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  ME/CFS AUSTRALIA (SA) INC

Registered Charity 698

Email:
sacfs@sacfs.asn.au

Mailing address:
PO Box 28,
Hindmarsh,
South Australia 5007

Office:
266 Port Road,
Hindmarsh,
South Australia 5007
Ph: 1300 128 339

Office Hours:
Wednesdays, 10am-3pm


FIBROMYALGIA HELP:
Contact
Fibromyalgia SA
at the
Arthritis Foundation of SA
118 Richmond Road,
Marleston 5033
Ph: (08) 8379 5711

ME/CFS Australia (SA) Inc supports the needs of sufferers of Myalgic Encephalomyelitis, Chronic Fatigue Syndrome and related illnesses. We do this by providing services and information to members.

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In the News

2015

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Multimedia
 
July

The Advertiser Family Forum
Monday 6 July 2015: A question about ME/CFS in the Family Forum section of the Saturday edition of Adelaide newspaper The Advertiser.

A Pathway To Progress: The Final P2P Report On ME/CFS Highlights Needs
Monday 6 July 2015: An analysis by Cort Johnson of the US National Institutes of Health's "Pathways to Prevention" program which focused on ME/CFS.

Ambrosia Movie
Sunday 5 July 2015: A new Australian film that deals with the psychological impact of chronic pain in a young woman's life.

UK Snooker Players And Their Battles Off The Baize
Saturday 4 July 2015: A profile of UK snooker player Jason Weston who suffers from ME/CFS.

Unintended Consequences Of Not Specifying Exclusionary Illnesses For Systemic Exertion Intolerance Disease
Friday 3 July 2015: A study that investigated the Institute of Medicine's recent proposal for a new case definition for ME/CFS, as well as a new name, Systemic Exertion Intolerance Disease (SEID).

Antibody Wipeout Found To Relieve Chronic Fatigue Syndrome
Thursday 2 July 2015: There have been promising results in a trial of the drug rituximab for ME/CFS patients.

UK ME/CFS Teenager's Support Dog To Have Vital Hip Operation
Wednesday 1 July 2015: A UK teenager with Chronic Fatigue Syndrome who launched a campaign to raise cash for her beloved German Shepherd to have vital hip surgery is over the moon after vets offered to carry out the operation.

June

Fibromyalgia Considered Lifelong Central Nervous System Disorder
Tuesday 30 June 2015: Fibromyalgia is now considered to be a central nervous system disorder, according to University of Michigan professor of anesthesiology, Daniel J Clauw, MD.

Researchers Compare Twins' DNA To Discover Fibromyalgia Diagnosis
Monday 29 June 2015: Researchers from King's College London are trying to develop an effective strategy to diagnose Fibromyalgia by comparing the DNA of twins in which one has the disease and the other one does not.

Thieves Steal Mobility Scooter, Walking Stick
Sunday 28 June 2015: Australian ME/CFS sufferer Geoffrey Brown, 73, says he has lost his independence after thieves stole his mobility scooter and walking stick from outside his home.

UK ME Sufferers Want To Set Up New Support Group
Saturday 27 June 2015: A new row is erupting over claims ME – or Chronic Fatigue Syndrome – is all in the head.

New Focus On Chronic Fatigue in Australia
Friday 26 June 2015: A renewed focus on improving the diagnosis and management of patients with chronic fatigue has been welcomed, but an Australian expert says there is a long way to go before this complex illness is well understood.

Conflicts Of Interests Affect Fibromyalgia Drug Development
Thursday 25 June 2015: Studies have demonstrated that industry-funded research into Fibromyalgia is linked to an increased probability of pro-industry results.

The Fractured Self: Poetry Of Chronic Illness And Pain
Wednesday 24 June 2015: A proposed anthology of Australia poetry that aims to further the discussion of living with chronic illness or pain.

Diagnostic Methods For ME/CFS – A Systematic Review
Tuesday 23 June 2015: A research paper that reviewed methods to diagnose ME/CFS in adults and identify research gaps and needs for future research.

Extended-Release Gabapentin May Hold Promise For Treatment Of Fibromyalgia
Monday 22 June 2015: A new study has revealed that gabapentin, a drug originally developed to treat epilepsy, may hold promise for treating Fibromyalgia as well.

Norwegian Prime Minister Gives Opening Speech At Awareness Event
Sunday 21 June 2015: The Norwegian Prime Minister, Erna Solberg, opened an arts and crafts exhibition entitled "Creating my freedom", which was organised by the Oslo & Akershus branch of the Norwegian Myalgic Encephalopathy Association and supported by the Norwegian government.

Chronic Fatigue Syndrome And Increased susceptibility To Upper Respiratory Tract Infections And Illnesses
Saturday 20 June 2015: Research that investigates if people with Chronic Fatigue Syndrome are more likely to suffer from upper respiratory tract illnesses than others.

Conscious Crafties
Friday 19 June 2015: Conscious Crafties is a craft buying and selling website for anyone living with chronic illness, disability or caring for those affected.

Chronic Fatigue Syndrome Versus Systemic Exertion Intolerance Disease
Thursday 18 June 2015: A US study paper headed by Dr Leonard A Jason.

Study Assesses Economic Burden Of Fibromyalgia In The US
Wednesday 17 June 2015: A team of scientists recently conducted research to assess the economic burden of those suffering with Fibromyalgia and chronic widespread pain in the United States.

About-To-Be-Dismissed Lawsuit Reveals Details Of Chronic Fatigue Syndrome-XMRV Research Fiasco
Tuesday 16 June 2015: A case filed by Chronic Fatigue Syndrome researcher Judy Mikovits — and about to be dismissed on technical grounds — reveals that Mikovits believes her firing from a research institute was in retaliation for blowing the whistle on activities there.

'She Always Gave Me The Option To Walk Away': Life As A Young Carer For 24-Year-Old Paul Davies
Monday 15 June 2015: A profile of UK carer Paul Davies, and his wife, ME/CFS sufferer Kate.

Recovery Rates For Children With ME/CFS
Sunday 14 June 2015: A study from the US that describes how recovery from paediatric CFS/ME is defined, how many children recover, and how long it takes.

US Football Star Dominique Easley Helps Raise Awareness Of Treatment For Fibromyalgia
Saturday 13 June 2015: US footballer, New England Patriot star Dominique Easley has partnered with the Centers for Integrative Medicine and Healing to educate and generate awareness on Fibromyalgia and an all-natural treatment of Fibromyalgia.

Online Publisher Battles Fibromyalgia Symptoms
Friday 12 June 2015: A profile of Fibromyalgia sufferer, Joe Steck, who is the publisher of online newspaper, MankatoTimes.com.

Society Seminar Reminder
Thursday 11 June 2015: A reminder that the society's next seminar will be held this Saturday, 13 June at 1:30 pm in Sophia House, Cumberland Park.

A Simple Bacteria May To Be Blame For Unexplained Inflammatory Conditions
Wednesday 10 June 2015: The National Treatment Centers for Environmental Disease has made a discovery about a condition called endotoxemia, which may help in the diagnosis and/or treatment of a variety of inflammatory syndromes such as ME/CFS, Irritable Bowel Syndrome, Crohn’s Disease etc.

Nelly Battles Chronic Fatigue To Become A Published Author
Tuesday 9 June 2015: A profile of UK ME/CFS sufferer Nelly Harper, who has published her first book.

New Blood Test Can Identify Every Virus You've Ever Had
Monday 8 June 2015: Researchers say a new blood test can pinpoint all the viruses in your body and may help explain the causes of complex diseases like type 1 diabetes and chronic fatigue syndrome.

ME/CFS And Fibromyalgia As Functionally Impairing As Major Diseases In Medical World
Sunday 7 June 2015: An in-depth look by Cort Johnson at ME/CFS, Fibromyalgia, and other diseases classified as "functionally somatic syndromes", meaning that they have an unexplained pathology.

Report Finds Graded Exercise Therapy Worsens Symptoms Of ME/CFS
Saturday 6 June 2015: An extensive article from the UK on why Cognitive Behavoural Therapy, Graded Exercise Therapy, and pacing are harmful to ME/CFS patients.

US Biotech Firm Agrees To Pay $2.75M Settlement
Friday 5 June 2015: A Philadelphia biotechnology company has tentatively agreed to pay $2.75 million to resolve a lawsuit brought by its shareholders, who allege the company made “material misrepresentations and omissions” regarding the status of a new drug application for its lead new drug candidate, Ampligen.

Hyperbaric Hope For Fibromyalgia Sufferers
Thursday 4 June 2015: Women who suffer from Fibromyalgia benefit from a treatment regimen in a hyperbaric oxygen chamber, according to researchers at Rice University and institutes in Israel.

UK ME/CFS Teenager Sophie Perkins In Desperate Bid To Raise Money For Beloved Pet Hunter
Wednesday 3 June 2015: A UK teenager who suffers from ME/CFS is desperately trying to raise £9,000 for her beloved German Shepherd dog who needs two hip operations.

Tai Chi Practice Can Help Fibromyalgia Patients
Tuesday 2 June 2015: A study published in the journal Cell Transplantation demonstrated the benefits of Tai Chi in terms of aging and in Fibromyalgia patients.

'Fibromyalgia Falsehoods, Fakers, And Facts': Author's Interview
Monday 1 June 2015: An interview with Dr. Kenneth Muhich, the author of his book, Fibromyalgia Falsehoods, Fakers, and Facts.

May

A Father Responds: Riding Hard For ME/CFS Research
Sunday 31 May 2015: Peter Spearing, father of ME/CFS sufferer Stephanie, will be riding 100 kilometers in Tour de l'Île de Montréal cycling event to raise funds for the Simmaron Research Foundation.

Misdiagnosis On A Grand Scale?
Saturday 30 May 2015: An article from the UK about two research papers that back up claims of misdiagnosis with ME/CFS.

Australian Study Pinpoints Possible Gene Issues In Chronic Fatigue Syndrome
Friday 29 May 2015: An article on the work being done at Griffith University's National Centre for Neuroimmunology and Emerging Diseases.

Beckie Butcher's 2012 Book To Be Presented At 2015 LA Pitchfest Event
Thursday 28 May 2015: My Battle with Chronic Fatigue Syndrome, a book by US ME/CFS sufferer Beckie Butcher, will be featured at the Book-to-Screen Pitchfest Los Angeles 2015 event.

New Group Intervention Program Improves Self-Management Of Fibromyalgia
Wednesday 27 May 2015: A study recently published in the journal PLoS One showed that a group intervention program called PASSAGE was effective in helping patients with Fibromyalgia cope with the disease.

Examination Of Single Nucleotide Polymorphisms In Transient Receptor Potential Ion Channels
Tuesday 26 May 2015: Research headed by Professor Sonya Marshall-Gradisnik at Griffith University's National Centre for Neuroimmunology and Emerging Diseases.

Isabel's Story Of A Life Worth Living
Monday 25 May 2015: A profile of UK ME/CFS sufferer Isabel Walter.

Old Acquaintances Catch Up, Discover Shared Rare Disease At Support Meeting
Sunday 24 May 2015: A profile of two New Zealand friends, Graham Cozens and Paul Clegg, who reunited after 20 years at an ME/CFS support group meeting.

ME/CFS Sufferer Rachel To Participate In HBF Run For A Reason
Saturday 23 May 2015: Australian ME/CFS sufferer Rachel Goodsell will raise funds for the ME/CFS and Lyme Association of WA by participating in the 2015 HBF Run For A Reason.

Doctors Urged To Take Chronic Fatigue Syndrome More Seriously
Saturday 23 May 2015: ME/CFS sufferers like Christine Lisio hope the US Institute of Medicine's recent report, which states that chronic fatigue syndrome is a legitimate and serious disease, will get doctors to pay closer attention to their concerns.

Strong Correlation Discovered Between Fibromyalgia Pain And Quality Of Sleep
Friday 22 May 2015: Research has found that not only does poor sleep result in more pain for Fibromyalgia patients, but it is also linked to a lower pain threshold.

Post-Exertional Malaise Questionnaire
Thursday 21 May 2015: DePaul University is conducting a research study to try and learn more about what occurs before and during post-exertional malaise for individuals with ME/CFS, as well as how these individuals define the term post-exertional malaise.

Australian National Register Of Environmental Sensitivities
Wednesday 20 May 2015: The formation of the Australian National Register of Environmental Sensitivities aims to provide the background evidence to highlight the need for recognition and assistance for affected people.

Fibromyalgia Origins Found In Central Nervous System
Tuesday 19 May 2015: Research suggests that Fibromyalgia is a lifelong central nervous disorder, which causes chronic pain.

UK Charity Fundraiser Gets Mr T Haircut For Chronic Fatigue Charity
Monday 18 May 2015: A charity fundraiser with ME/CFS took on an unusual challenge – subjecting himself to a 'Mr T' haircut.

New Research Could Lead To A Blood Test For Fibromyalgia
Sunday 17 May 2015: Scientists at King's College London are hoping their latest research into Fibromyalgia will lead to a reliable blood test to enable doctors to make a proper diagnosis.

Struck Down With Chronic Fatigue
Saturday 16 May 2015: A profile of New Zealander ME/CFS sufferer Marie Dent.

Definitive Tests For Irritable Bowel Syndrome Developed
Saturday 16 May 2015: Millions of people afflicted by irritable bowel syndrome can now be diagnosed quickly and accurately with two simple blood tests developed by a Cedars-Sinai Hospital gastroenterologist.

ME/CFS Severely Ill Big Data Study Crowdfund Campaign
Friday 15 May 2015: A "ME/CFS Crowdfunding Campaign" Facebook page has been created to promote the ME/CFS Severely Ill Big Data Study.

Mother And Daughter Fight Chronic Fatigue
Friday 15 May 2015: A profile of New Zealand ME/CFS sufferers Wendy and Sophie Matthews.

Griffith Research Sheds New Light On Cause Of CFS
Thursday 14 May 2015: New research findings from Queensland's Griffith University may shed new light on the potential cause of ME/CFS.

Video: ME/CFS is Not An Invisible Disease
Thursday 14 May 2015: A video from Josefine Rausand that shows ME/CFS sufferers at their best and at their worst.

Illnesses No Laughing Matter
Wednesday 13 May 2015: A profile of ME/CFS sufferer Kerri Stephenson and her parents John and Winsome.

Mini-Documentary: Mom Needs To Lie Down
Wednesday 13 May 2015: "Mom Needs To Lie Down: The years and live slept away by ME/CFS" is an informational video about Myalgic Encephalomyelitis/Chronic Fatigue Syndrome.

Adelaide Oval Will Light Up Blue For International ME/CFS Awareness Day
Tuesday 12 May 2015: Today Adelaide Oval will be lighting up blue to commemorate International ME/CFS Day.

Canadian Clock Tower To Light Up For International Fibromyalgia Day
Tuesday 12 May 2015: In order to bring attention to the often misunderstood condition of Fibromyalgia, the City of Mississauga will be joining various places across the globe that will be lit up in purple, blue or green to mark International Fibromyalgia Day on Tuesday (May 12).

Kate Mincher Shares Her Reflections On Being Diagnosed With ME
Monday 11 May 2015: A profile of UK ME/CFS sufferer Kate Mincher.

Distinct Plasma Immune Signatures In ME/CFS
Sunday 10 May 2015: A study published in Science Advances entitled "Distinct plasma immune signatures in ME/CFS are present early in the course of illness".

UK Fibromyalgia Sufferer Receives Insulting Note In Parking Lot
Saturday 9 May 2015: A mum who battles chronic pain and used a disabled parking space in Tesco found a note on her car saying "being fat and ugly doesn't count as disabled - park elsewhere".

UK Wellbeing Fair To Aid Research And Awareness Into ME And Related Illnesses
Friday 8 May 2015: Integrated holistic health therapies will be on offer at a special Spring Wellbeing Fair in the UK that aims to raise funds and awareness into ME/CFS and other related disease such as Fibromyalgia.

UK ME Sufferer Rachel Ephgrave To Embark On Unique Challenge
Thursday 7 May 2015: While her friends are embarking on a 100km trek, ME sufferer Rachel Ephgrave is taking on a challenge of her own to raise awareness for the illness.

Martine McCutcheon's Gig For ME
Wednesday 6 May 2015: UK actress Martine McCutcheon is returning to singing with an intimate gig in support of Action for M.E..

Kelly Organises Sponsored Walk To Raise Money For Invest In ME
Tuesday 5 May 2015: UK woman Kelly Meadows has organised a charity walk for her husband, ME/CFS sufferer Richard.

Wearable Device For Fibromyalgia, Back Pain, And Diabetic Nerve Pain Comes With iOS App
Monday 4 May 2015: A new wearable device for chronic pain uses electrical stimulation to help people with Fibromyalgia, back pain and diabetic nerve pain gain relief, and it comes with its own iOS app to work the device.

Shining A Light: The End ME/CFS Project's Severely Ill Patient Study
Sunday 3 May 2015: An article about the Open Medicine Foundation's ME/CFS Severely Ill Big Data Study.

All Fired Up For Latest Awareness Challenge
Saturday 2 May 2015: A profile of Irish ME/CFS sufferer Nicola Lavin, a Galway woman spearheading the worldwide Chilli ME Challenge.

When Physical Trauma And Infection Trigger Fibromyalgia
Friday 1 May 2015: A study entitled "Physical Trauma and Infection as Precipitating Factors in Patients with Fibromyalgia".

April

Interview: New UK Support Group For Others With ME/CFS
Thursday 30 April 2015: An interview with UK ME/CFS sufferer Hannah Thompson who is hoping to set up a support group in her local area.

US Students To March To White House in Support Of ME Patients
Wednesday 29 April 2015: ME sufferers and students carrying photographs of bed-bound ME patients will march to the White House in a bid to raise awareness of the disease and urge the US Department of Health and Human Services to take urgent action.

New Broadway Extravaganza Raises Funds For ME/CFS/FM Awareness Week
Tuesday 28 April 2015: Multi-award-winning young performers from Vancouver's Opera Mariposa raise voices for Awareness Week by performing hit songs from 'Wicked,' 'Spamalot,' 'Sweeney Todd' and more in support of the National ME/FM Action Network.

Brain-Derived Neurotrophic Factor Concentration May Not Be Depressed In ME/CFS
Monday 27 April 2015: A study published in the medical journal Fatigue: Biomedicine, Health & Behavior.

A Biological Basis For Chronic Fatigue Syndrome
Sunday 26 April 2015: New research shows that ME/CFS sufferers have differences in their immune systems, a finding the authors hope will lend some legitimacy to the still-mysterious condition.

Canadian MCS Sufferer Fights Eviction Notice
Saturday 25 April 2015: A Canadian woman with a severe case of Multiple Chemical Sensitivity is fighting an eviction notice from her local housing authority, taking her case to the Nova Scotia Supreme Court.

Fibromyalgia Sufferer Shares Experience In Theatre Performance
Friday 24 April 2015: Nathan Barone details his life as a male with Fibromyalgia in a spoken-word piece of theatre in the US.

ME & My CFS Documentary
Thursday 23 April 2015: UK ME/CFS sufferer Andrew Love is hoping to make a documentary.

Hoping For A Cure
Wednesday 22 April 2015: A mother talks about how her family copes with their daughter who has ME/CFS.

Patients With Fibromyalgia Have Eye Differences
Tuesday 21 April 2015: Women with Fibromyalgia had a thinner average stromal nerve thickness in their eyes, as well as decreased corneal sub-basal plexus nerve density per square millimeter compared with healthy control participants, and corneal confocal microscopy could be a useful tool to identify patients with FM, according to the results of recently published research.

Abnormalities Of AMPK Activation And Glucose Uptake In Cultured Skeletal Muscle Cells From Individuals With ME/CFS
Monday 20 April 2015: The results of a study entitled "Abnormalities of AMPK Activation and Glucose Uptake in Cultured Skeletal Muscle Cells from Individuals with Chronic Fatigue Syndrome".

Debilitating Fatigue Reported By Patients With Autoimmune Diseases
Sunday 19 April 2015: Fatigue was reported by 98% of patients with autoimmune disorders polled, and fatigue that prevented completion of everyday tasks was reported by 68% of the patients, according to a press release from the American Autoimmune Disease Related Diseases Association.

Mercy Of The Wind By Naomi Flanagan
Saturday 18 April 2015: Australian musician and ME/CFS sufferer Naomi Flanagan has released an EP called Mercy of the Wind.

"I Didn't Know What Fibromyalgia Was – I Had To Google It To Find Out"
Friday 17 April 2015: A profile of Irish author and Fibromyalgia sufferer Sinead Cox.

Being Me With ME
Thursday 16 April 2015: ABC contributor "chicken_bits" talks about her life with ME/CFS.

IOM's Chronic Fatigue Syndrome Report Released; Includes Westat Statistical Expertise
Wednesday 15 April 2015: An article from statistics company Westat about its involvement in the recent US Institute of Medicine's report on ME/CFS/SEID.

Tiny Terrors: Deer Tick Bites Can Lead To Lyme Disease
Tuesday 14 April 2015: An article from the US about Lyme Disease.

Chronic Fatigue Syndrome: Features Of A Population Of Patients From Northern Italy
Monday 13 April 2015: A study from Italy that found autoimmune disease was more prevalent in the study's CFS subjects than in the general population.

Inverse Correlation Seen Between Symptoms, Fitness Level In Women With FM
Sunday 12 April 2015: In a study of women with Fibromyalgia in southern Spain, physical fitness was inversely correlated with symptom severity, according to data from the al-Ándalus project.

A Safe Space: Support Group A Refuge For Fibromyalgia Sufferers
Saturday 11 April 2015: A profile of Canada's Sudbury Fibromyalgia Support Group.

The Role Of Cytokines In Muscle Fatigue In Patients With Chronic Fatigue Syndrome
Friday 10 April 2015: Research published in The FASEB Journal (the journal of the Federation of American Societies for Experimental Biology).

You Know You Have Chronic Fatigue Syndrome When...
Thursday 9 April 2015: A video from YouTube user "CFS Hope".

Canadian Tribunal: Province Doesn't Have To Pay For Fibromyalgia Diet
Wednesday 8 April 2015: In a decision handed down March 12, Adjudicator Jo-Anne Pickel of the Human Rights Tribunal of Ontario rejected an appeal from a Toronto man who launched a human rights complaint in an attempt to force the province to pay for a high-protein diet he says eases his fibromyalgia symptoms.

National ME/CFS Conference In Queensland
Tuesday 7 April 2015: Details of the first Zing Myalgic Encephalomyelitis & Chronic Fatigue Syndrome Conference that will take place in Cairns, Australia in August 2015.

Public Servant Says She Was Allergic To Her Workplace At Australian Taxation Office
Monday 6 April 2015: The Australian Taxation Office has been drawn into a three-year compensation case after a former worker said she suffered from "sick building syndrome" when working for the public service.

Volunteers Wanted For Griffith University Chronic Pain Research Questionnaire
Sunday 5 April 2015: Griffith University is asking for people who have developed chronic pain in the last 12 months to complete a questionnaire about their experience.

Interview With Belle & Sebastian's Stuart Murdoch
Saturday 4 April 2015: An interview with Scottish musician and ME/CFS sufferer, Belle and Sebastian's Stuart Murdoch.

Nerve Pathways In Exhaustion Disorder Discovered At University Of Florida
Friday 3 April 2015: The mechanism that causes high-performance athletes to “feel the burn” turns out to be the culprit in what makes people with ME/CFS feel exhausted by the most common daily activities, new University of Florida Health research shows.

Study Helps Explain 'Brain Fog' In Chronic Fatigue Syndrome
Thursday 2 April 2015: A new study shows abnormal immune proteins in the spinal fluid of people with Chronic Fatigue Syndrome.

Does Whiplash Really Trigger Fibromyalgia?
Wednesday 1 April 2015: A Canadian researcher reports in RMD Open that whiplash injury most likely does not lead to Fibromyalgia.

March

The Experience of Sleep in Chronic Fatigue Syndrome
Tuesday 31 March 2015: A study that explored the specific role of sleep in ME/CFS patients' experience of their illness.

Fibromyalgia Patients Have Higher Risk For IBS
Monday 30 March 2015: The risk for developing Irritable Bowel Syndrome was 1.54-times higher in patients with Fibromyalgia, according to recently published data.

New Research Validates Chronic Fatigue Sufferers
Sunday 29 March 2015: A profile of US ME/CFS Esther Siebert, and her welcoming of the Institute of Medicine's new report, Beyond Myalgic Encephalomyelitis/Chronic Fatigue Syndrome: Redefining an Illness.

US Mayor Proclaims May 12 Fibromyalgia Awareness Day
Saturday 28 March 2015: Newark, New Jersey, Mayor Ras Baraka and local citizens are joining communities around the US to raise awareness about Americans living with Fibromyalgia.

Disabled UK Woman Says: Scooters Give Us Freedom, So Please Show Tolerance
Friday 27 March 2015: An article by UK ME/CFS/Fibromyalgia sufferer Janet Warner.

Canadian Woman's Sensitivies Confine Her To House
Thursday 26 March 2015: Canadian Multiple Chemical Sensitivity sufferer Wendy Kearly believes the only place she is safe is inside her home on Munroe Street in New Glasgow – and with some legitimate reasons.

US Vaccine Court's Tough Standards May Face Supreme Court Test
Wednesday 25 March 2015: The US Supreme Court has been asked to assess the case of Ilya Dobrydnev, who has Chronic Fatigue Syndrome, which his family claims was caused by a Hepatitis B vaccination in 2001.

UK Fibromyalgia Sufferer To Complete Monumental Task
Tuesday 24 March 2015: Rosina Thomas, who has severe Fibromyalgia among a range of health issues, is aiming to walk 10,000 steps a day for a week – the equivalent of many kilometres – to raise money and awareness for safer water points in African villages.

Interview: UK Author Lucy Saxon On How Chronic Fatigue Syndrome Gave Her Time To Write
Tuesday 17 March 2015: An interview with UK author and ME/CFS sufferer, Lucy Saxon.

Pfizer's Lyrica Pain Drug Fails FDA Test For Fibromyalgia In Adolescents
Monday 16 March 2015: Pfizer's Lyrica pain drug has failed to meet US Food and Drug Administration requirements in a post-marketing study testing the treatment of Fibromyalgia in adolescents.

Study Shows Why Exercise Magnifies Exhaustion For Chronic Fatigue Syndrome Patients
Sunday 15 March 2015: New research shows the mechanism that causes high-performance athletes to “feel the burn” turns out to be the culprit in what makes people with Chronic Fatigue Syndrome feel exhausted by the most common daily activities.

Chronic Fatigue Syndrome Gets New Name, Enhanced Recognition
Saturday 14 March 2015: A profile of ME/CFS sufferer Tasha Kelemen, and news about the proposed new name for ME/CFS, Systemic Exertion Intolerance Disease.

Changing The Name Of A Medical Condition May Seem Pointless, But It Matters A Lot
Friday 13 March 2015: An article by Serena Gainda about the proposed new name for ME/CFS, Systemic Exertion Intolerance Disease.

Using Wearable Tech To Relieve Chronic Pain
Thursday 12 March 2015: An advertisement for a new wearable device that can administer pain relief on a regular basis.

Welsh Teenager's Auction Will Help Battle Fibromyalgia
Wednesday 11 March 2015: A Welsh student is hoping to raise £400 for charity over the next few weeks by organising a charity event in the city of Newport.

Dr Lucinda Bateman: New Clinical Definitions For ME/CFS
Tuesday 10 March 2015: Lucinda Bateman, MD, discusses the new diagnostic criteria and a new name for ME/CFS, in an OFFER Education Meeting held on March 4, 2015.

SEID Featured On The Dr Oz Show
Monday 9 March 2015: Dr. Oz talks with Dr. Jennifer Caudle and Dr. W. Ian Lipkin about Systemic Exertion Intolerance Disease.

Poor Sleep Quality Linked To Increased Pain And Reduced Activity In Fibromyalgia
Sunday 8 March 2015: A study that tested whether pain, positive affect, and negative affect mediated the association between sleep quality and subsequent activity interference in Fibromyalgia.

US Woman Shares Fibromyalgia Story
Saturday 7 March 2015: A Fibromyalgia sufferer from South Dakota is sharing her story in book form with anyone who wants to read about it.

UK Yoga Project Receives Lottery Grant
Friday 6 March 2015: A project supporting people who suffer from ME/CFS in Yorkshire and the Humber is amongst 108 schemes across the region to receive a share of £979,729 from the UK's Big Lottery Fund.

Dream Makers – Mark Craig
Thursday 5 March 2015: A profile of New Zealand cricketer and former ME/CFS sufferer Mark Craig.

Memory Problems In Patients With Fibromyalgia Not Linked To Risk For Alzheimer's
Wednesday 4 March 2015: Patients with Fibromyalgia and severe episodes of memory problems or cognitive dysfunction, known as "fibrofog," were not at higher risk for the development of Alzheimer’s disease, which has a different profile of memory loss, according to new research in the US.

Distinct Stages To Chronic Fatigue Syndrome Identified
Tuesday 3 March 2015: Scientists in the US say distinct changes in the immune systems of patients with ME or Chronic Fatigue Syndrome have been found.

US Fibromyalgia Patients Kicked Out Because Of Service Dogs
Monday 2 March 2015: Two unrelated Fibromyalgia patients in the US recently encountered problems in public places because of their service dogs.

Scientists Discover Robust Evidence That Chronic Fatigue Syndrome Is A Biological Illness
Sunday 1 March 2015: Researchers at the Center for Infection and Immunity at Columbia University’s Mailman School of Public Health have identified distinct immune changes in patients diagnosed with chronic fatigue syndrome, known medically as Myalgic Encephalomyelitis (ME/CFS) or Systemic Exertion Intolerance Disease.

February

A Disease Doctors Refuse To See
Saturday 28 February 2015: An op-ed piece by Julie Rehmeyer in The New York Times.

The Pain Brain: Hippocampal Atrophy Found In Fibromyalgia
Friday 27 February 2015: Reduced volume in the brain's hippocampus is the latest of many brain findings in Fibromyalgia.

US Author Uses Marbles To Enlighten Children About Physical Limitations
Thursday 26 February 2015: A book by US author Melinda Malott, in which "A mom uses a jar and some marbles to show her son how she goes about making decisions about what she can and can’t do in terms of activities in a day".

Prefontal Myelination In Chronic Fatigue Syndrome
Wednesday 25 February 2015: A research paper entitled "Evidence in chronic fatigue syndrome for severity-dependent upregulation of prefrontal myelination that is independent of anxiety and depression".

UK Physios And Philosophers Receive £1m Research Grant
Tuesday 24 February 2015: Two physiotherapists are to play their part in a €1.3 (about £1 million) study that will explore what leads to improvements in people's health and wellbeing.

Fighting Back Against Fibromyalgia: US Woman Turns To The Arts To Cope With Her Chronic Illness
Monday 23 February 2015: Fibromyalgia sufferer Kelly Kvenlog Wichlacz has discovered her artistic side, hand-sewing tote bags, crafting jewelry, writing an essay, setting it to her photography on YouTube, and now hoping to publish a book.

IOM Report – Dr Lucinda Bateman's response
Sunday 22 February 2015: A statement from Lucinda Bateman MD about controversy surrounding the Insitute of Medicine's report on ME/CFS, new diagnostic criteria, and the name Systemic Exertion Intolerance Disease.

UK Woman Puts Chronic Pain At The Top Of The Agenda
Saturday 21 February 2015: A profile of UK Fibromyalgia sufferer Ella Vine, chief executive of national charity FibroAction, who took the need to improve diagnosis and care of people living with chronic pain directly to UK parliamentarians.

'We're Not Lazy – Chronic Fatigue Syndrome Is A Real Disease After All'
Friday 20 February 2015: A profile of UK ME/CFS sufferer Carolin Higson.

Music and Acupuncture For Fibromyalgia
Friday 20 February 2015: A study that investigated the effect of music combined with vibration on acupuncture points for the treatment of Fibromyalgia.

How Disease Names Can Stigmatize
Thursday 19 February 2015: An editorial by professor of clinical and community psychology, Leonard A. Jason.

Retired US Police Offer Will Get Enhanced Disability Pension
Thursday 19 February 2015: A retired US police officer who developed Fibromyalgia after being exposed to toxins after the 2001 World Trade Center attack has won a five-year legal battle for an enhanced disability pension.

SEID Report Release Video
Wednesday 18 February 2015: A video of the Institute of Medicine's press conference for the release of their report, "Beyond Myalgic Encephalomyelitis/Chronic Fatigue Syndrome: Redefining an Illness".

Beyond The Roll-Out
Wednesday 18 February 2015: An analysis of the Institute of Medicine's report, "Beyond Myalgic Encephalomyelitis/Chronic Fatigue Syndrome: Redefining an Illness".

The New Science Of Exhaustion
Tuesday 17 February 2015: A US radio program featuring ME/CFS experts discussing the Institute of Medicine's proposed new name, Systemic Exertion Intolerance Disease.

Goodbye Chronic Fatigue Syndrome, Hello SEID
Tuesday 17 February 2015: A committee convened by the Institute of Medicine has proposed a new name for a condition known variously as Chronic Fatigue Syndrome or Myalgic Encephalomyelitis.

Health Care Use Remains High in Patients With Fibromyalgia After Treatment
Monday 16 February 2015: Utilization of the health care system remained high for patients with Fibromyalgia after initiating treatment with either amitriptyline, Cymbalta, Neurontin or Lyrica, according to researchers from Utah's Brigham and Women’s Hospital.

Canberra Autoimmune Self-Management Education Day, 7 March 2015
Monday 16 February 2015: The Autoimmune Resource & Research Centre will be hosting a self-management education workshop in Canberra for people living with autoimmune illness.

Utah Doctor Helps To Legitimize Chronic Fatigue As An Actual Disease
Sunday 15 February 2015: National health experts, including one Utah doctor, released the results of a year of study on Tuesday [February 10] legitimizing the symptoms of chronic fatigue and giving the disorder a new name.

UK Mum Cleared Of Poisoning Daughter By Taking Her Abroad For Treatment Fights To Get Her Back
Sunday 15 February 2015: A UK mother who took her daughter abroad to treat her chronic fatigue with different drugs – and then ended up in court accused of 'poisoning' her – said she is determined to win her back after being cleared by a judge.

US Panel Redefines Chronic Fatigue Syndrome
Saturday 14 February 2015: A panel commissioned by the US Department of Health and Human Services has produced what is sure to be an influential report on how the disease should be diagnosed, by offering guidelines for a new moniker: Systemic Exertion Intolerance Disease (SEID).

Fibromyalgia Imaging Study Shows Unique Brain Connectivity
Saturday 14 February 2015: A new brain imaging study reveals that patients with Fibromyalgia show unique brain activity in response to pain.

Panel Says Chronic Fatigue Syndrome Is A Disease, And Renames It
Friday 13 February 2015: The mysterious and complicated illness that has been called chronic fatigue syndrome has a new definition and a new name: systemic exertion intolerance disease, or SEID for short.

Society Seminar Reminder
Friday 13 February 2015: A reminder that the society's first seminar for 2015 is tomorrow, Saturday 14 February at 1:30 pm in Sophia House, Cumberland Park.

Chronic Fatigue Syndrome Gets A(nother) New Name
Thursday 12 February 2015: The Institute of Medicine has proposed a new name and new diagnostic criteria for the condition that many still call Chronic Fatigue Syndrome.

Tips On How To Live A Normal Life With Fibromyalgia
Wednesday 11 February 2015: The cause of Fibromyalgia is unknown, but a WDSU News New Orleans video featuring Dr Corey J. Hebert, MD, shows there is treatment to help a person cope with the physical and psychological symptoms.

Locklear Fighting To Play
Tuesday 10 February 2015: A profile of US teenage basketballer and ME/CFS sufferer, Elayna Locklear, and her basketball team.

New Criteria Would Double Fibromyalgia Cases
Monday 9 February 2015: More than 5% of the general population fulfill the modified 2010 criteria for Fibromyalgia, compared with less than 2% who fulfilled the 1990 and the proposed 2010 criteria, report researchers in Arthritis and Rheumatology.

ME/CFS Linked To Early Menopause
Sunday 8 February 2015: A new study suggests there's a link between early menopause and Chronic Fatigue Syndrome.

Patients With Fibromyalgia More Likely To Experience Anxiety
Saturday 7 February 2015: Patients with Fibromyalgia were more likely to show symptoms of anxiety than patients with other rheumatic diseases, according to findings by Robert S. Katz, MD, and Frank Leavitt, PhD.

ME/CFS Sufferer's Claim Of Contamination Rejected By Tribunal
Friday 6 February 2015: A CSIRO media manager who says she contracted a virus after drinking water contaminated with faeces at a conference has lost her bid for compensation.

Altered Gait, Biomechanics Seen In Patients With Juvenile Fibromyalgia
Thursday 5 February 2015: Patients with juvenile Fibromyalgia showed alterations in walking patterns, greater knee weakness, lower bilateral hip abduction strength, reduced ankle dorsiflexion and other physical and psychosocial alterations compared with a group of healthy controls, according to researchers.

'I Was So Grateful For My Body': Jennifer Aniston Portrays Chronic Pain
Wednesday 4 February 2015: Jennifer Aniston plays a woman who suffers from chronic pain in the independent film Cake.

New Debate Over Lyme Disease As 16-Yr-Old Girl Bitten By Tick Heads To Germany For Radical Treatment
Tuesday 3 February 2015: The controversy over whether Lyme disease exists in Australia is set to be inflamed by new research that has found no evidence of the bacteria responsible for it around Sydney.

Society Seminar
Monday 2 February 2015: Our first seminar for 2015 is on St Valentine's Day, Saturday 14 February at 1:30 pm.

BBC Documentary Series Features ME/CFS And Fibromyalgia Sufferers
Sunday 1 February 2015: A recent episode of the BBC One documentary series about loneliness, Operation Meet the Street, featured ME/CFS sufferer Kate, and Fibromyalgia sufferer Simon.

January

A Life Of Helping Women
Saturday 31 January 2015: South Australian Fibromyalgia sufferer Effy Kleanthi has been awarded an Order of Australia Medal on Australia Day.

Patients With RA, Fibromyalgia Less Likely To Achieve Remission, Low Disease Activity
Friday 30 January 2015: Patients with both Rheumatoid Arthritis and Fbromyalgia were less likely to achieve remission or low disease activity scores, according to finding presented recently at the American College of Rheumatology Annual Meeting.

Knowing M.E., Knowing You
Thursday 29 January 2015: A profile of British ME/CFS sufferer Stephen Tudor.

IACFS/ME Chides NIH For Inadequate Funding
Wednesday 28 January 2015: An open letter from the International Association of CFS/ME to US National Institutes of Health about funding for its Pathways to Prevention report.

New US Public Transport Ads Focus On Fibromyalgia And Other Invisible Disabilities
Tuesday 27 January 2015: The Washington Metropolitan Area Transit Authority is focusing on people with health problems and disabilities that may not be visible to others, such as Fibromyalgia.

Fibromyalgia Flares: A Qualitative Analysis
Monday 26 January 2015: A research paper that aimed to describe Fibromyalgia flares in a sample of patients with Fibromyalgia.

Gut Infection Could Underlie Symptoms In Chronic Fatigue Syndrome
Sunday 25 January 2015: Over the past couple of years the Whittemore-Peterson Institute has been quietly digging into the human gut.

Plasma Cytokine Expression In Adolescent Chronic Fatigue Syndrome
Saturday 24 January 2015: A research paper published in the journal Brain, Behavior, and Immunity.

"I'd Rather Have Cancer Than Chronic Fatigue Syndrome"
Friday 23 January 2015: A former cancer patient says she would rather still have the deadly disease than the Chronic Fatigue Syndrome that has plagued the last decade of her life.

US Neuroscientist Says Exercise Worsens ME/CFS Symptoms
Thursday 22 January 2015: A highly regarded American neuroscientist who has researched ME/CFS for more than a decade, has decried media reports based on The Lancet Psychiatry’s recent scientific article that claims graded exercise therapy is an effective treatment for ME/CFS.

Unexplained Medical Symptoms – A Radio National Panel Discussion
Wednesday 21 January 2015: A panel of experts looks into complicated issues surrounding unexplained medical symptoms in this special event for the Ultimo Science Festival in Sydney.

Australian Disability Advocates Say Federal Government Employment Policies Not Working
Tuesday 20 January 2015: Advocates say despite years of Federal Government policies to designed to boost employment, it is as hard as ever for people with a disability to enter the workforce.

Life Is Hard For Us ME Sufferers – And Simplistic News Reports Don't Help
Monday 19 January 2015: Chronic Fatigue Syndrome is misunderstood by the public, and the media must take some of the blame for that.

ME/CFS Research UK Slams Lancet Psychiatry Report Advocating Exercise For Chronic Fatigue Syndrome Sufferers
Sunday 18 January 2015: ME Research UK has slammed an analytical report published in the latest The Lancet Psychiatry that claims ME/CFS patients have “fear avoidance beliefs” that exercise will exacerbate their symptoms.

Fear Of Exercise Exacerbates Chronic Fatigue Syndrome, Say Researchers
Saturday 17 January 2015: The comments for this article from the UK's Telegraph shows the debate about exercise and ME/CFS is still well and truly alive.

Meet The 29-Year-Old Woman Who's Allergic To The World
Friday 16 January 2015: A profile of Multiple Chemical Sensitivity Sufferer Crystal Goodwin.

ME Sufferer Will Go The Extra Mile In Nepal For Charity
Thursday 15 January 2015: A UK pub manager will trek through the Himalayas for Macmillan Cancer Support, despite suffering from Chronic Fatigue Syndrome.

Chronic Fatigue Syndrome Researcher Turns Pilot Study Into Major Grant
Wednesday 14 January 2015: An article about Patrick McGowan's epigenetic research in the US funded by the SolveCFS Initiative.

Society seminars for 2015
Tuesday 13 January 2015: Details for all society seminars for 2015.

Chronic Fatigue Syndrome: Wrong Name, Real Illness
Monday 12 January 2015: An in-depth article about ME/CFS.

Fibromyalgia Sufferer Shares Pain Of Ignorance
Sunday 11 January 2015: Shelly Van Winkle' Fibromyalgia tale is playing out across the globe as other patients face similar problems.

UK Prime Minister's Award For Woman Who Set Up ME/CFS Charity
Saturday 10 January 2015: A retired teacher in the UK has been hailed by the Prime Minister for setting up the UK’s largest charity for children and young people with Chronic Fatigue Syndrome.

Slow Access To The Mental Lexicon In Fibromyalgia
Friday 9 January 2015: A study that looked at lexical access speed (i.e., the time needed for the brain to access the catalogue of words in long-term memory) in Fibromyalgia patients.

"Passing" Is Not A Privilege
Thursday 8 January 2015: Having an invisible disability can mean you're able to choose whether or not to disclose your disability status, but being able to "pass" as a non-disabled person can also mean your access needs are often ignored completely.

A Fibromyalgia Patient's Ten Strategies For Healing
Wednesday 7 January 2015: A post on Cort Johnson's Health Rising blog in which Fibromyalgia sufferer Darden Burns outlines her strategies for dealing with the disease.

'The Chronic Fatigue Changed Everything': House Rules Host Johanna Griggs Opens Up
Tuesday 6 January 2015: A profile of Australian media personality Johanna Griggs.

AVACEN Medical Launches $2M Campaign In Response To Positive Outcomes Of Fibromyalgia Study
Monday 5 January 2015: US medical company AVACEN Medical announced that it has launched a $2 million campaign on Crowdfunder.com to support further company clinical trials and FDA applications.

New Studies Find Causes Of Fibromyalgia, Offer Hope Of Relief
Sunday 4 January 2015: Two new studies on Fibromyalgia focus the problem on the thyroid, pituitary and hypothalamus, and suggest new avenues of relief for sufferers.

Can A Vegan Diet Help Fibromyalgia Patients?
Saturday 3 January 2015: A study from researchers in the United States found that a vegan diet can help some Fibromyalgia patients.

First Of Many Homes For South Australians With Disability
Friday 2 January 2015: The first eight of 135 new homes for South Australians with disability have been completed for the newly-established disability housing organisation, Access 2 Place Ltd.

Happy New Year
Thursday 1 January 2015: All of us here at ME/CFS Australia (SA) Inc wish you a Happy New Year.


In the News – 2014

In the News – 2013

In the News – 2012

In the News – 2011

In the News – 2010

In the News – 2009

In the News – 2008

In the News – 2007

In the News – 2006

In the News – 2005 and earlier

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