| September |
• |
First international workshop on XMRV
Virology Educatiob announces a new initiative in the field of XMRV research, the "1st International Workshop on XMRV: Pathogenesis, Clinical and Public Health Implications". |
• |
International science symposium for ME/CFS
Bond University in collaboration with Alison Hunter Memorial Foundation is pleased to host an International Science Symposium for Myalgic Encephalomyelitis/ Chronic Fatigue Syndrome (ME/CFS) in December 2010. |
• |
Limited evidence supports use of complementary and alternative medicines for Fibromyalgia
Are complementary and alternative medicines (CAM) effective in treating patients with fibromyalgia? |
| August |
• |
Link between CFS and exposure to a virus grows
After years of research, the link between Chronic Fatigue Syndrome and exposure to a virus may finally be solidifying. |
• |
UK blood donors with ME/CFS to be permanently excluded from giving blood
The Department of Health has decided to ban blood donation permanently from all prospective donors in the UK who report they have had ME/CFS from 1 November this year. |
• |
Seminar videos
For those of you who can't make it to the Society's seminars, we have videos available. |
• |
Letter from Dr John H Greensmith
The appeal by Sir Peter Spencer, of Action for ME, for ME sufferers all over the UK to complete a questionnaire about their experiences with Graded Exercise Therapy (GET) exposes more serious concerns than any comfort it offers. |
• |
A new school is built in Nigeria
A Northamptonshire woman has raised enough money to build a school in Nigeria despite suffering from ME. |
• |
Proof that Irritable Bowel Syndrome is not in your head
Researchers at Germany university Technische Universität München are on the trail of causes of irritable bowel syndrome. |
• |
Study published in PNAS links CFS to murine leukemia viruses
The much anticipated report from a group of collaborating researchers at the Food and Drug Administration (FDA), National Institutes of Health (NIH) and Harvard Medical School (HMS) was published online on August 23, 2010 in the Proceedings of the National Academy of Sciences (PNAS). |
• |
Tai Chi reported to ease Fibromyalgia
The ancient Chinese practice of tai chi may be effective as a therapy for fibromyalgia, according to a study published in The New England Journal of Medicine. |
• |
Society seminar
If you are able, please join us this Saturday, 28 August from 11am to 1pm at the Sofia Conference Room (situated in Cabra Dominican College), 225 Cross Rd, Cumberland Park. |
• |
FBI agent, 19 others vote against Jazz Pharma's drug for Fibromyalgia
An FDA panel of outside experts voted against expanding the use of Jazz Pharmaceuticals’ narcolepsy drug to fibromyalgia, in part because of its potential as a street drug. |
• |
Radio program to highlight ME/CFS
Our friends across the border in Victoria tell us that ME/CFS Australia (Victoria) has been successful in securing time on ABC radio program Nightlife with Tony Delroy on Monday 23 August, between 10-11pm (Eastern Standard time). |
• |
Findings by Reno scientists confirmed by U.S. government
Two Reno scientists, who last year discovered a new infectious human retrovirus they linked to CFS, said Monday that their findings have been replicated and confirmed by the U.S. Food and Drug Administration. |
• |
Dr Byron Hyde talk in Melbourne
International visiting medical expert Dr Byron Hyde will discuss the latest research and clinical practice concerning ME/CFS. |
• |
Whittemore Peterson Institute Grand Opening
On Saturday, August 21, 2010 the Whittemore Peterson Institute for Neuro-Immune Disease will officially open its doors at the University of Nevada's Center for Molecular Medicine. |
• |
ABC Disability Portal
The ABC is building a website for people whose lives are touched by disability, a place for their issues and stories. |
• |
Out of the shadows
An article about Jeremy Chambers, an ME/CFS sufferer who has become a published author with his first novel, The Vintage and the Gleaning. |
• |
What do we have if we do not have CFS?
A recent brain scanning study by NewYork-Presbyterian/Weill Cornell Radiology Professor Dikoma C. Shungu, Ph.D. and colleagues showed that a diagnosis of CFS is linked to elevated levels of lactate in the cerebrospinal fluid. |
• |
Study finds link between CFS and high lactate levels in the brain
A recent brain scanning study by NewYork-Presbyterian/Weill Cornell Radiology Professor Dikoma C. Shungu, Ph.D. and colleagues showed that a diagnosis of CFS is linked to elevated levels of lactate in the cerebrospinal fluid. |
• |
Seminar speaker radio interview
Brenda McHugh-Wilkinson, the speaker for the Society's upcoming seminar, will be interviewed by Peter Greco on radio station 1197am RPH Adelaide tomorrow afternoon (Saturday 14 August) at approximately 6PM. |
• |
Canadian Consensus case definition revisited
Writing in the American Journal of Biochemistry and Biotechnology, Dr. Leonard Jason and colleagues recommend a new set of explicit rules for determining whether critical symptoms meet ME/CFS criteria using the 2003 Canadian Consensus Case Definition. |
• |
Dr Anne McIntyre interview with Ean Proctor
Dr Anne McIntyre interviewed ME/CFS sufferer Ean Proctor for a segment on the UK's Channel Four program Frontline. |
• |
Norwich centre for ME sufferers planned
The European Society for ME – Research & Knowledge reports on two Belgian doctors who have received substantial fines for their work on ME/CFS patients. |
• |
Two Belgian ME/CFS doctors fined
The European Society for ME – Research & Knowledge reports on two Belgian doctors who have received substantial fines for their work on ME/CFS patients. |
• |
Radio program features Whittemore Peterson Institute
Dan Erwine looks at research into the causes of chronic fatigue syndrome being conducted in Reno by the Whittemore-Peterson Institute. |
• |
Ed Stafford's Amazon walk
GMTV cameras will be capturing the moment on Monday morning when Ed Stafford and his Peruvian walking companion Cho jump into the sea at the end of their epic Amazon walk - which has taken well over over two and a half years. |
• |
The Lightning Process
The TYMES Trust/ME Association joint statement on Lightning Process study in children. |
• |
"Living With Disability" survey
The Julia Farr Association invites you to complete our tell us Living with Disability Survey as we really want to hear your views. |
• |
Complex brain networks may lead to pain intensity in Fibromyalgia patients
A brain disorder associated with fibromyaglia may cause intense pain episodes, according to a study conducted by Massachusetts General Hospital and the University of Michigan. |
• |
Hawaii proclaims July 2010 as Toxic Injury Awareness and Education Month
Hawaii's Governor Linda Lingle and Lieutenant Governor James R. "Duke" Aiona, Jr. have signed on July 22nd 2010 the proclamation of Toxic Injury (also known as Multiple Chemical Sensitivity) Awareness and Education Month. |
• |
Social Inclusion Disability Reform: Activating Citizenship
The Social Inclusion Board is now seeking the views of all South Australians to inform the development of its Blueprint for disability reform. |
• |
Why we need to start treating ME much more seriously
The enduring stigma of “yuppie flu” and confusion with general tiredness means the public perception of ME/CFS is poor. |
• |
The Music Works
The Music Works – aka The Dynamic Day Gig – is a monthly event held at the Governor Hindmarsh Hotel. |
| July |
• |
Top 10 tips to manage orthostatic intolerance on your own
The CFIDS Association of America offers tips to cope with orthostatic intolerance. |
• |
Researchers discover novel therapeutic for chronic pain
Columbia scientists working to combat injury-related depression, substance abuse and suicide due to unremitting, persistent pain may have discovered a new way of treating that pain: a powerful analgesic dubbed N60 that leads to neither tolerance nor addiction. |
• |
Riverland meeting reminder
A reminder that the Riverland ME/CFS Support Group’s next meeting will be held tomorrow. |
• |
Fludrocortisone for CFS
An article on the potential benefits of trialling Fludrocortisone. |
• |
Disability WORKS Australia
Disability WORKS Australia is a charity established to facilitate the provision of employment for people with a disability by providing all employers with access to a single, effective contact point for recruiting people with disabilities. |
• |
How microbes defend and define us
Dr. Alexander Khoruts, a gastroenterologist at the University Minnesota, used bacteriotherapy to help cure a patient suffering from a gut infection. |
• |
Reckless self-interest of the fragrance industry
People must be protected from exposure to fragrance ingredients that may cause cancer or fetal, hormonal or reproductive toxicity, the Cancer Prevention Coalition warned. |
• |
Why Fibromyalgia has a credibility problem
On top of their daily struggle with pain, fibromyalgia patients are sometimes forced to fight another battle—convincing doctors, friends, coworkers, and others that their condition is real and that their pain is not all in their head. |
• |
MCS guidelines for South Australian hospitals
The MCS Guidelines for South Australian Hospitals has been developed by the Department in conjunction with the intergovernmental MCS Reference Group, and is based on the Queensland Health model. |
• |
What About ME?
What About ME? is a feature-length documentary that highlights the plight of people with ME/CFS. |
• |
Fibromyalgia and pregnancy
Women who suffer from fibromyalgia can still enjoy a happy and healthy pregancy. |
• |
The Federal Election – postal voting
Australia will be holding a Federal Election on Saturday 21 August 2010. |
• |
Gut health
Society member Peter has sent us links to three articles about gut health. |
• |
Positive results reported in Fibromyalgia drug trial
About.com's Adrienne Dellwo reports on the encouraging results of a new drug trial. |
• |
Acupuncture served as a fatigue and pain treatment
An article about the potential benefits of acupuncture for people with fatigue and pain. |
• |
A letter to patients with chronic disease
The doctor who goes by the online name of "Dr. Rob" has written an open letter to anyone with a chronic disease. |
• |
The New York Times reports the XMRV non-publication controversy
An article from The New York Times about the recent controversy involving the publication of XMRV data. |
• |
Theories abound about multiple chemical sensitivity
A question-and-answer article about MCS from the Chicago Sun-Times. |
• |
Discovery offers possible treatment for viruses linked to CFS
About.com's Adrienne Dellwo reports on a recent discovery. |
• |
Starspangled battle for champion horse
The dream of owning world champion racehorse Starspangledbanner has become a nightmare for ailing Michelle Massey. |
• |
Comment on XMRV controversy by Dr Charles Lapp
A comment from the Hunter-Hopkins Center's Dr Charles Lapp on the recent controversy surrounding conflicting medical reports about XMRV. |
• |
Study that 'solves' chronic fatigue syndrome blocked
A study that supports the controversial link between chronic fatigue syndrome and a new type of virus has been blocked from being published in a leading scientific journal even though it had been accepted for publication by its editors. |
• |
Problems with doctors and getting a diagnosis of Fibromyalgia and CFS
About.com's Adrienne Dellwo discusses a problem facing people with ME/CFS and Fibromyalgia. |
• |
New criteria proposed for diagnosing Fibromyalgia
The American College of Rheumatology is proposing a new set of diagnostic criteria for fibromyalgia that includes common symptoms such as fatigue, sleep disturbances, and cognitive problems, as well as pain. |
• |
Predictions of MCS mechanism confirmed by Italian study
A recent study conducted by a research group in Rome is significant in regard to Martin Pall’s NO/ONOO- cycle theory on Multiple Chemical Sensitivity because it shows that three elements of the cycle are elevated in MCS patients. |
• |
Chronic fatigue findings were held back
A key study on chronic fatigue syndrome was delayed from publication after officials from the Centers for Disease Control and Prevention (CDC) in Atlanta, Georgia, learned of a conflicting report published by other government agencies. |
• |
ME/CFS Australia website
ME/CFS Australia has a new website. |
• |
UK online petition for ME/CFS sufferers
An online petition has been created by Simon Benson. |
• |
South Australian Parliamentary Inquiry into MCS
The South Australian Parliament's report into MCS from 2005. |
• |
Spanish court case
A judge in Barcelona, Spain, has passed a sentence that recognizes, for the first time, that the full disability of a woman with Fibromyalgia and MCS was due to an environmental accident that happened in the industrial area of the town of L'Ametlla del Vallès (near Barcelona). |
• |
Chronic-fatigue link to virus disputed
Two groups of researchers studying a potential link between chronic-fatigue syndrome and a virus called XMRV have reached contradictory conclusions, according to people familiar with the findings. |
• |
"I never wanted to be a quack!"
Tarryn Phillips, from the Anthropology and Sociology department of the University of Western Australia, has published a paper about Multiple Chemical Sensitivities and the law. |
| June |
• |
IBS & food sensitivities in Fibromyalgia & CFS
About.com's Adrienne Dellwo discusses overlapping symptoms of ME/CFS/FM and Irritable Bowel Syndrome. |
• |
New documentary: Invisible
Invisible is a new documentary by Rik Carlson and Michael Thurston that focuses on the difficulties faced by those with ME/CFS. |
• |
Society seminar reminder
If you are able, please join us this Saturday, 3 July, 11am at the Sofia Conference Room (situated in Cabra Dominican College), 225 Cross Rd Cumberland Park. |
• |
"Fragrances don't smell beautiful to everyone"
A report that a respected NIH expert supported an association between the XMRV virus and chronic fatigue syndrome is causing a buzz among CFS patient activists, researchers and clinicians. |
• |
Further evidence of an XMRV-Chronic Fatigue Syndrome connection?
A report that a respected NIH expert supported an association between the XMRV virus and chronic fatigue syndrome is causing a buzz among CFS patient activists, researchers and clinicians. |
• |
Measures taken by European countries for MCS – 2010
The MCS Society of Australia has published a document entitled "Measures Taken by European Countries for Multiple Chemical Sensitivity". |
• |
Public meeting swamped by 300-plus advice seekers
When a coalition of pain groups organized a public information session on fibromyalgia in London, they were expecting a turnout of about 35 people. Instead, more than 300 registered. |
• |
Video of lecture by Dr Anthony Komaroff
The Massachusetts CFIDS/ME & FM Association is pleased to present the video of Dr. Komaroff's recent lecture to its Association. |
• |
CFIDS Association commends AABB action on CFS
The CFIDS Association of America commends AABB (formerly the American Association of Blood Banking) for addressing public health concerns. |
• |
MCS in Japan – A lecture at the House of Representatives
Ryozo Tamakoshi, a member of the Japanese organization Citizens Against Chemicals Pollution, gave a lecture on MCS in the House of Representatives in Japan. |
• |
Temecula boy recognized for fibromyalgia awareness fundraising
US newspaper The Valley News reports on the achievements of Noah Carillo. |
• |
Survey: The most effective rated treatments for CFS
The Environmental Illness Resource reports on the results of a Norwegian survey. |
• |
CFS: Harvey and Wessely's (bio)psychosocial model versus a bio(psychosocial) model
An article published in BMC Medicine. |
• |
Hope outrunning science on chronic fatigue syndrome
An article in The Chicago Tribune discusses the controversy over XMRV. |
• |
New findings: acupuncture for symptoms of Fibromyalgia & CFS
About.com's Adrienne Dellwo discusses new findings about acupuncture and its potential use in helping treat ME/CFS/FM. |
• |
Dr John Grensmith responds to ME Recovery System
Dr John Greensmith responds to claims made by the ME Recovery System. |
• |
US state government endorses research centre
A resolution encouraging the establishment of the NeuroEndocrineImmune (NEI) Center™ was passed unanimously by 38-0 votes by the New Jersey State Senate on June 10, 2010. |
• |
Injuries and slow healing with Fibromyalgia and CFS
About.com's Adrienne Dellwo discusses a problematic aspect of ME/CFS/FM. |
• |
How your doctor can help if you have CFS/ME
ME/CFS specialist Dr Charles W Lapp has written an article about treatment strategies that may help those with ME/CFS. |
• |
Living with a potentially deadly condition
Malta Today has a profile of Nicola Reiss, one of the founders of M.E Sufferers Malta. |
• |
By the way... at last I've been convinced that ME is real
UK newspaper the Daily Mail's resident health advisor Dr Martin Scurr has changed his position on the nature of ME/CFS. |
• |
Managing Chronic Fatigue Syndrome and Fibromyalgia: A Seven-Part Plan
The CFIDS & Fibromyalgia Self-Help Program announces the free online edition of "Managing Chronic Fatigue Syndrome and Fibromyalgia: A Seven-Part Plan" by Bruce Campbell, Ph.D.. |
• |
ME Association Survey
MeShare reports on the results of a large-scale survey of ME/CFS patients conducted by The ME Association. |
• |
Riverland meeting reminder
A reminder that the Riverland ME/CFS Support Group's next meeting will be held on Friday 18 June. |
• |
The Journal of IiME
Invest in ME has published the latest edition of The Journal of IiME. |
• |
Society seminar presentation
The Society's recent seminar held on Saturday 8 May focused on Multiple Chemical Sensitivity. |
• |
Invest in ME Conference report 2
Dr Charles Shepherd, Hon Medical Adviser to The ME Association, has a report of the Invest in ME conference held in London on 24 May 2010. |
• |
Invest in ME Conference report 1
Christopher Cairns, author of the Patient Advocate blog, has a report on the Invest In ME Conference held in London on May 2010. |
• |
Former teacher chosen as new borough mayor
UK newspaper the Hastings & St. Leonards Observer reports on newly appointed mayor Kim Forward who has a 14-year-old son with ME. |
• |
Learning CFS: The Lerner Antiviral Trial Succeeds
Cort Johnson has an article on his Phoenix Rising website about the latest research conducted by CFS physician Dr Martin Lerner. |
| May |
• |
Chronic-illness group voices call for national diagnostic clinic
A national diagnostic and treatment centre is desperately needed to help the more than one million Canadians suffering from ME/CFS/FM/MCS, according to a support group for those with the conditions. |
• |
Adelaide Entertainment Book
Our friends at Epilepsy SA tell us that they now have Adelaide Entertainment™ Books available for purchase. |
• |
Susan Darlington is allergic to life and stuck in a toxic hell
Australian newspaper The Courier-Mail has a profile of MCS sufferer Susan Darlington. |
• |
Telly star buys glam crutches
A disabled designer who has made it her mission to turn crutches into glamorous accessories has had her first celebrity customer. |
• |
New criteria proposed for diagnosing Fibromyalgia suggests no longer focusing on tender points
The American College of Rheumatology is proposing a new set of diagnostic criteria for fibromyalgia that includes common symptoms such as fatigue, sleep disturbances, and cognitive problems, as well as pain. |
• |
Dr Sarah Myhill interview on TV
A video of a TV interview with Dr Sarah Myhill has been posted on Picasa Web Albums. |
• |
XMRV is…is…is…there!
Cort Johnson on his Bringing the Heat: An ME/CFS Blog has an opinion piece about XMRV research. |
• |
BMJ Rapid Responses to article
The British Medical Journal recently published a paper entitled "Nurse led, home based self help treatment for patients in primary care with chronic fatigue syndrome: randomised controlled trial". |
• |
'She went into a hellhole': A mother's candid account of her daughter's battle with ME
UK newspaper the Mail Online has a profile of Criona Wilson and an account of the plight of her daughter, Sophia Mirza. |
• |
Hainault mum rebuilds life as she battles M.E.
Two letters changed Margaret Sansom's life beyond recognition, forcing her to leave her job, quit her hobbies and totally change her way of life. Those two letters were M and E. |
• |
A perfect set of coincidences
It was like something from The Archers. You know what I mean; a story line is revealed to listeners on Monday and all is miraculously sorted out in time for the Sunday omnibus edition. |
• |
Joanne's tales of hope
UK newspaper the Ballymoney Times has an article about author Joanne Peden. |
• |
Young carers 'bullied at school'
Two-thirds of young carers are bullied at school, according to a new [British] study. |
• |
Sarah Baldock, 19, talks of her experience of Myalgic Encephalopathy
UK newspaper the York Press has a profile of teenager Sarah Baldock. |
• |
MEshare Google Group
Google Groups tells us about the MEshare Google Group. |
• |
Uncertainty is the worst thing about living with my ME condition
UK newspaper Halstead Gazette has a profile of local resident Vivienne Mills. |
• |
Just Four Quid
The UK's Just Four Quid campaign for ME research has finished and raised £13,324 after its year-long campaign. |
• |
Bell Baxter pupils embark on charity hike
Hiking through some of Scotland's most demanding terrain is not every 14 year-old's ideal way to spend their birthday – but that's just what one caring Springfield teenager plans to do in a bid to raise funds to help ME sufferers like her mum. |
• |
Medical Research Council website section on ME/CFS research
The MRC website section on ME/CFS research now contains a 50-page report, plus presentation slides, on the 19-20 November 2009 Research Workshop that was held at Heythrop Conference Centre, Chipping Norton, Oxfordshire. |
• |
Stranded in the grocery store: how to avoid crashing while shopping
The CFIDS & Fibromyalgia Self-Help website has an article by Bruce Campbell about coping with grocery shopping. |
• |
Sleeping pill may treat Fibromyalgia pain
The powerful sleeping pill Xyrem can help relieve the hallmark symptom of pain in people with fibromyalgia. |
• |
Living with chronic fatigue syndrome
UK newspaper The Guardian has an article by Emily Levick about her life as a teenager with ME/CFS. |
• |
The trouble with ME
UK newspaper The Guardian has an article about ME/CFS. |
• |
Kelly Vincent maiden speech
Kelly Vincent was recently elected to the South Australian Parliament as the representative for the Dignity for Disability party. |
• |
David's lifting lid on living with ME
The UK's This Is South Wales has a profile of David Cox. |
• |
Campaign to End Chronic Pain in Women
The CFIDS Association of America reports on the Campaign to End Chronic Pain in Women. |
• |
Kay Gilderdale radio interview
The UK's BBC Radio 2 with Jeremy Vine interviewed Kay Gilderdale on Tuesday 11 May. |
• |
Flexible doses of duloxetine provide greater pain reduction vs placebo for in-patients with Fibromyalgia
Patients with fibromyalgia reported feeling much better and experienced greater pain reduction with flexible doses of duloxetine compared with placebo. |
• |
ME/CFS awareness art exhibition
Co-Cure reports on a virtual art exhibition in the online community Second Life. |
• |
International Awareness Day
Today is International ME/CFS Awareness Day and National Fibromyalgia Awareness Day. |
• |
ME/CFS Awareness Month: Lessons for everyone from an artist with ME
Michael Nobbs, an artist with ME/CFS, has posted an article on his blog offering some advice. |
• |
Mother and daughter from Thornbury speak about the effects of ME
A mother and daughter from the UK have been talking about the effect ME has had on their family. |
• |
Prayers for M.E. Awareness Week
The UK's Action for M.E. asked the leading figures from a number of faiths and philosophies for their prayers and thoughts for M.E. Awareness Week. |
• |
Documentary interview with two girls with CFS
There is a video on YouTube of an interview with two women who talk about having ME/CFS. |
• |
Laughter instead of exercise for Fibromyalgia & CFS?
About.com's Adrienne Dellwo reports on the cheerful results of a recent study. |
• |
Finding your energy envelope
CFIDS & Fibromyalgia Self-Help has a two-part article by Bruce Campbell about understanding your limits with ME/CFS/Fibromyalgia. |
• |
Society seminar reminder
If you are able, please join us this Saturday, 8 May, 1pm at the Sofia Conference Room (situated in Cabra Dominican College), 225 Cross Rd Cumberland Park. |
• |
Riverland meeting reminder
A reminder that the Riverland ME/CFS Support Group's next meeting will be held this Friday (7 May) at the Riverland Resource Centre, 9-11 Seekamp St, Berri. |
• |
Not so fine after all: the FINE trial crashes to Earth
Cort Johnson discusses the UK's FINE Trial. |
• |
Laser treatment for Fibromyalgia
American laser manufacturer MicroLight Corp. of America has issued a press release about its latest model. |
• |
The Music Works
The Music Works – aka The Dynamic Day Gig – is a monthly event held at the Governor Hindmarsh Hotel. |
• |
Fibromyalgia affects mental health of those diagnosed and their spouses, MU study finds
In a new study, University of Missouri researchers are examining how the diagnosis of Fibromyalgia can affect marriages. |
• |
'Hot' substance in chilli peppers key to killing pain
BBC News reports that "Studying chilli peppers is helping scientists create a new type of painkiller which could stop pain at its source". |
• |
Dr Sarah Myhill case results
The results of the Interim Orders Panel of the General Medical Council into complaints against Dr Sarah Myhill have been placed on various Facebook sites. |
| April |
• |
Solicitor rides from Hampshire to Edinburgh for CFS Research Foundation
A Hampshire man has embarked on a 600-mile cycle ride he hopes will raise £10,000 for research into CFS. |
• |
New reliable method based on patients' gait helps to diagnose fibromyalgia
Recent research from Spain's University of Granada has discovered a new way to help diagnose Fibromyalgia. |
• |
AHMF announced as a sponsor of Invest in ME Conference 2010
Invest in ME has announced that the Alison Hunter Memorial Foundation is now a sponsor of the 5th International ME/CFS Conference 2010. |
• |
Overlapping and related conditions
CFIDS & Fibromyalgia Self-Help has an article about conditions that may overlap or be related to ME/CFS/ Fibromyalgia. |
• |
Society meeting
The next Society meeting will be held on Saturday 8 May 2010. |
• |
Blood donation: Australian policy update
The Australian Red Cross Blood Service has clarified its policy on people with ME/CFS donating blood. |
• |
Estrogen drops may worsen Fibromyalgia pain
About.com's Adrienne Dellwo reports on the results of a recent study. |
• |
New Zealand CFS donors face rejection
New Zealand's blood banks plan to reject donors with a record of CFS. |
• |
ME/CFS Awareness Week 2010 Seminar in Victoria
ME/CFS Australia (Victoria) will be holding an Awareness Week Seminar on Sunday, 16 May in Melbourne Town Hall. |
• |
Call for volunteers in brain-scanning study
South Australian rheumatologist Dr Richard Kwiatek is heading a follow-on study comparing brain MRI in CFS versus healthy controls. |
• |
CFS 'link' prompts blood donation review
An article from Australian newspaper The Age about the official position on blood donation for people with ME/CFS. |
• |
Why glandular fever doesn't exist
The Daily Telegraph has an article about three "has-been" diseases. |
• |
"CBT is not a cure for ME"
The Irish Medical Times has published a letter from Dr Vance Spence, chairman of ME Research UK, in which he discusses the use of Cognitive Behaviour Therapy for ME/CFS. |
• |
Documentary on household chemicals
Canadian newspaper The Vancouver Courier has an article about Chemerical, a new documentary focusing on a family and their efforts to minimise the amount of potentially harmful chemicals in their home. |
• |
XMRV's big test has begun
Cort Johnson on his Bringing the Heat blog has an article about attempts in the US to create a comprehensive XMRV study. |
• |
Eric the Postie arrives home
Former postie Eric Smart has arrived home after his marathon bicycle ride for The ME Association. |
• |
Dr Sarah Myhill to face GMC hearing again
Dr Sarah Myhill is under investigation by the UK's General Medical Council. |
• |
XMRV discussed on ABC Radio National's Health Report
XMRV was discussed on ABC Radio National's The Health Report program hosted by Norman Swan. |
• |
Blood donation, XMRV, and ME/CFS
The thorny topic of people with ME/CFS giving blood has cropped up recently due to the disease's possible link to XMRV. |
• |
Shadow Report survey
The Australian Human Rights For People With Disability organisation has a survey for its Australian Shadow Report Project and is asking people to participate in it. |
• |
Proteins on the brain
A report from Cort Johnson. |
• |
Cooperative Diagnostics pulls XMRV molecular test from clinical market
Cooperative Diagnostics has voluntarily pulled its XMRV molecular assay from the clinical market due to the "controversial" claim linking the virus with CFS. |
• |
HIV drugs might combat two other diseases
Four anti-HIV drugs inhibit a retrovirus recently linked to prostate cancer and CFS, say U.S. researchers. |
• |
University of Bristol research study
University of Bristol has begun a research study to investigate a chronic childhood condition. |
• |
New XMRV study announced
The UK's ME Association reports on new research involving XMRV. |
• |
Severe ME/CFS: A Guide to Living
A new book about coping with severe ME/CFS has been published in the UK. |
• |
SolveCFS BioBank
News about the SolveCFS BioBank from The CFIDS Association of America. |
• |
The Music Works
The Music Works – aka The Dynamic Day Gig – is a monthly event held at the Governor Hindmarsh Hotel. |
• |
ME/CFS Brain and Tissue bank update
The ME Association in the UK has an update on the UK's Brain and Tissue Bank. |
• |
The Voices of Fibromyalgia
The New York Times has a series of audio recordings called Patient Voices. |
• |
Cooking with Fibromyalgia & CFS
About.com's Adrienne Dellwo has some helpful kitchen advice for people with ME/CFS/Fibromyalgia. |
| March |
• |
Social networks a lifeline for the chronically ill
An article from The New York Times. |
• |
Disability Workforce Consultation Survey
The Australian Federation of Disability Organisations is asking people with disabilities to participate in a survey about support workers. |
• |
Theda Myint in Who Magazine
Theda Myint, a woman with ME/CFS who has been profiled on a few occasions in Australian newspapers, has now been interviewed for Who Magazine. |
• |
Will this new trialled process really aid the ME sufferer?
Dr John Greensmith has written a letter to UK newspaper The Bath Chronicle in response to an article about The Lightning Process. |
• |
Musicians tune up for health group
An article from Canada's Kingston This Week about the Canta Arya School for Strings. |
• |
Grocery shopping with Fibromyalgia & CFS
About.com's Adrienne Dellwo discusses the difficulties of grocery shoppping for people with ME/CFS/Fibromyalgia. |
• |
Effects of acupuncture to treat fibromyalgia
Research from the medical journal Chinese Medicine. |
• |
Carer of the Year awards
The UK's Daily Mail reports on its Carer of the Year awards. |
• |
Hormonal alterations in adolescent CFS
ProHealth reports on hormonal alterations in adolescent chronic fatigue syndrome. |
• |
Protecting your liver with Fibromyalgia & CFS
About.com's Adrienne Dellwo has written an article about the things people with ME/CFS/Fibromyalgia can do to avoid liver damage. |
• |
Irish Medical Times letter to the editor
The Irish Medical Times has published a letter from Tom Kindlon of the Irish ME/CFS Association in which he takes a recent article to task. |
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Debunking myths: Fibromyalgia & CFS are 'wastebasket diagnoses'
About.com's Adrienne Dellwo has written an article challenging perceptions that some people have about ME/CFS/Fibromyalgia. |
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Open letter to UK Secretary of State for Health
Invest in ME has written an open letter to the UK's Secretary of State for Health about the Government's policy on blood donors with ME/CFS. |
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BMJ podcast
The British Medical Journal has a podcast that features the latest in ME/CFS research, focusing on XMRV. |
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CFIDS Association of America webinar
The CFIDS Association of America is hosting a 'webinar' on Thursday 25 March in the US. |
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Hallmann research Phase III – update
Here's the latest from Geoffrey Hallmann about his doctoral research project. |
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Fibromyalgia in children and teens
ProHealth has an article by Dr Mark J Pellegrino about Fibromyalgia in younger people. |
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Parliamentary group slams NHS
UK organisation The ME Association reports on the All Party Parliamentary Group on ME's criticism of the NHS. |
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What's old is new again?
R.E.S.C.I.N.D. has an interesting video from 1996. |
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Fibromyalgia study involves medication and conversation
HealthCanal.com reports on a Fibromyalgia study involving the combination of medication and conversation. |
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Real life: the long goodbye
The Irish Independent newspaper has an article about Criona Wilson and her daughter Sophia Mirza. |
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Why ME sufferer Emma is learning to live again
UK newspaper Devon24 has a profile of Emma Webb. |
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South Australian election: postal voting
South Australia will be holding its State Election on Saturday 20 March 2009. |
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Doing housework with Fibromyalgia & CFS
About.com's Adrienne Dellwo has an article about meeting the challenges of housework for people with ME/CFS/ Fibromyalgia. |
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MCA Awareness Month
The American Chronicle has an article about MCS Awareness Month which will be in May. |
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NICNAS draft review
Australia's National Industrial Chemicals Notification and Assessment Scheme (NICNAS) has the latest news on its draft review. |
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Medical course questionnaire
UK researcher Linzi Tweedy is conducting a survey for people with ME/CFS. |
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Professor of chemical engineering urges students to go fragrance-free
The Canary Report has an article about a University of New Hampshire professor who has written an open letter expressing his concerns about MCS. |
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Theda's desperate fight against a chronic killer
Western Australian newspaper WA Today has a profile of ME/CFS sufferer Theda Myint. |
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"Mono" linked to CFS in teens
Teens who develop "mono," otherwise known as infectious mononucleosis, may be at risk for CFS, according to a study in Pediatrics. |
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XMRV: third study fails to find virus
A new study published on bmj.com casts doubt on recent claims that a human retrovirus known as XMRV is linked to ME/CFS. |
| February |
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The Music Works
The Music Works – aka The Dynamic Day Gig – is a monthly event held at the Governor Hindmarsh Hotel. |
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Fibromyalgia Pain & 'Situational Narcissism'
About.com's Adrienne Dellwo has an interesting article about behaviour that can come about as a result of chronic pain. |
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Society meeting program for 2010
UK newspaper Devon24 has a profile of Emma Webb. |
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Mayor of Broward County proclaims May 2010 as MCS Awareness Month
Mayor Ken Keechl, has proclaimed May 2010 as MCS Awareness Month in Broward County (FL). |
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Adolescent offspring of mothers with CFS
The March 2010 issue of the Journal of Adolescent Health has published research results of adolescent children of mothers with CFS. |
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Provision of social support to individuals with CFS
ProHealth reports on a document entitled "Provision of social support to individuals with chronic fatigue syndrome" from the Journal of Clinical Psychology, Mar 2010. |
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Celebrity memorabilia auction for ME/CFS research
The Worldwide Association for ME/CFS Awareness and Research is holding an auction of celebrity memorabilia and the proceeds will all go to ME/CFS research. |
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Self-pacing in CFS
The Ninety-One Outcomes blog has an article about the results of a study into self-pacing in CFS. |
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Mikovits & Cheney to host Q&A on XMRV & ME/CFS
ProHealth reports on Q&A with Dr. Judy Mikovits, PhD, and Dr. Paul Cheney, MD. |
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New XMRV results published in Retrovirology
New research into XMRV published in Retrovirology has reinforced the UK results that showed a lack of XMRV in CFS patients. |
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Shelly Quarmby
UK singer/songwriter Shelly Quarmby has released a six-song EP entitled Change and proceeds from the sale of one of the tracks will go towards Fibromyalgia Association of the United Kingdom. |
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Online MCS work study – participants wanted
About.com's Carol and Richard Eustice report the results of research into the benefits of slow breathing for people with chronic pain such as Fibromyalgia. |
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Slow breathing can reduce chronic pain
About.com's Carol and Richard Eustice report the results of research into the benefits of slow breathing for people with chronic pain such as Fibromyalgia. |
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Judy Mikovits Q&A videos
ProHealth has an article, with videos, about Dr Judy Mikovits' recent Q&A which focused on XMRV. |
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Snapshots from a life stolen by the mystery illness, ME
Irish newspaper the Belfast Telegraph has a profile of Horace Reid. |
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CFIDS Association of America webinar
The CFIDS Association of America is hosting a 'webinar' on Thursday 18 February in the US. |
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Elisha steps back into life after waking from illness
Australian newspaper The Age reports on teenager Elisha Nardella and her life with ME/CFS. |
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Carnitine for Fibromyalgia and CFS
About.com's Adrienne Dellwo talks about the potential benefits of carnitine. |
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Riverland meeting reminder
A reminder that the Riverland ME/CFS Support Group’s next meeting will be held this Friday. |
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Breaking the ME enigma
Twenty noted UK people associated with ME/CFS have written an open letter that was published in The Daily Telegraph. |
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Inpatient program swamped by children with chronic fatigue
Australian newspaper The Age reports on unprecedented demand for a Melbourne CFS inpatient program. |
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SHUT OUT: The Experience of People with Disabilities and their Families in Australia
The National People with Disabilities and Carer Council has published a report on the experiences of people with diabilities and their families in Australia. |
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The hallmark of CFS
A study funded by the CFIDS Association and published by researchers at University of Pacific describes the consequence of modest physical and/or mental activity experienced by most, CFS patients. |
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Does muscle bioenergetic abnormality cause peripheral fatigue in ME/CFS?
ME Research UK has an article about new research investigating a possible cause of fatigue in ME/CFS. |
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ME case study: 'She told me that she did not want to carry on'
UK newspaper The Independent has an article about teenager Kate Charles. |
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They told dying daughter she was lying, says ME mother Criona Wilson
The UK's Times Online has an article about the difficulties faced by Criona Wilson and her daughter, Sophia Mirza. |
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Dr Reeves departs major US CFS research program
The CFIDS Association of America's Facebook Group reports on the departure of Dr William C Reeves from the CDC's CFS Research Program. |
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Wii Fit
Joey on her Newly Nerfed blog suggests trying a Wii Fit. |
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Exercise bad for ME/CFS?
Art Ayers has written an article about the research showing the adverse effects of exercise for people with ME/CFS. |
| January |
• |
The Music Works
The Music Works – aka The Dynamic Day Gig – is a monthly event held at the Governor Hindmarsh Hotel. |
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Ten ways I prevent CFS from stealing my mental health
EmpowHer's Jody Smith has an article about strategies she employs to help cope with CFS. |
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Debunking myths
About.com's Adrienne Dellwo has an article about the ways people can combat the perception of Fibromyalgia and CFS as mere laziness. |
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"Doctors, school, friends thought I was faking CFS"
The UK's Times Online has an article about Nicola Warner and the current state of ME/CFS in the UK. |
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National Pain Summit
Australia's National Pain Summit will be held in Canberra on Thursday 11 March 2010. |
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Canadian Mayor proclaims Electromagnetic Hypersensitivity Awareness Month
The American Chronicle reports that Mayor Don Coombs has proclaimed January 2010 as Electromagnetic Hypersensitivity Awareness Month. |
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Housing SA donates to the Society
ME/CFS Australia (SA) Inc thanks the Salisbury branch of Housing SA – and in particular, Peter Moragiannis and the fundraising committee – for their recent donation to the Society. |
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Consumer advocates petition FDA to ban Fibromyalgia drug
ProHealth reports on moves by Public Citizen, a Washington, DC-based nonprofit public health advocacy organization, to have Savella banned. |
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Invest in ME Conference 2010
Invest in ME will be hosting the 5th International ME/CFS Conference 2010 which will be held on Monday 24 May. |
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Cognitive functioning in CFS
ProHealth reports on research analysis done at The University of Adelaide. |
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New YouTube channel: Waking The World Up To M.E.
David Foxen is a young man from the UK who has set up a YouTube channel called Waking The World Up To M.E. in order to highlight the disease. |
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XMRV presentation by Dr Judy Mikovits on Friday to be streamed online
The ME Association reports on an XMRV presentation by Dr Judy Mikovits that will be streamed live on Friday 22 January. |
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Nursing Times poll: Is the Daily Mail bad for your health?
Following on from the Daily Mail's controversial online poll which asked "Do you think ME is a genuine illness", the UK's Nursing Times has created its own online poll. |
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Southern Chronic Illness Links Networks meetings
The Bridges and Pathways Institute Inc / Southern Chronic Illness Links Network is an organisation that provides support for people with CFS and Fibromyalgia. |
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Immune and hemorheological changes in CFS
An abstract from the Journal of Translational Medicine. |
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Mail Online poll controversy
The UK's Mail Online had a poll that asked the question: "Do you think ME is a genuine illness?". |
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Chronic Fatigue Syndrome attacked again
Sam Kean, writing in ScienceNOW Daily News, offers a considered article on the current kerfuffle surrounding XMRV. |
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Breakthrough made in diagnosing CFS
The Japanese newspaper Daily Yomiuri Online reports on a breakthrough in diagnosing CFS. |
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National Companion Card
The Australian Government's Department of Families, Housing, Community Services and Indigenous Affairs (FaHCSIA) has launched The National Companion Card Scheme. |
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CFS patients in UK show no signs of XMRV
A few months ago we reported on the discovery in the US of a retrovirus known as XMRV in the majority of ME/CFS patients tested. |
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Mail Online poll
The UK's Mail Online is asking people to participate in a poll. |
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Missense mutations in the MEFV gene
PLoS One has published a research article on a faulty gene in people with Fibromyalgia. |
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Hallmann research Phase III – call for volunteers
A doctoral research project by Geoffrey Hallmann has entered its next phase and Geoffrey is calling for voluteers. |
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Treatment of CFS: Findings, Principles and Strategies
PubMed has published an article from the Korean Neuropsychiatric Association. |
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The false promise of miracle cures
The Canary Report has reprinted a two-part article about products such as amygdala retraining that claim to cure diseases such as ME/CFS, Fibromyalgia and Multiple Chemical Sensitivity. |
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The link between heart failure and CFS
About.com's Adrienne Dellwo reports on results of recent studies that show "cardiac irregularites" in people with ME/CFS. |
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New online survey on children with Fibromyalgia: participants wanted
ProHealth reports on a new survey. |
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Risk factors for severe ME/CFS
Co-Cure reports on new research results. |
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Recognition of MCS in Italy moves closer
The Environmmental Illness Resource reports on efforts to get Multiple Chemical Sensitivity legally recognised in Italy. |
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Is chronic pain ruining your relationship?
CNN's Health.com has an article that discusses the problems facing couples when a partner has chronic pain. |
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Happy New Year
The Society wishes you very Happy New Year. |
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