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  ME/CFS AUSTRALIA (SA) INC

Registered Charity 698

Email:
sacfs@sacfs.asn.au

Mailing address:
PO Box 28,
Hindmarsh,
South Australia 5007

Office:
266 Port Road,
Hindmarsh,
South Australia 5007
Ph: 1300 128 339

Office Hours:
Wednesdays, 10am-3pm


FIBROMYALGIA HELP:
Contact
Fibromyalgia SA
at the
Arthritis Foundation of SA
118 Richmond Road,
Marleston 5033
Ph: (08) 8379 5711

ME/CFS Australia (SA) Inc supports the needs of sufferers of Myalgic Encephalomyelitis, Chronic Fatigue Syndrome and related illnesses. We do this by providing services and information to members.

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ME/CFS Australia (SA) Inc aims to keep members informed of the various research projects, diets, medications, therapies etc. All communication, both verbal and written, is merely to disseminate information and not to make recommendations or directives.

Unless otherwise stated, the views expressed on this Web site are not necessarily the official views of the Society or its Committee and are not simply an endorsement of products or services.

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In the News

2014

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Fibromyalgia news

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Multiple Chemical Sensitivity news

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Multimedia
 
February

The Pain Brain: Hippocampal Atrophy Found In Fibromyalgia
Friday 27 February 2015: Reduced volume in the brain's hippocampus is the latest of many brain findings in Fibromyalgia.

US Author Uses Marbles To Enlighten Children About Physical Limitations
Thursday 26 February 2015: A book by US author Melinda Malott, in which "A mom uses a jar and some marbles to show her son how she goes about making decisions about what she can and can’t do in terms of activities in a day".

Prefontal Myelination In Chronic Fatigue Syndrome
Wednesday 25 February 2015: A research paper entitled "Evidence in chronic fatigue syndrome for severity-dependent upregulation of prefrontal myelination that is independent of anxiety and depression".

UK Physios And Philosophers Receive £1m Research Grant
Tuesday 24 February 2015: Two physiotherapists are to play their part in a €1.3 (about £1 million) study that will explore what leads to improvements in people's health and wellbeing.

Fighting Back Against Fibromyalgia: US Woman Turns To The Arts To Cope With Her Chronic Illness
Monday 23 February 2015: Fibromyalgia sufferer Kelly Kvenlog Wichlacz has discovered her artistic side, hand-sewing tote bags, crafting jewelry, writing an essay, setting it to her photography on YouTube, and now hoping to publish a book.

IOM Report – Dr Lucinda Bateman's response
Sunday 22 February 2015: A statement from Lucinda Bateman MD about controversy surrounding the Insitute of Medicine's report on ME/CFS, new diagnostic criteria, and the name Systemic Exertion Intolerance Disease.

UK Woman Puts Chronic Pain At The Top Of The Agenda
Saturday 21 February 2015: A profile of UK Fibromyalgia sufferer Ella Vine, chief executive of national charity FibroAction, who took the need to improve diagnosis and care of people living with chronic pain directly to UK parliamentarians.

'We're Not Lazy – Chronic Fatigue Syndrome Is A Real Disease After All'
Friday 20 February 2015: A profile of UK ME/CFS sufferer Carolin Higson.

Music and Acupuncture For Fibromyalgia
Friday 20 February 2015: A study that investigated the effect of music combined with vibration on acupuncture points for the treatment of Fibromyalgia.

How Disease Names Can Stigmatize
Thursday 19 February 2015: An editorial by professor of clinical and community psychology, Leonard A. Jason.

Retired US Police Offer Will Get Enhanced Disability Pension
Thursday 19 February 2015: A retired US police officer who developed Fibromyalgia after being exposed to toxins after the 2001 World Trade Center attack has won a five-year legal battle for an enhanced disability pension.

SEID Report Release Video
Wednesday 18 February 2015: A video of the Institute of Medicine's press conference for the release of their report, "Beyond Myalgic Encephalomyelitis/Chronic Fatigue Syndrome: Redefining an Illness".

Beyond The Roll-Out
Wednesday 18 February 2015: An analysis of the Institute of Medicine's report, "Beyond Myalgic Encephalomyelitis/Chronic Fatigue Syndrome: Redefining an Illness".

The New Science Of Exhaustion
Tuesday 17 February 2015: A US radio program featuring ME/CFS experts discussing the Institute of Medicine's proposed new name, Systemic Exertion Intolerance Disease.

Goodbye Chronic Fatigue Syndrome, Hello SEID
Tuesday 17 February 2015: A committee convened by the Institute of Medicine has proposed a new name for a condition known variously as Chronic Fatigue Syndrome or Myalgic Encephalomyelitis.

Health Care Use Remains High in Patients With Fibromyalgia After Treatment
Monday 16 February 2015: Utilization of the health care system remained high for patients with Fibromyalgia after initiating treatment with either amitriptyline, Cymbalta, Neurontin or Lyrica, according to researchers from Utah's Brigham and Women’s Hospital.

Canberra Autoimmune Self-Management Education Day, 7 March 2015
Monday 16 February 2015: The Autoimmune Resource & Research Centre will be hosting a self-management education workshop in Canberra for people living with autoimmune illness.

Utah Doctor Helps To Legitimize Chronic Fatigue As An Actual Disease
Sunday 15 February 2015: National health experts, including one Utah doctor, released the results of a year of study on Tuesday [February 10] legitimizing the symptoms of chronic fatigue and giving the disorder a new name.

UK Mum Cleared Of Poisoning Daughter By Taking Her Abroad For Treatment Fights To Get Her Back
Sunday 15 February 2015: A UK mother who took her daughter abroad to treat her chronic fatigue with different drugs – and then ended up in court accused of 'poisoning' her – said she is determined to win her back after being cleared by a judge.

US Panel Redefines Chronic Fatigue Syndrome
Saturday 14 February 2015: A panel commissioned by the US Department of Health and Human Services has produced what is sure to be an influential report on how the disease should be diagnosed, by offering guidelines for a new moniker: Systemic Exertion Intolerance Disease (SEID).

Fibromyalgia Imaging Study Shows Unique Brain Connectivity
Saturday 14 February 2015: A new brain imaging study reveals that patients with Fibromyalgia show unique brain activity in response to pain.

Panel Says Chronic Fatigue Syndrome Is A Disease, And Renames It
Friday 13 February 2015: The mysterious and complicated illness that has been called chronic fatigue syndrome has a new definition and a new name: systemic exertion intolerance disease, or SEID for short.

Society Seminar Reminder
Friday 13 February 2015: A reminder that the society's first seminar for 2015 is tomorrow, Saturday 14 February at 1:30 pm in Sophia House, Cumberland Park.

Chronic Fatigue Syndrome Gets A(nother) New Name
Thursday 12 February 2015: The Institute of Medicine has proposed a new name and new diagnostic criteria for the condition that many still call Chronic Fatigue Syndrome.

Tips On How To Live A Normal Life With Fibromyalgia
Wednesday 11 February 2015: The cause of Fibromyalgia is unknown, but a WDSU News New Orleans video featuring Dr Corey J. Hebert, MD, shows there is treatment to help a person cope with the physical and psychological symptoms.

Locklear Fighting To Play
Tuesday 10 February 2015: A profile of US teenage basketballer and ME/CFS sufferer, Elayna Locklear, and her basketball team.

New Criteria Would Double Fibromyalgia Cases
Monday 9 February 2015: More than 5% of the general population fulfill the modified 2010 criteria for Fibromyalgia, compared with less than 2% who fulfilled the 1990 and the proposed 2010 criteria, report researchers in Arthritis and Rheumatology.

ME/CFS Linked To Early Menopause
Sunday 8 February 2015: A new study suggests there's a link between early menopause and Chronic Fatigue Syndrome.

Patients With Fibromyalgia More Likely To Experience Anxiety
Saturday 7 February 2015: Patients with Fibromyalgia were more likely to show symptoms of anxiety than patients with other rheumatic diseases, according to findings by Robert S. Katz, MD, and Frank Leavitt, PhD.

ME/CFS Sufferer's Claim Of Contamination Rejected By Tribunal
Friday 6 February 2015: A CSIRO media manager who says she contracted a virus after drinking water contaminated with faeces at a conference has lost her bid for compensation.

Altered Gait, Biomechanics Seen In Patients With Juvenile Fibromyalgia
Thursday 5 February 2015: Patients with juvenile Fibromyalgia showed alterations in walking patterns, greater knee weakness, lower bilateral hip abduction strength, reduced ankle dorsiflexion and other physical and psychosocial alterations compared with a group of healthy controls, according to researchers.

'I Was So Grateful For My Body': Jennifer Aniston Portrays Chronic Pain
Wednesday 4 February 2015: Jennifer Aniston plays a woman who suffers from chronic pain in the independent film Cake.

New Debate Over Lyme Disease As 16-Yr-Old Girl Bitten By Tick Heads To Germany For Radical Treatment
Tuesday 3 February 2015: The controversy over whether Lyme disease exists in Australia is set to be inflamed by new research that has found no evidence of the bacteria responsible for it around Sydney.

Society Seminar
Monday 2 February 2015: Our first seminar for 2015 is on St Valentine's Day, Saturday 14 February at 1:30 pm.

BBC Documentary Series Features ME/CFS And Fibromyalgia Sufferers
Sunday 1 February 2015: A recent episode of the BBC One documentary series about loneliness, Operation Meet the Street, featured ME/CFS sufferer Kate, and Fibromyalgia sufferer Simon.

January

A Life Of Helping Women
Saturday 31 January 2015: South Australian Fibromyalgia sufferer Effy Kleanthi has been awarded an Order of Australia Medal on Australia Day.

Patients With RA, Fibromyalgia Less Likely To Achieve Remission, Low Disease Activity
Friday 30 January 2015: Patients with both Rheumatoid Arthritis and Fbromyalgia were less likely to achieve remission or low disease activity scores, according to finding presented recently at the American College of Rheumatology Annual Meeting.

Knowing M.E., Knowing You
Thursday 29 January 2015: A profile of British ME/CFS sufferer Stephen Tudor.

IACFS/ME Chides NIH For Inadequate Funding
Wednesday 28 January 2015: An open letter from the International Association of CFS/ME to US National Institutes of Health about funding for its Pathways to Prevention report.

New US Public Transport Ads Focus On Fibromyalgia And Other Invisible Disabilities
Tuesday 27 January 2015: The Washington Metropolitan Area Transit Authority is focusing on people with health problems and disabilities that may not be visible to others, such as Fibromyalgia.

Fibromyalgia Flares: A Qualitative Analysis
Monday 26 January 2015: A research paper that aimed to describe Fibromyalgia flares in a sample of patients with Fibromyalgia.

Gut Infection Could Underlie Symptoms In Chronic Fatigue Syndrome
Sunday 25 January 2015: Over the past couple of years the Whittemore-Peterson Institute has been quietly digging into the human gut.

Plasma Cytokine Expression In Adolescent Chronic Fatigue Syndrome
Saturday 24 January 2015: A research paper published in the journal Brain, Behavior, and Immunity.

"I'd Rather Have Cancer Than Chronic Fatigue Syndrome"
Friday 23 January 2015: A former cancer patient says she would rather still have the deadly disease than the Chronic Fatigue Syndrome that has plagued the last decade of her life.

US Neuroscientist Says Exercise Worsens ME/CFS Symptoms
Thursday 22 January 2015: A highly regarded American neuroscientist who has researched ME/CFS for more than a decade, has decried media reports based on The Lancet Psychiatry’s recent scientific article that claims graded exercise therapy is an effective treatment for ME/CFS.

Unexplained Medical Symptoms – A Radio National Panel Discussion
Wednesday 21 January 2015: A panel of experts looks into complicated issues surrounding unexplained medical symptoms in this special event for the Ultimo Science Festival in Sydney.

Australian Disability Advocates Say Federal Government Employment Policies Not Working
Tuesday 20 January 2015: Advocates say despite years of Federal Government policies to designed to boost employment, it is as hard as ever for people with a disability to enter the workforce.

Life Is Hard For Us ME Sufferers – And Simplistic News Reports Don't Help
Monday 19 January 2015: Chronic Fatigue Syndrome is misunderstood by the public, and the media must take some of the blame for that.

ME/CFS Research UK Slams Lancet Psychiatry Report Advocating Exercise For Chronic Fatigue Syndrome Sufferers
Sunday 18 January 2015: ME Research UK has slammed an analytical report published in the latest The Lancet Psychiatry that claims ME/CFS patients have “fear avoidance beliefs” that exercise will exacerbate their symptoms.

Fear Of Exercise Exacerbates Chronic Fatigue Syndrome, Say Researchers
Saturday 17 January 2015: The comments for this article from the UK's Telegraph shows the debate about exercise and ME/CFS is still well and truly alive.

Meet The 29-Year-Old Woman Who's Allergic To The World
Friday 16 January 2015: A profile of Multiple Chemical Sensitivity Sufferer Crystal Goodwin.

ME Sufferer Will Go The Extra Mile In Nepal For Charity
Thursday 15 January 2015: A UK pub manager will trek through the Himalayas for Macmillan Cancer Support, despite suffering from Chronic Fatigue Syndrome.

Chronic Fatigue Syndrome Researcher Turns Pilot Study Into Major Grant
Wednesday 14 January 2015: An article about Patrick McGowan's epigenetic research in the US funded by the SolveCFS Initiative.

Society seminars for 2015
Tuesday 13 January 2015: Details for all society seminars for 2015.

Chronic Fatigue Syndrome: Wrong Name, Real Illness
Monday 12 January 2015: An in-depth article about ME/CFS.

Fibromyalgia Sufferer Shares Pain Of Ignorance
Sunday 11 January 2015: Shelly Van Winkle' Fibromyalgia tale is playing out across the globe as other patients face similar problems.

UK Prime Minister's Award For Woman Who Set Up ME/CFS Charity
Saturday 10 January 2015: A retired teacher in the UK has been hailed by the Prime Minister for setting up the UK’s largest charity for children and young people with Chronic Fatigue Syndrome.

Slow Access To The Mental Lexicon In Fibromyalgia
Friday 9 January 2015: A study that looked at lexical access speed (i.e., the time needed for the brain to access the catalogue of words in long-term memory) in Fibromyalgia patients.

"Passing" Is Not A Privilege
Thursday 8 January 2015: Having an invisible disability can mean you're able to choose whether or not to disclose your disability status, but being able to "pass" as a non-disabled person can also mean your access needs are often ignored completely.

A Fibromyalgia Patient's Ten Strategies For Healing
Wednesday 7 January 2015: A post on Cort Johnson's Health Rising blog in which Fibromyalgia sufferer Darden Burns outlines her strategies for dealing with the disease.

'The Chronic Fatigue Changed Everything': House Rules Host Johanna Griggs Opens Up
Tuesday 6 January 2015: A profile of Australian media personality Johanna Griggs.

AVACEN Medical Launches $2M Campaign In Response To Positive Outcomes Of Fibromyalgia Study
Monday 5 January 2015: US medical company AVACEN Medical announced that it has launched a $2 million campaign on Crowdfunder.com to support further company clinical trials and FDA applications.

New Studies Find Causes Of Fibromyalgia, Offer Hope Of Relief
Sunday 4 January 2015: Two new studies on Fibromyalgia focus the problem on the thyroid, pituitary and hypothalamus, and suggest new avenues of relief for sufferers.

Can A Vegan Diet Help Fibromyalgia Patients?
Saturday 3 January 2015: A study from researchers in the United States found that a vegan diet can help some Fibromyalgia patients.

First Of Many Homes For South Australians With Disability
Friday 2 January 2015: The first eight of 135 new homes for South Australians with disability have been completed for the newly-established disability housing organisation, Access 2 Place Ltd.

Happy New Year
Thursday 1 January 2015: All of us here at ME/CFS Australia (SA) Inc wish you a Happy New Year.


In the News – 2014

In the News – 2013

In the News – 2012

In the News – 2011

In the News – 2010

In the News – 2009

In the News – 2008

In the News – 2007

In the News – 2006

In the News – 2005 and earlier

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