deep dive into key feature of the disease. |
• |
Online Wellbeing Survey For Chronically Ill Young People
A survey for chronically ill 16-to-25-year-old Australians. |
• |
Petition: #NotEnoughForME
A petition from ME Action. |
• |
Donate To SAHMRI
A request for donations to the South Australian Health & Medical Research Institute (SAHMRI). |
• |
AGM And Seminar Via Zoom
This year's Annual General Meeting and Multiple Chemical Sensitivity seminar will be held today (26 September 2020), and will be conducted for the first time on Zoom. |
• |
Chronic Illness Manifesto Survey
The UK's Chronic Illness Inclusion Project aims to capture the experiences and views of people living with chronic illness. |
• |
Donate To SAHMRI
A request for donations to the South Australian Health & Medical Research Institute (SAHMRI). |
• |
Long-Term Fatigue Dubbed The 'Hidden Toll' Of COVID-19
Researchers are pointing to a "hidden toll" of the COVID-19 pandemic, saying many patients are reporting debilitating fatigue months after their initial diagnosis. |
• |
Donate To SAHMRI
A request for donations to the South Australian Health & Medical Research Institute (SAHMRI). |
• |
AGM And Seminar Via Zoom
This year's Annual General Meeting and Multiple Chemical Sensitivity seminar will be held this Saturday, 26 September 2020, and will be conducted for the first time on Zoom. |
• |
Trial By Error: UK Docs Speak Up On Long-Covid; Mayo Shifts Gears (A Little)
An article by US medical researcher and ME/CFS advocate David Tuller. |
• |
Survey: Making The Invisible Visible
A survey from South Australian researcher Dr Maria Alejandra Pinero de Plaza. |
• |
Donate To SAHMRI
A request for donations to the South Australian Health & Medical Research Institute (SAHMRI). |
• |
Fibromyalgia Study Seeking Participants To Complete An Online Survey
Researchers doctors Andrea Pfalzgraf and Kim Jones are looking into whether people with Fibromyalgia feel invalidated or stigmatized, and if so, how that is affecting their lives. |
• |
Donate To SAHMRI
A request for donations to the South Australian Health & Medical Research Institute (SAHMRI). |
• |
COVID-19's Long Shadow: 'The Light At The End Of The Tunnel Just Isn't There'
A profile of UK filmmaker, runner, and long-term COVID-19 sufferer Gez Medinger. |
• |
Study: Impact Of Fatigue In CFS – Call For Research Participants
The University of Tasmania is overseeing a study assessing the impact of fatigue in people with Chronic Fatigue Syndrome. |
• |
Participants Needed For Online Survey
Researchers from University of SA and Flinders University are looking to understand consumer health care needs. |
• |
Donate To SAHMRI
A request for donations to the South Australian Health & Medical Research Institute (SAHMRI). |
• |
Scottish Man Blasts Selfish Drivers Who Force Wheelchair & Scooter Users Onto Busy Roads
A Scottish Fibromyalgia sufferer has blasted selfish drivers who force wheelchair users and those on mobility scooters onto busy roads around town. |
• |
ME/CFS South Australia Inc Co-Signs International Open Letter
ME/CFS South Australia Inc has serious concerns about methodological design flaws in the PACE trial. |
• |
Donate To SAHMRI
A request for donations to the South Australian Health & Medical Research Institute (SAHMRI). |
• |
Using Make-Up As A Mindfulness Exercise To Help With Chronic Pain
A profile of Australian Fibromyalgia sufferer Chloe Sargeant. |
• |
Online Wellbeing Survey For Chronically Ill Young People
A survey for chronically ill 16-to-25-year-old Australians. |
• |
Petition: #NotEnoughForME
A petition from ME Action. |
• |
Donate To SAHMRI
A request for donations to the South Australian Health & Medical Research Institute (SAHMRI). |
• |
Multiple Chemical Sensitivity Syndrome: A Principal Component Analysis Of Symptoms
Research published in the International Journal of Environmental Research and Public Health. |
• |
Chronic Illness Manifesto Survey
The UK's Chronic Illness Inclusion Project aims to capture the experiences and views of people living with chronic illness. |
• |
Donate To SAHMRI
A request for donations to the South Australian Health & Medical Research Institute (SAHMRI). |
• |
Long-Term Effects Of Virus Shine A Light On Chronic Fatigue Sufferers
An article by Australian ME/CFS sufferer Sue Green. |
• |
Donate To SAHMRI
A request for donations to the South Australian Health & Medical Research Institute (SAHMRI). |
• |
Two South Australian ME/CFS Surveys
Two surveys from South Australian researcher Amy Hill. |
• |
Survey: Making The Invisible Visible
A survey from South Australian researcher Dr Maria Alejandra Pinero de Plaza. |
• |
Risk Of Hearing Loss In Patients With Fibromyalgia: A Nationwide Population-Based Retrospective Cohort Study
Research published in Physician's Weekly. |
• |
Donate To SAHMRI
A request for donations to the South Australian Health & Medical Research Institute (SAHMRI). |
• |
UK Disabled Activist Campaigning Against Proposed Changes To Chronic Pain Treatment
A disabled activist from Leeds who suffers from ME is campaigning against major changes to the way patients like them are treated. |
• |
Fibromyalgia Study Seeking Participants To Complete An Online Survey
Researchers doctors Andrea Pfalzgraf and Kim Jones are looking into whether people with Fibromyalgia feel invalidated or stigmatized, and if so, how that is affecting their lives. |
• |
Donate To SAHMRI
A request for donations to the South Australian Health & Medical Research Institute (SAHMRI). |
• |
Susanna Clarke: 'I Was Cut Off From The World, Bound In One Place By Illness'
An interview with UK author and ME/CFS sufferer Susanna Clarke. |
• |
Study: Impact Of Fatigue In CFS – Call For Research Participants
The University of Tasmania is overseeing a study assessing the impact of fatigue in people with Chronic Fatigue Syndrome. |
• |
Participants Needed For Online Survey
Researchers from University of SA and Flinders University are looking to understand consumer health care needs. |
• |
Donate To SAHMRI
A request for donations to the South Australian Health & Medical Research Institute (SAHMRI). |
• |
First IACFS/ME Virtual Research Conference: A Review And Reflection
A report on the IACFS/ME 2020 Virtual Conference held on Friday, August 21, 2020. |
• |
ME/CFS South Australia Inc Co-Signs International Open Letter
ME/CFS South Australia Inc has serious concerns about methodological design flaws in the PACE trial. |
• |
Donate To SAHMRI
A request for donations to the South Australian Health & Medical Research Institute (SAHMRI). |
• |
Management Of Post-Acute COVID-19 In Primary Care
This article, intended for primary care clinicians, relates to the patient who has a delayed recovery from an episode of COVID-19. |
• |
Online Wellbeing Survey For Chronically Ill Young People
A survey for chronically ill 16-to-25-year-old Australians. |
• |
Petition: #NotEnoughForME
A petition from ME Action. |
• |
Donate To SAHMRI
A request for donations to the South Australian Health & Medical Research Institute (SAHMRI). |
• |
A Place In The Sun Buyer Who Walked Away Over 'Heartbreaking' Health Battle Reveals Dream Isn't Over As She Opens Up On Condition
Fans of UK TV show A Place in the Sun fans were left heartbroken when one couple, Gary and Claire, had to walk away from their dream home over a battle with Fibromyalgia. |
• |
Chronic Illness Manifesto Survey
The UK's Chronic Illness Inclusion Project aims to capture the experiences and views of people living with chronic illness. |
• |
Donate To SAHMRI
A request for donations to the South Australian Health & Medical Research Institute (SAHMRI). |
• |
Factors Affecting The Characterization Of Post-Exertional Malaise Derived From Patient Input
Research published in the Journal of Health Disparities Research and Practice. |
• |
Donate To SAHMRI
A request for donations to the South Australian Health & Medical Research Institute (SAHMRI). |
• |
Two South Australian ME/CFS Surveys
Two surveys from South Australian researcher Amy Hill. |
• |
Survey: Making The Invisible Visible
A survey from South Australian researcher Dr Maria Alejandra Pinero de Plaza. |
• |
Living With Chronic Illnesses A Daily Battle
A profile of New Zealand ME/CFS and Fibromyalgia sufferer Arlene Olson. |
• |
Donate To SAHMRI
A request for donations to the South Australian Health & Medical Research Institute (SAHMRI). |
• |
Coronavirus: Disabled 'Pushed Out' Of Post-Lockdown World
Disabled people are being "pushed out" of a post-lockdown world, with many anxious to leave the house, a Welsh charity has warned. |
• |
Fibromyalgia Study Seeking Participants To Complete An Online Survey
Researchers doctors Andrea Pfalzgraf and Kim Jones are looking into whether people with Fibromyalgia feel invalidated or stigmatized, and if so, how that is affecting their lives. |
• |
Donate To SAHMRI
A request for donations to the South Australian Health & Medical Research Institute (SAHMRI). |
• |
Medical Mystery: Unexplained Fatigue After A European Trip
A profile of long-term COVID sufferer Barbara Veltri. |
• |
Study: Impact Of Fatigue In CFS – Call For Research Participants
The University of Tasmania is overseeing a study assessing the impact of fatigue in people with Chronic Fatigue Syndrome. |
• |
Participants Needed For Online Survey
Researchers from University of SA and Flinders University are looking to understand consumer health care needs. |
• |
Donate To SAHMRI
A request for donations to the South Australian Health & Medical Research Institute (SAHMRI). |
• |
Gulf War Illness And Chronic Fatigue Syndrome Are Two Distinct Brain Disorders
New research released in Brain Communications suggests that Gulf War Illness and ME/CFS are actually distinct conditions. |
• |
ME/CFS South Australia Inc Co-Signs International Open Letter
ME/CFS South Australia Inc has serious concerns about methodological design flaws in the PACE trial. |
• |
Donate To SAHMRI
A request for donations to the South Australian Health & Medical Research Institute (SAHMRI). |
• |
ME/CFS Economic Cost To Australia: $14.5B Each Year
Griffith University research has calculated the cost of ME/CFS at $14.5 billion each year in Australia. |
• |
Online Wellbeing Survey For Chronically Ill Young People
A survey for chronically ill 16-to-25-year-old Australians. |
• |
Petition: #NotEnoughForME
A petition from ME Action. |
• |
Donate To SAHMRI
A request for donations to the South Australian Health & Medical Research Institute (SAHMRI). |
• |
Neuroimaging Characteristics Of ME/CFS: A Systematic Review
Research published in the Journal of Translational Medicine. |
• |
Chronic Illness Manifesto Survey
The UK's Chronic Illness Inclusion Project aims to capture the experiences and views of people living with chronic illness. |
• |
Donate To SAHMRI
A request for donations to the South Australian Health & Medical Research Institute (SAHMRI). |
• |
How ME/CFS Progresses: The Natural History Of ME/CFS
Research published in Frontiers in Neurology. |
• |
Donate To SAHMRI
A request for donations to the South Australian Health & Medical Research Institute (SAHMRI). |
• |
Two South Australian ME/CFS Surveys
Two surveys from South Australian researcher Amy Hill. |
• |
Survey: Making The Invisible Visible
A survey from South Australian researcher Dr Maria Alejandra Pinero de Plaza. |
• |
Student Earns Prestigious Award For Her Work On 'Misunderstood' Pain Syndrome
An Aberdeen student has been awarded a prestigious prize recognising 'outstanding academic excellence in postgraduate researchers' for her work on Fibromyalgia, one of the least understood pain syndromes in medicine today. |
• |
Donate To SAHMRI
A request for donations to the South Australian Health & Medical Research Institute (SAHMRI). |
• |
Kylie Maslen On Living With Invisible Illness
A radio interview with South Australian author and chronic illness sufferer Kylie Maslen. |
• |
Fibromyalgia Study Seeking Participants To Complete An Online Survey
Researchers doctors Andrea Pfalzgraf and Kim Jones are looking into whether people with Fibromyalgia feel invalidated or stigmatized, and if so, how that is affecting their lives. |
• |
Donate To SAHMRI
A request for donations to the South Australian Health & Medical Research Institute (SAHMRI). |
• |
'Long COVID' Is Real And Patients Suffer Debilitating Symptoms For Months, Experts Say
Groups supporting survivors of the virus warn doctors are dismissing problems or misdiagnosing long-term effects. |
• |
Study: Impact Of Fatigue In CFS – Call For Research Participants
The University of Tasmania is overseeing a study assessing the impact of fatigue in people with Chronic Fatigue Syndrome. |
• |
Participants Needed For Online Survey
Researchers from University of SA and Flinders University are looking to understand consumer health care needs. |
• |
Donate To SAHMRI
A request for donations to the South Australian Health & Medical Research Institute (SAHMRI). |
| August |
• |
The Economic Impacts Of ME/CFS In An Australian Cohort
Research from Australia published in Frontiers in Public Health. |
• |
If You Had COVID-19 And Are Feeling Lingering Effects Of Chronic Fatigue, You're Not Alone
An article by PopSugar's Samantha Brodsky. |
• |
ME/CFS South Australia Inc Co-Signs International Open Letter
ME/CFS South Australia Inc has serious concerns about methodological design flaws in the PACE trial. |
• |
Donate To SAHMRI
A request for donations to the South Australian Health & Medical Research Institute (SAHMRI). |
• |
Will COVID-19 Lead To ME/CFS In Some People?
A video from the Solve M.E. 2020 Webinar entitled "Will COVID-19 Lead to ME/CFS in Some People" by Dr. Anthony L. Komaroff. |
• |
The Emerging Links Between COVID-19 And Chronic Fatigue Syndrome
Chronic Fatigue Syndrome may hold keys to understanding post-COVID syndrome. |
• |
Online Wellbeing Survey For Chronically Ill Young People
A survey for chronically ill 16-to-25-year-old Australians. |
• |
Petition: #NotEnoughForME
A petition from ME Action. |
• |
Donate To SAHMRI
A request for donations to the South Australian Health & Medical Research Institute (SAHMRI). |
• |
Stories Of Pain And Empathy
Profiles of Kylie Maslen and Katerina Bryant, two South Australian authors whose books highlight life with chronic illness. |
• |
After Recovering From COVID-19, Many Still Have Painful Symptoms
British researchers recently announced the start of a genetic study to try to identify the mechanisms of Chronic Fatigue Syndrome. |
• |
Chronic Illness Manifesto Survey
The UK's Chronic Illness Inclusion Project aims to capture the experiences and views of people living with chronic illness. |
• |
Donate To SAHMRI
A request for donations to the South Australian Health & Medical Research Institute (SAHMRI). |
• |
Therapy Dogs Offer New Fibromyalgia Management Option
New research from Purina and Mayo Clinic brings a pet-centered treatment option to the forefront for patients with Fibromyalgia. |
• |
Donate To SAHMRI
A request for donations to the South Australian Health & Medical Research Institute (SAHMRI). |
• |
Two South Australian ME/CFS Surveys
Two surveys from South Australian researcher Amy Hill. |
• |
Survey: Making The Invisible Visible
A survey from South Australian researcher Dr Maria Alejandra Pinero de Plaza. |
• |
Coronavirus – Hungary's Chief Epidemiologist: Many Recovered Patients Dealing With Chronic Fatigue Syndrome, PTSD
Many people who have recovered from COVID-19 have ended up developing Chronic Fatigue Syndrome and Post-Traumatic Stress Disorder, Hungary’s chief epidemiologist has said. |
• |
Donate To SAHMRI
A request for donations to the South Australian Health & Medical Research Institute (SAHMRI). |
• |
I'm A COVID Long-Hauler. Even After Testing Negative, I Suffered For Months
A profile of long-term COVID-19 sufferer Margot Gage Witvliet. |
• |
Fibromyalgia Study Seeking Participants To Complete An Online Survey
Researchers doctors Andrea Pfalzgraf and Kim Jones are looking into whether people with Fibromyalgia feel invalidated or stigmatized, and if so, how that is affecting their lives. |
• |
Donate To SAHMRI
A request for donations to the South Australian Health & Medical Research Institute (SAHMRI). |
• |
Like Lena Dunham, If You're In Your 20s And 30s, You Probably Won't Die Of Covid – But You Could Become Ill For A Long Time
An article about sufferers of long-term COVID-19 infection, published in Grazia. |
• |
Study: Impact Of Fatigue In CFS – Call For Research Participants
The University of Tasmania is overseeing a study assessing the impact of fatigue in people with Chronic Fatigue Syndrome. |
• |
Participants Needed For Online Survey
Researchers from University of SA and Flinders University are looking to understand consumer health care needs. |
• |
Donate To SAHMRI
A request for donations to the South Australian Health & Medical Research Institute (SAHMRI). |
• |
UK Entrepreneur Sees Business Thrive In Lockdown
A profile of UK businesswoman and ME/CFS sufferer Lisa Porto. |
• |
ME/CFS South Australia Inc Co-Signs International Open Letter
ME/CFS South Australia Inc has serious concerns about methodological design flaws in the PACE trial. |
• |
Donate To SAHMRI
A request for donations to the South Australian Health & Medical Research Institute (SAHMRI). |
• |
New Survey Identifies 98 Long-Lasting COVID Symptoms
A new survey of 1,567 COVID-19 "long-haulers" shows how wide-ranging long-term symptoms are, stretching from sadness and blurry vision to diarrhea and joint pain. |
• |
Online Wellbeing Survey For Chronically Ill Young People
A survey for chronically ill 16-to-25-year-old Australians. |
• |
Petition: #NotEnoughForME
A petition from ME Action. |
• |
Donate To SAHMRI
A request for donations to the South Australian Health & Medical Research Institute (SAHMRI). |
• |
Chronic Fatigue Syndrome: A Large Genetic Study To Identify The Mechanisms Of The Disease Is Underway In The UK
British researchers recently announced the start of a genetic study to try to identify the mechanisms of Chronic Fatigue Syndrome. |
• |
Chronic Illness Manifesto Survey
The UK's Chronic Illness Inclusion Project aims to capture the experiences and views of people living with chronic illness. |
• |
Donate To SAHMRI
A request for donations to the South Australian Health & Medical Research Institute (SAHMRI). |
• |
Disability Royal Commission Hears From Woman Who Has Been Bedridden For 20 Years
Australian ME/CFS sufferer Ricky Buchanan has given evidence at the ongoing Disability Royal Commission. |
• |
Dynasty Star Emma Samms Details Her Months-Long COVID-19 Symptoms, Like 'Panic-Inducing' Fatigue
A profile of UK actress and COVID-19 long-hauler Emma Samms. |
• |
Donate To SAHMRI
A request for donations to the South Australian Health & Medical Research Institute (SAHMRI). |
• |
Two South Australian ME/CFS Surveys
Two surveys from South Australian researcher Amy Hill. |
• |
Survey: Making The Invisible Visible
A survey from South Australian researcher Dr Maria Alejandra Pinero de Plaza. |
• |
Hydrogen Rich Water – Could It Help With ME/CFS And/Or Fibromyalgia?
An article by US ME/CFS advocate and sufferer Cort Johnson. |
• |
Donate To SAHMRI
A request for donations to the South Australian Health & Medical Research Institute (SAHMRI). |
• |
UK Tenants' Champion Nominated For 2020 Housing Hero Award
Edwina Evans, a UK woman who has helped fellow tenants despite battling Fibromyalgia and Chronic Fatigue Syndrome, has been nominated for a 2020 Housing Hero Award. |
• |
Fibromyalgia Study Seeking Participants To Complete An Online Survey
Researchers doctors Andrea Pfalzgraf and Kim Jones are looking into whether people with Fibromyalgia feel invalidated or stigmatized, and if so, how that is affecting their lives. |
• |
Donate To SAHMRI
A request for donations to the South Australian Health & Medical Research Institute (SAHMRI). |
• |
Isolation Is A Danger For The Sick – And For The Healthy
An article in US newspaper the Hartford Courant about the isolation caused by COVID-19, involving US ME/CFS sufferer Mason Earle. |
• |
Study: Impact Of Fatigue In CFS – Call For Research Participants
The University of Tasmania is overseeing a study assessing the impact of fatigue in people with Chronic Fatigue Syndrome. |
• |
Participants Needed For Online Survey
Researchers from University of SA and Flinders University are looking to understand consumer health care needs. |
• |
Donate To SAHMRI
A request for donations to the South Australian Health & Medical Research Institute (SAHMRI). |
• |
NICE Set To Rule Against Commonly-Used Drugs For Chronic Primary Pain
Commonly used drugs, like paracetamol and ibuprofen, can do more harm than good for chronic primary pain, including Fibromyalgia, and should not be used, according to the UK's National Institute for Health and Care Excellence. |
• |
ME/CFS South Australia Inc Co-Signs International Open Letter
ME/CFS South Australia Inc has serious concerns about methodological design flaws in the PACE trial. |
• |
Donate To SAHMRI
A request for donations to the South Australian Health & Medical Research Institute (SAHMRI). |
• |
Betty Gerónimo Confesses That For 12 Years She Has Suffered From A Disease That Has No Cure
A profile of Dominican Republic official and Fibromyalgia sufferer Betty Gerónimo. |
• |
Online Wellbeing Survey For Chronically Ill Young People
A survey for chronically ill 16-to-25-year-old Australians. |
• |
Petition: #NotEnoughForME
A petition from ME Action. |
• |
Donate To SAHMRI
A request for donations to the South Australian Health & Medical Research Institute (SAHMRI). |
• |
Gulf War Illness, Chronic Fatigue Syndrome Distinct Illnesses, Study Suggests
A brain imaging study of veterans with Gulf War Illness and patients with Chronic Fatigue Syndrome (sometimes called Myalgic Encephalomyelitis), has shown that the two illnesses produce distinctly different, abnormal patterns of brain activity after moderate exercise. |
• |
US Doctor On School: Don't Make Our Children Future 'Long-Haulers'
An article by US healthcare advocate Tania Dempsey. |
• |
Chronic Illness Manifesto Survey
The UK's Chronic Illness Inclusion Project aims to capture the experiences and views of people living with chronic illness. |
• |
Donate To SAHMRI
A request for donations to the South Australian Health & Medical Research Institute (SAHMRI). |
• |
'A Life Sentence': The Frightening Trend Emerging In Young Coronavirus Patients
Roughly six months into the global coronavirus pandemic a disturbing picture is beginning to emerge of the long-term impact the virus can have on young and once healthy people. |
• |
US Business Sells Clothing For Customers With Rheumatoid Arthritis And Fibromyalgia
A profile of US businesswoman and Fibromyalgia sufferer Alexandra Marrero. |
• |
Donate To SAHMRI
A request for donations to the South Australian Health & Medical Research Institute (SAHMRI). |
• |
Two South Australian ME/CFS Surveys
Two surveys from South Australian researcher Amy Hill. |
• |
Survey: Making The Invisible Visible
A survey from South Australian researcher Dr Maria Alejandra Pinero de Plaza. |
• |
COVID-19: 'The Worst Illness I've Ever Had', Medical Expert Says
A profile of long-term COVID-19 sufferer Professor Paul Garner. |
• |
Donate To SAHMRI
A request for donations to the South Australian Health & Medical Research Institute (SAHMRI). |
• |
Chronic Fatigue Syndrome A Possible Long-Term Effect Of COVID-19, Experts Say
An article from CNN Health. |
• |
Fibromyalgia Study Seeking Participants To Complete An Online Survey
Researchers doctors Andrea Pfalzgraf and Kim Jones are looking into whether people with Fibromyalgia feel invalidated or stigmatized, and if so, how that is affecting their lives. |
• |
Donate To SAHMRI
A request for donations to the South Australian Health & Medical Research Institute (SAHMRI). |
• |
Kara Jane Spencer: Musicians Help Severely Ill Singer Finish Album
A UK singer seriously ill with a severe form of ME has finished recording her debut album following a public appeal for musicians to help. |
• |
Study: Impact Of Fatigue In CFS – Call For Research Participants
The University of Tasmania is overseeing a study assessing the impact of fatigue in people with Chronic Fatigue Syndrome. |
• |
Participants Needed For Online Survey
Researchers from University of SA and Flinders University are looking to understand consumer health care needs. |
• |
Donate To SAHMRI
A request for donations to the South Australian Health & Medical Research Institute (SAHMRI). |
• |
Disabled Activist Claudia Walder Featured In British Vogue's Activism Issue
Disability activist and editor of Able Zine, ME/CFS sufferer Claudia Walder is among 41 activists featured in British Vogue’s September 2020 issue, "Activism Now". |
• |
ME/CFS South Australia Inc Co-Signs International Open Letter
ME/CFS South Australia Inc has serious concerns about methodological design flaws in the PACE trial. |
• |
Donate To SAHMRI
A request for donations to the South Australian Health & Medical Research Institute (SAHMRI). |
• |
How People With Chronic Pain Feel About The 'No Painkillers' Approach
New draft guidance in the UK advises against painkillers for chronic primary pain. Here's what those who live with it have to say. |
• |
Online Wellbeing Survey For Chronically Ill Young People
A survey for chronically ill 16-to-25-year-old Australians. |
• |
Petition: #NotEnoughForME
A petition from ME Action. |
• |
Donate To SAHMRI
A request for donations to the South Australian Health & Medical Research Institute (SAHMRI). |
• |
COVID-19 Patients Could Be At Risk For Chronic Fatigue Syndrome: 'Your Whole Life Can Change If You Get This'
As the world continues to watch the number of COVID-19 cases increase (and daily records being broken), patients with Myalgic Encephalomyelitis, aka Chronic Fatigue Syndrome, want to tell those recovering from coronavirus to listen up. |
• |
Chronic Illness Manifesto Survey
The UK's Chronic Illness Inclusion Project aims to capture the experiences and views of people living with chronic illness. |
• |
Donate To SAHMRI
A request for donations to the South Australian Health & Medical Research Institute (SAHMRI). |
• |
COVID-19 Could Lead To 'Explosion' In Tapanui Flu Cases
In a cruel twist, many COVID-19 survivors could be affected by a once-obscure chronic fatigue condition, initially termed the Tapanui flu, and whose existence was once ridiculed and denied. |
• |
Donate To SAHMRI
A request for donations to the South Australian Health & Medical Research Institute (SAHMRI). |
• |
Two South Australian ME/CFS Surveys
Two surveys from South Australian researcher Amy Hill. |
• |
Mapping Of Pathological Change In Chronic Fatigue Syndrome Using The Ratio Of T1- And T2-Weighted MRI Scans
Research published in the medical journal NeuroImage: Clinical. |
• |
Survey: Making The Invisible Visible
A survey from South Australian researcher Dr Maria Alejandra Pinero de Plaza. |
• |
Donate To SAHMRI
A request for donations to the South Australian Health & Medical Research Institute (SAHMRI). |
• |
Sussex ME Sufferer: 'I Had To Give Up My Business'
A profile of CFS sufferer Colin Barton. |
• |
Billy Ray Mansell Completes Southend Seafront Triathlon Dressed As Spiderman
A heroic UK dad who refused to let his Fibromyalgia beat him took on a seafront triathlon... dressed as Spiderman. |
• |
Fibromyalgia Study Seeking Participants To Complete An Online Survey
Researchers doctors Andrea Pfalzgraf and Kim Jones are looking into whether people with Fibromyalgia feel invalidated or stigmatized, and if so, how that is affecting their lives. |
• |
Donate To SAHMRI
A request for donations to the South Australian Health & Medical Research Institute (SAHMRI). |
• |
A Systematic Review Of Mitochondrial Abnormalities In ME/CFS/SEID
Research published in the Journal of Translational Medicine. |
• |
Study: Impact Of Fatigue In CFS – Call For Research Participants
The University of Tasmania is overseeing a study assessing the impact of fatigue in people with Chronic Fatigue Syndrome. |
• |
Participants Needed For Online Survey
Researchers from University of SA and Flinders University are looking to understand consumer health care needs. |
• |
Donate To SAHMRI
A request for donations to the South Australian Health & Medical Research Institute (SAHMRI). |
• |
ME/CFS South Australia Inc Co-Signs International Open Letter
ME/CFS South Australia Inc has serious concerns about methodological design flaws in the PACE trial. |
• |
Donate To SAHMRI
A request for donations to the South Australian Health & Medical Research Institute (SAHMRI). |
• |
Warp Speed Help For COVID Long Haulers And ME/CFS
An article by US ME/CFS sufferer and advocate Rivka Solomon. |
• |
Doctors, Recovering Patients Concerned With Lingering, Long-Term COVID-19 Symptoms
As more and more COVID-19 patients recover, additional concerns over long-term effects and lingering symptoms are becoming present. |
• |
Online Wellbeing Survey For Chronically Ill Young People
A survey for chronically ill 16-to-25-year-old Australians. |
• |
Petition: #NotEnoughForME
A petition from ME Action. |
• |
Donate To SAHMRI
A request for donations to the South Australian Health & Medical Research Institute (SAHMRI). |
• |
The "Plandemic" Conspiracy Theorist Is Coming To A TV Near You
A profile of discredited ME/CFS researcher Judy Mikovits. |
• |
Dr. Fauci Says It Will Take 'Months To A Year Or More' To Know Whether Lingering COVID-19 Symptoms In Young People Could Be Chronic Illnesses
Most young people infected with the coronavirus won't become seriously ill, but a growing number of them have reported being sick for weeks on end. |
• |
Chronic Illness Manifesto Survey
The UK's Chronic Illness Inclusion Project aims to capture the experiences and views of people living with chronic illness. |
• |
Donate To SAHMRI
A request for donations to the South Australian Health & Medical Research Institute (SAHMRI). |
| July |
• |
When The Chronically Ill Go Into Remission: Filmmaker Jennifer Brea's Life After "Unrest"
An article by Megan Moodie published in the Los Angeles Review of Books. |
• |
Post-COVID Syndrome, Myalgic Encephalomyelitis, And The Recurring Pseudoscience Of Mass Hysteria
An article published in The Science Bit. |
• |
Donate To SAHMRI
A request for donations to the South Australian Health & Medical Research Institute (SAHMRI). |
• |
The Mystery Of Long-Term Coronavirus Patients
Some coronavirus patients still have symptoms months after they are first infected, challenging the narrative that most people will survive the disease and move on. |
• |
Two South Australian ME/CFS Surveys
Two surveys from South Australian researcher Amy Hill. |
• |
Survey: Making The Invisible Visible
A survey from South Australian researcher Dr Maria Alejandra Pinero de Plaza. |
• |
Donate To SAHMRI
A request for donations to the South Australian Health & Medical Research Institute (SAHMRI). |
• |
'Something Is Just Still Sitting There': Alaskans Recovered From Coronavirus Feel Lasting Effects
A report from Alaskan news outlet 11KTVA. |
• |
Fibromyalgia Study Seeking Participants To Complete An Online Survey
Researchers doctors Andrea Pfalzgraf and Kim Jones are looking into whether people with Fibromyalgia feel invalidated or stigmatized, and if so, how that is affecting their lives. |
• |
Donate To SAHMRI
A request for donations to the South Australian Health & Medical Research Institute (SAHMRI). |
• |
US Woman Sick With COVID-19 For Four Months
A profile of US long-term COVID-19 sufferer Susie Goulding. |
• |
Study: Impact Of Fatigue In CFS – Call For Research Participants
The University of Tasmania is overseeing a study assessing the impact of fatigue in people with Chronic Fatigue Syndrome. |
• |
Participants Needed For Online Survey
Researchers from University of SA and Flinders University are looking to understand consumer health care needs. |
• |
Donate To SAHMRI
A request for donations to the South Australian Health & Medical Research Institute (SAHMRI). |
• |
COVID-19 Patients Could Be At Risk For Chronic Fatigue Syndrome: 'Your Whole Life Can Change If You Get This'
An article published in Brinkwire. |
• |
ME/CFS South Australia Inc Co-Signs International Open Letter
ME/CFS South Australia Inc has serious concerns about methodological design flaws in the PACE trial. |
• |
Donate To SAHMRI
A request for donations to the South Australian Health & Medical Research Institute (SAHMRI). |
• |
ME Sufferer And Medway Author Jessica Taylor-Bearman Wins Award For Book A Girl Behind Dark Glasses
A UK woman who wrote a book about her battles with ME, which she's had since she was 15, has said she's "so overwhelmed" at becoming an award-winning author. |
• |
Staying Hopeful Amid Life With Severe Myalgic Encephalomyelitis
An article by Naomi for Yahoo! News and The Mighty. |
• |
Online Wellbeing Survey For Chronically Ill Young People
A survey for chronically ill 16-to-25-year-old Australians. |
• |
Petition: #NotEnoughForME
A petition from ME Action. |
• |
Donate To SAHMRI
A request for donations to the South Australian Health & Medical Research Institute (SAHMRI). |
• |
Chronic Fatigue Syndrome May Hold Keys To Understanding Post-Covid Syndrome
Some survivors of acute bouts of COVID-19 experience a range of persistent medical issues — some lasting for weeks, or even months — that include profound exhaustion, trouble thinking or remembering, muscle pain, headaches, and more. |
• |
Chronic Illness Manifesto Survey
The UK's Chronic Illness Inclusion Project aims to capture the experiences and views of people living with chronic illness. |
• |
Donate To SAHMRI
A request for donations to the South Australian Health & Medical Research Institute (SAHMRI). |
• |
NICE Advises Against Using Graded Exercise Therapy For Patients Recovering From COVID-19
Graded exercise therapy may not be appropriate for treating post-viral fatigue in patients recovering from COVID-19, the National Institute for Health and Care Excellence (NICE) has advised doctors. |
• |
Donate To SAHMRI
A request for donations to the South Australian Health & Medical Research Institute (SAHMRI). |
• |
Survey: Functionality And Lifestyle Of ME/CFS Sufferers
A survey from South Australian researcher Amy Hill. |
• |
Survey: Making The Invisible Visible
A survey from South Australian researcher Dr Maria Alejandra Pinero de Plaza. |
• |
Donate To SAHMRI
A request for donations to the South Australian Health & Medical Research Institute (SAHMRI). |
• |
Can Natural Language Processing Reveal Doctors' Attitudes Toward Specific Medical Conditions?
Research published in Morten Group Oxford. |
• |
Fibromyalgia Study Seeking Participants To Complete An Online Survey
Researchers doctors Andrea Pfalzgraf and Kim Jones are looking into whether people with Fibromyalgia feel invalidated or stigmatized, and if so, how that is affecting their lives. |
• |
Donate To SAHMRI
A request for donations to the South Australian Health & Medical Research Institute (SAHMRI). |
• |
UK Mum-Of-Two Still Suffering With Long-Term Effects Of Coronavirus Five Months On
A profile of UK long-term COVID-19 sufferer Heather Izzard. |
• |
Study: Impact Of Fatigue In CFS – Call For Research Participants
The University of Tasmania is overseeing a study assessing the impact of fatigue in people with Chronic Fatigue Syndrome. |
• |
Participants Needed For Online Survey
Researchers from University of SA and Flinders University are looking to understand consumer health care needs. |
• |
Donate To SAHMRI
A request for donations to the South Australian Health & Medical Research Institute (SAHMRI). |
• |
UK Woman With Hidden Disabilities Left In Tears After Being Abused Over Parking In Disabled Space
A profile of US long-term COVID-19 sufferer Scott Krakower. |
• |
ME/CFS South Australia Inc Co-Signs International Open Letter
ME/CFS South Australia Inc has serious concerns about methodological design flaws in the PACE trial. |
• |
Donate To SAHMRI
A request for donations to the South Australian Health & Medical Research Institute (SAHMRI). |
• |
Georgia, 31 And Healthy, Thought Her Coronavirus Symptoms Would Last A Couple Of Weeks. She Was Wrong
A profile of two Australian long-term COVID-19 sufferers. |
• |
Online Wellbeing Survey For Chronically Ill Young People
A survey for chronically ill 16-to-25-year-old Australians. |
• |
Petition: #NotEnoughForME
A petition from ME Action. |
• |
Donate To SAHMRI
A request for donations to the South Australian Health & Medical Research Institute (SAHMRI). |
• |
Chronic Warrior: Abi Stevens Expands Her Pin Range To Empower People Living With Chronic Illness
A profile of UK artist Abi Stevens. |
• |
Chronic Illness Manifesto Survey
The UK's Chronic Illness Inclusion Project aims to capture the experiences and views of people living with chronic illness. |
• |
Donate To SAHMRI
A request for donations to the South Australian Health & Medical Research Institute (SAHMRI). |
• |
Matt Hancock Admits He Is 'Worried' About The 'Debilitating' Health Problems That Plague Covid-19 'Long-Haulers' For Months
British Health Secretary Matt Hancock today admitted he is 'worried' about the long term health impacts plaguing coronavirus survivors. |
• |
Donate To SAHMRI
A request for donations to the South Australian Health & Medical Research Institute (SAHMRI). |
• |
Rider Back Doing What She Loves After Long Struggle With Health Condition Urges Others 'Not To Give Up'
A profile of UK horse rider and Fibromyalgia sufferer Rachael Warneford. |
• |
Survey: Making The Invisible Visible
A survey from South Australian researcher Dr Maria Alejandra Pinero de Plaza. |
• |
Donate To SAHMRI
A request for donations to the South Australian Health & Medical Research Institute (SAHMRI). |
• |
Coronavirus May Cause Fatigue Syndrome, Fauci Says
There is evidence that some people develop a long-term fatigue syndrome from coronavirus infections, Dr. Anthony Fauci has said. |
• |
Fibromyalgia Study Seeking Participants To Complete An Online Survey
Researchers doctors Andrea Pfalzgraf and Kim Jones are looking into whether people with Fibromyalgia feel invalidated or stigmatized, and if so, how that is affecting their lives. |
• |
Donate To SAHMRI
A request for donations to the South Australian Health & Medical Research Institute (SAHMRI). |
• |
10th Annual Maria Stein Shrine Art Show Sees The Biggest Turn-Out In Artists And Submissions
A report on the Maria Stein Shrine’s 10th annual art show and sale, featuring Fibromyalgia sufferer Carol Rosenbeck. |
• |
Study: Impact Of Fatigue In CFS – Call For Research Participants
The University of Tasmania is overseeing a study assessing the impact of fatigue in people with Chronic Fatigue Syndrome. |
• |
Participants Needed For Online Survey
Researchers from University of SA and Flinders University are looking to understand consumer health care needs. |
• |
Donate To SAHMRI
A request for donations to the South Australian Health & Medical Research Institute (SAHMRI). |
• |
'This Is Real': COVID-19 Long-Hauler's Months Of Agony
A profile of US long-term COVID-19 sufferer Scott Krakower. |
• |
ME/CFS South Australia Inc Co-Signs International Open Letter
ME/CFS South Australia Inc has serious concerns about methodological design flaws in the PACE trial. |
• |
Donate To SAHMRI
A request for donations to the South Australian Health & Medical Research Institute (SAHMRI). |
• |
A Guy's Guide To Loving A Woman With Fibromyalgia
An article by Jade Bald published in The Good Men Project. |
• |
Online Wellbeing Survey For Chronically Ill Young People
A survey for chronically ill 16-to-25-year-old Australians. |
• |
Petition: #NotEnoughForME
A petition from ME Action. |
• |
Donate To SAHMRI
A request for donations to the South Australian Health & Medical Research Institute (SAHMRI). |
• |
For Some Sufferers, Covid-19 Doesn't Come With An End-By Date – It Just Goes On And On
For #LongCovid sufferers – around 5 per cent of those who catch the disease – debilitating symptoms drag on interminably. |
• |
Chronic Illness Manifesto Survey
The UK's Chronic Illness Inclusion Project aims to capture the experiences and views of people living with chronic illness. |
• |
Donate To SAHMRI
A request for donations to the South Australian Health & Medical Research Institute (SAHMRI). |
• |
Trial By Error: A Few Interesting Studies
An article by ME/CFS researcher and advocate David Tuller. |
• |
Donate To SAHMRI
A request for donations to the South Australian Health & Medical Research Institute (SAHMRI). |
• |
New Zealand Woman With Chronic Illness Calls Out Ministry Of Social Development Over Double Standard
A profile of UK Fibromyalgia sufferer Abby Malcolmson. |
• |
Survey: Making The Invisible Visible
A survey from South Australian researcher Dr Maria Alejandra Pinero de Plaza. |
• |
Donate To SAHMRI
A request for donations to the South Australian Health & Medical Research Institute (SAHMRI). |
• |
UK Bride's Delayed Wedding Day Becomes Charity Run
A profile of UK Fibromyalgia sufferer Tracie Stanley-Wills. |
• |
Fibromyalgia Study Seeking Participants To Complete An Online Survey
Researchers doctors Andrea Pfalzgraf and Kim Jones are looking into whether people with Fibromyalgia feel invalidated or stigmatized, and if so, how that is affecting their lives. |
• |
Donate To SAHMRI
A request for donations to the South Australian Health & Medical Research Institute (SAHMRI). |
• |
Coronavirus And ME: 'I Had Covid-19 Months Ago, But Its Ghost Still Haunts Me'
An article by long-term COVID-19 sufferer Helen Kirwan-Taylor. |
• |
Study: Impact Of Fatigue In CFS – Call For Research Participants
The University of Tasmania is overseeing a study assessing the impact of fatigue in people with Chronic Fatigue Syndrome. |
• |
Participants Needed For Online Survey
Researchers from University of SA and Flinders University are looking to understand consumer health care needs. |
• |
Donate To SAHMRI
A request for donations to the South Australian Health & Medical Research Institute (SAHMRI). |
• |
'What If I Don't Get Better?' Some COVID-19 Survivors Struggle With Symptoms For Weeks, Even Months, Mystifying Doctors
Healthy people, who were in their 40s and 50s when the virus struck, are now facing anxiety, chronic fatigue and disability for years. |
• |
ME/CFS South Australia Inc Co-Signs International Open Letter
ME/CFS South Australia Inc has serious concerns about methodological design flaws in the PACE trial. |
• |
Donate To SAHMRI
A request for donations to the South Australian Health & Medical Research Institute (SAHMRI). |
• |
Chronic Fatigue Syndrome Sufferers Hope For Breakthrough As They Fight For Recognition
DecodeME, the world's biggest genetic research project into CFS, will examine the DNA of 20,000 people frustrated by misunderstandings of their condition. |
• |
Online Wellbeing Survey For Chronically Ill Young People
A survey for chronically ill 16-to-25-year-old Australians. |
• |
Petition: #NotEnoughForME
A petition from ME Action. |
• |
Donate To SAHMRI
A request for donations to the South Australian Health & Medical Research Institute (SAHMRI). |
• |
To Those With Lingering COVID-19 Symptoms, From Someone With Chronic Illness
An article by US ME/CFS sufferer Jennifer Diamond. |
• |
Chronic Illness Manifesto Survey
The UK's Chronic Illness Inclusion Project aims to capture the experiences and views of people living with chronic illness. |
• |
Donate To SAHMRI
A request for donations to the South Australian Health & Medical Research Institute (SAHMRI). |
• |
US Woman Shares Her Story Of Living With Fibromyalgia During The Pandemic
A profile of US Fibromyalgia sufferer Christa Usteszewski. |
• |
Donate To SAHMRI
A request for donations to the South Australian Health & Medical Research Institute (SAHMRI). |
• |
Survey: Making The Invisible Visible
A survey from South Australian researcher Dr Maria Alejandra Pinero de Plaza. |
• |
Donate To SAHMRI
A request for donations to the South Australian Health & Medical Research Institute (SAHMRI). |
• |
UK ME Charity Announces New Patron
Mid Sussex ME charity reMEmber has announced its newest patron alongside important news about the after-effects of Covid-19 and new funding for a study into the causes of ME. |
• |
Fibromyalgia Study Seeking Participants To Complete An Online Survey
Researchers doctors Andrea Pfalzgraf and Kim Jones are looking into whether people with Fibromyalgia feel invalidated or stigmatized, and if so, how that is affecting their lives. |
• |
Donate To SAHMRI
A request for donations to the South Australian Health & Medical Research Institute (SAHMRI). |
| June |
• |
Coronavirus In Ireland – Doc Warns Young People Are Not Immune From Chronic Fatigue Syndrome After Catching Covid-19
Young people who catch COVID-19 can develop Chronic Fatigue Syndrome and pass the coronavirus onto loved ones who may die, a Dublin GP has warned. |
• |
Study: Impact Of Fatigue In CFS – Call For Research Participants
The University of Tasmania is overseeing a study assessing the impact of fatigue in people with Chronic Fatigue Syndrome. |
• |
Participants Needed For Online Survey
Researchers from University of SA and Flinders University are looking to understand consumer health care needs. |
• |
Donate To SAHMRI
A request for donations to the South Australian Health & Medical Research Institute (SAHMRI). |
• |
Revealed: Scars Of Covid-19 Could Last For Life As Doctors Warn Of Long-Term Damage To Health
Healthy people, who were in their 40s and 50s when the virus struck, are now facing anxiety, chronic fatigue and disability for years. |
• |
ME/CFS South Australia Inc Co-Signs International Open Letter
ME/CFS South Australia Inc has serious concerns about methodological design flaws in the PACE trial. |
• |
Donate To SAHMRI
A request for donations to the South Australian Health & Medical Research Institute (SAHMRI). |
• |
Graded Exercise Therapy Doesn't Restore The Ability To Work In ME/CFS – Rethinking Of A Cochrane Review
An article published in the journal Work. |
• |
Online Wellbeing Survey For Chronically Ill Young People
A survey for chronically ill 16-to-25-year-old Australians. |
• |
Petition: #NotEnoughForME
A petition from ME Action. |
• |
Donate To SAHMRI
A request for donations to the South Australian Health & Medical Research Institute (SAHMRI). |
• |
Coronavirus And ME: Doctors Fear Wave Of Chronic Fatigue Syndrome
The COVID-19 outbreak may lead to a long-term surge in cases of ME/CFS. |
• |
Chronic Illness Manifesto Survey
The UK's Chronic Illness Inclusion Project aims to capture the experiences and views of people living with chronic illness. |
• |
Donate To SAHMRI
A request for donations to the South Australian Health & Medical Research Institute (SAHMRI). |
• |
Things Not To Say To A Person Living With Chronic Pain
An article by Australian endometriosis and Fibromyalgia sufferer Katie Brebner Griffin. |
• |
Donate To SAHMRI
A request for donations to the South Australian Health & Medical Research Institute (SAHMRI). |
• |
UK To Launch World's Largest Genetic Study Into Chronic Fatigue Syndrome
Research aims to shine a light on condition that is believed to affect 250,000 people in the UK. |
• |
Donate To SAHMRI
A request for donations to the South Australian Health & Medical Research Institute (SAHMRI). |
• |
Virtual Theatre: "A Demon On My Life"
The staging of A Demon On My Life, a play focusing on a woman with ME/CFS. |
• |
Fibromyalgia Study Seeking Participants To Complete An Online Survey
Researchers doctors Andrea Pfalzgraf and Kim Jones are looking into whether people with Fibromyalgia feel invalidated or stigmatized, and if so, how that is affecting their lives. |
• |
Donate To SAHMRI
A request for donations to the South Australian Health & Medical Research Institute (SAHMRI). |
• |
How We Met: 'I Was Trying To Look Sexy While I Explained I Had A Chronic Illness'
A profile of UK ME/CFS sufferer Jenny Brownlees and her partner Adam Meritt. |
• |
Study: Impact Of Fatigue In CFS – Call For Research Participants
The University of Tasmania is overseeing a study assessing the impact of fatigue in people with Chronic Fatigue Syndrome. |
• |
Participants Needed For Online Survey
Researchers from University of SA and Flinders University are looking to understand consumer health care needs. |
• |
Donate To SAHMRI
A request for donations to the South Australian Health & Medical Research Institute (SAHMRI). |
• |
ME/CFS South Australia Inc Co-Signs International Open Letter
ME/CFS South Australia Inc has serious concerns about methodological design flaws in the PACE trial. |
• |
Donate To SAHMRI
A request for donations to the South Australian Health & Medical Research Institute (SAHMRI). |
• |
Online Wellbeing Survey For Chronically Ill Young People
A survey for chronically ill 16-to-25-year-old Australians. |
• |
Petition: #NotEnoughForME
A petition from ME Action. |
• |
Donate To SAHMRI
A request for donations to the South Australian Health & Medical Research Institute (SAHMRI). |
• |
Coronavirus Patients Could Develop ME, Group Warns
A medical group in the UK has warned that coronavirus patients could develop Chronic Fatigue Syndrome if their recovery is not properly managed. |
• |
Myalgic Encephalomyelitis: MEPs Call For More Funds For Research Into Complex Illness
European Parliament wants to increase EU funding in order to advance research on diagnostic tests and treatment of ME/CFS. |
• |
Chronic Illness Manifesto Survey
The UK's Chronic Illness Inclusion Project aims to capture the experiences and views of people living with chronic illness. |
• |
Donate To SAHMRI
A request for donations to the South Australian Health & Medical Research Institute (SAHMRI). |
• |
'Lockdown Has A Lot To Answer For': The Mature Students Going Back To University
Far from being a deterrent, coronavirus is inspiring those who thought they’d left education behind to start studying again. |
• |
Global Research Team Aims To Find Cause Of Chronic Fatigue Syndrome
Data visualisation company Zegami is collaborating with an international team of medical researchers to try and find what causes Chronic Fatigue Syndrome. |
• |
Donate To SAHMRI
A request for donations to the South Australian Health & Medical Research Institute (SAHMRI). |
• |
'I Felt Like A Prisoner In My Own Home'
A profile of UK Fibromyalgia sufferer Rebecca Browne. |
• |
Skeletal Muscle Weakness Often Occurs In Patients With ME/CFS
Research published in the Journal of Experimental Neurology. |
• |
Donate To SAHMRI
A request for donations to the South Australian Health & Medical Research Institute (SAHMRI). |
• |
Chronic Fatigue Research Network Targets COVID-19
Members of the EUROMENE COST Action are adapting their work on Chronic Fatigue Syndrome to coronavirus patients. |
• |
Risk Factors For Suicide In Chronic Fatigue Syndrome
Research published in the medical journal Death Studies. |
• |
Fibromyalgia Study Seeking Participants To Complete An Online Survey
Researchers doctors Andrea Pfalzgraf and Kim Jones are looking into whether people with Fibromyalgia feel invalidated or stigmatized, and if so, how that is affecting their lives. |
• |
Donate To SAHMRI
A request for donations to the South Australian Health & Medical Research Institute (SAHMRI). |
• |
Canadian COVID-19 Disability Benefit, Even If Approved, Would 'Miss All Kinds Of People'
An article from Canada's Global News. |
• |
Study: Impact Of Fatigue In CFS – Call For Research Participants
The University of Tasmania is overseeing a study assessing the impact of fatigue in people with Chronic Fatigue Syndrome. |
• |
Participants Needed For Online Survey
Researchers from University of SA and Flinders University are looking to understand consumer health care needs. |
• |
Donate To SAHMRI
A request for donations to the South Australian Health & Medical Research Institute (SAHMRI). |
• |
FALSE: Ryan Seacrest Diagnosed With ME/CFS
A rumour about US TV host Ryan Seacrest involving ME/CFS.. |
• |
ME/CFS South Australia Inc Co-Signs International Open Letter
ME/CFS South Australia Inc has serious concerns about methodological design flaws in the PACE trial. |
• |
Donate To SAHMRI
A request for donations to the South Australian Health & Medical Research Institute (SAHMRI). |
• |
Irish Teen: Suffering From ME Inspired Me To Set Up My Own Business
A profile of Irish ME/CFS sufferer Isabelle Harte. |
• |
Online Wellbeing Survey For Chronically Ill Young People
A survey for chronically ill 16-to-25-year-old Australians. |
• |
Petition: #NotEnoughForME
A petition from ME Action. |
• |
Donate To SAHMRI
A request for donations to the South Australian Health & Medical Research Institute (SAHMRI). |
• |
UK School Worker Kathy, 58, Reveals What It's Like Living In Lockdown With A Chronic Health Condition
A profile of UK ME/CFS sufferer Kathy Simms. |
• |
Chronic Illness Manifesto Survey
The UK's Chronic Illness Inclusion Project aims to capture the experiences and views of people living with chronic illness. |
• |
Donate To SAHMRI
A request for donations to the South Australian Health & Medical Research Institute (SAHMRI). |
• |
'Grief And Confusion Clashed With Unconditional Love And Joy': The Hidden Lives Of Young Carers
An article about young carers in the UK. |
• |
Zegami Joins Team Of Medical Researchers To Help Find The Cause Of ME/CFS And Ultimately A Cure
Zegami, the Oxford University data visualisation spin-out, has joined an international team of medical researchers to try and find the cause of ME/CFS. |
• |
Donate To SAHMRI
A request for donations to the South Australian Health & Medical Research Institute (SAHMRI). |
• |
Canadian Woman Left Without Running Water For More Than A Year
A profile of Canadian Fibromyalgia sufferer Lori Scully. |
• |
Living With Fibromyalgia - The Condition That Makes You 'Feel Like A Fraud'
A profile of UK Fibromyalgia sufferer Claire Jones. |
• |
Fibromyalgia As A Neuropathic Pain Disorder: The Link To Small Fiber Neuropathy
An article published in Practical Pain Management. |
• |
Donate To SAHMRI
A request for donations to the South Australian Health & Medical Research Institute (SAHMRI). |
• |
A Moment With Zoe Watson
A profile of Australian Fibromyalgia sufferer Zoe Watson. |
• |
Fibromyalgia Study Seeking Participants To Complete An Online Survey
Researchers doctors Andrea Pfalzgraf and Kim Jones are looking into whether people with Fibromyalgia feel invalidated or stigmatized, and if so, how that is affecting their lives. |
• |
Donate To SAHMRI
A request for donations to the South Australian Health & Medical Research Institute (SAHMRI). |
• |
No One Knows Why These Covid-19 Patients Symptoms Keep Relapsing
An article COVID-19 patients developing long-term symptoms, including fatigue. |
• |
Study: Impact Of Fatigue In CFS – Call For Research Participants
The University of Tasmania is overseeing a study assessing the impact of fatigue in people with Chronic Fatigue Syndrome. |
• |
Participants Needed For Online Survey
Researchers from University of SA and Flinders University are looking to understand consumer health care needs. |
• |
Donate To SAHMRI
A request for donations to the South Australian Health & Medical Research Institute (SAHMRI). |
• |
Perth Model And Socialite Sophie Kerrigan Opens Up About Battle With Chronic Fatigue Syndrome
A profile of Australian ME/CFS sufferer Sophie Kerrigan. |
• |
ME/CFS South Australia Inc Co-Signs International Open Letter
ME/CFS South Australia Inc has serious concerns about methodological design flaws in the PACE trial. |
• |
Donate To SAHMRI
A request for donations to the South Australian Health & Medical Research Institute (SAHMRI). |
• |
2020 Free Ride Finalist: Jones Straight-A Student Battling Illnesses Wants To Help Others With Her Medical Issues
A profile of US Fibromyalgia sufferer Hannah Vaught. |
• |
Online Wellbeing Survey For Chronically Ill Young People
A survey for chronically ill 16-to-25-year-old Australians. |
• |
Petition: #NotEnoughForME
A petition from ME Action. |
• |
Coronavirus (COVID-19) & ME/CFS
Advice from US ME/CFS specialist Nancy Klimas, MD. |
• |
Donate To SAHMRI
A request for donations to the South Australian Health & Medical Research Institute (SAHMRI). |
• |
US Congressman Jamie Raskin Introduces Legislation To Address ME/CFS
US Congressman Jamie Raskin has introduced legislation that would expand and coordinate National Institutes of Health funding to address post-viral chronic neuroimmune diseases, including ME/CFS in the wake of the COVID-19 pandemic. |
• |
Chronic Illness Manifesto Survey
The UK's Chronic Illness Inclusion Project aims to capture the experiences and views of people living with chronic illness. |
• |
Donate To SAHMRI
A request for donations to the South Australian Health & Medical Research Institute (SAHMRI). |
• |
COVID-19 Can Last For Several Months
Profiles of long-term COVID-19 sufferers. |
• |
Donate To SAHMRI
A request for donations to the South Australian Health & Medical Research Institute (SAHMRI). |
• |
Dialogues - Severe & Very Severe ME/CFS
A video from the UK discussing severe ME/CFS. |
• |
Donate To SAHMRI
A request for donations to the South Australian Health & Medical Research Institute (SAHMRI). |
• |
'I've Spent Years In Lockdown' - UK Woman's Debilitating Condition Means Even Sound Of Children Playing Is Painful
A profile of UK ME/CFS sufferer Naomi Gilchrist. |
• |
Fibromyalgia Study Seeking Participants To Complete An Online Survey
Researchers doctors Andrea Pfalzgraf and Kim Jones are looking into whether people with Fibromyalgia feel invalidated or stigmatized, and if so, how that is affecting their lives. |
• |
Donate To SAHMRI
A request for donations to the South Australian Health & Medical Research Institute (SAHMRI). |
• |
The Puzzling Patchwork Of ME/CFS
A radio broadcast from the Australian national broadcaster ABC's Health Report. |
• |
Bad Conspiracy Theories: The Bad, The Worse And The Ugliest
An article reviewing a video by discredited ME/CFS researcher Judy Mikovits. |
• |
Study: Impact Of Fatigue In CFS – Call For Research Participants
The University of Tasmania is overseeing a study assessing the impact of fatigue in people with Chronic Fatigue Syndrome. |
• |
Participants Needed For Online Survey
Researchers from University of SA and Flinders University are looking to understand consumer health care needs. |
• |
Donate To SAHMRI
A request for donations to the South Australian Health & Medical Research Institute (SAHMRI). |
• |
ME/CFS South Australia Inc Co-Signs International Open Letter
ME/CFS South Australia Inc has serious concerns about methodological design flaws in the PACE trial. |
• |
Donate To SAHMRI
A request for donations to the South Australian Health & Medical Research Institute (SAHMRI). |
| May |
• |
Online Wellbeing Survey For Chronically Ill Young People
A survey for chronically ill 16-to-25-year-old Australians. |
• |
Petition: #NotEnoughForME
A petition from ME Action. |
• |
Donate To SAHMRI
A request for donations to the South Australian Health & Medical Research Institute (SAHMRI). |
• |
Coronavirus (COVID-19) & ME/CFS
Advice from US ME/CFS specialist Nancy Klimas, MD. |
• |
Donate To SAHMRI
A request for donations to the South Australian Health & Medical Research Institute (SAHMRI). |
• |
'How ME Has Left Me Grieving For The Life I Used To Have'
An article by UK ME/CFS sufferer Tracey Barraclough about her life with the disease. |
• |
Chronic Illness Manifesto Survey
The UK's Chronic Illness Inclusion Project aims to capture the experiences and views of people living with chronic illness. |
• |
Donate To SAHMRI
A request for donations to the South Australian Health & Medical Research Institute (SAHMRI). |
• |
COVID-19 May Cause Hallmark ME/CFS Post-Exertional Malaise
An article about the problems associated with COVID-19. |
• |
Dialogues - Severe & Very Severe ME/CFS
A video from the UK discussing severe ME/CFS. |
• |
Donate To SAHMRI
A request for donations to the South Australian Health & Medical Research Institute (SAHMRI). |
• |
Fibromyalgia Study Seeking Participants To Complete An Online Survey
Researchers doctors Andrea Pfalzgraf and Kim Jones are looking into whether people with Fibromyalgia feel invalidated or stigmatized, and if so, how that is affecting their lives. |
• |
Donate To SAHMRI
A request for donations to the South Australian Health & Medical Research Institute (SAHMRI). |
• |
Welsh Pair With Fibromyalgia Shave Heads For Nevill Hall Hospital
A profile of two Welsh Fibromyalgia sufferers Catherine Norris and Barbara Williams. |
• |
When Your Body's Pain Volume Is Always Turned Up
A profile of Kenyan Fibromyalgia sufferer Laura Litaba. |
• |
Study: Impact Of Fatigue In CFS – Call For Research Participants
The University of Tasmania is overseeing a study assessing the impact of fatigue in people with Chronic Fatigue Syndrome. |
• |
Donate To SAHMRI
A request for donations to the South Australian Health & Medical Research Institute (SAHMRI). |
• |
Kara Jane Spencer: More Than 100 Musicians Offer Help On Album
A profile of UK musician and ME/CFS sufferer Kara Jane Spencer. |
• |
ME/CFS South Australia Inc Co-Signs International Open Letter
ME/CFS South Australia Inc has serious concerns about methodological design flaws in the PACE trial. |
• |
Participants Needed For Online Survey
Researchers from University of SA and Flinders University are looking to understand consumer health care needs. |
• |
Donate To SAHMRI
A request for donations to the South Australian Health & Medical Research Institute (SAHMRI). |
• |
Online Wellbeing Survey For Chronically Ill Young People
A survey for chronically ill 16-to-25-year-old Australians. |
• |
Petition: #NotEnoughForME
A petition from ME Action. |
• |
Donate To SAHMRI
A request for donations to the South Australian Health & Medical Research Institute (SAHMRI). |
• |
INIM Webinar - Understanding ME/CFS Today: A Clinical & Research Approach
A video from the NSU Institute for Neuro-Immune Medicine. |
• |
ME/CFS Diagnoses Could Rise After Coronavirus, Researchers Suggest
Researchers and activists are concerned that some people who've survived COVID-19 might go on to develop ME/CFS. |
• |
Coronavirus (COVID-19) & ME/CFS
Advice from US ME/CFS specialist Nancy Klimas, MD. |
• |
Donate To SAHMRI
A request for donations to the South Australian Health & Medical Research Institute (SAHMRI). |
• |
The People Who Can't Shake Off Coronavirus: 'Week Nine And I'm Exhausted And Back To Being Bed Bound'
Profiles of UK COVID-19 sufferers. |
• |
What Do We Know About The Long Term Effects Of Surviving COVID-19?
A video from Doctor Oz and ME/CFS researcher Dr Ian Lipkin. |
• |
Chronic Illness Manifesto Survey
The UK's Chronic Illness Inclusion Project aims to capture the experiences and views of people living with chronic illness. |
• |
Donate To SAHMRI
A request for donations to the South Australian Health & Medical Research Institute (SAHMRI). |
• |
'You Can't Take Risks': Martine McCutcheon Discusses Living With Chronic Fatigue Syndrome And Lyme Disease
A profile of UK actress and ME/CFS sufferer Martine McCutcheon. |
• |
Donate To SAHMRI
A request for donations to the South Australian Health & Medical Research Institute (SAHMRI). |
• |
Coronavirus Patients With Even Mild Cases Of COVID-19 Are Taking Months To Recover And Suffering Extreme Fatigue
A profile of Australian COVID-19 patient Paul Garner. |
• |
Australian Pro Surfer Tyler Wright Reveals How A Mystery Illness Left Her Unable To Walk And Terrified Of Sunlight
A profile of Australian pro surfer Tyler Wright. |
• |
Fibromyalgia Study Seeking Participants To Complete An Online Survey
Researchers doctors Andrea Pfalzgraf and Kim Jones are looking into whether people with Fibromyalgia feel invalidated or stigmatized, and if so, how that is affecting their lives. |
• |
Donate To SAHMRI
A request for donations to the South Australian Health & Medical Research Institute (SAHMRI). |
• |
ME/CFS Song
A song by Australia ME/CFS sufferer Sarah Hunter. |
• |
Study: Impact Of Fatigue In CFS – Call For Research Participants
The University of Tasmania is overseeing a study assessing the impact of fatigue in people with Chronic Fatigue Syndrome. |
• |
Donate To SAHMRI
A request for donations to the South Australian Health & Medical Research Institute (SAHMRI). |
• |
'Weird As Hell': The Covid-19 Patients Who Have Symptoms For Months
Researchers are keen to work out why some people are suffering from 'long tail' form of the COVID-19 virus. |
• |
"Isolation Is Giving People A Glimpse Into Life With Chronic Pain. It's Time I Talk About Mine."
A profile of Australian ME/CFS and Fibromyalgia sufferer Charlotte Begg. |
• |
I Was A 'Near-Perfect' Housewife. Then I Was Diagnosed With Fibromyalgia
A profile of Fibromyalgia sufferer Allison Martinez. |
• |
ME/CFS South Australia Inc Co-Signs International Open Letter
ME/CFS South Australia Inc has serious concerns about methodological design flaws in the PACE trial. |
• |
Participants Needed For Online Survey
Researchers from University of SA and Flinders University are looking to understand consumer health care needs. |
• |
Donate To SAHMRI
A request for donations to the South Australian Health & Medical Research Institute (SAHMRI). |
• |
Long, Painful And Often Mysterious Road To Recovery For Some COVID-19 Patients
Research suggests that COVID-19 might trigger chronic fatigue syndrome in some people. |
• |
False Claim: 'Plandemic' Video On COVID-19
Fact checking a video by former ME/CFS researcher Judy Mikovits. |
• |
Online Wellbeing Survey For Chronically Ill Young People
A survey for chronically ill 16-to-25-year-old Australians. |
• |
Petition: #NotEnoughForME
A petition from ME Action. |
• |
Donate To SAHMRI
A request for donations to the South Australian Health & Medical Research Institute (SAHMRI). |
• |
JOGO Health Launches COVID-19 Chronic Fatigue Syndrome Study
A US study that will focus on 35% of patients who are developing ME/CFS post COVID-19 recovery. |
• |
Coronavirus (COVID-19) & ME/CFS
Advice from US ME/CFS specialist Nancy Klimas, MD. |
• |
Living With: Irish Woman With Fibromyalgia Shares Experience Of Condition And How She Never Wants It To Define Her
A profile Irish Fibromyalgia sufferer Órla Gilheaney. |
• |
Donate To SAHMRI
A request for donations to the South Australian Health & Medical Research Institute (SAHMRI). |
• |
This Woman's Powerful Illustrations Show What It's Like Living With Fibromyalgia
A profile of UK illustrator and Fibromyalgia sufferer Mimi Butlin. |
• |
UK ME Group Warning To COVID-19 Patients
People in Sheffield living with ME have joined others nationally to protest amid fears a treatment they say is harmful will be offered to patients recovering from COVID-19. |
• |
Chronic Illness Manifesto Survey
The UK's Chronic Illness Inclusion Project aims to capture the experiences and views of people living with chronic illness. |
• |
Donate To SAHMRI
A request for donations to the South Australian Health & Medical Research Institute (SAHMRI). |
• |
Local Focus: May Is ME/CFS Awareness Month, So What Is It?
While May has been significant for all sorts of Covid related reasons, for one group of New Zealanders, May is a time to campaign and raise awareness of an often crippling illness. |
• |
'My Life Is Lockdown' - New Zealand ME/CFS Sufferer
A profile of New Zealand ME/CFS and Fibromyalgia sufferer Angela Larsen. |
• |
Griffith Bridge And Ian O'Connor Building Light Up For ME/CFS Awareness Day
Griffith University's iconic bridge across the Smith Street Motorway and the Ian O'Connor Building was illuminated in blue to mark International ME/CFS Awareness Day on 12 May. |
• |
Fibromyalgia Study Seeking Participants To Complete An Online Survey
Researchers doctors Andrea Pfalzgraf and Kim Jones are looking into whether people with Fibromyalgia feel invalidated or stigmatized, and if so, how that is affecting their lives. |
• |
Donate To SAHMRI
A request for donations to the South Australian Health & Medical Research Institute (SAHMRI). |
• |
May 12 Is International Awareness Day
May 12's mission is to raise global awareness and education for Complex Immunological and Neurological Diseases (CIND) including ME/CFS and Fibromyalgia. |
• |
Opinion: I Have Fibromyalgia. This Is Why I Need Cannabis To Be Legalised
A profile of New Zealand Fibromyalgia sufferer Emma Clark. |
• |
Study: Impact Of Fatigue In CFS – Call For Research Participants
The University of Tasmania is overseeing a study assessing the impact of fatigue in people with Chronic Fatigue Syndrome. |
• |
Donate To SAHMRI
A request for donations to the South Australian Health & Medical Research Institute (SAHMRI). |
• |
Disability-Led Opera Company Raises Their Voice For At-Risk Chronic Illness Community During COVID-19
Canada's only disability-led, disability-run opera company is raising their voice in a new way for an at-risk community. |
• |
ME/CFS South Australia Inc Co-Signs International Open Letter
ME/CFS South Australia Inc has serious concerns about methodological design flaws in the PACE trial. |
• |
Participants Needed For Online Survey
Researchers from University of SA and Flinders University are looking to understand consumer health care needs. |
• |
Donate To SAHMRI
A request for donations to the South Australian Health & Medical Research Institute (SAHMRI). |
• |
My Mom Is Limited By A Disability, But She Still Shows Up In All The Ways That Matter
An article by Brittany Collins about her ME/CFS sufferer mother. |
• |
Online Wellbeing Survey For Chronically Ill Young People
A survey for chronically ill 16-to-25-year-old Australians. |
• |
Petition: #NotEnoughForME
A petition from ME Action. |
• |
Donate To SAHMRI
A request for donations to the South Australian Health & Medical Research Institute (SAHMRI). |
• |
Thirty-Five-Year-Old Living In Aged Care Reveals What Life Is Like Inside During This Pandemic
A profile of Australian ME/CFS sufferer Ketra Wooding. |
• |
Coronavirus (COVID-19) & ME/CFS
Advice from US ME/CFS specialist Nancy Klimas, MD. |
• |
I Was Sleeping Up To 18 To 20 Hours A Day... Says Irish Woman With M.E.
A profile of Irish ME/CFS sufferer Ashling O'Leary. |
• |
Donate To SAHMRI
A request for donations to the South Australian Health & Medical Research Institute (SAHMRI). |
• |
Chronic Illness Manifesto Survey
The UK's Chronic Illness Inclusion Project aims to capture the experiences and views of people living with chronic illness. |
• |
Donate To SAHMRI
A request for donations to the South Australian Health & Medical Research Institute (SAHMRI). |
• |
Letters To The Editor: ME/CFS Awareness
A letter published in US newspaper the Taft Midway Driller. |
• |
Donate To SAHMRI
A request for donations to the South Australian Health & Medical Research Institute (SAHMRI). |
• |
Fibromyalgia Study Seeking Participants To Complete An Online Survey
Researchers doctors Andrea Pfalzgraf and Kim Jones are looking into whether people with Fibromyalgia feel invalidated or stigmatized, and if so, how that is affecting their lives. |
• |
Donate To SAHMRI
A request for donations to the South Australian Health & Medical Research Institute (SAHMRI). |
• |
ME Sufferer To Walk 2.6 Miles For Charity
A profile of Isle of Man ME/CFS sufferer Juan Corlett. |
• |
Study: Impact Of Fatigue In CFS – Call For Research Participants
The University of Tasmania is overseeing a study assessing the impact of fatigue in people with Chronic Fatigue Syndrome. |
• |
Donate To SAHMRI
A request for donations to the South Australian Health & Medical Research Institute (SAHMRI). |
• |
Coronavirus Could Cause Secondary Illnesses Including Chronic Fatigue Syndrome, Experts Warn
New medical papers suggest the contagion can get deep into our vascular system and even our brains. |
• |
ME/CFS South Australia Inc Co-Signs International Open Letter
ME/CFS South Australia Inc has serious concerns about methodological design flaws in the PACE trial. |
• |
Participants Needed For Online Survey
Researchers from University of SA and Flinders University are looking to understand consumer health care needs. |
• |
Donate To SAHMRI
A request for donations to the South Australian Health & Medical Research Institute (SAHMRI). |
• |
Energy Impairment And Disability Inclusion
A document from the Chronic Illness Inclusion Project. |
• |
A Systematic Review Of Neurological Impairments In ME/CFS Using Neuroimaging Techniques
Research published in PLOS ONE. |
• |
Online Wellbeing Survey For Chronically Ill Young People
A survey for chronically ill 16-to-25-year-old Australians. |
• |
Petition: #NotEnoughForME
A petition from ME Action. |
• |
Donate To SAHMRI
A request for donations to the South Australian Health & Medical Research Institute (SAHMRI). |
• |
Coronavirus (COVID-19) & ME/CFS
Advice from US ME/CFS specialist Nancy Klimas, MD. |
• |
Findings From International Research Group Show HHV-6 Connection To Energy Production Problems In ME/CFS
Research published in the medical journal ImmunoHorizons. |
• |
Donate To SAHMRI
A request for donations to the South Australian Health & Medical Research Institute (SAHMRI). |
• |
Durban Songstress, Ruby Rose Talks About Her Battle With Fibromyalgia
A profile of South African singer and Fibromyalgia sufferer Ruby Rose. |
• |
Chronic Illness Manifesto Survey
The UK's Chronic Illness Inclusion Project aims to capture the experiences and views of people living with chronic illness. |
• |
Donate To SAHMRI
A request for donations to the South Australian Health & Medical Research Institute (SAHMRI). |
| April |
• |
Solving The ME/CFS Criteria And Name Conundrum: The Aftermath Of IOM
An article by US ME/CFS researcher Leonard A. Jason published in the medical journal Fatigue: Biomedicine, Health & Behavior. |
• |
Recovery From COVID-19 Can Take Months Or Longer, Local Health Experts Say
Surviving a serious COVID-19 infection is worth celebrating but those saved by ventilators and long hospital stays likely won’t return home to a normal lifestyle any time soon. |
• |
Donate To SAHMRI
A request for donations to the South Australian Health & Medical Research Institute (SAHMRI). |
• |
'I'm Begging People To Listen': Newton COVID-19 Survivor Shares Story
A profile of US ME/CFS and Fibromyalgia sufferer Ann Langenfeld. |
• |
Fibromyalgia Study Seeking Participants To Complete An Online Survey
Researchers doctors Andrea Pfalzgraf and Kim Jones are looking into whether people with Fibromyalgia feel invalidated or stigmatized, and if so, how that is affecting their lives. |
• |
Donate To SAHMRI
A request for donations to the South Australian Health & Medical Research Institute (SAHMRI). |
• |
Recovered Coronavirus Patients May Face Months Of Extreme Fatigue And Weakness, Warn Experts
An expert worries that the new coronavirus could also follow the path of other viral infections. |
• |
Study: Impact Of Fatigue In CFS – Call For Research Participants
The University of Tasmania is overseeing a study assessing the impact of fatigue in people with Chronic Fatigue Syndrome. |
• |
Donate To SAHMRI
A request for donations to the South Australian Health & Medical Research Institute (SAHMRI). |
• |
ME/CFS South Australia Inc Co-Signs International Open Letter
ME/CFS South Australia Inc has serious concerns about methodological design flaws in the PACE trial. |
• |
Participants Needed For Online Survey
Researchers from University of SA and Flinders University are looking to understand consumer health care needs. |
• |
Donate To SAHMRI
A request for donations to the South Australian Health & Medical Research Institute (SAHMRI). |
• |
Online Wellbeing Survey For Chronically Ill Young People
A survey for chronically ill 16-to-25-year-old Australians. |
• |
Petition: #NotEnoughForME
A petition from ME Action. |
• |
Donate To SAHMRI
A request for donations to the South Australian Health & Medical Research Institute (SAHMRI). |
• |
Coronavirus (COVID-19) & ME/CFS
Advice from US ME/CFS specialist Nancy Klimas, MD. |
• |
Donate To SAHMRI
A request for donations to the South Australian Health & Medical Research Institute (SAHMRI). |
• |
Chronic Illness Manifesto Survey
The UK's Chronic Illness Inclusion Project aims to capture the experiences and views of people living with chronic illness. |
• |
Donate To SAHMRI
A request for donations to the South Australian Health & Medical Research Institute (SAHMRI). |
• |
I Was Diagnosed With Chronic Fatigue Syndrome
A profile of Australian ME/CFS sufferer Sophie McGrath. |
• |
Donate To SAHMRI
A request for donations to the South Australian Health & Medical Research Institute (SAHMRI). |
• |
Fibromyalgia Study Seeking Participants To Complete An Online Survey
Researchers doctors Andrea Pfalzgraf and Kim Jones are looking into whether people with Fibromyalgia feel invalidated or stigmatized, and if so, how that is affecting their lives. |
• |
Donate To SAHMRI
A request for donations to the South Australian Health & Medical Research Institute (SAHMRI). |
• |
After Effect: Coronavirus Can Cause Chronic Fatigue Syndrome, Sleeping Problems
Researchers in the US have said that people who have recovered from COVID-19 may experience severe fatigue syndromes. |
• |
Sir Richie Opens Up About Near Career-Ending Diagnosis
A profile of West Indies cricketer Sir Richie Richardson. |
• |
Study: Impact Of Fatigue In CFS – Call For Research Participants
The University of Tasmania is overseeing a study assessing the impact of fatigue in people with Chronic Fatigue Syndrome. |
• |
Donate To SAHMRI
A request for donations to the South Australian Health & Medical Research Institute (SAHMRI). |
• |
ME/CFS South Australia Inc Co-Signs International Open Letter
ME/CFS South Australia Inc has serious concerns about methodological design flaws in the PACE trial. |
• |
Participants Needed For Online Survey
Researchers from University of SA and Flinders University are looking to understand consumer health care needs. |
• |
Donate To SAHMRI
A request for donations to the South Australian Health & Medical Research Institute (SAHMRI). |
• |
My Quarantine Routine: Jason, Who Lives With M.E. And Has Been Housebound For Most Of His Life
A profile of UK ME/CFS sufferer Jason Reed. |
• |
Online Wellbeing Survey For Chronically Ill Young People
A survey for chronically ill 16-to-25-year-old Australians. |
• |
Petition: #NotEnoughForME
A petition from ME Action. |
• |
Donate To SAHMRI
A request for donations to the South Australian Health & Medical Research Institute (SAHMRI). |
• |
Coronavirus (COVID-19) & ME/CFS
Advice from US ME/CFS specialist Nancy Klimas, MD. |
• |
Donate To SAHMRI
A request for donations to the South Australian Health & Medical Research Institute (SAHMRI). |
• |
Could The Coronavirus Trigger Post-Viral Fatigue Syndromes?
Conditions like ME/CFS have been linked to viral infections, so it's possible that the covid-19 virus may go on to trigger similar conditions. |
• |
UK Single Parents Open Up About Struggles During Lockdown
Profiles of UK single parents with chronic illnesses. |
• |
Chronic Illness Manifesto Survey
The UK's Chronic Illness Inclusion Project aims to capture the experiences and views of people living with chronic illness. |
• |
Donate To SAHMRI
A request for donations to the South Australian Health & Medical Research Institute (SAHMRI). |
• |
Lockdown Moved All Teaching Online, But Disabled Students Have Asked For That For Years
Profiles of disabled UK students, including ME/CFS sufferer Amber. |
• |
Q&A: Vancouver Author Suzanne Chiasson Talks New Novel Tacet
A profile of Canadian author Suzanne Chiasson. |
• |
10 Storylines On The Golden Girls That Were Way Ahead Of Their Time
Years after comedy series The Golden Girls aired, some of the storylines remain way ahead of their time. |
• |
Donate To SAHMRI
A request for donations to the South Australian Health & Medical Research Institute (SAHMRI). |
• |
Fibromyalgia Study Seeking Participants To Complete An Online Survey
Researchers doctors Andrea Pfalzgraf and Kim Jones are looking into whether people with Fibromyalgia feel invalidated or stigmatized, and if so, how that is affecting their lives. |
• |
Donate To SAHMRI
A request for donations to the South Australian Health & Medical Research Institute (SAHMRI). |
• |
Study: Impact Of Fatigue In CFS – Call For Research Participants
The University of Tasmania is overseeing a study assessing the impact of fatigue in people with Chronic Fatigue Syndrome. |
• |
Donate To SAHMRI
A request for donations to the South Australian Health & Medical Research Institute (SAHMRI). |
• |
ME/CFS South Australia Inc Co-Signs International Open Letter
ME/CFS South Australia Inc has serious concerns about methodological design flaws in the PACE trial. |
• |
Participants Needed For Online Survey
Researchers from University of SA and Flinders University are looking to understand consumer health care needs. |
• |
Donate To SAHMRI
A request for donations to the South Australian Health & Medical Research Institute (SAHMRI). |
• |
Online Wellbeing Survey For Chronically Ill Young People
A survey for chronically ill 16-to-25-year-old Australians. |
• |
Petition: #NotEnoughForME
A petition from ME Action. |
• |
Donate To SAHMRI
A request for donations to the South Australian Health & Medical Research Institute (SAHMRI). |
• |
Coronavirus (COVID-19) & ME/CFS
Advice from US ME/CFS specialist Nancy Klimas, MD. |
• |
Donate To SAHMRI
A request for donations to the South Australian Health & Medical Research Institute (SAHMRI). |
• |
UK Charity Dad Determined To Keep Busy
A profile of UK man Nigel Brookwell, who undertakes physical challenges for ME/CFS charity. |
• |
Chronic Illness Manifesto Survey
The UK's Chronic Illness Inclusion Project aims to capture the experiences and views of people living with chronic illness. |
• |
Donate To SAHMRI
A request for donations to the South Australian Health & Medical Research Institute (SAHMRI). |
• |
Fibromyalgia Study Seeking Participants To Complete An Online Survey
Researchers doctors Andrea Pfalzgraf and Kim Jones are looking into whether people with Fibromyalgia feel invalidated or stigmatized, and if so, how that is affecting their lives. |
• |
Donate To SAHMRI
A request for donations to the South Australian Health & Medical Research Institute (SAHMRI). |
• |
Chronic Fatigue Syndrome: Progress And Possibilities
An article published in the Medical Journal of Australia. |
• |
Donate To SAHMRI
A request for donations to the South Australian Health & Medical Research Institute (SAHMRI). |
• |
Welsh Student With Chronic Fatigue Syndrome And Fibromyalgia Tells How Glyndwr Course Rekindled Football Coaching Dream
A profile of Welsh ME/CFS and Fibromyalgia sufferer Laura Davies. |
• |
Study: Impact Of Fatigue In CFS – Call For Research Participants
The University of Tasmania is overseeing a study assessing the impact of fatigue in people with Chronic Fatigue Syndrome. |
• |
Donate To SAHMRI
A request for donations to the South Australian Health & Medical Research Institute (SAHMRI). |
• |
ME/CFS South Australia Inc Co-Signs International Open Letter
ME/CFS South Australia Inc has serious concerns about methodological design flaws in the PACE trial. |
• |
Participants Needed For Online Survey
Researchers from University of SA and Flinders University are looking to understand consumer health care needs. |
• |
Donate To SAHMRI
A request for donations to the South Australian Health & Medical Research Institute (SAHMRI). |
• |
Online Wellbeing Survey For Chronically Ill Young People
A survey for chronically ill 16-to-25-year-old Australians. |
• |
Petition: #NotEnoughForME
A petition from ME Action. |
• |
Donate To SAHMRI
A request for donations to the South Australian Health & Medical Research Institute (SAHMRI). |
• |
Society Seminars For 2020
We are disappointed to say that due to COVID-19 and the need to self-isolate, we are unable to offer seminars until it becomes safe for our community to gather together. |
• |
Coronavirus (COVID-19) & ME/CFS
Advice from US ME/CFS specialist Nancy Klimas, MD. |
• |
Chronic Illness Manifesto Survey
The UK's Chronic Illness Inclusion Project aims to capture the experiences and views of people living with chronic illness. |
• |
Donate To SAHMRI
A request for donations to the South Australian Health & Medical Research Institute (SAHMRI). |
• |
Fibromyalgia Study Seeking Participants To Complete An Online Survey
Researchers doctors Andrea Pfalzgraf and Kim Jones are looking into whether people with Fibromyalgia feel invalidated or stigmatized, and if so, how that is affecting their lives. |
• |
Donate To SAHMRI
A request for donations to the South Australian Health & Medical Research Institute (SAHMRI). |
• |
Beloved Author Hillenbrand Battling COVID-19: 'Please, Please Take This Disease Seriously'
Laura Hillenbrand, decorated author of Seabiscuit: An American Legend and ME/CFS sufferer, revealed this week that she has been battling a case of presumptive COVID-19 for the past two weeks. |
• |
Adam's Green Shoot Cultivation For Treatment Of Fibromyalgia
A profile of cannabis farmer Adam Mawer. |
• |
Donate To SAHMRI
A request for donations to the South Australian Health & Medical Research Institute (SAHMRI). |
• |
Find Solace In The Instagram Communities For Women With Chronic Illnesses
A profile of ME/CFS and Fibromyalgia sufferer Mimi Butin. |
• |
Donate To SAHMRI
A request for donations to the South Australian Health & Medical Research Institute (SAHMRI). |
| March |
• |
Homeless Man Living At Heathrow Airport Still Has Nowhere To Go
A homeless UK man with ME/CFS could be sleeping in his wheelchair on the streets, after allegedly being repeatedly turned away by the council amid the coronavirus lockdown. |
• |
Study: Impact Of Fatigue In CFS – Call For Research Participants
The University of Tasmania is overseeing a study assessing the impact of fatigue in people with Chronic Fatigue Syndrome. |
• |
Donate To SAHMRI
A request for donations to the South Australian Health & Medical Research Institute (SAHMRI). |
• |
ME/CFS South Australia Inc Co-Signs International Open Letter
ME/CFS South Australia Inc has serious concerns about methodological design flaws in the PACE trial. |
• |
Participants Needed For Online Survey
Researchers from University of SA and Flinders University are looking to understand consumer health care needs. |
• |
Donate To SAHMRI
A request for donations to the South Australian Health & Medical Research Institute (SAHMRI). |
• |
Isolation Of Ultrasmall (Filterable) Bacteria From Patients Suffering From ME, And Patients And Staff Of A Paediatric Hospital
Research published in the Saudi Journal of Biological Sciences. |
• |
Online Wellbeing Survey For Chronically Ill Young People
A survey for chronically ill 16-to-25-year-old Australians. |
• |
Petition: #NotEnoughForME
A petition from ME Action. |
• |
Donate To SAHMRI
A request for donations to the South Australian Health & Medical Research Institute (SAHMRI). |
• |
NCNED: 2nd ME/CFS International 2020 – Research Innovation And Discovery Conference
An announcement from Australia's National Centre for Neuroimmunology and Emerging Diseases (NCNED). |
• |
Coronavirus (COVID-19) & ME/CFS
Advice from US ME/CFS specialist Nancy Klimas, MD. |
• |
Donate To SAHMRI
A request for donations to the South Australian Health & Medical Research Institute (SAHMRI). |
• |
Self-Isolating UK Woman Slams 'Broken' DWP Universal Credit System
The profile of UK Fibromyalgia and ME/CFS sufferter Rachael Powell. |
• |
Chronic Illness Manifesto Survey
The UK's Chronic Illness Inclusion Project aims to capture the experiences and views of people living with chronic illness. |
• |
Donate To SAHMRI
A request for donations to the South Australian Health & Medical Research Institute (SAHMRI). |
• |
Fibromyalgia Study Seeking Participants To Complete An Online Survey
Researchers doctors Andrea Pfalzgraf and Kim Jones are looking into whether people with Fibromyalgia feel invalidated or stigmatized, and if so, how that is affecting their lives. |
• |
Donate To SAHMRI
A request for donations to the South Australian Health & Medical Research Institute (SAHMRI). |
• |
Donate To SAHMRI
A request for donations to the South Australian Health & Medical Research Institute (SAHMRI). |
• |
Study: Impact Of Fatigue In CFS – Call For Research Participants
The University of Tasmania is overseeing a study assessing the impact of fatigue in people with Chronic Fatigue Syndrome. |
• |
Donate To SAHMRI
A request for donations to the South Australian Health & Medical Research Institute (SAHMRI). |
• |
ME/CFS South Australia Inc Co-Signs International Open Letter
ME/CFS South Australia Inc has serious concerns about methodological design flaws in the PACE trial. |
• |
They're Living With An Invisible Illness. Social Distancing Will Save Their Lives
An article from US news outlet CNN (via KTVZ News). |
• |
Participants Needed For Online Survey
Researchers from University of SA and Flinders University are looking to understand consumer health care needs. |
• |
Donate To SAHMRI
A request for donations to the South Australian Health & Medical Research Institute (SAHMRI). |
• |
UK Dad Will Wear 80kg Diving Suit In Charity Marathon Effort
A profile of UK man Nigel Brookwell. |
• |
Online Wellbeing Survey For Chronically Ill Young People
A survey for chronically ill 16-to-25-year-old Australians. |
• |
Petition: #NotEnoughForME
A petition from ME Action. |
• |
Donate To SAHMRI
A request for donations to the South Australian Health & Medical Research Institute (SAHMRI). |
• |
Coronavirus (COVID-19) & ME/CFS
Advice from US ME/CFS specialist Nancy Klimas, MD. |
• |
Donate To SAHMRI
A request for donations to the South Australian Health & Medical Research Institute (SAHMRI). |
• |
Chronic Illness Manifesto Survey
The UK's Chronic Illness Inclusion Project aims to capture the experiences and views of people living with chronic illness. |
• |
Donate To SAHMRI
A request for donations to the South Australian Health & Medical Research Institute (SAHMRI). |
• |
Fibromyalgia Study Seeking Participants To Complete An Online Survey
Researchers doctors Andrea Pfalzgraf and Kim Jones are looking into whether people with Fibromyalgia feel invalidated or stigmatized, and if so, how that is affecting their lives. |
• |
Donate To SAHMRI
A request for donations to the South Australian Health & Medical Research Institute (SAHMRI). |
• |
Fibromyalgia Comic Goes Bilingual
The worldwide success of a University of Dundee comic raising awareness of a common but poorly understood medical condition has led to a Spanish version of the publication being launched. |
• |
Study: Medical Marijuana Improves Quality Of Life In Fibromyalgia Patients
About half of patients reported improved quality of sleep and fewer symptoms of anxiety and depression, a new study finds. |
• |
Donate To SAHMRI
A request for donations to the South Australian Health & Medical Research Institute (SAHMRI). |
• |
Opportunity To Let SA Government Know Of Our Needs
A survey to let the South Australian government know what issues people with ME/CFS, their family, carers or health care providers have, in engaging with the health system. |
• |
Study: Impact Of Fatigue In CFS – Call For Research Participants
The University of Tasmania is overseeing a study assessing the impact of fatigue in people with Chronic Fatigue Syndrome. |
• |
Donate To SAHMRI
A request for donations to the South Australian Health & Medical Research Institute (SAHMRI). |
• |
ME/CFS South Australia Inc Co-Signs International Open Letter
ME/CFS South Australia Inc has serious concerns about methodological design flaws in the PACE trial. |
• |
'You Can Be Whoever You Want To Be' - Suffolk MasterChef Contestant Hannah Inspires Others With Chronic Fatigue
A profile of UK MasterChef contestant and ME/CFS sufferer Hannah Gregory. |
• |
Participants Needed For Online Survey
Researchers from University of SA and Flinders University are looking to understand consumer health care needs. |
• |
Donate To SAHMRI
A request for donations to the South Australian Health & Medical Research Institute (SAHMRI). |
• |
Online Wellbeing Survey For Chronically Ill Young People
A survey for chronically ill 16-to-25-year-old Australians. |
• |
Petition: #NotEnoughForME
A petition from ME Action. |
• |
Donate To SAHMRI
A request for donations to the South Australian Health & Medical Research Institute (SAHMRI). |
• |
Coronavirus (COVID-19) & ME/CFS
Advice from US ME/CFS specialist Nancy Klimas, MD. |
• |
Donate To SAHMRI
A request for donations to the South Australian Health & Medical Research Institute (SAHMRI). |
• |
Chronic Illness Manifesto Survey
The UK's Chronic Illness Inclusion Project aims to capture the experiences and views of people living with chronic illness. |
• |
Donate To SAHMRI
A request for donations to the South Australian Health & Medical Research Institute (SAHMRI). |
• |
Health-Related Quality Of Life In Patients With ME/CFS: An Australian Cross-Sectional Study
Research published in Quality of Life Research. |
• |
Characterization Of Cortisol Dysregulation In Fibromyalgia And Chronic Fatigue Syndromes: A State-Space Approach
Research published in Physician's Weekly. |
• |
Fibromyalgia Study Seeking Participants To Complete An Online Survey
Researchers doctors Andrea Pfalzgraf and Kim Jones are looking into whether people with Fibromyalgia feel invalidated or stigmatized, and if so, how that is affecting their lives. |
• |
Donate To SAHMRI
A request for donations to the South Australian Health & Medical Research Institute (SAHMRI). |
• |
UK Woman Sacked From NHS Trust For Having Too Many Sick Days Wins Disability Discrimination Case
Tess Ward has been awarded £122,000 after winning her disability discrimination fight against the trust which runs the North East England's mental health services. |
• |
Donate To SAHMRI
A request for donations to the South Australian Health & Medical Research Institute (SAHMRI). |
• |
Opportunity To Let SA Government Know Of Our Needs
A survey to let the South Australian government know what issues people with ME/CFS, their family, carers or health care providers have, in engaging with the health system. |
• |
Study: Impact Of Fatigue In CFS – Call For Research Participants
The University of Tasmania is overseeing a study assessing the impact of fatigue in people with Chronic Fatigue Syndrome. |
• |
Donate To SAHMRI
A request for donations to the South Australian Health & Medical Research Institute (SAHMRI). |
• |
ME/CFS South Australia Inc Co-Signs International Open Letter
ME/CFS South Australia Inc has serious concerns about methodological design flaws in the PACE trial. |
• |
UK Woman With Fibromyalgia Hits Out At 'Inappropriate' Apartment After Holiday From Hell
A profile of UK Fibromyalgia sufferer Teresa Barbato. |
• |
Participants Needed For Online Survey
Researchers from University of SA and Flinders University are looking to understand consumer health care needs. |
• |
Donate To SAHMRI
A request for donations to the South Australian Health & Medical Research Institute (SAHMRI). |
• |
Online Wellbeing Survey For Chronically Ill Young People
A survey for chronically ill 16-to-25-year-old Australians. |
• |
Coronavirus COVID-19 Information For Chronically Ill Patients
Information from ME/CFS Australia. |
• |
Donate To SAHMRI
A request for donations to the South Australian Health & Medical Research Institute (SAHMRI). |
• |
Petition: #NotEnoughForME
A petition from ME Action. |
• |
Donate To SAHMRI
A request for donations to the South Australian Health & Medical Research Institute (SAHMRI). |
• |
The Italian Fibromyalgia Registry
An article about the newly created Italian Fibromyalgia Registry. |
• |
Chronic Illness Manifesto Survey
The UK's Chronic Illness Inclusion Project aims to capture the experiences and views of people living with chronic illness. |
• |
Donate To SAHMRI
A request for donations to the South Australian Health & Medical Research Institute (SAHMRI). |
• |
Fibromyalgia Study Seeking Participants To Complete An Online Survey
Researchers doctors Andrea Pfalzgraf and Kim Jones are looking into whether people with Fibromyalgia feel invalidated or stigmatized, and if so, how that is affecting their lives. |
• |
Donate To SAHMRI
A request for donations to the South Australian Health & Medical Research Institute (SAHMRI). |
• |
55 PLUS: Medical Marijuana: A Godsend For Those Who Suffer Pain
A profile of three US chronic pain sufferers, including Fibromyalgia patient Miriam Doro, who advocate for the use of medical marijuana to alleviate their symptoms. |
• |
Support Group Spotlight: Art And Buddhist Principles Help Women With Fibromyalgia
An interview with Julie Püttgen, a therapist who works in the rheumatology department at Dartmouth-Hitchcock Medical Center where she assists people diagnosed with Fibromyalgia. |
• |
Donate To SAHMRI
A request for donations to the South Australian Health & Medical Research Institute (SAHMRI). |
• |
Opportunity To Let SA Government Know Of Our Needs
A survey to let the South Australian government know what issues people with ME/CFS, their family, carers or health care providers have, in engaging with the health system. |
• |
Study: Impact Of Fatigue In CFS – Call For Research Participants
The University of Tasmania is overseeing a study assessing the impact of fatigue in people with Chronic Fatigue Syndrome. |
• |
Donate To SAHMRI
A request for donations to the South Australian Health & Medical Research Institute (SAHMRI). |
• |
Young And Forever Sick: 'They Didn't See Me As A Person Who Had Dreams'
More than a third of young Australians live with one or more chronic illnesses – but growing up in fear of death can have its upsides. |
• |
ME/CFS South Australia Inc Co-Signs International Open Letter
ME/CFS South Australia Inc has serious concerns about methodological design flaws in the PACE trial. |
• |
Participants Needed For Online Survey
Researchers from University of SA and Flinders University are looking to understand consumer health care needs. |
• |
Donate To SAHMRI
A request for donations to the South Australian Health & Medical Research Institute (SAHMRI). |
• |
EXCLUSIVE: Barely Able To Leave The House - Three ME Patients Reveal Their Daily Struggle With The Crippling Condition
Profiles of three UK ME/CFS sufferers, Nicola Magdalinis, Avani Gadhoke, and Lucy Didwell. |
• |
Chronic Fatigue Charity ReMEmber's Annual Conference - All You Need To Know
Mid Sussex based charity for people who have ME/CFS, reMEmber, is holding its annual ME Awareness Conference at Clair Hall, Haywards Heath on Saturday, May 16. |
• |
Donate To SAHMRI
A request for donations to the South Australian Health & Medical Research Institute (SAHMRI). |
| February |
• |
US Authors Coping With Pain Read Inspirational Works
Author, collage artist, and Fibromyalgia sufferer Tamara Hattis held a reading event for her new book of poetry, "Colors of My Pain," at the Beatnik Lounge in Joshua Tree, California. |
• |
Donate To SAHMRI
A request for donations to the South Australian Health & Medical Research Institute (SAHMRI). |
• |
Petition: #NotEnoughForME
A petition from ME Action. |
• |
I'm 18 Years Old And Living With Three Chronic Conditions You Can't See
A profile of Australian ME/CFS and Fibromyalgia sufferer Chloe. |
• |
Chronic Illness Manifesto Survey
The UK's Chronic Illness Inclusion Project aims to capture the experiences and views of people living with chronic illness. |
• |
Donate To SAHMRI
A request for donations to the South Australian Health & Medical Research Institute (SAHMRI). |
• |
Fibromyalgia Study Seeking Participants To Complete An Online Survey
Researchers doctors Andrea Pfalzgraf and Kim Jones are looking into whether people with Fibromyalgia feel invalidated or stigmatized, and if so, how that is affecting their lives. |
• |
Donate To SAHMRI
A request for donations to the South Australian Health & Medical Research Institute (SAHMRI). |
• |
Joan McParland Interview: "I Have Been Conned" - When Sick Patients Are Sold Psychological Snake Oil
A podcast interview with Joan McParland, an ME/CFS sufferer who attempted to undertake a treament called the Lightning Process. |
• |
Amateur Showcase: Chronic Fatigue Syndrome Doesn't Deter Pearce-Dean
A profile of US amateur competitive horse rider and ME/CFS sufferer Kira Pearce-Dean. |
• |
Donate To SAHMRI
A request for donations to the South Australian Health & Medical Research Institute (SAHMRI). |
• |
UK Woman With ME Models And Dances With Her Wheelchair In "George At Asda" Ad To Show Ambulatory Wheelchair Users Exist
A profile of UK ME/CFS sufferer Kate Stanforth. |
• |
Donate To SAHMRI
A request for donations to the South Australian Health & Medical Research Institute (SAHMRI). |
• |
Study: Impact Of Fatigue In CFS – Call For Research Participants
The University of Tasmania is overseeing a study assessing the impact of fatigue in people with Chronic Fatigue Syndrome. |
• |
Canadian Court Awards Woman $300,000 After Crash Exacerbates Her Fibromyalgia
A Canadian woman whose vehicle was rear-ended by a man driving without insurance has been awarded close to $300,000 by the courts. |
• |
ME/CFS South Australia Inc Co-Signs International Open Letter
ME/CFS South Australia Inc has serious concerns about methodological design flaws in the PACE trial. |
• |
Participants Needed For Online Survey
Researchers from University of SA and Flinders University are looking to understand consumer health care needs. |
• |
Donate To SAHMRI
A request for donations to the South Australian Health & Medical Research Institute (SAHMRI). |
• |
Jasper Exhibit Raises Awareness For Rare Disease
An article about an arts show by Canadian Multiple Chemical Sensitivy sufferer Marie LeBlanc. |
• |
Donate To SAHMRI
A request for donations to the South Australian Health & Medical Research Institute (SAHMRI). |
• |
Petition: #NotEnoughForME
A petition from ME Action. |
• |
Donate To SAHMRI
A request for donations to the South Australian Health & Medical Research Institute (SAHMRI). |
• |
'NO STRENGTH' Squirrel Bite Gave Me Fibromyalgia And Now I'll Never Be Able To Run Again
A profile of Irish Fibromyalgia sufferer Lisa Pearson. |
• |
Donate To SAHMRI
A request for donations to the South Australian Health & Medical Research Institute (SAHMRI). |
• |
Chronic Illness Manifesto Survey
The UK's Chronic Illness Inclusion Project aims to capture the experiences and views of people living with chronic illness. |
• |
Two Young People In Mt Gambier Shine A Light On Living With Chronic Illness
A radio interview with chronic illness sufferers Tessa Deak and Shanae Coppick. |
• |
Donate To SAHMRI
A request for donations to the South Australian Health & Medical Research Institute (SAHMRI). |
• |
Fibromyalgia Study Seeking Participants To Complete An Online Survey
Researchers doctors Andrea Pfalzgraf and Kim Jones are looking into whether people with Fibromyalgia feel invalidated or stigmatized, and if so, how that is affecting their lives. |
• |
Former Paramedic Becomes Motivational Speaker
A profile of Canadian motivational speaker and ME/CFS sufferer CJ Janzen. |
• |
Donate To SAHMRI
A request for donations to the South Australian Health & Medical Research Institute (SAHMRI). |
• |
Chester Charity Campaigners Create World's First Ever CD Dedicated To Fibromyalgia
A profile of UK musician David Williams who has created Rock Off Fibro, a CD that aims to raise awareness for Fibromyalgia. |
• |
Donate To SAHMRI
A request for donations to the South Australian Health & Medical Research Institute (SAHMRI). |
• |
Study: Impact Of Fatigue In CFS – Call For Research Participants
The University of Tasmania is overseeing a study assessing the impact of fatigue in people with Chronic Fatigue Syndrome. |
• |
ME/CFS South Australia Inc Co-Signs International Open Letter
ME/CFS South Australia Inc has serious concerns about methodological design flaws in the PACE trial. |
• |
Donate To SAHMRI
A request for donations to the South Australian Health & Medical Research Institute (SAHMRI). |
• |
Participants Needed For Online Survey
Researchers from University of SA and Flinders University are looking to understand consumer health care needs. |
• |
The Brave Mum Who Lives With Chronic Pain And Is Told Her Illness Isn't Real
A profile of UK Fibromyalgia sufferer Heather Martin-Goff. |
• |
Petition: Fix The Issues With Accessing The Disability Support Pension
A petition from Jake Bailey on Change.org. |
• |
Donate To SAHMRI
A request for donations to the South Australian Health & Medical Research Institute (SAHMRI). |
• |
Petition: #NotEnoughForME
A petition from ME Action. |
• |
Donate To SAHMRI
A request for donations to the South Australian Health & Medical Research Institute (SAHMRI). |
• |
Derry Author Claire Allan: Fibromyalgia Won't Stop Me Achieving My Dreams
A profile of Irish author and Fibromyalgia sufferer Claire Allan. |
• |
Donate To SAHMRI
A request for donations to the South Australian Health & Medical Research Institute (SAHMRI). |
• |
Chronic Illness Manifesto Survey
The UK's Chronic Illness Inclusion Project aims to capture the experiences and views of people living with chronic illness. |
• |
Fight Fatigue And Fibromyalgia Event Comes To Limerick This February
A group of Irish healthcare professionals have rallied together to create an awareness event for Fibromyalgia. |
• |
Donate To SAHMRI
A request for donations to the South Australian Health & Medical Research Institute (SAHMRI). |
• |
Fibromyalgia Study Seeking Participants To Complete An Online Survey
Researchers doctors Andrea Pfalzgraf and Kim Jones are looking into whether people with Fibromyalgia feel invalidated or stigmatized, and if so, how that is affecting their lives. |
• |
'The Victimisation Was Horrible': Why Are So Many Disabled Lawyers Treated Badly?
A new study says that more than half of disabled lawyers have experienced bullying or discrimination at work. |
• |
Donate To SAHMRI
A request for donations to the South Australian Health & Medical Research Institute (SAHMRI). |
• |
Rock Off Fibro CD Released At HMV Stores As Deeside Couple Continue Their Fight Against Fibromyalgia
A profile of UK musician David Williams who has created Rock Off Fibro, a CD that aims to raise awareness for Fibromyalgia. |
• |
Donate To SAHMRI
A request for donations to the South Australian Health & Medical Research Institute (SAHMRI). |
• |
Study: Impact Of Fatigue In CFS – Call For Research Participants
The University of Tasmania is overseeing a study assessing the impact of fatigue in people with Chronic Fatigue Syndrome. |
• |
ME/CFS South Australia Inc Co-Signs International Open Letter
ME/CFS South Australia Inc has serious concerns about methodological design flaws in the PACE trial. |
• |
Donate To SAHMRI
A request for donations to the South Australian Health & Medical Research Institute (SAHMRI). |
• |
I'm Struggling To Cope, Says Yorkshire Coast Woman With Chronic Fibromyalgia Who Has Had PIPs Benefits Stopped
A profile of UK Fibromyalgia sufferer Sophie Steward. |
• |
Participants Needed For Online Survey
Researchers from University of SA and Flinders University are looking to understand consumer health care needs. |
• |
Local Focus: The Heart-Breaking Experiences Of Mothers With ME
A profile of New Zealand ME/CFS sufferer Holly Rinii. |
• |
Donate To SAHMRI
A request for donations to the South Australian Health & Medical Research Institute (SAHMRI). |
• |
CRIPPLING PAIN Former Page 3 Beauty Jo Guest Reveals Her Devastating Battle With Fibromyalgia That Left Her Too Exhausted For Sex
A profile of UK Fibromyalgia sufferer Jo Guest. |
• |
Petition: Fix The Issues With Accessing The Disability Support Pension
A petition from Jake Bailey on Change.org. |
• |
Petition: #NotEnoughForME
A petition from ME Action. |
• |
Donate To SAHMRI
A request for donations to the South Australian Health & Medical Research Institute (SAHMRI). |
• |
Debut Book From York ME Sufferer, Pippa Stacey
A profile of UK ME/CFS sufferer Pippa Stacey, who has released a non-fiction book titled University and Chronic Illness: A Survival Guide. |
• |
Donate To SAHMRI
A request for donations to the South Australian Health & Medical Research Institute (SAHMRI). |
• |
Chronic Illness Manifesto Survey
The UK's Chronic Illness Inclusion Project aims to capture the experiences and views of people living with chronic illness. |
• |
The Robots Helping Sick Children Go To School
Dozens of schools and colleges across Somerset in the UK are using robots to help sick children continue to experience classroom learning. |
• |
Donate To SAHMRI
A request for donations to the South Australian Health & Medical Research Institute (SAHMRI). |
• |
Fibromyalgia Study Seeking Participants To Complete An Online Survey
Researchers doctors Andrea Pfalzgraf and Kim Jones are looking into whether people with Fibromyalgia feel invalidated or stigmatized, and if so, how that is affecting their lives. |
• |
DePaul University Researchers Unmask Misunderstood Chronic Illness
A profile of ME/CFS researchers at DePaul University in the US. |
• |
Donate To SAHMRI
A request for donations to the South Australian Health & Medical Research Institute (SAHMRI). |
• |
Study: Impact Of Fatigue In CFS – Call For Research Participants
The University of Tasmania is overseeing a study assessing the impact of fatigue in people with Chronic Fatigue Syndrome. |
• |
Donate To SAHMRI
A request for donations to the South Australian Health & Medical Research Institute (SAHMRI). |
• |
ME/CFS South Australia Inc Co-Signs International Open Letter
ME/CFS South Australia Inc has serious concerns about methodological design flaws in the PACE trial. |
• |
Donate To SAHMRI
A request for donations to the South Australian Health & Medical Research Institute (SAHMRI). |
• |
Participants Needed For Online Survey
Researchers from University of SA and Flinders University are looking to understand consumer health care needs. |
• |
UK Woman In Wheelchair Stripped Of Disability Benefits Because She Can Walk Four Steps In Assessment
A profile of UK ME/CFS sufferer Michelle Wyatt. |
• |
Donate To SAHMRI
A request for donations to the South Australian Health & Medical Research Institute (SAHMRI). |
• |
Low-Dose Naltrexone May Help Some Cases Of Chronic Fatigue Syndrome, Suggests Study
A recent case series published in BMJ Case Reports describes the use of low-dose naltrexone (LDN) for the treatment of Chronic Fatigue Syndrome. |
• |
Petition: Fix The Issues With Accessing The Disability Support Pension
A petition from Jake Bailey on Change.org. |
• |
A Snapshot Of Living With Environmental Sensitivities In Australia In 2019
A document from the Australian National Register of Environmental Sensitivities. |
• |
Donate To SAHMRI
A request for donations to the South Australian Health & Medical Research Institute (SAHMRI). |
• |
Peterborough Woman Writes Book On Learning To Live With Chronic Illness
A profile of US author and chronic illness sufferer Cam Auxer. |
• |
Petition: #NotEnoughForME
A petition from ME Action. |
| January |
• |
Chronic Illness Manifesto Survey
The UK's Chronic Illness Inclusion Project aims to capture the experiences and views of people living with chronic illness. |
• |
Donate To SAHMRI
A request for donations to the South Australian Health & Medical Research Institute (SAHMRI). |
• |
Nerve Stimulation May Offer Relief For Fibromyalgia Sufferers
A new study suggests that transcutaneous electrical nerve stimulation (TENS) during physical activity can significantly reduce Fibromyalgia associated pain. |
• |
Donate To SAHMRI
A request for donations to the South Australian Health & Medical Research Institute (SAHMRI). |
• |
Many Youth Living With Undiagnosed Chronic Fatigue Syndrome
Most youth living with ME/CFS have not been diagnosed, according to a new prevalence study in the US. |
• |
Fibromyalgia Study Seeking Participants To Complete An Online Survey
Researchers doctors Andrea Pfalzgraf and Kim Jones are looking into whether people with Fibromyalgia feel invalidated or stigmatized, and if so, how that is affecting their lives. |
• |
Learning To Manage Our Chronic Illness: ME/Chronic Fatigue Syndrome
A profile of two Irish ME/CFS sufferers. |
• |
Donate To SAHMRI
A request for donations to the South Australian Health & Medical Research Institute (SAHMRI). |
• |
'The Way Of The Tired Person': Life Rules For The Perpetually Exhausted
An article by ME/CFS sufferer Jo Walker. |
• |
Donate To SAHMRI
A request for donations to the South Australian Health & Medical Research Institute (SAHMRI). |
• |
Study: Impact Of Fatigue In CFS – Call For Research Participants
The University of Tasmania is overseeing a study assessing the impact of fatigue in people with Chronic Fatigue Syndrome. |
• |
I'm Not 'Lucky' To Be On Disability Benefits Due To Fibromyalgia
An article by Fibromyalgia sufferer Angelique Gilchrist. |
• |
ME/CFS South Australia Inc Co-Signs International Open Letter
ME/CFS South Australia Inc has serious concerns about methodological design flaws in the PACE trial. |
• |
Donate To SAHMRI
A request for donations to the South Australian Health & Medical Research Institute (SAHMRI). |
• |
Participants Needed For Online Survey
Researchers from University of SA and Flinders University are looking to understand consumer health care needs. |
• |
Enliven Bed And Breakfast Successfully Caters To Chemically Sensitive Travelers
US Lyme Disease sufferer Teresa Molitor Luttrell has created a bed and breakfast for people with chemical sensitivities. |
• |
Donate To SAHMRI
A request for donations to the South Australian Health & Medical Research Institute (SAHMRI). |
• |
Petition: Fix The Issues With Accessing The Disability Support Pension
A petition from Jake Bailey on Change.org. |
• |
Petition: #NotEnoughForME
A petition from ME Action. |
• |
Donate To SAHMRI
A request for donations to the South Australian Health & Medical Research Institute (SAHMRI). |
• |
The Prevalence Of Pediatric Myalgic Encephalomyelitis/Chronic Fatigue Syndrome In A Community-Based Sample
Research published in the journal Child & Youth Care Forum. |
• |
Donate To SAHMRI
A request for donations to the South Australian Health & Medical Research Institute (SAHMRI). |
• |
Chronic Illness Manifesto Survey
The UK's Chronic Illness Inclusion Project aims to capture the experiences and views of people living with chronic illness. |
• |
How Two Women Found The Energy To Fight Back After Losing Years Of Their Lives To Chronic Fatigue
A profile of UK ME/CFS sufferer Kate Stanforth. |
• |
Donate To SAHMRI
A request for donations to the South Australian Health & Medical Research Institute (SAHMRI). |
• |
Fibromyalgia Study Seeking Participants To Complete An Online Survey
Researchers doctors Andrea Pfalzgraf and Kim Jones are looking into whether people with Fibromyalgia feel invalidated or stigmatized, and if so, how that is affecting their lives. |
• |
Disabled Woman Left Without Home Help Over Christmas Break
A profile of New Zealand PTSD, Fibromyalgia and chronic migraine sufferer Careen Busing. |
• |
Donate To SAHMRI
A request for donations to the South Australian Health & Medical Research Institute (SAHMRI). |
• |
How Singing In A Choir Helps My Chronic Pain
An article by ME/CFS/Fibromyalgia sufferer Kira McCarthy. |
• |
Donate To SAHMRI
A request for donations to the South Australian Health & Medical Research Institute (SAHMRI). |
• |
Study: Impact Of Fatigue In CFS – Call For Research Participants
The University of Tasmania is overseeing a study assessing the impact of fatigue in people with Chronic Fatigue Syndrome. |
• |
Comprehensive Circulatory Metabolomics In ME/CFS Reveals Disrupted Metabolism Of Acyl Lipids And Steroids
Medical research published in the journal Metabolites. |
• |
Donate To SAHMRI
A request for donations to the South Australian Health & Medical Research Institute (SAHMRI). |
• |
ME/CFS South Australia Inc Co-Signs International Open Letter
ME/CFS South Australia Inc has serious concerns about methodological design flaws in the PACE trial. |
• |
Participants Needed For Online Survey
Researchers from University of SA and Flinders University are looking to understand consumer health care needs. |
• |
Donate To SAHMRI
A request for donations to the South Australian Health & Medical Research Institute (SAHMRI). |
• |
CDMRP Funding Announcement Comes Just 24 Days After Congress Opens Potential $350 Million To ME/CFS Researchers
News from US organisation Solve ME/CFS. |
• |
Petition: Fix The Issues With Accessing The Disability Support Pension
A petition from Jake Bailey on Change.org. |
• |
Donate To SAHMRI
A request for donations to the South Australian Health & Medical Research Institute (SAHMRI). |
• |
Petition: #NotEnoughForME
A petition from ME Action. |
• |
Donate To SAHMRI
A request for donations to the South Australian Health & Medical Research Institute (SAHMRI). |
• |
NIH Funds Chicago-Based Study Of Chronic Fatigue Syndrome And Mono In College Age Students
DePaul University and Lurie Children's Hospital lead research to uncover underlying mechanisms of disease by examining connections with infectious mononucleosis. |
• |
Chronic Illness Manifesto Survey
The UK's Chronic Illness Inclusion Project aims to capture the experiences and views of people living with chronic illness. |
• |
Donate To SAHMRI
A request for donations to the South Australian Health & Medical Research Institute (SAHMRI). |
• |
'It's Been A Grieving Process' - Northumberland Woman Determined Not To Let Condition Ruin Her Life
A profile of UK ME/CFS sufferer Kate Stanforth. |
• |
Fibromyalgia Study Seeking Participants To Complete An Online Survey
Researchers doctors Andrea Pfalzgraf and Kim Jones are looking into whether people with Fibromyalgia feel invalidated or stigmatized, and if so, how that is affecting their lives. |
• |
Donate To SAHMRI
A request for donations to the South Australian Health & Medical Research Institute (SAHMRI). |
• |
6 Breastfeeding Positions For Moms With Chronic Pain
An article by Kinsey Gidick. |
• |
My Pro-Tips For Planning My Days And Managing The Unexpected With Fibromyalgia
An article by Fibromyalgia sufferer Kelly Lahy. |
• |
Donate To SAHMRI
A request for donations to the South Australian Health & Medical Research Institute (SAHMRI). |
• |
Study: Impact Of Fatigue In CFS – Call For Research Participants
The University of Tasmania is overseeing a study assessing the impact of fatigue in people with Chronic Fatigue Syndrome. |
• |
Survey: What Should Be Considered In The Design Of A Clinic To Treat Complex Health Conditions?
The Bridges & Pathways organisation has a request for people to respond to a South Australian State Health Survey about 'the need for a one-stop clinic for people with chronic and complex conditions in South Australia'. |
• |
Donate To SAHMRI
A request for donations to the South Australian Health & Medical Research Institute (SAHMRI). |
• |
The Hollow Man
A profile of Australian ME/CFS sufferer Tony Wallace. |
• |
ME/CFS South Australia Inc Co-Signs International Open Letter
ME/CFS South Australia Inc has serious concerns about methodological design flaws in the PACE trial. |
• |
Participants Needed For Online Survey
Researchers from University of SA and Flinders University are looking to understand consumer health care needs. |
• |
Donate To SAHMRI
A request for donations to the South Australian Health & Medical Research Institute (SAHMRI). |
• |
Petition: Fix The Issues With Accessing The Disability Support Pension
A petition from Jake Bailey on Change.org. |
• |
Donate To SAHMRI
A request for donations to the South Australian Health & Medical Research Institute (SAHMRI). |
• |
Study Seeks Clues To Chronic Fatigue Syndrome
A video of research being conducted at the US National Institutes of Health. |
• |
Bodybuilder Faces The Toughest Battle Of His Life – ME/CFS
A profile of US ME/CFS sufferer Jamison Hill. |
• |
Petition: #NotEnoughForME
A petition from ME Action. |
• |
Donate To SAHMRI
A request for donations to the South Australian Health & Medical Research Institute (SAHMRI). |
• |
Justin Bieber: Singer Reveals He Has Lyme Disease
Canadian pop singer Justin Bieber has revealed he has been diagnosed with Lyme Disease. |
• |
Patients Push Limits For Clues To Chronic Fatigue Syndrome
Doctors at the US National Institutes of Health are using volunteers with ME/CFS for a unique study that pushes their limits in search of what's stealing all their energy. |
• |
Chronic Illness Manifesto Survey
The UK's Chronic Illness Inclusion Project aims to capture the experiences and views of people living with chronic illness. |
• |
Donate To SAHMRI
A request for donations to the South Australian Health & Medical Research Institute (SAHMRI). |
• |
Fibromyalgia Study Seeking Participants To Complete An Online Survey
Researchers doctors Andrea Pfalzgraf and Kim Jones are looking into whether people with Fibromyalgia feel invalidated or stigmatized, and if so, how that is affecting their lives. |
• |
Donate To SAHMRI
A request for donations to the South Australian Health & Medical Research Institute (SAHMRI). |
• |
Girl In A Wheelchair - Mystery-Thriller Discovers Disability And Illness
A review of Girl in a Wheelchair, a book in which the main character sufferers from ME/CFS and Fibromyalgia. |
• |
Donate To SAHMRI
A request for donations to the South Australian Health & Medical Research Institute (SAHMRI). |
• |
Chronic Fatigue Syndrome Sufferer Considered Euthanasia After Lack Of Help From NHS
A profile of Scottish ME/CFS sufferer Eileen Munro. |
• |
Study: Impact Of Fatigue In CFS – Call For Research Participants
The University of Tasmania is overseeing a study assessing the impact of fatigue in people with Chronic Fatigue Syndrome. |
• |
Survey: What Should Be Considered In The Design Of A Clinic To Treat Complex Health Conditions?
The Bridges & Pathways organisation has a request for people to respond to a South Australian State Health Survey about 'the need for a one-stop clinic for people with chronic and complex conditions in South Australia'. |
• |
Donate To SAHMRI
A request for donations to the South Australian Health & Medical Research Institute (SAHMRI). |
• |
ME/CFS South Australia Inc Co-Signs International Open Letter
ME/CFS South Australia Inc has serious concerns about methodological design flaws in the PACE trial. |
• |
Participants Needed For Online Survey
Researchers from University of SA and Flinders University are looking to understand consumer health care needs. |
• |
Donate To SAHMRI
A request for donations to the South Australian Health & Medical Research Institute (SAHMRI). |
• |
Petition: Fix The Issues With Accessing The Disability Support Pension
A petition from Jake Bailey on Change.org. |
• |
Donate To SAHMRI
A request for donations to the South Australian Health & Medical Research Institute (SAHMRI). |
• |
Huge Rise In Fibromyalgia In Grimsby Area And Nobody Knows What Causes It
The number of people in the North East Lincolnshire suffering from Fibromyalgia - a condition causing unexplained widespread pain - has soared in recent years, new NHS figures suggest. |
• |
Celebrity Jewellery Designer Who Ditched Diamonds To Become A Vegetable Gardener
A profile of UK ME/CFS sufferer Lucy Start. |
• |
Petition: #NotEnoughForME
A petition from ME Action. |
• |
Donate To SAHMRI
A request for donations to the South Australian Health & Medical Research Institute (SAHMRI). |
• |
Disabled Ballet Dancer Wins National Award For Groundbreaking Organisation
The UK's North East Dance Co-operative, founded by Angeline Lucas, has won the prestigious One Dance UK Award for Innovation in Dance, particularly for the work they have done in 2019. |
• |
Chronic Illness Manifesto Survey
The UK's Chronic Illness Inclusion Project aims to capture the experiences and views of people living with chronic illness. |
• |
Donate To SAHMRI
A request for donations to the South Australian Health & Medical Research Institute (SAHMRI). |
• |
Fibromyalgia Study Seeking Participants To Complete An Online Survey
Researchers doctors Andrea Pfalzgraf and Kim Jones are looking into whether people with Fibromyalgia feel invalidated or stigmatized, and if so, how that is affecting their lives. |
• |
Happy New Year
All of us here at ME/CFS South Australia Inc wish you a Happy New Year. |
Previous Page
Registered Charity 3104
Email:
sacfs@sacfs.asn.au
Mailing address:
PO Box 322,
Modbury North,
South Australia 5092
Phone:
1300 128 339
Office Hours:
Monday - Friday,
10am - 4pm
(phone)