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ME/CFS AUSTRALIA (SA) INC

Registered Charity 698

Email:
sacfs@sacfs.asn.au

Mailing address:
PO Box 28,
Hindmarsh,
South Australia 5007

Office:
Closed while relocating

Phone:
1300 128 339

Office Hours:
Wednesdays, 10am-3pm


FIBROMYALGIA HELP:
Contact
Fibromyalgia SA
at the
Arthritis Foundation of SA
118 Richmond Road,
Marleston 5033
Ph: (08) 8379 5711

ME/CFS Australia (SA) Inc supports the needs of sufferers of Myalgic Encephalomyelitis, Chronic Fatigue Syndrome and related illnesses. We do this by providing services and information to members.

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In the News

2016

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Multimedia
 
May

Autumn Songs: Fundraising Concert
Thursday 5 May 2016: South Australian harpist and soprano Emma Horwood will be performing a recital to raise funds for ME/CFS sufferer Tanya Vallejo.

Canadian ME/CFS Petition
Thursday 5 May 2016: Ainslie Eccleston is wearing her undies on the outside for ME/CFS awareness.

NSW Event On May 12 To Raise ME/CFS Awareness
Wednesday 4 May 2016: Ainslie Eccleston is wearing her undies on the outside for ME/CFS awareness.

Antiviral Combo May Be Next Blockbuster Fibromyalgia Drug
Wednesday 4 May 2016: A profile of Dr William "Skip" Pridgen, who is having success with ME/CFS patients trialling a combination therapy involving the pairing of famciclovir (Famvir), a common antiviral, with celecoxib (Celebrex), an anti-inflammatory arthritis drug.

Fibromyalgia May Affect Sensory Perception And Blunt Touch Perception, Studies Show
Wednesday 4 May 2016: The findings of a study reveal that there is abnormal processing of signals in C-type skin nerves (associated with the perception of touch) in Fibromyalgia.

Spain Continues To Take Steps For Multiple Chemical Sensitivity
Tuesday 3 May 2016: A King's College London study has found that suicide rates among those with chronic fatigue syndrome could increase six-fold.

Chronic Fatigue And Suicide: An Alarming Trend
Tuesday 3 May 2016: A King's College London study has found that suicide rates among those with chronic fatigue syndrome could increase six-fold.

The Grim Reality Of Being A 15-Year-Old Girl And Living With Chronic Fatigue Syndrome
Monday 2 May 2016: A profile of Welsh ME/CFS sufferer Sarah Griffith.

Underwear Goes On The Outside For Charity
Monday 2 May 2016: White House correspondent Llewellyn King talks about the "Undies on the Outside" charity.

Bridges & Pathways: ME/CFS Multidisciplinary Clinical and Research Centre
Sunday 1 May 2016: The results of research from a team of Australian scientists and doctors.

Hyperactive Parathyroid May Trouble Women With Fibromyalgia, Study Reports
Sunday 1 May 2016: Women with Fibromyalgia have a high incidence of hyperparathyroidism, a disease caused by an overactive parathyroid, according to a new study.
April

Progressive Brain Changes In Patients With Chronic Fatigue Syndrome: A Longitudinal MRI Study
Saturday 30 April 2016: The results of research from a team of Australian scientists and doctors.

DiseaseMaps: Put Yourself On The Map!
Friday 29 April 2016: We have put ME/CFS Australia (SA) Inc. on this world map of disease prevalence and would love you to join us in this endeavour to help spread the word and assist the push for more research funding.

South Australian Health And Medical Research Institute (SAHMRI) Calling For Research Participants
Friday 29 April 2016: Research to evaluate the relationship of the hormones (cytokines) Leptin and Interleukin-6 on the symptoms of Chronic Fatigue Syndrome.

Fibromyalgia Pain Levels Can Be Predicted By Leptin, Study
Thursday 28 April 2016: Fibromyalgia pain levels can be predicted by leptin, according to research.

Avindra Nath Digs Deeper Into Big NIH ME/CFS Study: Warns Of Push Back
Wednesday 27 April 2016: A profile of US ME/CFS researcher Avindra Nath, MD.

Undies On The Outside
Tuesday 26 April 2016: Undies On The Outside is an organisation designed to raise awareness of ME/CFS.

Anorexia May Be Caused By Bacterial Infection, Say Scientists
Monday 25 April 2016: Anorexia may be caused by bacteria which confuse the immune system, leading it to attack the brain and trigger feelings of personal disgust, scientists have suggested.

PACE Trial: Probing An Untrustworthy Cochrane Review Of Exercise For "Chronic Fatigue Syndrome"
Monday 25 April 2016: An article from researcher James C Coyne abuot the Cochrance review of the PACE trial.

Taiwanese Singer Ken Chu Suffering From Fibromyalgia
Sunday 24 April 2016: A profile of Taiwanese boy band member and Fibromyalgia sufferer Ken Chu.

Fibromyalgia Vs Lyme Disease: Differences In Symptoms, Causes, And Treatment Options
Sunday 24 April 2016: An article about the similarities and differences between Fribromyalgia and Lyme Disease.

ME Forms
Saturday 23 April 2016: A website from British ME/CFS sufferer Sue to provide assistance with managing the illness via useful forms, charts, and diary templates.

Music Therapy Can Reduce Pain, Depression, Anxiety, And Improve Sleep In Fibromyalgia Patients
Saturday 23 April 2016: Research from the University of Granada shows that music therapy combined with relaxation techniques can help improve many areas in the lives of Fibromyalgia patients.

Individualized Acupuncture Protocols For Fibromyalgia Reduce Pain Up To A Year
Friday 22 April 2016: Research has shown that individualized acupuncture treatment of Fibromyalgia in primary care relieved patients' pain and enhanced their quality of life for up to a year compared with placebo treatment of sham acupuncture.

Migraine Worsens Fibromyalgia Symptoms, Study Reports
Friday 22 April 2016: High frequency and chronic migraine increase the sensitivity to pain in Fibromyalgia patients, according to a study published in The Journal of Headache and Pain.

Opera Mariposa & Mariposa Theatre Wing To Stage New Broadway Revue For Neuro-Immune Disease Awareness
Friday 22 April 2016: In May 2016, the acclaimed young artists of Opera Mariposa and the Mariposa Theatre Wing are staging a new Broadway revue to raise awareness for chronic neuro-immune diseases.

South Australian Health And Medical Research Institute (SAHMRI) Calling For Research Participants
Friday 22 April 2016: Research to evaluate the relationship of the hormones (cytokines) Leptin and Interleukin-6 on the symptoms of Chronic Fatigue Syndrome.

Fibromyalgia Vs Multiple Sclerosis: Comparing Symptoms, Diagnosis, And Treatment
Thursday 21 April 2016: An article outlining the differences between Fibromyalgia and Multiple Sclerosis.

Life With ME/CFS – New Zealand Rugby League Captain Richie Barnett
Wednesday 20 April 2016: A video of New Zealand Rugby League captain and ME/CFS sufferer Richie Barnett talking about his illness.

Exam Stress Worsened By Chronic Illness
Wednesday 20 April 2016: An article about how teenage students cope with exams when they are chronically ill.

Researchers Map Full-Length Protein Involved In Chronic Pain, With Hopes For Future Therapies
Tuesday 19 April 2016: Researchers have discovered the full-length structure of a protein named Transient Receptor Potential Vanilloid subtype 2 (TRPV2), with implications for the development of new treatments for chronic pain and cancer.

Uncovering Biomarkers – Fcg Receptors In ME/CFS
Monday 18 April 2016: Dr Isabel Barao explains the research she is doing to uncover potential immune system dysfunction in ME/CFS as a potential biomarker.

Pair Of Canadian Women In Running For YWCA Award
Monday 18 April 2016: Cheryl Young, founder of the Canadian Fibromyalgia Well Spring Foundation, is one of two women nominated for a YWCA Women of Distinction award.

Canberra Doctor Challenges Growing Lobby On Lyme Disease
Sunday 17 April 2016: A Canberra infectious diseases expert has decided to directly challenge the growing power of advocates who say Lyme disease has come to Australia.

What I'm Really Thinking: The Person With ME
Sunday 17 April 2016: An article in UK newspaper The Guardian from "Anonymous" about living with ME/CFS.

Misleading Medical Research Underpins Disability Cuts In The UK
Saturday 16 April 2016: A new report from the UK's Centre for Welfare Reform explains how a current scientific controversy relates to the debate surrounding welfare reform and cuts to disability benefits.

If You Think Comfortable Families Don't Get Sucked Into Poverty, Think Again
Saturday 16 April 2016: A profile of the Hemingford family, affected by the UK's austerity cuts to welfare.

Millions Missing
Friday 15 April 2016: Millions Missing is advocacy dedicated to the millions of ME/CFS patients missing from their careers, schools, social lives and families due to the debilitating symptoms of the disease.

South Australian Health And Medical Research Institute (SAHMRI) Calling For Research Participants
Friday 15 April 2016: Research to evaluate the relationship of the hormones (cytokines) Leptin and Interleukin-6 on the symptoms of Chronic Fatigue Syndrome.

New Zealand Support Group Gives Hope To Sufferers Of Illness With No Cure
Thursday 14 April 2016: New Zealanders Wendy Groves and Deb Cane have established an ME/CFS support group in their area.

Landmark Study Should Show Way To Better Care For Chronically Ill
Wednesday 13 April 2016: A landmark study of the fragmented primary health care system comes at a pivotal time for millions of chronically ill Australians, the Consumers Health Forum says.

Meet The Scientists: Dr Sarah Knight
Tuesday 12 April 2016: A profile of Dr Sarah Knight from the Murdoch Childrens Research Institute at The Royal Children's Hospital in the University of Melbourne.

Researchers Aiming To Shorten Fibromyalgia Diagnostic Time Find That Certain Enzyme And Hormone Don't Need Testing
Monday 11 April 2016: Researchers from the Netherlands recently released study results that aim to increase the diagnostic capabilities of healthcare providers in an effort to shorten the length of time from the onset of symptoms to clinical diagnosis of Fibromyalgia.

Scottish Woman's Drumming Career Saved After Devastating Illness
Sunday 10 April 2016: A UK musician who trained with Beyonce's drummer has told of her joy after she was "cured" of her Fibromyalgia.

Supermarket Apology To UK Woman Over Evacuation 'Distress'
Saturday 9 April 2016: A UK woman with Fibromyalgia, a condition that leaves her in constant pain, is unhappy at the way a supermarket handled an evacuation after the smoke alarm activated.

South Australian Health And Medical Research Institute (SAHMRI) Calling For Research Participants
Friday 8 April 2016: Research to evaluate the relationship of the hormones (cytokines) Leptin and Interleukin-6 on the symptoms of Chronic Fatigue Syndrome.

Leptin Tied To Bodily Pain, Predicts Fibromyalgia Pain Levels, Researchers Say
Thursday 7 April 2016: Leptin – a factor well-known for its role in controlling appetite – might be a driver of bodily pain, according to a new report.

The PACE Trial Invalidates The Use Of CBT And GET In ME/CFS: A Review
Thursday 7 April 2016: A review of the PACE trial by doctor and ME/CFS sufferer Mark Vink.

More US Insurance Companies Now Paying For Fibromyalgia Blood Test
Thursday 7 April 2016: An article from Donna Gregory Burch.

Fatigue Illness Inspires Documentary By Filmmakers From The US
Thursday 7 April 2016: An article about the ME/CFS documentary Forgotten Plague.

Autonomic Correlations With MRI Are Abnormal In The Brainstem Vasomotor Centre In Chronic Fatigue Syndrome
Wednesday 6 April 2016: Medical research conducted in South Australia and published in ScienceDirect.

Does The Lancet Care About Patients?
Wednesday 6 April 2016: The For Better Science blog takes a look at medical journal The Lancet.

Help Canary Crowdsource Archival Research
Wednesday 6 April 2016: US ME/CFS sufferer and activist Jennifer Brea is asking for help to complete her documentary Canary in a Coal Mine.

Letter From ME/CFS Australia (SA) Inc To The Queen Mary University Of London
Tuesday 5 April 2016: A letter from the society to the Queen Mary University London regarding PACE trial data that still has not been released for dissemination.

Society Seminar Reminder
Tuesday 5 April 2016: A reminder that the society's next seminar will be held on Saturday 9 April at Sophia House.

Is Chronic Fatigue Syndrome Finally Being Taken Seriously?
Tuesday 5 April 2016: An article in The Guardian.

This Could Be Big: Intravenous Ketamine For Fibromyalgia
Monday 4 April 2016: An article by Ginevra Liptan, MD, about the potential benefits of ketamine for Fibromyalgia.

My 'Invisible Illness' - And How I Coped
Sunday 3 April 2016: A profile of UK ME/CFS sufferer Skye Wheeler.

Fibromyalgia Patients Have Blunted Touch Perception, Study Finds
Sunday 3 April 2016: A study has found that Fibromyalgia patients perceive touch differently compared to healthy individuals, suggesting that there is abnormal processing of signals in C-type skin nerve fibers in those with Fibromyalgia.

New CBT And GET Threat For Australian CFS Patients
Saturday 2 April 2016: The University of New South Wales has registered a trial to "investigate the efficacy of online continuing education for health professionals to improve the management of chronic fatigue syndrome" involving graded exercise therapy (GET) and cognitive behaviour therapy (CBT).

South Australian Health And Medical Research Institute (SAHMRI) Calling For Research Participants
Friday 1 April 2016: Research to evaluate the relationship of the hormones (cytokines) Leptin and Interleukin-6 on the symptoms of Chronic Fatigue Syndrome.

Help Required With Year 12 Project Questioning Efficacy Of CBT And GET
Friday 1 April 2016: A short survey, designed by a year 12 student at an Adelaide school for a school project, that is aimed at those who have received one of two types of treatment for their ME/CFS: Cognitive Behavioural Therapy and/or Graded Exercise Therapy – or anything approximating gradually increasing amounts and intensity of exercise.

Plan Revealed To Revolutionise Australian Healthcare
Friday 1 April 2016: The Federal Government today is promising to revolutionise care offered to the more than four million Australians with multiple chronic diseases.

Understanding Brain Immune Interactions In Fibromyalgia May Lead To Better Treatments
Friday 1 April 2016: New brain research may prove the notion that Fibromyalgia is in the head – just not in the way of condescending criticism.
March

Disability Status In Fibromyalgia Patients Related To Occupation, Severity Of Symptoms, Study Shows
Thursday 31 March 2016: A study published in The Journal of Rheumatology.

UK Student Is Housebound After Chronic Illness Diagnosis At 21
Wednesday 30 March 2016: A profile of UK university student and ME/CFS sufferer Alice Turner.

Roger Cicero: Germany's Jazz Talent
Wednesday 30 March 2016: A profile of German musician and ME/CFS sufferer Roger Cicero.

The One Lesson I've Learned From Life: Author Shirley Conran On Surviving ME
Tuesday 29 March 2016: UK author and ME/CFS sufferer Shirley Conran writes about her life with the disease.

'Chronic Fatigue Syndrome Isn't What You Think It Is, It's Much Worse'
Tuesday 29 March 2016: An article by Stephanie Land about her friend, severe ME/CFS sufferer Whitney Dafoe.

Sense About Statistics Says: PACE Trial Doomed By Flaws
Monday 28 March 2016: Dr Rebecca Goldin, blogging for Sense About Statistics, has said that flaws in the design of the PACE trial "were enough to doom its results from the start".

'We Don’t Share Data.' Why Peter White's Wall Street Journal Letter Can Be Ignored
Monday 28 March 2016: An article by James C Coyne about the PACE Trial.

How Many Teens Suffer From Chronic Fatigue?
Monday 28 March 2016: The results of a UK study into the prevalence of adolescents with ME/CFS.

PACE Trial Gets Most Devastating Critique Yet
Sunday 27 March 2016: An article by ME/CFS advocate Cort Johnson about journalist David Tuller's thorough analysis of the UK's PACE Trial.

Hannah Price: University And ME
Sunday 27 March 2016: A profile of UK ME/CFS sufferer Hannah Price.

Patients With Fibromyalgia Struggle To Stay Asleep
Saturday 26 March 2016: Newly published research suggests that sleep in patients with Fibromyalgia is characterized by an inability to maintain continuous sleep.

UK Student's Fibromyalgia Causes Three-Day Hangovers
Friday 25 March 2016: A profile of UK Fibromyalgia sufferer Shannon Birse.

South Australian Health And Medical Research Institute (SAHMRI) Calling For Research Participants
Friday 25 March 2016: Research to evaluate the relationship of the hormones (cytokines) Leptin and Interleukin-6 on the symptoms of Chronic Fatigue Syndrome.

Help Required With Year 12 Project Questioning Efficacy Of CBT And GET
Friday 25 March 2016: A short survey, designed by a year 12 student at an Adelaide school for a school project, that is aimed at those who have received one of two types of treatment for their ME/CFS: Cognitive Behavioural Therapy and/or Graded Exercise Therapy – or anything approximating gradually increasing amounts and intensity of exercise.

ME & Fatigue - Dr. Neil Harrison
Thursday 24 March 2016: An interview with UK fatigue researcher Dr Neil Harrison.

Disability In Fibromyalgia Patients Linked To Symptom Severity, Physically Demanding Jobs
Thursday 24 March 2016: About one-third of Canadian patients with fibromyalgia had disability status, which was associated with symptom severity, increased use of medications and more physically demanding occupations, according to recently published research.

The Air Around Aliso Canyon Is Declared Safe. So Why Are Families Still Suffering?
Wednesday 23 March 2016: An article about the aftermath of the Aliso Canyon Gas Leak in the US.

Are Chronic Fatigue Syndrome (ME/CFS) And Fibromyalgia Immune Exhaustion Disorders?
Tuesday 22 March 2016: An article by Cort Johnson about the Lipkin/Hornig research into the immune system's involvement in ME/CFS.

Fibromyalgia – Can We Crack The Code And Put The Patient First?
Tuesday 22 March 2016: A profile of US ME/CFS researcher Dr Jarred Younger.

CFS Online Web Service
Monday 21 March 2016: CFS Online (BETA) is a digital service that provides a platform to record daily activities and symptoms for those with a ME/CFS condition.

Pain And Fatigue Linked To Perception Of Function In Women With Fibromyalgia
Sunday 20 March 2016: In a recently published study of women with Fibromyalgia, investigators found pain and fatigue explained at least one-third of the variance in patients' perceived physical performance and function.

Fibromyalgia Not Linked To Vitamin B12 Deficiency, Study Shows
Saturday 19 March 2016: A study published in Rheumatology International.

IACFS/ME Cover Art Contest
Friday 18 March 2016: The IACFS/ME has put out a call for young artists to submit their artwork for their cover art contest related to a new Primer for pediatric ME/CFS.

Fibromyalgia Predictors Can Range From Headaches To Sleeping Problems
Friday 18 March 2016: Researchers in Finland suggest that Fibromyalgia could be predicted through symptoms related to regional pain, frequent headache, persistent back/neck pain, sleeping problems, and excess weight.

This Woman Joined Little Mix On Stage After Learning To Walk On Crutches Especially For The Concert
Thursday 17 March 2016: A profile of Welsh Fibromyalgia sufferer Hayley Strong.

Chronic Fatigue Syndrome Documentary Film "Forgotten Plague" Released
Wednesday 16 March 2016: Emmy Award-winning producer Nicole Castillo and co-director Ryan Prior are pleased to announce the release of their feature-length documentary film, Forgotten Plague.

The Great Australian Lyme Conspiracy
Wednesday 16 March 2016: Dr Brad McKay discusses Lyme disease in Australia.

Dr Steven Hatch Investigates The 'Spectrum Of Certainty' In 'Snowball In A Blizzard'
Tuesday 15 March 2016: In his new book, "Snowball in a Blizzard: A Physician’s Notes on Uncertainty in Medicine," infectious disease specialist Dr Steven Hatch explores several questions for which definitive answers are not available.

Queensland's Griffith University Calling For Study Participants
Monday 14 March 2016: Griffith University's National Centre for Neuroimmunology and Emerging Diseases is asking for participants in three studies.

NIH ME/CFS Advocacy Call
Sunday 13 March 2016: A video conference call from the US National Institutes of Health, in which the participants discuss the state of ME/CFS advocacy.

Low Vitamin D Appears Linked To Chronic Widespread Pain In Men, But Other Factors Play A Role
Sunday 13 March 2016: A recent study performed between several European institutions proposes a possible association between a deficiency in vitamin D and male chronic widespread pain.

Female Fibromyalgia Patients Experience Sexual Dysfunction And Mood, Anxiety Disorders, According To Study
Sunday 13 March 2016: A collaborative research study between several institutions in Turkey found that female patients with fibromyalgia often suffer from sexual dysfunction, mood, and anxiety disorders.

ME/CFS Is 'Poor Relation' Of Other Neurological Conditions Say UK Campaigners
Saturday 12 March 2016: A debilitating condition which feels like 'permanent flu' is being treated as 'the poor relation' of other neurological conditions say frustrated sufferers in the UK county of Worcestershire.

Chronic Fatigue Syndrome: New Diagnostic Tool To Speed Up Treatment And Reduce Stigma
Saturday 12 March 2016: A new diagnostic tool for Chronic Fatigue Syndrome could reduce stigma and help people with the disorder access treatment faster.

Illness Progression In Chronic Fatigue Syndrome: A Shifting Immune Baseline
Saturday 12 March 2016: Research published in BMC Immunology proposing the existence of a biomarker for ME/CFS.

Pregabalin Effective In Reducing Pain, Improving Sleep In Patients With Fibromyalgia
Saturday 12 March 2016: Pregabalin was effective in reducing pain and improving sleep quality among patients with fibromyalgia through 12 weeks, according to data published in Current Medical Research and Opinion.

Fibromyalgia Awareness – Short Film
Friday 11 March 2016: Filmmaker Sophie Meath is planning on making a short film about Fibromyalgia, and is asking for financial help.

A Screening Test For Chronic Fatigue Syndrome Is Ready For The Public
Friday 11 March 2016: Australian scientists have identified new biomarkers that can be used to diagnose Chronic Fatigue Syndrome in a screening test that they say is now ready for public use.

Younger Adult Fibromyalgia Patients At Increased Risk Of Stroke, According To Study
Friday 11 March 2016: Fibromyalgia is likely associated with an increased risk for stroke, according to the results of a new study from China, “Increased Risk of Stroke in Patients With Fibromyalgia,” published in the journal Medicine.

Letters: Chronic Fatigue Syndrome A Serious Illness
Friday 11 March 2016: A letter to the editor published in Canadian newspaper Saanich News in response to an article about ME/CFS among other things.

Student Living With Unpredictable Pains
Thursday 10 March 2016: A profile of Kenyan Fibromyalgia sufferer Makau Mulli.

Patients, Scientists Fight Over Research-Data Access
Wednesday 9 March 2016: A controversy surrounding a study of Chronic Fatigue Syndrome is prompting some scientists to push back against demands that they make medical research data more widely available to other researchers and patients.

CDC Study Finds CFS Is Physical, Not Mental
Wednesday 9 March 2016: Despite decades of suggesting otherwise, the Centers for Disease Control and Prevention (CDC) has just determined that CFS patients have normal mental health function and severe physical impairments.

Fibromyalgia Distinguished From Lupus With 100% Specificity Using New Test
Wednesday 9 March 2016: California researchers found that analyzing cell-bound complement activation products (CB-CAPs) ably distinguishes between Systemic Lupus Erythematosus and Fibromyalgia, and complements current test methods.

GPs' Management Of Chronic Pain Conditions Costing Australia Millions: Report
Tuesday 8 March 2016: A new Grattan Institute report claims GPs are not properly managing chronic health conditions, suggesting changes are needed to how chronic pain is funded.

UK Christian Realises African Vision
Tuesday 8 March 2016: Joy McCann, a Christian from Norwich, will visit a Christian organisation in East Africa and realise a vision that God gave her during her 13 years of ill health with Chronic Fatigue Syndrome.

Fibromyalgia Pain May Also Result From Neurogenic Inflammation Of Peripheral Nerves
Monday 7 March 2016: A review study by Monash University researcher Geoffrey Littlejohn points out that peripheral neurogenic inflammation of the nerves likely contributes to Fibromyalgia symptoms.

No Joke For Chronic Fatigue Sufferers
Sunday 6 March 2016: A letter of complaint about a recent "Blondie" comic strip in The Washington Post.

Australian Government Pins Its Hopes On NIH ME/CFS Research
Sunday 6 March 2016: An article about the Australian Government's funding of ME/CFS research.

Extraordinary NIH ME/CFS Study May Be Most Comprehensive And In-Depth Ever
Saturday 5 March 2016: A survey from DePaul University in the US.

"You're Not Disabled": Woman Snubbed By Manchester Arena
Saturday 5 March 2016: A UK Adele fan with long-term illness and mobility problems was told she 'didn’t have a disability' when booking tickets for the singer’s world tour at the Manchester Arena.

Online Patient Survey On The Name And Criteria For ME Or CFS
Friday 4 March 2016: A survey from DePaul University in the US.

Lactate – Is It Everywhere In Fibromyalgia And Chronic Fatigue Syndrome (ME/CFS)?
Thursday 3 March 2016: An article about the abnormal presence of lactate in ME/CFS/Fibromyalgia.

I've Gone From A Super-Fit Party Girl To Being Almost Bedridden At 33
Wednesday 2 March 2016: A profile of UK ME/CFS sufferer Faye Dempsey.

Australian Scientists Make Breakthrough In Chronic Fatigue Syndrome Testing
Tuesday 1 March 2016: Australian scientists say they could soon produce a diagnosis for Chronic Fatigue Syndrome that could be as simple as having a blood test.
February

Acupuncture Can Relieve Fibromyalgia Pain, If It's Tailored Per Patient
Monday 29 February 2016: A new analysis by researchers in Spain found that although standard acupuncture does not reduce pain in women with Fibromyalgia, the therapy does alleviate pain when it is individualized for each patient.

Restoring Sleep Patterns Could Bring Relief To Fibromyalgia Patients
Sunday 28 February 2016: American researchers have identified sleep-related treatment as a possible means of relief from Fibromyalgia.

Severe Fatigue May Be Prevalent Among Patients With Inflammatory Rheumatic Diseases
Saturday 27 February 2016: Patients with inflammatory rheumatic diseases were more likely than patients with osteoarthritis to experience severe fatigue, which was prevalent among patients, according to allied researchers from Europe and the United States.

Fibromyalgia Study Finds Paroxetine Best Of Newer Antidepressants To Combine With Drug Treatment
Saturday 27 February 2016: The combined use of pregabalin and the antidepressant paroxetine is more effective in reducing somatic symptoms and depression in fibromyalgia patients than pregabalin with other relatively new antidepressants, according to a new study.

Getting By With "Bugger All": The Invisible Suffering Of Australians With Chronic Fatigue Syndrome
Friday 26 February 2016: An article by Naomi Chainey about ME/CFS.

Medical Cannabis Bill Passes Australian Parliament
Thursday 25 February 2016: Australia has passed a medical marijuana bill to allow the cultivation of the drug, but the Greens say medical cannabis remains an illegal substance.

Chronic Fatigue Syndrome Chronically Underfunded
Thursday 25 February 2016: An audio presentation by Australian independent current affairs community radio station The Wire.

Surfer Thrilled To Be With The Boys
Wednesday 24 February 2016: A profile of New Zealand surfer and ME/CFS sufferer Marguerite Vujcich.

My Kitchen Rules Contestant Hazel Reveals 12-Year Battle With Fibromyalgia
Tuesday 23 February 2016: A profile of TV program My Kitchen Rules contestant and Fibromyalgia sufferer Hazel.

What It's Like...To Perpetually Forget
Tuesday 23 February 2016: A profile of ME/CFS sufferer Kylie-Anne Deigratia Leske.

Acupuncture May Help Ease Fibromyalgia Pain, Study Finds
Monday 22 February 2016: Acupuncture may help ease pain and improve quality of life for people with Fibromyalgia, a new study suggests.

$142K Received For Open Medicine Foundation's "End ME/CFS Project"
Monday 22 February 2016: The Open Medicine Foundation has received $142,000 for its continuing OMF End ME/CFS Project, which is the second generous donation from an anonymous donor.

Irish Fibromyalgia Sufferer Left Penniless After Welfare Cuts
Sunday 21 February 2016: An Irish man who relies on Employment and Support Allowance after being diagnosed with Fibromyalgia, was left penniless last Christmas after having his benefit cut.

Fibromyalgia Pain May Be Linked To Spinal Cord Dysfunction, Researchers Say
Sunday 21 February 2016: Dysfunction in spinal cord processing may be responsible for pain in Fibromyalgia patients, according to a study published in the journal PLOS One.

Chronic Fatigue Syndrome: Advancing Research And Clinical Education
Saturday 20 February 2016: A video from the US Centers for Disease Control and Prevention (CDC).

Are Opiates Really That Bad for Fibromyalgia?
Saturday 20 February 2016: Ginevra Lipton MD discusses opiate use in people with Fibromyalgia.

Emerge Australia Media Release Following Senate Estimates
Friday 19 February 2016: A response from Emerge Australia about the Australian Government's Senate Estimates hearings on health.

PACE Trial's Forbidden Fruits: The Fruit Of Your Labour
Friday 19 February 2016: An article by Clark Ellis about the PACE Trial.

Brisbane Seminarian Fighting Chronic Fatigue Syndrome Returns To The Seminary After Four Years
Fruday 19 February 2016: A profile of Australian priest-to-be and ME/CFS sufferer Chris Ledwich.

Detecting Lyme Early
Thursday 18 February 2016: Two new methods could help researchers to diagnose Lyme disease earlier than with existing tests.

Microglia In Fibromyalgia & Chronic Fatigue Syndrome
Thursday 18 February 2016: Adrienne Dellwo describes microglia and discusses their importance in ME/CFS/Fibromyalgia.

Society Seminar Reminder
Wednesday 17 February 2016: The society's first seminar for 2016 will be held on Saturday 20 February at Sophia House.

Court Dismisses Lawsuit By XMRV-Chronic Fatigue Syndrome Researcher
Wednesday 17 February 2016: A California court has dismissed virologist Judy Mikovits's lawsuit against fourteen people and two Nevada corporations, in part because she failed to submit necessary documents on time.

Comment On ME/CFS Article In The Guardian
Tuesday 16 February 2016: A comment in response to an article published in The Guardian.

Helen Spreads Kindness On Valentine's Day As She Fights Fatigue Condition
Tuesday 16 February 2016: Kindness, as well as love, was in the air as a 43-year-old woman with Chronic Fatigue Syndrome handed out goodie bags at a UK hospital to spread a little happiness.

Fibromyalgia And Chocolate: What New Research Says About Health Benefits
Tuesday 16 February 2016: Sue Ingebretson discusses the health benefits of chocolate for people with chronic illnesses such as Fibromyalgia.

18 People Describe What Chronic Fatigue Syndrome Feels Like
Monday 15 February 2016: Online news outlet The Mighty asked its readers as well as the ProHealth community to describe what chronic fatigue really feels like.

Professor Coyne How Can We Thank You Enough?
Sunday 14 February 2016: A report from the Irish blog Just ME about James C Coyne's visit to Ireland.

Many Women With Fibromyalgia Suffer From Pelvic Pain
Sunday 14 February 2016: Researchers have found that Fibromyalgia patients were recently found to have more symptom burden from bothersome pelvic pain syndromes that women seeking care for pelvic floor disease at an urogynecology clinic.

South Australian Health And Medical Research Institute (SAHMRI) Calling For Research Participants
Saturday 13 February 2016: Research to evaluate the relationship of the hormones (cytokines) Leptin and Interleukin-6 on the symptoms of Chronic Fatigue Syndrome.

An Open Letter To The Lancet, Again
Saturday 13 February 2016: Another request for data from the UK's PACE Trial.

Senator Scott Ludlam On ME/CFS Research Funding In Australia
Friday 12 February 2016: Australian Greens Senator Scott Ludlam discusses the state of ME/CFS research funding in Australia.

Fibromyalgia Symptoms Often Go Undiagnosed In Men
Friday 12 February 2016: Information on men and Fibromyalgia is far scarcer than on women and Fibromyalgia, and women are far more likely to receive a Fibromyalgia diagnosis, compared to men.

Dr Robert K Naviaux Joins The Open Medicine Foundation's ME/CFS Scientific Advisory Board
Thursday 11 February 2016: Dr. Robert K. Naviaux has joined the Open Medicine Foundation's ME/CFS Scientific Advisory Board.

Suicide Six Times More Likely In ME/CFS Patients Compared To General Population
Thursday 11 February 2016: Research from the Institute of Psychiatry, Psychology & Neuroscience at King's College London.

Medicinal Cannabis In Australia A Step Closer
Wednesday 10 February 2016: Patients in Australia suffering chronic and painful illnesses are a step closer to accessing medicinal cannabis.

Obituary: Robert J Suhadolnik, ME/CFS and AIDS researcher
Wednesday 10 February 2016: Dr. Robert J. Suhadolnik, 90, a US biochemist renowned for his research on AIDS and Chronic Fatigue Syndrome, has died.

Fibromyalgia Incidences Low In Acute Whiplash Injury: Study
Tuesday 9 February 2016: A study has found that experiencing whiplash injury could result in some cases of Fibromyalgia.

US National Institutes Of Health Recruiting For Major ME/CFS Study
Tuesday 9 February 2016: A major ME/CFS study is underway in the US.

Welsh Teenager's Skydive Inspired By "Hero" Mum's Condition
Monday 8 February 2016: A daughter's love for her "hero" mum is to take her 10,000ft up in the air for charity.

Help! I'm Allergic To My New Audi
Monday 8 February 2016: A UK doctor who paid nearly £20,000 [AUS$41,000] for a brand new car can only take it for a spin once a week, for 40 minutes at a time - because he is allergic to it.

5 "Do's" For A Better Relationship With A Fibromyalgia/ME/CFS Doctor
Sunday 7 February 2016: An article by Adrienne Dellwo about improving the relationship between patient and doctor.

Medical Whistleblower Dr Judy Mikovits Shares Her Story With Dr Rebecca Risk
Sunday 7 February 2016: Dr Judy Mikovits talks to Dr Rebecca Risk about her new book, "Plague: One Scientist's intrepid Search For the Truth about Human Retroviruses and Chronic Fatigue Syndrome, Autism, and Other Diseases".

Reexamining Chronic Fatigue Syndrome Research And Treatment Policy
Saturday 6 February 2016: An article by David Tuller.

Introducing Mary Dimmock's Summary: 'Thirty Years Of Disdain'
Saturday 6 February 2016: A review of a book focusing on the history of ME/CFS.

Specialised Services For Young People With CFS Needed Across Sussex
Saturday 6 February 2016: A new study into young people in the UK with Chronic Fatigue Syndrome highlights the need for more specialised services.

"I Burned The Candle At Both Ends - And Ended Up With Chronic Fatigue"
Friday 5 February 2016: A profile of UK ME/CFS sufferer Angie Potter.

US Military Veterans Seek Access To Medical Marijuana
Friday 5 February 2016: An article about military veterans and their success in treating various ailments, including Fibromyalgia, with medical marijuana.

Help Build A Seed Fund For "Impact"
Thursday 4 February 2016: A fundraising request from ME/CFS sufferer and activist Jennifer Brea.

David Conley Composes Score For ME/CFS Documentary "Forgotten Plague"
Thursday 4 February 2016: A profile of David Conley, composer of the soundtrack to the ME/CFS documentary Forgotten Plague.

How Lyrica Changes The Fibromyalgia Brain
Thursday 4 February 2016: New research may help explain how Lyrica works to combat pain in Fibromyalgia patients.

Trial By Error, Continued: A Few Words About "Harassment"
Wednesday 3 February 2016: An op-ed piece by David Tuller about the UK's PACE Trial.

Chronic Fatigue Syndrome Finally Gets Its Due
Tuesday 2 February 2016: A profile of US ME/CFS sufferer Ann Cavanagh Kramer.

Chronic Pain Doesn't Stop David's Plans For Charity Expansion
Monday 1 February 2016: A charity founded by Irish man David Moore to support people suffering with Fibromyalgia continues to go from strength to strength.
January

Melbourne Fibromyalgia Sufferers Wanted For Floatation Project
Sunday 31 January 2016: Inner Outer Health, a Melbourne-based floatation therapy private centre, is enrolling Australian fibromyalgia sufferers to further test the potential benefits of this partcular therapy.

Gut Bacteria Play Different Roles in Males And Females
Saturday 30 January 2016: Gut bacteria play vastly different roles in males and females even when the microbe balance of the gut looks exactly the same, Victoria University researchers have found.

Eight Thousand Young Australians Kicked Off Disability Support Pension
Friday 29 January 2016: The Federal Government claims its crackdown on the Disability Support Pension is working, with 8,000 people kicked off the payment in the final half of 2015.

Acupuncture Does Not Reduce Pain For Women With Fibromyalgia
Thursday 28 January 2016: Research has found that acupuncture, along with two other pain relief methods, proved to be insufficient in providing the analgesia that patients with Fibromyalgia crave.

New Headgear Device Delivers Pain Relief For Fibromyalgia And Migraine
Wednesday 27 January 2016: A new pain-relieving device, the brain-stimulating "PainX tDCS Therapy", has been approved for Fibromyalgia and migraine after 14 studies over the course of eight years.

Chronic Fatigue Syndrome On Rise Among 16-Year-Olds
Tuesday 26 January 2016: Chronic Fatigue Syndrome is more common than previously thought, particularly among girls at the age of 16, research by the UK's University of Bristol suggests.

The Solve ME/CFS Initiative Grades The HHS Response To CFSAC Recommendations
Monday 25 January 2016: The Solve ME/CFS Initiative has given a letter grade to the U.S. Department of Health & Human Services for each recommendation based on how well the agency responded, given last year's Institute of Medicine and Pathways to Prevention reports, which unequivocally called for federal agency focus on ME/CFS.

Fibromyalgia: Can Probiotics Ease Chronic Pain?
Sunday 24 January 2016: Research suggests that probiotics may help with decreasing the symptoms of Fibromyalgia and its chronic pain.

Patients With Fibromyalgia May Fit One Of Two Distinct Subclusters
Saturday 23 January 2016: Symptoms expressed by patients with Fibromyalgia may align with one of two distinct subclusters, and further study may lead to personalized treatments, according to a recently published analysis.

Carpal Tunnel Syndrome Has High Prevalence In Women With Fibromyalgia
Friday 22 January 2016: Research has found that people with Fibromyalgia are four to six times more likely to develop Carpal Tunnel Syndrome compared to the general population.

Electricity To Treat Fibromyalgia? Not So Fast!
Thursday 21 January 2016: An op-ed piece by Rosemary Lee about a treatment for Fibromyalgia called High Definition trans cranial Direct Current Stimulation, a form of electric shock therapy.

Chronic Fatigue Syndrome: Rituximab Revisited
Wednesday 20 January 2016: An article about the potential risks involved in taking ritxumab for ME/CFS.

Hyperbaric Oxygen Tanks Found To Treat And Cure Fibromyalgia
Tuesday 19 January 2016: Researchers from Tel Aviv University have noted that women who have tried hyperbaric oxygen treatment were able to drastically reduce or entirely eliminate their need for pain medication.

Finding The Right Dose Of Electricity To Treat Fibromyalgia Pain
Monday 18 January 2016: Researchers are narrowing in on defining the right dose of electrical current to treat chronic Fibromyalgia pain via high-definition transcranial direct current stimulation (HD-tDCS).

Cannabis And Fibromyalgia
Sunday 17 January 2016: An article about why medical marijuana can be effective for Fibromyalgia.

A Look At Glenn Hutchins' Philanthropy
Saturday 16 January 2016: A profile of US philanthropist Glenn Hutchins.

Support For The Microgenderome
Saturday 16 January 2016: Research that shows "gut microorganisms may play both protective and deleterious roles in symptom expression".

Laura Dundovic: 'I Got Every Possible Sickness'
Friday 15 January 2016: A profile of Australian model Laura Dundovic.

Meet The Woman Who Has Been Battling Fatigue For Over 27 Years
Friday 15 January 2016: A profile of two UK ME/CFS sufferers, Victoria Bartle and Deborah Hutton.

Fibromyalgia Foundation Is Latest Langley Charity To Be Hit By Thieves
Thursday 14 January 2016: A Canadian Fibromyalgia charity shop was broken into.

Chronic Widespread Pain: Some Societies Feel It More
Thursday 14 January 2016: A review of specific population studies showed the prevalence of chronic widespread pain ranged from 0% to 24%, depending on world region.

Australians With Lyme Disease 'Being Treated Worse Than A Dog Riddled With Mange'
Wednesday 13 January 2016: Australian Independent Senator John Madigan has come out firing over the treatment of Australians suffering with Lyme disease by the health industry.

A Day In The Life With Chronic Illness
Tuesday 12 January 2016: A blow-by-blow account of daily life with chronic pain and illness, from Toni Bernhard JD.

IV Ketamine For Fibromyalgia
Monday 11 January 2016: An article about how ketamine is helping people with Fibromyalgia.

US Neuroscientist Says Exercise Is A Noxious Stimulus That Worsens Symptoms Of ME/CFS
Sunday 10 January 2016: A highly regarded American neuroscientist who has researched CFS for more than a decade, has decried media reports based on The Lancet Psychiatry's scientific article that claims Graded Exercise Therapy is an effective treatment for Chronic Fatigue Syndrome.

When Fibromyalgia Is More Than Pain
Sunday 10 January 2016: Celeste Cooper lists a number of disorders that can be associated with Fibromyalgia.

Severe Fibromyalgia Symptoms Linked To Obesity, Weight Gain
Saturday 9 January 2016: Research has found a link between severe Fibromyalgia symptoms and obesity, and also suggests that being obese increases a person's risk of Fibromyalgia.

Fibromyalgia Finally Has A Code Of Its Own
Friday 8 January 2016: An article by Seth Lederman, MD.

Did The PACE Trial Really Prove That Graded Exercise Is Safe?
Friday 8 January 2016: An article by Julie Rehmeyer and David Tuller, DrPH.

Episode Of BBC Drama "Doctors" Features Character With ME/CFS
Friday 8 January 2016: A recent episode of the BBC drama Doctors featured an ME/CFS sufferer in one of its storylines.

Worst Things To Say To A Person Living With A Chronic Illness
Friday 8 January 2016: A video by YouTube user The ME/CFS Ghost.

PACE Study And The Lancet: Journal Reputation Is A Two-Way Street
Thursday 7 January 2016: An article by Andrew Gelman on his Statistical Modeling, Causal Inference, and Social Science blog.

Undisclosed Conflicts Of Interest In A Systematic Review Protocol Of Interventions For Medically Unexplained Symptoms
Thursday 7 January 2016: An artcle by James C. Coyne's on his Quick Thoughts blog.

7 Famous Celebrities You Didn't Know Were Battling Chronic Illnesses
Wednesday 6 January 2016: A list of noted celebrities who have various chronic illnesses.

PACE Trial: Questions For Dr. White And His PACE Colleagues
Wednesday 6 January 2016: An article by David Tuller.

Strength Of Spirit Top Of Class
Tuesday 5 January 2016: An article about the academic achivements of South Australian high school student and ME/CFS sufferer Elise Prior.

The Best, Least, Biggest And Strangest: An ME/CFS And FM Look Back At 2015
Monday 4 January 2016: An article by Cort Johnson on his Health Rising blog.

Invisible Illness – Stories Of Chronic Fatigue Syndrome
Sunday 3 January 2016: A mini documentary that reveals three stories of people who have been impacted by ME/CFS.

17 Secrets of People Who Live With Chronic Fatigue Syndrome
Saturday 2 January 2016: The Mighty partnered with the Chronic Fatigue Syndrome & ME by ProHealth Facebook page to ask people who live with CFS what they wish others could understand about their condition.

Happy New Year
Friday 1 January 2016: All of us here at ME/CFS Australia (SA) Inc wish you a Happy New Year.


In the News – 2015

In the News – 2014

In the News – 2013

In the News – 2012

In the News – 2011

In the News – 2010

In the News – 2009

In the News – 2008

In the News – 2007

In the News – 2006

In the News – 2005 and earlier

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