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  ME/CFS AUSTRALIA (SA) INC

Registered Charity 698

Email:
sacfs@sacfs.asn.au

Mailing address:
PO Box 28,
Hindmarsh,
South Australia 5007

Office:
266 Port Road,
Hindmarsh,
South Australia 5007
Ph: 1300 128 339

Office Hours:
Wednesdays, 10am-3pm


FIBROMYALGIA HELP:
Contact
Fibromyalgia SA
at the
Arthritis Foundation of SA
118 Richmond Road,
Marleston 5033
Ph: (08) 8379 5711

ME/CFS Australia (SA) Inc supports the needs of sufferers of Myalgic Encephalomyelitis, Chronic Fatigue Syndrome and related illnesses. We do this by providing services and information to members.

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In the News

2014

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Fibromyalgia news

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Multiple Chemical Sensitivity news

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Multimedia
 
November

Watch Voices from the Shadows documentary for free till the end of the year
Friday 21 November 2014: The film ‘Voices from the Shadows’ is now available to watch for free until the end of the year – on Vimeo – by entering a promo code.

Chronic Fatigue Syndrome - very real, highly disturbing medical condition
Thursday 20 November 2014: New clues are emerging about the mystery condition called Chronic Fatigue Syndrome, which causes such disabling exhaustion that people can't complete normal daily activities.

US couple wins national scholarships to help people with chronic pain
Wednesday 19 November 2014: Louis and Kristen Ogden recently won scholarships to attend the National Fibromyalgia & Chronic Pain Association’s national training program, Leaders Against Pain, to learn how to effectively advocate for the 110 million people with chronic pain illnesses in the United States.

Society seminar
Tuesday 18 November 2014: The society's next seminar will be held this Saturday, 22 November 2014, at 1pm.

Men versus women on pain
Monday 17 November 2014: According to various studies, there is a gender gap in who feels more pain, with women pulling ahead of men.

Aspartame connections to Fibromyalgia continue to be questioned
Sunday 16 November 2014: A study from France has found a connection between Fibromyalgia and aspartame consumption.

South Australia takes steps towards statewide pain plan
Saturday 15 November 2014: South Australia is now moving on the National Pain Strategy, with the establishment of a Steering Committee to develop an integrated statewide chronic pain plan.

Successful treatment of Gulf War Illness with Coenzyme Q10: implications for ME/CFS?
Friday 14 November 2014: The use of Coenzyme Q10 in Gulf War Illness patients shows promise in patients with ME/CFS, as both conditions share symptoms of oxidative stress and mitochondrial impairment.

Medical marijuana beats three leading Fibromyalgia drugs
Thursday 13 November 2014: An article about the specifics of medical marijuana for use in Fibromyalgia.

Carol Head interviewed by Llewellyn King
Wednesday 12 November 2014: Recently, Carol Head, President and CEO of the Solve ME/CFS Initiative, sat down with Llewellyn King of ME/CFS Alert for a wide-ranging, two-part interview.

Metabolism in Chronic Fatigue Syndrome
Tuesday 11 November 2014: Research published in Advanced Clinical Chemistry that investigated metabolism in people with ME/CFS.

Fibromyalgia correlated with decreased brain connectivity
Monday 10 November 2014: According to research published in Brain Connectivity, people with Fibromyalgia have less brain connectivity than people without the condition.

Phenylephrine alteration of cerebral blood flow during orthostasis
Sunday 9 November 2014: Research published in the Journal of Applied Physiology.

ME/CFS video: Population and social impact
Saturday 8 November 2014: A video in which Professor Leonard A Jason talks about the population of ME/CFS sufferers and its social impact.

US woman with Fibromyalgia wins disability discrimination lawsuit
Friday 7 November 2014: A woman with Fibromyalgia has ended her long battle with Baywood Home Care in Minneapolisby winning an Equal Employment Opportunity Commission disability discrimination lawsuit and was awarded $30,000.

The P2P agenda: What the huh?
Thursday 6 November 2014: The National Institutes of Health's P2P Workshop on ME/CFS now has an agenda with speakers and talk titles, and Jennie Spotila asks, "Is it good or bad?"

Australian Olympic team from new University of South Australia research that measures changes in athletes' heart rate
Wednesday 5 November 2014: Researchers in South Australia have developed a technology for measuring changes in athletes' heart rate to determine recovery from training and performance and it could be in use in time for the Australian team for the Rio Olympics.

Exercise for Fibromyalgia: comparison between aquatic and land-based programs
Tuesday 4 November 2014: Exercise therapy can improve some symptoms of Fibromyalgia, but conclusive evidence favoring aquatic or land-based programs as the best way to achieve those improvements is still lacking, according to a new review of randomized controlled trials.

"Poison my daughter? No, I was trying to cure her"
Monday 3 November 2014: An article about a court case in the UK involving a seriously ill girl and her parents.

DIRC to close
Sunday 2 November 2014: An announcement from South Australia's Disability and Information Resource Centre.

New evidence shows Chronic Fatigue Syndrome, a 'made up disease,' may be real
Saturday 1 November 2014: New insight into the brains of patients with Chronic Fatigue Syndrome may help doctors finally understand the causes behind the disease – and give patients the legitimacy they have been craving.

October

Brain abnormalities discovered in patients with Chronic Fatigue Syndrome
Friday 31 October 2014: A recent study published in Radiology by lead author Michael Zeineh of the Stanford University School of Medicine found that patients with CFS have a reduced amount of white matter in their brains, as well as abnormalities in both the white and gray matter of the right hemisphere.

Cognitive dysfunction of Fibromyalgia does not impair driving ability
Thursday 30 October 2014: A study entitled "Assessing Cognitive and Psychomotor Performance in Patients with Fibromyalgia Syndrome".

Congressman Murphy convenes "Path 2 Cures" roundtable
Wednesday 29 October 2014: A report on the Path2Cures Roundtable, a US government initiative to find ways of alleviating healthcare difficulties for chronic diseases.

Fibromyalgia sufferer: 'I can't escape the pain'
Tuesday 28 October 2014: A profile of Scottish Fibromyalgia sufferer Sarah Pollard.

Article in major psychology journal seeks to dispel myths about CFS
Monday 27 October 2014: An article recently published in the American Psychological Association's journal The Monitor on Psychology, which has a readership of 130,000 health professionals, goes a long way to clear a lot of misconceptions about ME/CFS.

More evidence needed on benefits of BT, HT in Fibromyalgia management
Sunday 26 October 2014: Results of a literature review on management of Fibromyalgia showed more high-quality studies with larger sample sizes and a focus on long-term results and maintenance of the beneficial effects are needed to confirm the therapeutic benefit of balneotherapy and hydrotherapy.

Fibromyalgia sufferer creates successful doll clothing business
Saturday 25 October 2014: A Californian mom and former girl scout leader has created her own business by hand-making and selling Earth-friendly American Girl doll clothing.

Fibromyalgia mystery finally solved
Friday 24 October 2014: Researchers have found the main source of pain in Fibromyalgia patients, and contrary to what many believe, it does not stem from the brain but from blood vessels.

The Institute for Advanced Medical Research launches Fibromyalgia study
Thursday 23 October 2014: America's Institute for Advanced Medical Research has announced that it will launch a new clinical trial for Fibromyalgia on November 1, 2014.

Stanford unravels the mysteries of Chronic Fatigue Syndrome
Wednesday 22 October 2014: A video from Stanford University.

Assessment of recovery status in Chronic Fatigue Syndrome using normative data
Tuesday 21 October 2014: A study in which researchers which have reviewed criteria previously employed to define recovery in Chronic Fatigue Syndrome.

Woman who is 'allergic' to the 21st century has no physical contact with the outside world
Monday 20 October 2014: A profile of severe Australia Multiple Chemical Sensitivity sufferer Amelia Hill.

Is Venlafaxine effective for treating Fibromyalgia
Sunday 19 October 2014: A systematic review of the efficacy of venlafaxine for the treatment of Fibromyalgia.

Enable Adelaide...
Saturday 18 October 2014: The City of Adelaide and Enable Development are looking at developing a way to share accessibility and other disability related information with the people who can and will use it.

Modified ACR criteria effective for Fibromyalgia diagnosis
Friday 17 October 2014: The 2011 modification of the 2010 American College of Rheumatology (ACR) preliminary criteria for the diagnosis of Fibromyalgia has acceptable diagnostic accuracy compared with the 1990 ACR criteria, according to research published in the September issue of Arthritis Care & Research.

Serum cytokines in patients with moderate and severe ME/CFS
Thursday 16 October 2014: Research published in the medical journal Cytokine.

Large grant awarded to Griffith CFS researcher
Wednesday 15 October 2014: Providing increased services for Chronic Fatigue Syndrome sufferers will be the focus of Griffith University research following the award of a $1.85m grant to one of Australia’s foremost authorities on the condition.

Researchers testing non-drug treatment for Fibromyalgia
Tuesday 14 October 2014: Researchers at the University of Cincinnati are testing a non-drug treatment for Fibromyalgia, a condition characterized by chronic and widespread pain.

Fibromyalgia, so difficult to explain, so hard to be understood, and yet so painful
Monday 13 October 2014: An article about young adults with Fibromyalgia in Malta.

Sarah Kelly overcomes debilitating CFS to run Melbourne half-marathon
Sunday 12 October 2014: A profile of Victorian woman Sarah Kelly who plans to run in the Melbourne half-marathon after overcoming ME/CFS.

Fibromyalgia: Memantine reduced pain in small, double-blind trial
Saturday 11 October 2014: Memantine, a drug primarily used to treat patients with Parkinson's disease and Alzheimer's disease, reduced pain and improved quality of life in patients with Fibromyalgia, according to a recent study.

Fox News interview on Chronic Fatigue Syndrome with Toby Morrison
Friday 10 October 2014: An interview with ME/CFS sufferer Toby Morrison.

Pain and pressure pain thresholds in adolescents with CFS and healthy controls: a cross-sectional study
Thursday 9 October 2014: The results of a study from Norway that investigated aspects of Chronic Fatigue Syndrome in adolescents.

'It's like someone beating you up': The invisible illness no one’s talking about
Wednesday 8 October 2014: An article about te state of Fibromyalgia in Ireland.

Cannabis reduces pain from Fibromyalgia studies show
Tuesday 7 October 2014: A report on studies that have shown the positive effects of cannabis for Fibromyalgia patients.

Adverse events and deterioration reported by participants in the PACE trial
Monday 6 October 2014: A study that enumerates adverse events reported in the PACE trial of treatments for ME/CFS.

Two age peaks in the incidence of ME/CFS: a study from Norway
Sunday 5 October 2014: A Norwegian study that estimated sex- and age-specific incidence rates of ME/CFS using population-based registry data.

Employee loses case claiming her colleagues' perfume caused impairment
Saturday 4 October 2014: An employee who claims she was rendered incapable of working by her colleagues' perfumes and aftershaves has lost her compensation claim.

Researchers debate the brain's role in Fibromyalgia
Friday 3 October 2014: Recent findings published in the journal Brain Connectivity show that decreased connectivity between pain-related and sensorimotor brain areas could contribute to deficient pain regulation in Fibromyalgia.

Tonix shares battered as lead Fibromyalgia drug flops in PhIIb
Thursday 2 October 2014: Shares of Tonix Pharmaceuticals were hammered after the biotech commpany put out word that its lead drug had failed a Phase IIb study for Fibromyalgia.

Cannabis relieves nerve pain from Lyme Disease, Fibromyalgia, and associated conditions
Wednesday 1 October 2014: Evidence that cannabis used medicinally helps a few chronic pain conditions.

September

Medical cannabis closer to federal approval
Tuesday 30 September 2014: The federal government would be given oversight over the production and distribution of medical cannabis under new legislation to make the make the drug available to patients with chronic pain.

Fibromyalgia info booklet launched after fundraising
Monday 29 September 2014: Irish woman Gemma Flood is about to realise a dream with the launch of her booklet on Fibromyalgia.

Dr Rosamund Vallings ME/CFS lecture
Sunday 28 September 2014: A video of Dr Rosamund Valling giving a talk at the University of Otago in New Zealand.

Study: Fibromyalgia sufferers have trouble processing sight, sound, touch
Saturday 27 September 2014: New research provides even more evidence that people with Fibromyalgia have a real pathology and that it may be linked to trouble processing everyday sights and sounds.

UK PhD student dumps shoes to raise Chronic Fatigue Syndrome awareness
Friday 26 September 2014: A Newcastle PhD student is raising awareness of a medical syndrome by casting aside his shoes and walking the streets barefoot.

ME versus psychiatric disorders
Thursday 25 September 2014: A video in which Professor Leonard A Jason talks about the differences between ME and psychiatric disorders.

UK Fibromyalgia sufferer to stand as an MP in forthcoming election
Wednesday 24 September 2014: Joe Neilson, who has Fibromyalgia and macular degeneration, is standing as an independent MP for the UK's Brighton Kemptown constituency in the scheduled 2015 general election.

Tryptophan depletion in Chronic Fatigue Syndrome, a pilot cross-over study
Tuesday 23 September 2014: A study that investigated a condition known as Acute Tryptophan Depletion.

Will Langford: from chronic fatigue to one of Hawthorn's most important players
Monday 22 September 2014: A profile of Hawthorn footballer Will Langford.

Invisible illness and incommunicable diseases: Emily Reach White at TEDxGreenville
Sunday 21 September 2014: Emily Reach White asks the question: What makes some diseases more culturally visible, and more culturally acceptable, than others?

Marijuana rated most effective alternative treatment for pain
Saturday 20 September 2014: Medical marijuana has been rated the most effective alternative treatment for relieving chronic pain, according to the results of a new survey that also gave high marks to massage and chiropractic therapy.

ME/CFS study in Adelaide: Volunteers wanted
Friday 19 September 2014: The National Centre for Neuroimmunology and Emerging Diseases on the Gold Coast is conducting an ME/CFS study in Adelaide, and is calling for volunteers.

Chronic fatigue, Fibromyalgia sufferers gather for hope
Thursday 18 September 2014: Hundreds gathered in Salt Lake City for a conference dealing with ME/CFS and Fibromyalgia.

UK mum sets up support group for Fibromyalgia sufferers
Wednesday 17 September 2014: A UK mum-of-three has set up a new support group for people who suffer from Fibromyalgia, a long-term condition which causes excruciating pain all over the body.

On a mission for mum
Tuesday 16 September 2014: A profile of UK Fibromyalgia sufferer Jane Hogan and her fundraising children.

Chronic Fatigue Syndrome grant explores why men get ME/CFS
Monday 15 September 2014: Health Rising's Cort Johnson talks about a new grant in the US which will allow researchers to focus on ME/CFS in men.

'Don'ts' aren't helping: here are five things you can say to someone with a disability
Sunday 14 September 2014: The Guardian Australia's Robert Hoge lists five things people can say to those with diabilities.

CWA continues Lyme Disease campaign
Saturday 13 September 2014: The Country Women's Association is continuing its campaign to have Lyme Disease officially recognised in Australia, despite the dissolution of a federal government committee tasked to investigate its legitimacy.

Feel our pain
Friday 12 September 2014: The Irish News's Abi Jackson discusses Fibromyalgia in the UK.

Pain and depression treatment possible in Fibromyalgia
Thursday 11 September 2014: Patients with Fibromyalgia can safely be treated with the anticonvulsant drug pregabalin (Lyrica, Pfizer Inc) for their pain while at the same time being treated for depression, a new study shows.

Gastrointestinal problems in Fibromyalgia
Wednesday 10 September 2014: A study entitled "An insight into the gastrointestinal component of fibromyalgia: clinical manifestations and potential underlying mechanisms".

Interview: Dr Rosamund Vallings
Tuesday 9 September 2014: An interview with New Zealand ME/CFS doctor, Rosamund Vallings, that coincidences with the release of her new book, Chronic Fatigue Syndrome / ME: Symptoms, Diagnosis, Treatment.

Overcoming the barriers to the diagnosis and management of ME/CFS in primary care
Monday 8 September 2014: A study entitled "Overcoming the barriers to the diagnosis and management of chronic fatigue syndrome/ME in primary care: a meta synthesis of qualitative studies".

Symptoms of autonomic dysfunction in Chronic Fatigue Syndrome
Sunday 7 September 2014: A study that supports the theory that ME/CFS is a form of dysautonomia, whereby the body's nervous system misbehaves.

An exploration of the impact of Chronic Fatigue Syndrome
Saturday 6 September 2014: A study entitled "An exploration of the Impact of Chronic Fatigue Syndrome and Implications for Psychological Service Provision".

Fatigue explained? Japanese assert brain damage causes fatigue in ME/CFS
Friday 5 September 2014: Cort Johnson from Health Rising discusses research being conducted in Japan.

Traditional Chinese medicine for Chronic Fatigue Syndrome
Thursday 4 September 2014: The results of a study published in the journal Complementary Therapies in Medicine.

Where Fibromyalgia and Chronic Fatigue Syndrome part ways (and where they don't)
Wednesday 3 September 2014: A recent study demonstrates an important way that Fibromyalgia differs from Chronic Fatigue Syndrome.

Fibromyalgia – main source of pain finally found
Tuesday 2 September 2014: Scientists have finally found the main source of pain in Fibromyalgia patients, and it is physical, not stemming from any psychological cause as many doctors have believed in the past.

"Fibro-fog has turned my life into a nightmare"
Monday 1 September 2014: A profile of UK Fibromyalgia sufferer Kathleen Carter.

August

Interview: Jennifer Brea talks about obstacles, adjustments, and inspiration
Sunday 31 August 2014: An interview with documentary filmmaker and ME/CFS sufferer Jennifer Brea.

2014 Medical Seminar in Victoria
Saturday 30 August 2014: ME/CFS Australia (Victoria) will be holding a seminar on 13 September 2014 that will feature many speakers and a range of topics regarding various aspects of ME/CFS.

Giardia linked to long-term risk for IBS, Chronic Fatigue
Friday 29 August 2014: Infection with Giardia may triple the risk for irritable bowel syndrome (IBS) and chronic fatigue (CF) even years after infection, according to a prospective study published online August 12 in the journal Clinical Infectious Diseases.

Angela beats the odds to finish 800-mile motorcycle challenge
Friday 22 August 2014: An Irish woman has beaten the odds to complete an 800-mile motorcycle challenge taking her across Ireland and back home in six days.

'Forgotten' UK ME sufferers given new hope as charity hits cash target for clinical drug trials
Thursday 21 August 2014: ME sufferers across Greater Manchester in the UK have been given a timely boost, after a charity raised £350,000 to trial a drug usually used to treat some forms of cancer.

Emily is the secret to mum's success
Wednesday 20 August 2014: A profile of Scottish ME/CFS sufferer Hazel Toal who will be participating in physical challenges for charity.

Celiac symptoms in Fibromyalgia patients
Tuesday 19 August 2014: The results of a study published in Rheumatology International.

New UK Fibromyalgia group offers support to sufferers
Monday 18 August 2014: A post office worker with an 'invisible illness' has set up a support group to help others with the same condition.

Woman builds herself a gorgeous, tiny, healthy, "chemical free" house
Sunday 17 August 2014: An article about the small chemical-free house belonging to Multiple Chemical Sensitivity sufferer Corrine.

Society seminar reminder
Saturday 16 August 2014: A reminder that the society's next seminar will be held today (Saturday 16 August 2014) at 12:30pm.

Whole-body vibration may reduce pain associated with Fibromyalgia
Friday 15 August 2014: Whole-body vibration exercise effectively reduced the severity of pain in patients with Fibromyalgia, according to study findings.

NDIS Evaluation from Flinders University – participants wanted
Thursday 14 August 2014: Flinders University wants to hear from people with a disability who have joined the National Disability Insurance Scheme (NDIS).

Society seminar – Saturday 16 August
Wednesday 13 August 2014: The society's next seminar will be held on Saturday 16 August 2014 at 12:30pm.

Fibromyalgia teen Beth Fuller 'gob-smacked' as Mail reader offers her a car
Tuesday 12 August 2014: A young UK woman battling a condition that leaves her in constant pain has been heartened by offers of a car and a voluntary job.

Petition: Governments must comply to WHO ICD10 G93.3
Monday 11 August 2014: A petition calling for governments to use the World Health Organization's classification of ME/CFS as a basis for treatment.

How to better accommodate travellers with Multiple Chemical Sensitivity
Sunday 10 August 2014: An article by Glenn Hasek about the potential dangers for people with Multiple Chemical Sensitivity when on holiday.

Lidocaine injections found to reduce hypersensitivity to pain in Fibromyalgia patients
Saturday 9 August 2014: A University of Florida study published in the July issue of the European Journal of Pain has found that injections of the painkiller lidocaine in peripheral tissues such as muscles in the shoulders or buttocks reduced hyperalgesia (heightened sensitivity to pain), bringing researchers one step closer to understanding how chronic pain works within these patients.

Documentary: Perversely Dark
Friday 8 August 2014: Perversely Dark, a documentary about two of the sickest people in Norway, is now available on demand.

Author Beckie Butcher struggles with perception while battling Chronic Fatigue
Thursday 7 August 2014: A profile of author Beckie Butcher who spends much of her book, My Battle with Chronic Fatigue Syndrome, talking about coping and explaining her illness to others who might not understand.

Fibromyalgia includes cognitive symptoms
Wednesday 6 August 2014: A new study confirms that people with Fibromyalgia can experience objective impairments in cognitive and executive function independent of depression.

Chronic illness support groups transform life for sufferers
Tuesday 5 August 2014: An article about the benefits of online support groups for sufferers of chronic illnesses.

Survey: Have your say about cost of disability in Australia
Monday 4 August 2014: People with Disability Australia Inc. (PWD) is asking disabled Australians for feedback on the cost of living.

Saddle up to help patients
Sunday 3 August 2014: UK cyclists are being urged to saddle up for the Dorset Downs Cycle Rides, an event organised by the Dorset ME Support Group.

Painkiller reduces hypersensitivity to pain in patients with Fibromyalgia
Saturday 2 August 2014: A University of Florida study has found that injections of the painkiller lidocaine in peripheral tissues such as muscles in the shoulders or buttocks reduced hyperalgesia, bringing researchers one step closer to understanding how chronic pain works within these patients.

The Surviving ME/CFS Show – "Celebrate the wins"
Friday 1 August 2014: A webacst from ME/CFS sufferer Julian Roath.

July

P2P: The question they will not ask
Thursday 31 July 2014: A question not asked at the US National Institute of Health's Pathways to Prevention (P2P) Panel Workshop on CFS was: what is the difference between ME and CFS?

I Remember Me documentary
Wednesday 30 July 2014: I Remember Me is a biographical documentary by Kim Snyder about ME/CFS.

Smartphone app and specialised clinic for chronic fatigue patients
Tuesday 29 July 2014: Sufferers of Chronic Fatigue Syndrome are set to benefit with the dual launch of a specialist Griffith University clinic and smartphone app, both aimed to manage their illness and improve health outcomes.

Norwegian 'Woulds' (and 'Wouldn'ts'): The ME/CFS Survey
Monday 28 July 2014: A report on Norway's countrywide ME/CFS survey.

Study: Melatonin analgesia
Sunday 27 July 2014: A research article entitled "Melatonin analgesia is associated with improvement of the descending endogenous pain-modulating system in fibromyalgia: a phase II, randomized, double-dummy, controlled trial".

The human face of the Irish Coalition's disability funding cuts
Saturday 26 July 2014: An article about proposed government funding cuts for the disability sector in Ireland.

Student writer pursues passion, fights illness
Friday 25 July 2014: A Louisiana university student who has Fibromyalgia and Lyme disease uses her passions for writing and art to prevail over her illnesses.

ME woman Beth French swims 26 miles to the Isles of Scilly
Thursday 24 July 2014: A British woman who was once forced to use a wheelchair because of ME/CFS, has swum 26 miles from Cornwall to the Isles of Scilly.

Archibald Prize entry: "My Plague" by Julian Parker Welch
Wednesday 23 July 2014: Australian painter – and ME/CFS sufferer – Julian Parker Welch entered a painting of ME/CFS specialist Andrew Lloyd in the 2014 Archibald Prize.

Fibromyalgia research update from Integrated Tissue Dynamics
Tuesday 22 July 2014: An update on research conducted by Integrated Tissue Dynamics which found that people with Fibromyalgia have excessive sensory nerve fibers around specialized blood vessel structures located in the palms of the hands.

Yard sale boosts awareness for self-help group
Monday 21 July 2014: Canada's Seaway M.E./FM Self Help Group hosted its third annual yard sale to help its members cope with a life-altering disease.

A mystery no longer?
Sunday 20 July 2014: An interview with US ME/CFS specialist Dr. Lucinda Bateman who believes believes she now knows where the root of the disease is.

Study: Paediatric ME/CFS diagnosis and management in Australia
Saturday 19 July 2014: The results of a study that examined the current diagnosis and management practices for CFS/ME by Australian paediatricians.

Mike's marathon effort to give something back
Friday 18 July 2014: Mike Rippingale from North Wales is about to add training for the 2015 London Marathon to an already hectic life of juggling caring responsibilities with work and parenthood.

Disability pension concerns
Thursday 17 July 2014: Society member Peter Mitchell addresses concerns many disabled Australians have regarding proposed changes to the Disability Support Pension.

"I want to tell people with ME that there is hope"
Wednesday 16 July 2014: UK ME/CFS sufferer Emma Donohoe, 20, is featured on television program ITV Fixers.

'Brain Fog' survey
Tuesday 15 July 2014: ME/CFS Australia (Victoria) is conducting a survey about brain fog, a common symptom of ME/CFS.

Sufferer offers tips for emotional wellness
Monday 14 July 2014: An article by US Fibromyalgia sufferer Janet Komanchuk.

UK support group will help Fibromyalgia sufferers
Sunday 13 July 2014: A support group for people in North London suffering from Fibromyalgia will launch later this year.

"A chance to lead the way in treatment of ME and FMS"
Saturday 12 July 2014: Irish politician Dominic Bradley says Northern Ireland has “a chance to lead the way” by developing a more sympathetic and paced approach to the treatment of ME/CFS and Fibromyalgia.

Society seminar – Saturday 16 August
Friday 11 July 2014: The society's next seminar will be held on Saturday 16 August 2014 at 12:30pm.

ABC's Radio National discusses Fibromyalgia
Thursday 10 July 2014: Dr. Norman Swan talks about Fibromyalgia on ABC's Radio National.

Decreased basal ganglia activation in subjects with CFS
Wednesday 9 July 2014: A study has found that reduced basal ganglia function has been associated with fatigue in neurologic disorders, as well as in patients exposed to chronic immune stimulation.

Poorly understood postural syndrome blights lives of young women
Tuesday 8 July 2014: Postural tachycardia syndrome, or PoTS for short, is a debilitating syndrome that predominantly affects young well educated women, and blights their lives because it is so poorly understood and inconsistently treated, reveals a small study.

Lack of support for ME sufferers makes life even harder
Monday 7 July 2014: A new study by the UK's University of Southampton has found that one third of those affected by the condition ME/CFS have no access to specialist care.

United Patients Group study finds medical marijuana most helpful for Fibromyalgia sufferers
Sunday 6 July 2014: The US-based United Patients Group highlighted a recent survey that showed medicinal cannabis to be far more effective than prescription drugs to ease symptoms of fibromyalgia, and explored the pros and cons of each treatment.

Toxic Reform petition
Saturday 5 July 2014: A call to sign a petition from Australian consumer advocate organisation Choice.

New drug Feldetrex for neuropathic pain and Fibromyalgia gains key patent award
Friday 4 July 2014: Drug company Premier Biomedical, Inc. has received approval from the United States Patent Office for their proprietary medication “Feldetrex,” a drug designed to relieve the symptoms of neuropathic pain and Fibromyalgia.

UK patients with severe ME have little or no access to specialist treatment services
Thursday 3 July 2014: One in three severely affected adults with ME in England have no access to local specialist services, new research has shown.

Brain inflammation a recipe for chronic fatigue
Wednesday 2 July 2014: The symptoms of Chronic Fatigue Syndrome are found to be linked to widespread brain inflammation.

10 surprising causes of Fibromyalgia
Tuesday 1 July 2014: 10 possible causes of Fibromyalgia that may help treatment.

June

How doctors are failing to spot the brain injury that could be behind 30,000 cases of 'chronic fatigue'
Monday 30 June 2014: Thousands of British patients suffering from chronic pain and fatigue could be misdiagnosed with psychological problems when they unknowingly have a type of brain damage.

The ME Global Chronicle
Sunday 29 June 2014: The ME Global Chronicle is a monthly newsletter that gathers information about ME/CFS from around the world.

UK lady fights back from Chronic Fatigue Syndrome to set up specialist centre for sufferers
Saturday 28 June 2014: After losing six years of her life to chronic fatigue syndrome, a UK woman has fought back to open a new specialist centre to care for sufferers.

Do doctors confuse ME with a heart problem?
Friday 27 June 2014: “ME: one third of patients ‘wrongly diagnosed’,” says The Daily Telegraph, which has reported on a new study of a condition called postural tachycardia syndrome (PoTS).

ME, 'yuppie flu', and why those with treatable diseases get more sympathy
Thursday 26 June 2014: Martha Gill discusses how ME/CFS is viewed differently to treatable diseases.

Brief report from Dr. Prigden on the Fibromyalgia antiviral trial
Wednesday 25 June 2014: Antiviral trials in the US for Fibromyalgia may change how the disease is viewed, from a poorly treated central nervous system disorder to a disorder characterized by a potentially treatable herpesvirus infection.

Chronic Pain Australia survey
Tuesday 24 June 2014: Chronic Pain Australia is conducting a nationwide survey on chronic pain.

Study links Fibromyalgia and herpes virus
Monday 23 June 2014: A recent study found a link between the herpes simplex virus and Fibromyalgia.

Medical marijuana vs. Fibromyalgia drugs
Sunday 22 June 2014: According to the US's National Pain Foundation survey, people with Fibromyalgia say medical marijuana is far more effective at controlling their pain than the three FDA-approved fibromyalgia drugs.

Fibromyalgia: 'You have no energy – all you have is pain'
Saturday 21 June 2014: A profile of UK Fibromyalgia sufferer Karen Jones.

Baffling Chronic Fatigue Syndrome set for diagnostic overhaul
Friday 20 June 2014: Researchers might soon redefine ME/CFS, while the latest findings point to the role of brain inflammation.

ME/CFS Podcast
Thursday 19 June 2014: Karen, an ME sufferer in Manchester (UK), has created a YouTube channel to share info about ME/CFS.

US woman with medical condition pushes for legalization of marijuana
Wednesday 18 June 2014: New York Fibromyalgia sufferer Sue Kaszynski is pushing for medical marijuane to be legalised in her state.

FDA's "Voice of the Patient"
Tuesday 17 June 2014: After conducting a public process to nominate disease areas for fiscal years 2013-2015, the U.S. Food and Drug Administration held a meeting that focused on ME/CFS.

'If an ME sufferer looks fine, the school assumes they are'
Monday 16 June 2014: A profile of UK student and ME/CFS sufferer Rhia-Louise Nixon.

Fibromyalgia: New fad diagnosis? Think again!
Sunday 15 June 2014: About.com's Adrienne Dellwo talks about the history of Fibromyalgia.

How author Beckie Butcher deals with the struggles of Chronic Fatigue Syndrome
Saturday 14 June 2014: My Battle with Chronic Fatigue Syndrome is a detailed journey told from the perspective of long-time sufferer Beckie Butcher through the symptoms and impact of Chronic Fatigue Syndrome.

UK woman handwrites 'lovely letters' to thousands around the world
Friday 13 June 2014: UK ME/CFS sufferer Jodi Ann Bickley pens letters of encouragement to people worldwide.

Melbourne ME/CFS sufferer helping to raise awareness on CFS
Thursday 12 June 2014: A profile of Victorian ME/CFS sufferer Marilyn Black.

Megan's victory in health fight
Wednesday 11 June 2014: A UK student has overcome health problems to be crowned runner-up at the Miss Bedfordshire awards.

ME sufferer prays for a cure while trapped in own home for 20 years
Tuesday 10 June 2014: For two decades Jenny Meagher has been trapped in her own home, unable to even concentrate on television, hoping research will give her the breakthrough she needs to return to life.

Students raise over £1,400 with charity waxing event
Monday 9 June 2014: Beauty students from Eastleigh College and 20 hairy men participated in a waxing event for Fibromyalgia charities.

My body felt like lead
Sunday 8 June 2014: New Zealand ME/CFS sufferer Hellie Hadfield talks about her illness.

Usain Bolt donates t-shirt to UK ME charity
Saturday 7 June 2014: Usain Bolt, the world's fastest man, has signed and donated one of his t-shirts to a UK charity for people who suffer with ME.

Alert mum gets family to flee blaze
Friday 6 June 2014: A West Australian mother of two, who suffers from Fibromyalgia, managed to get her children out of their burning home seconds before their bedroom ceilings collapsed, and says she is thankful her family are alive.

Miriam steps down as International Criminal Court judge
Thursday 5 June 2014: Senator Miriam Defensor Santiago has decided to let go of her post at the International Criminal Court due to ME/CFS.

Jacky Vanderniet fights pain of ME
Wednesday 4 June 2014: A profile of Tasmanian ME/CFS sufferer Jacky Vanderniet.

Link between shingles and CFS
Tuesday 3 June 2014: A new study has found a link between the varicella zoster virus (VZV), the virus that causes chickenpox and shingles, and CFS.

Vibration exercise study finds some relief for Fibromyalgia
Monday 2 June 2014: A pilot study by Indiana University researchers found that whole-body vibration exercise may reduce pain symptoms and improve aspects of quality of life in individuals diagnosed with Fibromyalgia.

"Living Hell": ME/CFS documentary from 1993
Sunday 1 June 2014: Living Hell is a 1993 documentary from the US that shows some things don't change after 20 years.

May

Spenser Inwood: the chronic fatigue of circus life
Saturday 31 May 2014: A profile of Circus Oz performer, Spenser Inwood.

Toronto woman left stranded as EMS reduces non-emergency transfers
Friday 30 May 2014: A Toronto woman who has been bedridden for nearly 11 years due to ME/CFS says she has been unable to attend medical appointments since the city's emergency medical services recently began phasing out non-emergency transfers.

Low-level laser therapy to treat Fibromyalgia
Thursday 29 May 2014: A study that showed low-level laser therapy may be a useful tool to treat Fibromyalgia.

UK housing association patrons help Fibromyalgia tenant sufferer
Wednesday 28 May 2014: Housing association staff in the UK's County Durham were officially named patrons of a support group that helps sufferers of chronic pain conditions.

Irish landmarks light up blue for ME
Tuesday 27 May 2014: Landmarks in Northern Ireland, including Belfast City Hall, were lit up to highlight ME/CFS/Fibromyalgia awareness for International Awareness Day.

Brain imaging reveals clues about Chronic Fatigue Syndrome
Monday 26 May 2014: A brain imaging study shows that patients with Chronic Fatigue Syndrome may have reduced responses, compared with healthy controls, in a region of the brain connected with fatigue.

Broadway revue show to benefit charity
Sunday 25 May 2014: Canadian soprano Robin Eder-Warren presented a new Broadway revue show for charity.

Thornbury family speak out on 'hidden' illness ME
Saturday 24 May 2014: A young ME/CFS sufferer from Thornbury in the UK is hoping to raise awareness of her debilitating condition.

Misophonia in Fibromyalgia and Chronic Fatigue Syndrome?
Friday 23 May 2014: About.com's Adrienne Dellwo discusses a condition called misophonia, in which a sensitivity to sounds can lead not only to anxiety, but also to anger or even rage in people with ME/CFS/Fibromyalgia.

Charity champs
Thursday 22 May 2014: Nikola Borland and her mum Hazel are cycling, walking, and jogging on behalf of the Fibromyalgia Association UK.

I have been sick my whole adult life
Wednesday 21 May 2014: Amata Campbell talks about her life with chronic illness.

When no one knows what's wrong
Tuesday 20 May 2014: An article about difficult-to-diagnose illnesses.

Sufferers of CFS, Fibromyalgia have hope in new diagnostic tool
Monday 19 May 2014: A dioagnostic tool; for CSF and Fibromyalgia may be available soon due to recent research in the US by Doctors Alan and Kathleen Light.

Chronic Fatigue hope
Sunday 18 May 2014: A video segment from ABC television's 7.30 Tasmania program.

Voices of Fibromyalgia – raising our signs for awareness
Saturday 17 May 2014: A mini-documentary on Fibromyalgia.

We're not lazy and it's not 'all in our minds'
Friday 16 May 2014: An article about the state of ME/CFS/Fibromyalgia recognition in Malta.

Griffith Health turns purple and blue
Thursday 15 May 2014: The Griffith Health Centre at Griffith University's Gold Coast campus will be lit up each evening from 11-17 May to raise awareness of neurological conditions such as Chronic Fatigue Syndrome, as well as others such as Fibromyalgia and Gulf War Syndrome.

Battling student's plea for project funds
Wednesday 14 May 2014: A student from Wales who undergoes a daily battle against muscular pain and extreme tiredness is determined to complete her master’s degree as she starts fundraising for an environmental project.

Stigma of chronic fatigue illness adds to suffering
Tuesday 13 May 2014: A new survey shows people with debilitating Chronic Fatigue Syndrome, or ME (Myalgic Encephalopathy) feel misunderstood and stigmatised, and more public education about the condition is needed.

May 12 is International Awareness Day
Monday 12 May 2014: May 12th has been designated as International Awareness Day for Chronic Immunological and Neurological Diseases since 1992.

Marijuana rated significantly more effective for Fibromyalgia than FDA-approved drugs
Sunday 11 May 2014: A survey of 1,339 people with Fibromyalgia conducted by The National Pain Foundation and NationalPainReport.com revealed that those who have used marijuana to treat their symptoms find it significantly more effective than any of the three drugs approved by the [US] Food and Drug Administration to treat the disorder.

My life with severe ME
Saturday 10 May 2014: A YouTube video from UK ME sufferer Ruth Braham.

Ballerina sets sights on professional dancing career after battling CFS
Friday 9 May 2014: A young dancer from the UK has overcome illness to gain a coveted place at a top Scottish ballet training school.

Claire reveals her hidden illness
Thursday 8 May 2014: A profile of ME/CFS sufferer Claire Gordon, one of an estimated 200,000 Australians with the disease.

Drug improves fatigue in Chronic Fatigue Syndrome
Wednesday 7 May 2014: The drug agomelatine improves the perception of fatigue in people with Chronic Fatigue Syndrome, according to a recent study out of Italy.

ME sufferer reveals stark reality of 'hidden illness'
Tuesday 6 May 2014: A profile of UK ME sufferer Clair Puschnik.

Tailored Fibromyalgia treatment in Norway using smartphones
Monday 5 May 2014: Fibromyalgia patients became more active and less pain oriented after participating in a research programme involving a smartphone.

The Microbe Discovery Project
Sunday 4 May 2014: A call for people to donate to a study involving "a cutting-edge hunt for the causes of ME/CFS in the gut".

The future for ME/CFS sufferers in Australia
Saturday 3 May 2014: A statement from society representatives Peter Mitchell and James Hackett.

Charlie means business
Friday 2 May 2014: A profile of UK ME/CFS sufferer and businesswoman, Charlie Reilly.

Overcoming the barriers to the diagnosis and management of CFS/ME in primary care
Thursday 1 May 2014: Research published in BMC Family Practice, subtitled "A Meta Synthesis of Qualitative Studies".

April

With significant advances but little money, CFS research tries crowdfunding
Wednesday 30 April 2014: New findings are encouraging in the fight against Chronic Fatigue Syndrome – but the US Government still provides funding so minimal, one researcher is turning to crowdfunding.

PACE Trial results under scrutiny
Tuesday 29 April 2014: An analysis of the claims by the UK PACE Trial that Cognitive Behaviour Therapy promotes recovery for patients with CFS/ME.

Fibromyalgia sufferer to swim the English Channel
Monday 28 April 2014: A profile of US Fibromyalgia sufferer Katie Pumphrey who plans to swim the English Channel in August 2015.

Predictors of new-onset widespread pain in older adults
Sunday 27 April 2014: A research paper entitled "Predictors of New-Onset Widespread Pain in Older Adults: Results From a Population-Based Prospective Cohort Study in the UK".

Researcher: More medical marijuana studies needed
Saturday 26 April 2014: An online survey of Fibromyalgia patients that found broad support for medical marijuana is further evidence of the potential for cannabis as a treatment for chronic pain, according to one of the world's leading experts on medical marijuana.

University of Queensland research gains $48m boost for new pain treatment
Friday 25 April 2014: An Australian company developing a chronic pain treatment based on research at The University of Queensland has attracted US$45 million (AU$48M) to advance development of the drug, EMA401.

Abnormal epidermal nerve fiber density in Fibromyalgia
Thursday 24 April 2014: Research published in the journal Arthritis & Rheumatology.

The status of and future research into ME/CFS
Wednesday 23 April 2014: A study entitled "The status of and future research into Myalgic Encephalomyelitis and Chronic Fatigue Syndrome: the need of accurate diagnosis, objective assessment, and acknowledging biological and clinical subgroups".

Charlie Ford's road to recovery from Chronic Fatigue Syndrome
Tuesday 22 April 2014: An article about former CFS sufferer Charlie Ford and the CFS Health Centre in Melbourne.

Transcranial magnetic stimulation for Fibromyalgia
Monday 21 April 2014: New research shows that a non-invasive, non-drug procedure called repetitive transcranial magnetic stimulation may improve the quality of life of people with Fibromyalgia.

Treatment of Fibromyalgia by use of PEMF
Sunday 20 April 2014: A study carried out in a research hospital in Ankara Turkey provides evidence for the management of Fibromyalgia using a pulsed electromagnetic field.

2014 IACFS/ME Conference summary by Dr. Komaroff
Saturday 19 April 2014: US ME/CFS rsearcher Dr. Anthony Komaroff presents a video summary review of the 2014 IACFSME conference.

Mark Craig a Volt from the blue for Black Caps
Friday 18 April 2014: A profile of New Zealand cricketer Mark Craig.

92 Club: Bristol football fans to visit all 92 grounds for Invest In ME charity
Thursday 17 April 2014: Four UK football fans from Bristol are preparing to embark on a tour of all 92 football league grounds in 92 hours in aid of ME/CFS organisation Invest In ME.

Brain scans to detect Chronic Fatigue Syndrome
Wednesday 16 April 2014: A study shows that positron emission tomography (PET) scans could potentially be used to diagnose Chronic Fatigue Syndrome.

University of Derby painkiller questionnaire
Tuesday 15 April 2014: People are invited to take part in a research study, overseen by the UK's University of Derby, which is investigating painkiller use in the USA, Canada, Australia and New Zealand.

Marked improvement of pain from long-term Fibromyalgia
Monday 14 April 2014: A research paper entitled "Marked improvement of pain from long-term fibromyalgia with dextroamphetamine sulfate in a woman who failed to improve with conventional pharmacologic treatment".

Toxic Reform petition
Sunday 13 April 2014: A call to sign a petition from Australian consumer advocate organisation Choice.

Society seminar report
Saturday 12 April 2014: A report of the society's 21 March seminar, by committee secretary Peter Mitchell and president James Hackett.

Online learning for students with disabilities
Friday 11 April 2014: Online Colleges Database has recently published a new resource that supports the families and students with disabilities: "OnlineCollegesDatabase.org: Online Learning for Students with Disabilities."

Allergies, Fibromyalgia, or Mast Cell Activation?
Thursday 10 April 2014: Though an allergy can evoke chronic health issues, Mast Cell Activation Disorder can present as many conditions like Fibromyalgia, Lupus, Chronic Lyme Disease, Multiple Sclerosis and more.

Neuroinflammation in Chronic Fatigue Syndrome: direct evidence at last
Wednesday 9 April 2014: New research provides evidence of neuroinflammation in Chronic Fatigue Syndrome (ME/CFS), thus providing support for the alternative name Myalgic Encephalomyelitis.

Swiss building provides refuge for the hypersensitive
Tuesday 8 April 2014: A block of flats in Switzerland has been purpose built for people who say exposure to everyday products like perfume, hand lotion or wireless devices make them so sick they cannot function.

Fibromyalgia drug being researched in Tuscaloosa
Monday 7 April 2014: A US-based biotech company is finished with phase two of testing for a drug that could help Fibromyalgia patients.

My perfect weekend: Martine McCutcheon, singer
Sunday 6 April 2014: 37-year-old UK singer/actress Martine McCutcheon on finally recovering from ME/CFS and financial problems and making her musical comeback.

Tooth/mouth problems in Fibromyalgia and Chronic Fatigue Syndrome
Saturday 5 April 2014: About.com's Adrienne Dellwo discusses a common problem with Chronic Fatigue Syndrome and Fibromyalgia patients.

Volunteers wanted for Flinders University survey
Friday 4 April 2014: Researchers at Flinders University are seeking past patients, family members and carers of people to share stories about recent experiences in hospital.

Family offers free home-made soup
Thursday 3 April 2014: A Soup-er UK family is giving away their home-made dish for free to people who are battling with Chronic Fatigue Syndrome.

Fibromyalgia exercise studies: what works and why?
Wednesday 2 April 2014: A trio of new studies that focus on exercise show some interesting results, largely because we don't know why exercise – in studies, anyway – appears to consistently improve some Fibromyalgia symptoms.

DSM-5 criteria useless in Fibromyalgia: experts
Tuesday 1 April 2014: Virtually all Fibromyalgia patients would be classified as having a mental disease under the DSM-5's new criteria for somatic symptom disorder, a study confirms.

March

Disabled UK woman studies degree to help pay bills
Monday 31 March 2014: A disabled Stoke-on-Trent woman in her 50s has been forced to sign up for a university degree – so she can afford to live.

Dr Hugh Derham DVD
Sunday 30 March 2014: The ME/CFS Society of Western Australia has a DVD of a talk given by ME/CFS specialist Dr Hugh Derham.

Neuroinflammation in patients with ME/CFS
Saturday 29 March 2014: Medical research entitled "Neuroinflammation in Patients with Chronic Fatigue Syndrome/Myalgic Encephalomyelitis: An 11C-(R)-PK11195 PET Study."

Pain Management Network
Friday 28 March 2014: A website created by New South Wales Health to help chronic pain patients.

John Rutter – M.E. is real. I know, I had it for seven years
Thursday 27 March 2014: A letter from British composer John Rutter published in The Spectator in response to an earlier article by Rod Liddle denying the existence of ME/CFS.

The Stanford study
Wednesday 26 March 2014: An analysis of a study involving cytokines in ME/CFS patients.

Newry M.E/Fibromyalgia support group celebrates £1000 donation
Tuesday 25 March 2014: An Irish charity which provides patient support group meetings with specialist speakers to help patients manage their illness has been awarded £1,000 as part of Progressive Building Society’s Community Awards Scheme.

FDA wants to fast-track drugs for Chronic Fatigue Syndrome
Monday 24 March 2014: The US Food and Drug Administration is putting out guidance for drug companies on how they can quickly get drugs approved for Chronic Fatigue Syndrome.

10 celebrities with Fibromyalgia
Sunday 23 March 2014: A list of 10 well-known people with Fibromyalgia.

Interview: Professor Sonya Marshall-Gradisnik
Saturday 22 March 2014: A Get It Magazine profile of Australian ME/CFS researcher Professor Sony Marshall-Gradisnik.

Society seminar reminder
Friday 21 March 2014: A reminder that the society's next seminar will be held tomorrow (Saturday 22 March 2014).

Press release from Rebecca Hansen
Thursday 20 March 2014: News about Karina Hansen, a young Danish woman with ME/CFS being held against her will in a psychiatrict facility.

Woman with chemical allergies lives outdoors to avoid illness
Wednesday 19 March 2014: For Vanessa Gaudette, living in a tent brings relief from a nightmare known as Multiple Chemical Sensitivity.

Cluster system helps categorize Fibromyalgia severity
Tuesday 18 March 2014: Using a comprehensive symptom panel, researchers have proposed a system of categorizing patients with Fibromyalgia into clusters subsets, described in a new study.

Music decreases pain and increases functional mobility in Fibromyalgia
Monday 17 March 2014: A study in which the researchers wanted to investigate the analgesic effects of music in Fibromyalgia pain.

Interdisciplinary Fibromyalgia treatment benefits sustained
Sunday 16 March 2014: Patients with Fibromyalgia treated with an intensive disciplinary rehabilitation program show clinically significant improvements as long as 12 months after discharge from the program, according to a new study.

Chronic Fatigue researcher to publish book
Saturday 15 March 2014: Judy Mikovits, the controversial researcher who claimed to establish a link between Chronic Fatigue Syndrome and the XMRV virus, has coauthored a book set to publish in May.

Mississauga Junior Citizen honoured by Lieutenant Governor
Friday 14 March 2014: Justina Marianayagam, a 17-year-old Canadian Fibromyalgia sufferer, has won a Junior Citizen of the Year Award for her inspiring community involvement.

Pain physicians and pharmacists panned by patients in survey
Thursday 13 March 2014: The results of an online survey of pain patients conducted by the US's National Pain Foundation.

FDA drafts patient-centric CFS guidance
Wednesday 12 March 2014: The US Food and Drug Administration (FDA) has released a new draft guidance document intended to expedite the development of drugs to treat ME/CFS.

ME/CFS video: "Mom Needs To Lie Down Now"
Tuesday 11 March 2014: This 11-minute video from Canada, featuring a doctor and three patients, might be ideal to help your family and friends understand Chronic Fatigue Syndrome a bit better.

Fibromyalgia now widely recognized as requiring multimodal approach
Monday 10 March 2014: An article by Rosemary Frei, published in Clinical Pain Medicine.

Affordable US colleges for students with disabilities
Sunday 9 March 2014: A guide to US college financing for students with disabilities.

Petition: Stop the HHS-IOM contract
Saturday 8 March 2014: A petition to be delivered to Kathleen Sebelius, Secretary of the US department of Health and Human Services.

Vote for one ME charity a month in the 'Big Break' voting contest
Friday 7 March 2014: This year four UK ME/CFS charities have agreed to be voted for in different months of the Direct Debit Big Break voting competition.

'Managing to walk down the aisle without collapsing made it my dream wedding'
Thursday 6 March 2014: Bride Tamsin Morgan says her big day was made all the more perfect because she was able to walk.

Fibromyalgia patients found to have low melatonin levels
Wednesday 5 March 2014: A study entitled "The involvement of melatonin in the clinical status of patients with fibromyalgia syndrome".

Mitochondrial dysfunctions in ME/CFS explained
Tuesday 4 March 2014: A research paper entitled "Mitochondrial dysfunctions in Myalgic Encephalomyelitis / chronic fatigue syndrome explained by activated immuno-inflammatory, oxidative and nitrosative stress pathways".

Effects of exercise on serotonin in Fibromyalgia
Monday 3 March 2014: The results of a study entitled "Effects of physical exercise on serum levels of serotonin and its metabolite in fibromyalgia: a randomized pilot study".

How Fibromyalgia is often undertreated
Sunday 2 March 2014: A video in which Dr. Kevin White explains how many doctors undertreat Fibromyalgia as well as why they should be much more vigilant with their FM patients.

Malta's Green Party applauds recognition of ME and FM as chronic diseases
Saturday 1 March 2014: Myalgic Encephalomyelitis and Fibromyalgia require state support for early diagnosis and ongoing treatment, Malta's Green Party, Alternattiva Demokratika, says.

February

Survey results: insomnia
Friday 28 February 2014: The results of an ongoing survey asking Fibromyalgia patients about their experiences with, and management of, insomnia.

Exercise and oxygen shortage in Chronic Fatigue Syndrome
Thursday 27 February 2014: New research underscores the fact of exercise intolerance in Chronic Fatigue Syndrome and helps us understand why it exists.

Vitamin B12 and folate study funded
Wednesday 26 February 2014: The US's Open Medicine Foundation has announced that their MTHFR, B12, and Folate placebo-controlled clinical trial is moving ahead thanks to the generosity of its many donors.

Examining case definition criteria for CFS and ME
Tuesday 25 February 2014: A study that looked at the current criteria for defining ME/CFS.

Woman describes condition as like 'having a headache all over your body'
Monday 24 February 2014: A UK woman who suffers from Fibromyagia is appealing for volunteers for the support group she set up three years ago.

Criteria for the diagnosis of Fibromyalgia
Sunday 23 February 2014: Validation of the 2011 modification of the 2010 American College of Rheumatology Preliminary Criteria for the Diagnosis of Fibromyalgia, published in Arthritis Care & Research.

UK projects share lottery funding
Saturday 22 February 2014: People in the UK whose lives are affected by severe ME/CFS will benefit after a charity secured more than £290,000 from the Big Lottery Fund.

One year with Dr. Chia: A CFS patient reports
Friday 21 February 2014: ME/CFS patient Christine McLaughlin reports on her 14-month treatment by Dr. John Chia.

Men with Fibromyalgia experienced greater sleep respiratory disorders than women
Thursday 20 February 2014: Men with Fibromyalgia experienced more alterations in sleep respiratory patterns compared with women with the condition, according to study results.

Central sensitization in Fibromyalgia?
Wednesday 19 February 2014: A study that "systematically review[ed] the literature addressing pain-induced changes in the brain related to central sensitization in patients with fibromyalgia".

HealClick.com: New patient community seeks to turn patient sharing into a tool for research
Tuesday 18 February 2014: A profile of HealClick, an online resource for chronic pain sufferers.

A life of pain with Fibromyalgia
Monday 17 February 2014: A profile of Irish Fibromyalgia sufferer Venita Coughlin.

Society seminars for 2014
Sunday 16 February 2014: A list of ME/CFS Australia (SA) Inc's seminars for 2014.

Imbalance between oxidants and antioxidants found in Fibromyalgia patients
Saturday 15 February 2014: A study published in Clinical and Experimental Rheumatology entitled "Is fibromyalgia-related oxidative stress implicated in the decline of physical and mental health status?".

Interview: Ian Lipkin's million dollar apeal for microbiome study
Friday 14 February 2014: An interview with US ME/CFS specialist Dr Ian Lipkin about his latest plans.

British doctor wants to rescue ME patient held at Danish hospital
Thursday 13 February 2014: British doctor, Nigel Speight, who specializes in the devastating disease Myalgic Encephalomyelitis (ME) has joined an international bid to free a young ME patient who was incarcerated in a Danish hospital a year ago.

Disability public meeting in Adelaide Town Hall
Wednesday 12 February 2014: The Intellectual Disability Association of SA and Disability Speaks will be presenting a meeting in Adelaide Town Hall.

US insurance company loses Fibromyalgia lawsuit
Tuesday 11 February 2014: A US insurance company lost a lawsuit as a result of not recognising Fibromyalgia as a physical illness.

Long-term evaluation of opioid treatment in Fibromyalgia
Monday 10 February 2014: The results of a 12-month study in which the effect of opioid use on outcomes in 1700 adult patients with Fibromyalgia was evaluated.

The Low FODMAP Diet app
Sunday 9 February 2014: A YouTube video featuring Monash University's Low FODMAP Diet iPhone app.

The 2nd International Symposium for CFS/ME
Saturday 8 February 2014: Dr Rosaumnd Valling's report of The 2nd International Symposium for Chronic Fatigue Syndrome / Myalgic Encephalomyelitis, which was held on Australia's Gold Coast in December 2013.

Does Chronic Fatigue Syndrome need a new name?
Friday 7 February 2014: NPR's Miriam E. Ticker discusses the possible need to change the name "Chronic Fatigue Syndrome".

First evidence-based diagnostic criteria published for temporomandibular disorders
Thursday 6 February 2014: The first evidence-based diagnostic criteria have been developed to help health professionals better diagnose a group of often-painful jaw conditions known as temporomandibular disorders.

Imbalance between oxidants and antioxidants found in Fibromyalgia patients
Wednesday 5 February 2014: Research entitled "Is fibromyalgia-related oxidative stress implicated in the decline of physical and mental health status".

Decreased oxygen extraction for patients with CFS
Tuesday 4 February 2014: Research that investigates "insufficient metabolic adaptation to exercise" in Chronic Fatigue Syndrome.

Researchers find possible biological basis for Fibromyalgia
Monday 3 February 2014: Researchers have discovered a potential biological basis for Fibromyalgia in patients' skin.

How the name "Chronic Fatigue Syndrome" obscures a serious illness
Sunday 2 February 2014: ME/CFS advocates and patients in the US argue that the disease isn't well understood by the medical community, and this is in part due to a continued stigma caused by its unserious-sounding name.

Isolation in Fibromyalgia and Chronic Fatigue Syndrome
Saturday 1 February 2014: About.com's Adrienne Dellwo discusses one of the effects of suffering from ME/CFS/Fibromyalgia.

January

Multivitamin mineral supplementation in patients with Chronic Fatigue Syndrome
Friday 31 January 2014: A study that suggests vitamin and mineral supplement could be a safe and easy way to improve symptoms and quality of life in patients with CFS.

Superfish suffering from chronic fatigue
Thursday 30 January 2014: Just days after being named Young Australian of the Year, Paralympic swimmer Jacqueline Freney has revealed she is battling Chronic Fatigue Syndrome.

Is some "treatment-resistant depression" actually Chronic Fatigue Syndrome?
Wednesday 29 January 2014: New research suggests that some cases labeled "treatment-resistant depression" are, in fact, undiagnosed ME/CFS.

Federal grants awarded to DePaul psychology professor Leonard A. Jason
Tuesday 28 January 2014: Leonard A. Jason, a DePaul University psychology professor, has received a $2 million grant for a five-year study that focuses on Chronic Fatigue Syndrome among children.

Hundreds of pounds raised for new UK chronic pain group
Monday 27 January 2014: Tenants and housing association staff in the UK have raised hundreds of pounds for a new support group for people suffering chronic pain.

Skin-related symptoms in Fibromyalgia
Sunday 26 January 2014: A study that attempted to identify the various types of skin problems experienced by Fibromyalgia patients and determine how common they are.

Disabled biker to ride point-to-point on 'biggest trike in Britain'
Saturday 25 January 2014: A disabled biker is planning an ambitious charity run on what he claims is the biggest trike in Britain.

Fibromyalgia research: where we hurt most
Friday 24 January 2014: About.com's Adrienne Dellwo discusses the results of a survey that lists specific types of Fibromyalgia pain.

Deficient EBV-specific B- and T-cell response in patients with CFS
Thursday 23 January 2014: A study that substantiates a theory that CFS is a form of chronic mononucleosis.

Diseases can stigmatize
Wednesday 22 January 2014: Leonard A. Jason discusses the effects of naming a disease.

These two supplements may reduce Fibromyalgia pain and fatigue
Tuesday 21 January 2014: Individuals who suffer from Fibromyalgia may reduce their symptoms with magnesium and malic acid.

The shame of biomedical research in the US
Monday 20 January 2014: An article by the White House Chronicle's Llewellyn King.

Circadian rhythm of cortisol in Fibromyalgia
Sunday 19 January 2014: A study entitled "Circadian rhythm of serum cortisol in female patients with fibromyalgia syndrome."

Vitamin D supplements can reduce chronic pain
Saturday 18 January 2014: A study has found that Vitamin D supplements can improve the symptoms of Fibromyalgia.

Fundraising for ME/CFS Alert
Friday 17 January 2014: Llewellyn King, journalist and creator the ME/CFS Alert series of YouTube videos, is asking for donations to help him continue making the videos.

Faces of pot: Medical marijuana user
Thursday 16 January 2014: A profile of Canadian medical marijuana user, Matt Mernagh, who suffers from Scoliosis, Fibromyalgia, Depression, and seizures caused by an inoperable brain tumour.

Cough suppressant may ease Fibromyalgia pain
Wednesday 15 January 2014: A medication normally used to quiet a stubborn cough may also help ease the chronic pain of Fbromyalgia, a small study suggests.

Centralized pain may warn of poor opioid response
Tuesday 14 January 2014: Patients with centralized pain syndromes, such as Fibromyalgia, may have a poor response to opioids, research suggests.

Online support for chronic illness sufferers
Monday 13 January 2014: A University of Wisconsin-Eau Claire student hopes a website she's part of launching will help people living with chronic illnesses manage their symptoms better and potentially help find a cure.

Out of darkness comes light
Sunday 12 January 2014: A profile of bed-bound photographer Penny Clare.

"Snap out of it" response to Chronic Fatigue Syndrome, Fibromyalgia, and Depression
Saturday 11 January 2014: An article by About.com's Adrienne Dellwo.

Metal allergy can trigger Fibromyalgia
Friday 10 January 2014: A study that looked at the frequency and clinical relevance of metal allergy in Fibromyalgia patients.

Valentines Variety Extravaganza
Thursday 9 January 2014: Adelaide dancer Jariel Mystique has organised an evening of variety to raise funds for ME/CFS Australia (SA) Inc.

Lyme: a four letter word
Wednesday 8 January 2014: A broadcast on ABC National Radio's Background Briefing program about the prevalence of Lyme disease in Australia.

Yoga has potential to relieve Fibromyalgia pain, study says
Tuesday 7 January 2014: Research conducted at Oregon Health and Science University indicates that a regular practice of Hatha yoga, combined with meditation, breathing exercises and the development of coping skills, relieves the severity of the widespread pain associated with Fibromyalgia.

Can recovery of peripheral muscle function predict cognitive task performance?
Monday 6 January 2014: A study that examined whether recovery of upper limb muscle function could be a significant predictor of cognitive performance in patients with CFS and CFS with comorbid Fibromyalgia.

Sensory overload in Fibromyalgia and Chronic Fatigue Syndrome
Sunday 5 January 2014: About.com's Adrienne Dellwo a common problem for people with Chronic Fatigue Syndrome and/or Fibromyalgia.

Believing and valuing the patient must be central part of Fibromyalgia therapy
Saturday 4 January 2014: A study entitled "A meta-ethnography of patients' experience of chronic non-malignant musculoskeletal pain".

Cognitive function in people with Chronic Fatigue Syndrome
Friday 3 January 2014: The results of a study that found no difference between the cognitive performance of patients with CFS and healthy controls.

Fibromyalgia patient sets example for others
Thursday 2 January 2014: A profile of Canadian Fibromyalgia sufferer Angela Roberts.

Happy New Year
Wednesday 1 January 2014: All of us here at ME/CFS Australia (SA) Inc wish you a Happy New Year.


In the News – 2013

In the News – 2012

In the News – 2011

In the News – 2010

In the News – 2009

In the News – 2008

In the News – 2007

In the News – 2006

In the News – 2005 and earlier

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