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ME/CFS Australia (SA) Inc
Registered Charity 698

Mailing address:
GPO Box 383,
Adelaide,
South Australia 5001


Office:
266 Port Road,
Hindmarsh,
South Australia 5007
Ph: (08) 8346 3237
('834 MECFS')

Support Line:
(Mondays and Thursdays,
10am-3pm)
Ph: (08) 8410 8930


SA country callers:
Ph: 1300 128 339
(local call)


Office Hours:
Wednesdays, 10am-3pm


ME/CFS Australia (SA) Inc supports the needs of sufferers of Myalgic Encephalomyelitis, Chronic Fatigue Syndrome and related illnesses. We do this by providing services and information to members.



Charity Direct

ME/CFS Australia (SA) Inc is a member of Charity Direct.



ourcommunity.com.auDonate online

Information and Support 2004 is an online appeal that aims to improve our Information and Support Line.

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Disclaimer

ME/CFS Australia (SA) Inc aims to keep members informed of the various research projects, diets, medications, therapies etc. All communication, both verbal and written, is merely to disseminate information and not to make recommendations or directives.

Unless otherwise stated, the views expressed on this Web site are not necessarily the official views of the Society or its Committee and are not simply an endorsement of products or services.

In the News – 2010
March
February
January


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In the News

2010

Arrow right

Fibromyalgia news

Arrow right

Multiple Chemical Sensitivity news

Arrow right

Multimedia
 
March

What's old is new again?
Saturday 13 March 2010: R.E.S.C.I.N.D. has an interesting video from 1996.

Fibromyalgia study involves medication and conversation
Friday 12 March 2010: HealthCanal.com reports on a Fibromyalgia study involving the combination of medication and conversation.

Real life: the long goodbye
Thursday 11 March 2010: The Irish Independent newspaper has an article about Criona Wilson and her daughter Sophia Mirza.

Why ME sufferer Emma is learning to live again
Wednesday 10 March 2010: UK newspaper Devon24 has a profile of Emma Webb.

South Australian election: postal voting
Tuesday 9 March 2010: South Australia will be holding its State Election on Saturday 20 March 2009.

Doing housework with Fibromyalgia & CFS
Monday 8 March 2010: About.com's Adrienne Dellwo has an article about meeting the challenges of housework for people with ME/CFS/ Fibromyalgia.

MCA Awareness Month
Sunday 7 March 2010: The American Chronicle has an article about MCS Awareness Month which will be in May.

NICNAS draft review
Saturday 6 March 2010: Australia's National Industrial Chemicals Notification and Assessment Scheme (NICNAS) has the latest news on its draft review.

Medical course questionnaire
Friday 5 March 2010: UK researcher Linzi Tweedy is conducting a survey for people with ME/CFS.

Professor of chemical engineering urges students to go fragrance-free
Thursday 4 March 2010: The Canary Report has an article about a University of New Hampshire professor who has written an open letter expressing his concerns about MCS.

Theda's desperate fight against a chronic killer
Wednesday 3 March 2010: Western Australian newspaper WA Today has a profile of ME/CFS sufferer Theda Myint.

"Mono" linked to CFS in teens
Tuesday 2 March 2010: Teens who develop "mono," otherwise known as infectious mononucleosis, may be at risk for CFS, according to a study in Pediatrics.

XMRV: third study fails to find virus
Monday 1 March 2010: A new study published on bmj.com casts doubt on recent claims that a human retrovirus known as XMRV is linked to ME/CFS.

February

The Music Works
Sunday 28 February 2010: The Music Works – aka The Dynamic Day Gig – is a monthly event held at the Governor Hindmarsh Hotel.

Fibromyalgia Pain & 'Situational Narcissism'
Saturday 27 February 2010: About.com's Adrienne Dellwo has an interesting article about behaviour that can come about as a result of chronic pain.

Society meeting program for 2010
Friday 26 February 2010: UK newspaper Devon24 has a profile of Emma Webb.

Mayor of Broward County proclaims May 2010 as MCS Awareness Month
Thursday 25 February 2010: Mayor Ken Keechl, has proclaimed May 2010 as MCS Awareness Month in Broward County (FL).

Adolescent offspring of mothers with CFS
Wednesday 24 February 2010: The March 2010 issue of the Journal of Adolescent Health has published research results of adolescent children of mothers with CFS.

Provision of social support to individuals with CFS
Tuesday 23 February 2010: ProHealth reports on a document entitled "Provision of social support to individuals with chronic fatigue syndrome" from the Journal of Clinical Psychology, Mar 2010.

Celebrity memorabilia auction for ME/CFS research
Monday 22 February 2010: The Worldwide Association for ME/CFS Awareness and Research is holding an auction of celebrity memorabilia and the proceeds will all go to ME/CFS research.

Self-pacing in CFS
Sunday 21 February 2010: The Ninety-One Outcomes blog has an article about the results of a study into self-pacing in CFS.

Mikovits & Cheney to host Q&A on XMRV & ME/CFS
Saturday 20 February 2010: ProHealth reports on Q&A with Dr. Judy Mikovits, PhD, and Dr. Paul Cheney, MD.

New XMRV results published in Retrovirology
Friday 19 February 2010: New research into XMRV published in Retrovirology has reinforced the UK results that showed a lack of XMRV in CFS patients.

Shelly Quarmby
Thursday 18 February 2010: UK singer/songwriter Shelly Quarmby has released a six-song EP entitled Change and proceeds from the sale of one of the tracks will go towards Fibromyalgia Association of the United Kingdom.

Online MCS work study – participants wanted
Wednesday 17 February 2010: About.com's Carol and Richard Eustice report the results of research into the benefits of slow breathing for people with chronic pain such as Fibromyalgia.

Slow breathing can reduce chronic pain
Tuesday 16 February 2010: About.com's Carol and Richard Eustice report the results of research into the benefits of slow breathing for people with chronic pain such as Fibromyalgia.

Judy Mikovits Q&A videos
Monday 15 February 2010: ProHealth has an article, with videos, about Dr Judy Mikovits' recent Q&A which focused on XMRV.

Snapshots from a life stolen by the mystery illness, ME
Sunday 14 February 2010: Irish newspaper the Belfast Telegraph has a profile of Horace Reid.

CFIDS Association of America webinar
Saturday 13 February 2010: The CFIDS Association of America is hosting a 'webinar' on Thursday 18 February in the US.

Elisha steps back into life after waking from illness
Friday 12 February 2010: Australian newspaper The Age reports on teenager Elisha Nardella and her life with ME/CFS.

Carnitine for Fibromyalgia and CFS
Thursday 11 February 2010: About.com's Adrienne Dellwo talks about the potential benefits of carnitine.

Riverland meeting reminder
Wednesday 10 February 2010: A reminder that the Riverland ME/CFS Support Group’s next meeting will be held this Friday.

Breaking the ME enigma
Wednesday 10 February 2010: Twenty noted UK people associated with ME/CFS have written an open letter that was published in The Daily Telegraph.

Inpatient program swamped by children with chronic fatigue
Tuesday 9 February 2010: Australian newspaper The Age reports on unprecedented demand for a Melbourne CFS inpatient program.

SHUT OUT: The Experience of People with Disabilities and their Families in Australia
Monday 8 February 2010: The National People with Disabilities and Carer Council has published a report on the experiences of people with diabilities and their families in Australia.

The hallmark of CFS
Sunday 7 February 2010: A study funded by the CFIDS Association and published by researchers at University of Pacific describes the consequence of modest physical and/or mental activity experienced by most, CFS patients.

Does muscle bioenergetic abnormality cause peripheral fatigue in ME/CFS?
Saturday 6 February 2010: ME Research UK has an article about new research investigating a possible cause of fatigue in ME/CFS.

ME case study: 'She told me that she did not want to carry on'
Friday 5 February 2010: UK newspaper The Independent has an article about teenager Kate Charles.

They told dying daughter she was lying, says ME mother Criona Wilson
Thursday 4 February 2010: The UK's Times Online has an article about the difficulties faced by Criona Wilson and her daughter, Sophia Mirza.

Dr Reeves departs major US CFS research program
Wednesday 3 February 2010: The CFIDS Association of America's Facebook Group reports on the departure of Dr William C Reeves from the CDC's CFS Research Program.

Wii Fit
Tuesday 2 February 2010: Joey on her Newly Nerfed blog suggests trying a Wii Fit.

Exercise bad for ME/CFS?
Monday 1 February 2010: Art Ayers has written an article about the research showing the adverse effects of exercise for people with ME/CFS.

January

The Music Works
Sunday 31 January 2010: The Music Works – aka The Dynamic Day Gig – is a monthly event held at the Governor Hindmarsh Hotel.

Ten ways I prevent CFS from stealing my mental health
Saturday 30 January 2010: EmpowHer's Jody Smith has an article about strategies she employs to help cope with CFS.

Debunking myths
Friday 29 January 2010: About.com's Adrienne Dellwo has an article about the ways people can combat the perception of Fibromyalgia and CFS as mere laziness.

"Doctors, school, friends thought I was faking CFS"
Thursday 28 January 2010: The UK's Times Online has an article about Nicola Warner and the current state of ME/CFS in the UK.

National Pain Summit
Wednesday 27 January 2010: Australia's National Pain Summit will be held in Canberra on Thursday 11 March 2010.

Canadian Mayor proclaims Electromagnetic Hypersensitivity Awareness Month
Tuesday 26 January 2010: The American Chronicle reports that Mayor Don Coombs has proclaimed January 2010 as Electromagnetic Hypersensitivity Awareness Month.

Housing SA donates to the Society
Monday 25 January 2010: ME/CFS Australia (SA) Inc thanks the Salisbury branch of Housing SA – and in particular, Peter Moragiannis and the fundraising committee – for their recent donation to the Society.

Consumer advocates petition FDA to ban Fibromyalgia drug
Sunday 24 January 2010: ProHealth reports on moves by Public Citizen, a Washington, DC-based nonprofit public health advocacy organization, to have Savella banned.

Invest in ME Conference 2010
Saturday 23 January 2010: Invest in ME will be hosting the 5th International ME/CFS Conference 2010 which will be held on Monday 24 May.

Cognitive functioning in CFS
Friday 22 January 2010: ProHealth reports on research analysis done at The University of Adelaide.

New YouTube channel: Waking The World Up To M.E.
Thursday 21 January 2010: David Foxen is a young man from the UK who has set up a YouTube channel called Waking The World Up To M.E. in order to highlight the disease.

XMRV presentation by Dr Judy Mikovits on Friday to be streamed online
Wednesday 20 January 2010: The ME Association reports on an XMRV presentation by Dr Judy Mikovits that will be streamed live on Friday 22 January.

Nursing Times poll: Is the Daily Mail bad for your health?
Tuesday 19 January 2010: Following on from the Daily Mail's controversial online poll which asked "Do you think ME is a genuine illness", the UK's Nursing Times has created its own online poll.

Southern Chronic Illness Links Networks meetings
Monday 18 January 2010: The Bridges and Pathways Institute Inc / Southern Chronic Illness Links Network is an organisation that provides support for people with CFS and Fibromyalgia.

Immune and hemorheological changes in CFS
Sunday 17 January 2010: An abstract from the Journal of Translational Medicine.

Mail Online poll controversy
Saturday 16 January 2010: The UK's Mail Online had a poll that asked the question: "Do you think ME is a genuine illness?".

Chronic Fatigue Syndrome attacked again
Friday 15 January 2010: Sam Kean, writing in ScienceNOW Daily News, offers a considered article on the current kerfuffle surrounding XMRV.

Breakthrough made in diagnosing CFS
Thursday 14 January 2010: The Japanese newspaper Daily Yomiuri Online reports on a breakthrough in diagnosing CFS.

National Companion Card
Wednesday 13 January 2010: The Australian Government's Department of Families, Housing, Community Services and Indigenous Affairs (FaHCSIA) has launched The National Companion Card Scheme.

CFS patients in UK show no signs of XMRV
Tuesday 12 January 2010: A few months ago we reported on the discovery in the US of a retrovirus known as XMRV in the majority of ME/CFS patients tested.

Mail Online poll
Monday 11 January 2010: The UK's Mail Online is asking people to participate in a poll.

Missense mutations in the MEFV gene
Sunday 10 January 2010: PLoS One has published a research article on a faulty gene in people with Fibromyalgia.

Hallmann research Phase III – call for volunteers
Saturday 9 January 2010: A doctoral research project by Geoffrey Hallmann has entered its next phase and Geoffrey is calling for voluteers.

Treatment of CFS: Findings, Principles and Strategies
Friday 8 January 2010: PubMed has published an article from the Korean Neuropsychiatric Association.

The false promise of miracle cures
Thursday 7 January 2010: The Canary Report has reprinted a two-part article about products such as amygdala retraining that claim to cure diseases such as ME/CFS, Fibromyalgia and Multiple Chemical Sensitivity.

The link between heart failure and CFS
Wednesday 6 January 2010: About.com's Adrienne Dellwo reports on results of recent studies that show "cardiac irregularites" in people with ME/CFS.

New online survey on children with Fibromyalgia: participants wanted
Tuesday 5 January 2010: ProHealth reports on a new survey.

Risk factors for severe ME/CFS
Monday 4 January 2010: Co-Cure reports on new research results.

Recognition of MCS in Italy moves closer
Sunday 3 January 2010: The Environmmental Illness Resource reports on efforts to get Multiple Chemical Sensitivity legally recognised in Italy.

Is chronic pain ruining your relationship?
Saturday 2 January 2010: CNN's Health.com has an article that discusses the problems facing couples when a partner has chronic pain.

Happy New Year
Friday 1 January 2010: The Society wishes you very Happy New Year.


In the News – 2009

In the News – 2008

In the News – 2007

In the News – 2006

In the News – 2005 and earlier

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