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ME/CFS Australia Ltd

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Registered Charity 698


Mailing address:
PO Box 28,
South Australia 5007

266 Port Road,
South Australia 5007
Ph: 1300 128 339

Office Hours:
Wednesdays, 10am-3pm

Fibromyalgia SA
at the
Arthritis Foundation of SA
118 Richmond Road,
Marleston 5033
Ph: (08) 8379 5711

ME/CFS Australia (SA) Inc supports the needs of sufferers of Myalgic Encephalomyelitis, Chronic Fatigue Syndrome and related illnesses. We do this by providing services and information to members.


ME/CFS Australia (SA) Inc aims to keep members informed of the various research projects, diets, medications, therapies etc. All communication, both verbal and written, is merely to disseminate information and not to make recommendations or directives.

Unless otherwise stated, the views expressed on this Web site are not necessarily the official views of the Society or its Committee and are not simply an endorsement of products or services.

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In the News


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Muscle Strength And Flexibility Linked To Pain For Women With Fibromyalgia
Sunday 22 November 2015: A study released earlier in the year found that Fibromyalgia patients who took more steps each day experienced less pain.

Interview With Online Entrepeneur and ME/CFS Sufferer Lizzy Goddard
Saturday 21 November 2015: An interview with UK online entrepeneur Lizzy Goddard.

Reporter Excoriates Chronic Fatigue Syndrome Study: I Stopped At 14,000 Words – Enough Was Enough
Friday 20 November 2015: An article by journalist David Tuller about his work analysing the UK's PACE Trial.

ME Association Settles Differences With Daily Telegraph Over PACE Trial Reporting
Friday 20 November 2015: The UK's ME Association and the Daily Telegraph have settled their differences about the paper’s coverage of the latest PACE Trial follow-up paper on October 28 – with both sides agreeing that stories that appeared that day contained inaccuracies that were not supported by the evidence.

New Approach To Fibromyalgia Tackles Poor-Quality Sleep
Thursday 19 November 2015: For patients with Fibromyalgia, directing treatment toward nonrestorative sleep, a key feature of the syndrome, leads to improvements in other symptoms of the disease, including pain, according to two analyses of data from the phase 2b placebo-controlled BESTFIT study.

Determining Biomarkers For A Diagnostic Test Of ME/CFS
Thursday 19 November 2015: Research from New Zealand's University of Otago.

Australian Senator Questions Government On Lack Of Action On ME/CFS
Wednesday 18 November 2015: West Australian Senator and deputy leader of the Greens party, Scott Ludlam, has asked the Australian Government what they are doing for people with myalgic encephalomyelitis.

MitoQ Trial For Chronic Fatigue Syndrome, Fibromyalgia And Mitchondrial Disorders Begins
Wednesday 18 November 2015: Charles Moore asks "Could mitochondrial problems be key to explaining CFS/FM symptoms?".

Fibromyalgia: Milnacipran Outcomes, Potential Biomarker For Treatment
Tuesday 17 November 2015: A new study analyzed multiple areas of Fibromyalgia including pain, brain characteristics, and medication efficacy, which resulted in some very telling conclusions.

Claire Fabb's Battle With Chronic Fatigue Syndrome
Monday 16 November 2015: A profile of Australian fashion stylist and ME/CFS sufferer Claire Fabb.

No Sound Evidence To Support Use of Cannibinoids
Monday 16 November 2015: There is "no sound evidence" for clinicians to recommend that patients with rheumatic diseases take cannabinoid treatments, according to a review published online November 9 in Arthritis Care & Research.

An Open Letter To Dr. Richard Horton And The Lancet
Sunday 15 November 2015: An open letter from six leading ME/CFS researchers in response to the medical journal The Lancet publishing the PACE Trial results.

The PACE Trial: A Time For Reflection – A Time For Retraction
Sunday 15 November 2015: An editorial from UK website Invest in ME.

ME Isn't Just 'Exercise Phobia': It's A Physical Illness
Sunday 15 November 2015: An article by Tanya Marlow about ME/CFS in the UK.

Hope For Chronic Fatigue Syndrome
Sunday 15 November 2015: An article by US journalist Julie Rehmeyer about the latest developments in ME/CFS research.

Society Annual General Meeting
Saturday 14 November 2015: The society's Annual General Meeting is today, Saturday 14 November at 1:30 pm in Sophia House, Cumberland Park.

Francis Collins Gets It About Chronic Fatigue Syndrome On Charlie Rose Show
Saturday 14 November 2015: A video of Francis Collins, director of the US National Institutes of Health, in which he talks about the need for more funding for ME/CFS.

More Is Better: Rituximab Trial Boosts Hopes For Chronic Fatigue Syndrome
Friday 13 November 2015: An in-depth article by Cort Johnson about Rituximab, an anti-cancer drug that may prove helpful for people with ME/CFS.

Time To Swot Up On Chronic Fatigue
Friday 13 November 2015: Future general practitioners need to be made aware that “psychosomatic” should not be the default suspicion when presented with ME/CFS.

US Family Battles With Son's Mysterious Chronic Fatigue Syndrome
Friday 13 November 2015: A world-famous Stanford scientist is working to unravel a mysterious disease that is hard to diagnose and even harder to treat, and the patient is his son.

Society News: New Volunteers
Thursday 12 November 2015: A message from the society's management committee about a new surge in volunteers.

Society Annual General Meeting Reminder
Thursday 12 November 2015: A reminder that the society's Annual General Meeting will be held this Saturday, 14 November at 1:30 pm in Sophia House, Cumberland Park.

Fighting Over Fatigue
Thursday 12 November 2015: Virginia Gewin investigates how people can do medical research on Chronic Fatigue Syndrome when divisions between patients, doctors and researchers are almost as chronic and painful as the disease itself.

Chronic Fatigue Syndrome Recognized At Last
Thursday 12 November 2015: After 30 years of neglect, the US federal government has promised to bolster research on ME/CFS – the equivalent of promising to help multiple sclerosis or Parkinson’s, two other important neurological diseases with no known cause or cure.

Save The Gottfries Clinic
Wednesday 11 November 2015: A petition from #MEAction to help stop the closure of the Gottfries clinic in Sweden, which specialises in the treatment of ME/CFS patients.

UK Teen With Chronic Fatigue Syndrome Awarded Funding To Battle Illness
Wednesday 11 November 2015: A UK teenager who has been fighting for treatment after being diagnosed with ME/CFS more than a year ago says his life has been turned around after finally been awarded funding.

Not Just Tired! Oprah Features Chronic Fatigue Syndrome In "O"
Wednesday 11 November 2015: Cort Johnson highlights a feature article about ME/CFS in Oprah Winfrey's O magazine.

Trial By Error, Continued: Why has the PACE Study’s "Sister Trial" been "Disappeared" and Forgotten?
Wednesday 11 November 2015: An investigation by David Tuller.

Doctor's Diary: It's Too Good To Be True That Exercise Can Help Chronic Fatigue Syndrome Sufferers
Tuesday 10 November 2015: An article published in UK newspaper The Telegraph.

Missing Link Found Between Brain, Immune System – With Profound Disease Implications
Tuesday 10 November 2015: In a stunning discovery that overturns decades of textbook teaching, researchers at the University of Virginia's School of Medicine have discovered that the brain is directly connected to the immune system by vessels previously thought not to exist.

"Walk" In My Shoes
Monday 9 November 2015: Australian disability advocate Di Lyons is asking people to "put a politician in a wheelchair for a day", for International Day of People with Disability on 3 December 2015.

European Union Agency Finds Syndromes Not Caused By HPV Vaccine
Monday 9 November 2015: The European Union's Pharmacovigilance Risk Assessment Committee has found that available evidence does not support the view that Complex Regional Pain Syndrome and Postural Orthostatic Tachycardia Syndrome are caused by HPV vaccines.

UK Government Orders Release Of PACE Trial Data
Sunday 8 November 2015: The UK's Information Commissioner's Office (ICO) has ordered the Queen Mary University of London to release anonymized PACE trial data to an unnamed complainant.

You Aren't Entitled To An Opinion On My Chronic Illness
Sunday 8 November 2015: An op-ed piece by UK journalist, broadcaster, and disability activist Rosie Fletcher.

ME/CFS Webinar: Gene Expression And Exercise
Saturday 7 November 2015: A video in which Dr. Lucinda Bateman talks about gene-expression and exercise in people with ME/CFS.

Exhibit Showcases Health Care Obstacles For Chronic Pain Sufferers
Saturday 7 November 2015: An article from Canadian news outlet the Waterloo Region Record.

Analysing Biological Rhythms In Fibromyalgia
Friday 6 November 2015: Research published in the West Indian Medical Journal.

Planning My Life Around Chronic Fatigue Syndrome
Friday 6 November 2015: An article by New Zealand ME/CFS sufferer Emma Williamson about her life with the disease.

Research Highlights Altered CNS Processing For Fibromyalgia Patients
Friday 6 November 2015: A new German study in BMC Neurology, using functional near-infrared spectroscopy on the brain, has discovered altered central nervous processing in patients with Fibromyalgia, as well as a distinction between Fibromyalgia and major depression.

Eight-Year-Old Girl With ME/CFS Battles Both Illness And Ignorance
Thursday 5 November 2015: A profile of eight-year-old UK ME/CFS sufferer Kaylah Davies.

The Tragic Neglect Of Chronic Fatigue Syndrome
Thursday 5 November 2015: An article in The Atlantic about the state of funding for ME/CFS.

Solving The Mysteries Of Fibromyalgia Could Help Patients Break Free
Wednesday 4 November 2015: The latest research into Fibromyalgia from the University of Alabama.

Sleep Quality And The Treatment Of Intestinal Microbiota Imbalance In Chronic Fatigue Syndrome: A Pilot Study
Wednesday 4 November 2015: Research published in the medical journal Sleep Science.

Influenza Vaccination Is Safe And Effective In Patients Suffering From Fibromyalgia Syndrome
Wednesday 4 November 2015: Research published in the medical journal Reumatismo.

Painful Reminder: "Fibromyalgia Strips Away Your Self Esteem"
Wednesday 4 November 2015: A profile of Irish Fibromyalgia sufferer Claire Jackson.

Uninterpretable: Fatal Flaws In PACE Chronic Fatigue Syndrome Follow-Up Study
Tuesday 3 November 2015: An article by James Coyne in The Seattle Star about the controversy surrounding the UK's PACE Trial recommendations.

Often Bedridden For 25 Years, Advocate Welcomes NIH Move On Fatigue Syndrome
Tuesday 3 November 2015: An article by Rivka Solomon about the state of ME/CFS research in the US.

UK Newspaper The Spectator Argues With Itself
Tuesday 3 November 2015: Two conflicting articles from The Spectator about the PACE Trial.

Unique NHS Service Launched To Combat Long-Term Fatigue
Tuesday 3 November 2015: A new fatigue clinic in UK city Newcastle will treat fatigue patients and carry out research.

Chronic Fatigue Sufferers Need Help And More Research – Not Misleading Headlines
Monday 2 November 2015: An article from The Guardian that discusses the fallout from the PACE Trial.

Chronic Fatigue Linked To Abnormal Brain Connectivity At Rest
Monday 2 November 2015: A recent study has shown that patients with chronic fatigue have decreased signaling and communication between specific brain regions when the brain is at rest.

Serum Immune Proteins In Moderate And Severe ME/CFS Patients
Monday 2 November 2015: Research from the National Centre for Neuroimmunology and Emerging Diseases at Griffith University in Queensland.

The Last Great Medical Cover Up
Sunday 1 November 2015: A 36-minute documentary about ME/CFS in the UK, featuring interviews with six sufferers.

"No One Chooses To Have ME – Everything Changed When I Became Ill"
Sunday 1 November 2015: As a new UK study suggests that ME can be beaten through therapy and exercise, long-term sufferer Tom Kindlon says it's not that simple.


A Boost For Chronic Fatigue Syndrome Research
Saturday 31 October 2015: The US National Institutes of Health has announced that it will strengthen its efforts to find the roots of ME/CFS.

You Can't Just Wish Chronic Fatigue Syndrome Away. I'm The Terrible Proof
Saturday 31 October 2015: An article by UK ME/CFS sufferer Jill Stratton about her life with the disease.

Capsaicin For Fibromyalgia And Chronic Fatigue Syndrome
Saturday 31 October 2015: An article about the potential benefits of using capsaicin topical cream for the relief of Fibromyalgia and ME/CFS symptoms.

PACE Trial Controversy Grows
Friday 30 October 2015: The UK's #MEAction Network covers the growing controversy regarding the publication of the PACE Trial.

Karina Hansen Spends Third Birthday Institutionalized
Friday 30 October 2015: An article about the current situation regarding Danish ME/CFS sufferer Karina Hansen.

UK News Article About ME/CFS Ignores Reality, Evidence
Thursday 29 October 2015: UK newspaper The Telegraph says the Oxford University has found Chronic Fatigue Syndrome is not actually a chronic illness and sufferers can overcome symptoms by increasing exercise and thinking positively.

US ME/CFS Researcher Nancy Klimas Receives Award
Thursday 29 October 2015: Nova Southeastern University Executive Vice President and Provost Ralph V. Rogers Jr., Ph.D., recently presented Nancy Klimas, M.D., with the 5th Annual Provost’s Research and Scholarship Award.

No, It Isn't All In Your Head
Wednesday 28 October 2015: An article by Steve Lubet in US law blog The Faculty Lounge.

Singapore Cyclist Dinah Chan Recovering From Chronic Fatigue Syndrome
Tuesday 27 October 2015: Cyclist Dinah Chan was diagnosed with chronic fatigue syndrome in July, which caused her to experience prolonged periods of exhaustion, but says she is now 75 per cent fit.

Foundation of Fibromyalgia Is Altered Central Nervous System, New Study Validates
Monday 26 October 2015: A new study validates the recent finding that Fibromyalgia appears to originate from the central nervous system.

Investigative Reporter Shreds PACE CBT/GET Trial
Sunday 25 October 2015: Health Rising's Cort Johnson discusses the recent in-depth analysis of the UK PACE trial by journalist David Tuller.

Interview With Stuart Murdoch
Saturday 24 October 2015: An interview with Stuart Murdoch, the lead singer and chief songwriter of Scottish pop band Belle and Sebastian, who suffers from ME/CFS.

A Mother Daughter Team Fights Fibro, RA, CRPS, And More
Friday 23 October 2015: A profile of Elaine Gomez and her daughter, Michelle DeMont, who suffers from Fibromyalgia and other diseases.

Chronic Illness Doesn't Define Me
Thursday 22 October 2015: An article by Lucy Brown about her life with Fibromyalgia.

Can ME/CFS Be Caused By Lyme Disease?
Wednesday 21 October 2015: An article by American ME/CFS specialist Dr David S Bell.

Perth Researchers Examine Whether Local Ticks Cause Lyme Disease In Australia
Tuesday 20 October 2015: A national study led by a Perth-based researcher could be one step closer to ending the Lyme disease debate in Australia for good.

A New Case Definition Of Neuro-Inflammatory And Oxidative Fatigue
Monday 19 October 2015: A study entitled "A new case definition of Neuro-Inflammatory and Oxidative Fatigue (NIOF), a neuroprogressive disorder, formerly known as chronic fatigue syndrome or Myalgic Encephalomyelitis: results of multivariate pattern recognition methods and external validation by neuro-immune biomarkers".

Abnormal Resting-State Functional Connectivity In Patients With ME/CFS
Sunday 18 October 2015: A study that investigated the association between fatigue and altered resting-state functional connectivity in ME/CFS.

Passion And Pain: Photographer Trains Human Trafficking Survivors
Saturday 17 October 2015: A profile of US photographer and Fibromyalgia sufferer Brooke Shaden.

Scottish Mum Tells Of Son's ME Diagnosis Battle
Friday 16 October 2015: A look at the state of healthcare for ME/CFS sufferers in Scotland through the eyes of Laura McHard, the mother of 19-year-old ME/CFS sufferer, Sam Boyd.

Voices: What It's Like To Live With An Invisible Disability
Thursday 15 October 2015: A look at how schools in the US accommodate students with invisible disabilities such as Fibromyalgia.

Aerobic Energy Production And Lactic Acid Excretion Impeded In ME/CFS
Wednesday 14 October 2015: A study published in the Journal of Neurology and Neurobiology.

Combination Of Strategies Reduces Fibromyalgia Symptoms In Adolescents
Tuesday 13 October 2015: Intensive physical therapy and occupational therapy coupled with psychotherapy can significantly improve pain and function among youth with Fibromyalgia, according to a study of teenagers who participated in a program designed to treat the condition without the use of drugs.

Institute Of Medicine Diagnostic Criteria Redeemed?
Monday 12 October 2015: Health Rising's Cort Johnson discusses ME/CFS researchers Nancy Klimas and Leonard A Jason's response to the US Institute of Medicine's report, Beyond Myalgic Encephalomyelitis/ Chronic Fatigue Syndrome: Redefining an Illness.

Chronic Fatigue Syndrome: What Is It Really Like?
Sunday 11 October 2015: An article by Athena Hobson.

Study Finds Medical Marijuana Safe And Effective For Chronic Pain Relief
Saturday 10 October 2015: A research team led by Dr. Mark Ware from the McGill University Health Centre in Montréal, Canada has found that chronic pain patients who used cannabis daily for one year, when carefully monitored, had no increase in serious adverse events compared to pain patients who did not use cannabis.

Fibromyalgia Aggravates Pain And Cognitive Capabilities Of Chronic Fatigue Syndrome Patients
Friday 9 October 2015: A team of researchers from Vrije Universiteit Brussel and the University of Antwerp, in Belgium, found that Fibromyalgia increases the disability of Chronic Fatigue Syndrome patients.

UK Mum Is Learning To Live With An Incurable Condition
Thursday 8 October 2015: A profile of UK ME/CFS sufferer Julie Cushion.

"I'm 27 And Sleep 20 Hours A Day – This Illness Has Affected Everything In My Life"
Wednesday 7 October 2015: A profile of Scottish ME/CFS sufferer Kevin McKinlay.

With His Son Terribly Ill, A Top Scientist Takes On Chronic Fatigue Syndrome
Tuesday 6 October 2015: A profile of Ronald W. Davis, a US genetic scientist trying to solve the mystery of ME/CFS.

An Interview With Jon Kaiser – Supporting Mitochondrial Function In ME/CFS
Monday 5 October 2015: An interview with US doctor Jon Kaiser, MD, about the formation of his company, K-PAX Pharmaceuticals, and its latest products, specificall designed to support mitochondrial function in ME/CFS patients.

Forgotten Plague: A Must See Documentary
Sunday 4 October 2015: An article that takes a look at the documentary Forgotten Plague: M.E. and the Future of Medicine.

The US Health Care Industry Finally Recognises Fibromyalgia
Saturday 3 October 2015: On October 1, 2015, Fibromyalgia will finally be recognized as an official diagnosis in the new ICD-10 list of codes being adopted across the US.

6 Reasons Why Trigger Point Injections Aren't Helping Your Fibromyalgia
Friday 2 October 2015: An article by registered nurse Celeste Cooper about the difference between a tender point and a trigger point, and how injections in one might not help the other.

Fibromyalgia Linked To Deficiencies In RBC Magnesium, IGF-1
Thursday 1 October 2015: Patients with Fibromyalgia show deficiencies in red blood cell (RBC) magnesium and insulin-like growth factor 1 (IGF-1), a small study shows, suggesting potential clues to underpinnings of the condition and avenues for treatment.


Irish Woman To Run For Fibromyalgia Awareness
Wednesday 30 September 2015: Fibromyalgia sufferer Dawn McEvoy will tackle her very first 5km run when she takes part in Belfast Telegraph Titanic Runher.

Natural Killer Cells In ME/CFS and Multiple Sclerosis
Tuesday 29 September 2015: Research published in the Scandinavian Journal of Immunology.

ME/CFS: Characteristics Of Responders To Rintatolimod (Ampligen)
Monday 28 September 2015: Research published in Sci Forschen: Journal of Drug Research and Development.

Not Just Any Road Project
Sunday 27 September 2015: The frustrations of residents living on a dusty road in the US filled with washboard ruts and potholes are being pitted against a husband and wife’s concerns about her chemical sensitivity, and what they say could be a life-threatening reaction to asphalt work.

Ultrasound For Pain Therapy Discussed At PAINWeek Conference
Saturday 26 September 2015: Ultrasound technology has been used for decades in medical imaging of soft-tissue structures and bony surfaces, but its potential for use in managing pain — particularly chronic pain — is being less than fully exploited, according to some pain experts.

Vitamin D Levels Linked To Fibromyalgia Pain
Friday 25 September 2015: Low levels of serum vitamin D were associated positively with patients with Fibromyalgia who had chronic, widespread pain, according to the results of a recently published meta-analysis.

The New Technique That Finds All Known Viruses In Your Blood
Thursday 24 September 2015: An article about the latest developments in virus detection, developed by ME/CFS specialist Ian Lipkin at Columbia University in the US.

Phones 4U Founder John Caudwell 'Devastated' After Family Is Diagnosed With Lyme Disease
Wednesday 23 September 2015: John Caudwell, founder of the UK company Phones 4U, has spoken of his devastation after his ex-wife and children were all diagnosed with Lyme disease, a rare and debilitating bacterial infection.

Chronic Fatigue Treatment Inadequate, Says Doctor
Tuesday 22 September 2015: Prominent British doctor, Dr Charles Shepherd, has spoken about the lack of treatment options for Chronic Fatigue Syndrome sufferers on the Isle of Man.

Fibromyalgia Tied To Hysterectomy, Gynecologic Disease
Monday 21 September 2015: A study published in mid-2015 shores up the link between gynecologic surgery and Fibromyalgia onset.

No Unusual Activity With Lactic Acid Seen In Patients With Fibromyalgia, Migraine
Sunday 20 September 2015: According to a recently published study, patients with Fibromyalgia, migraine or both did not exhibit any differences in the metabolism of lactic acid before, during or after aerobic or anaerobic exercise compared to healthy volunteers.

Study Shows Immune Differences In Moderate And Severe CFS/ME
Saturday 19 September 2015: Griffith University researchers have looked at the immune systems of patients with moderate and severe CFS/ME once, then again six months later, and the study has been published in the Journal of Translational Medicine.

Ultrasonography Useful In Deciding Treatment For FM/RA Patients
Friday 18 September 2015: Ultrasonograph research suggests that disease activity scores in patients with Rheumatoid Arthritis and concomitant Fibromyalgia may be artificially inflated due to pain and patient distress.

Female Pain: Living With An Illness That No One Believes In
Thursday 17 September 2015: An essay on the social effects of Fibromyalgia.

Hemispherx Biopharma Reports Low NK Cell Activity In Chronic Fatigue Syndrome
Wednesday 16 September 2015: US drug company Hemispherx Biopharma has announced the publication of an article entitled "Low NK Cell Activity in Chronic Fatigue Syndrome (CFS) and Relationship to Symptom Severity" in which 17 studies were reviewed that evaluated NK cell cytotoxicity (NKCC) data and the relationship to CFS.

Chiropractic Foundation And National Fibromyalgia Association Collaborate At Chronic Pain Conference
Tuesday 15 September 2015: The National Fibromyalgia & Chronic Pain Association and the International Myopain Society have collaborated to create the Inaugural Treating and Preventing Chronic Pain Conference to be held in October 2015 in the US.

Mayor Of Reading Raising Fibromyalgia Awareness
Monday 14 September 2015: A UK mayor is hosting an evening reception in support of National Fibromyalgia Awareness Week.

Battling Chronic Fatigue
Sunday 13 September 2015: A feature article on ME/CFS published in The Australian Women's Weekly magazine.

Chronic Fatigue: A Call For Real Answers To A Real Disease
Saturday 12 September 2015: An article by Shannon Firth of MedPage Today about the state of ME/CFS in the US.

People's Campaign For Preventing Chronic Pain
Friday 11 September 2015: The International Myopain Society and the National Fibromyalgia and Chronic Pain Association have initiated the People’s Campaign for Preventing Chronic Pain to support helping every person who has or will have chronic pain.

Over 30% Of Patients With Primary Sjögren's Syndrome May Have Fibromyalgia
Friday 11 September 2015: Overlapping Fibromyalgia may be present in 30% or more of patients with primary Sjögren’s syndrome based on the American College of Rheumatology 2010 criteria, but only 19% of the same patients met 1990 criteria, according to the results of a study.

The Impact Of Chronic Fatigue Syndrome On Cognitive Functioning In Adolescents
Thursday 10 September 2015: Research published in the European Journal of Pediatrics.

Fibromyalgia In Children: No Medication Required
Thursday 10 September 2015: An article by Dr David Sherry, director of the Amplified Pain Program at The Children's Hospital of Philadelphia.

UniSA Seeking Participants For Adelaide ME/CFS Research
Wednesday 9 September 2015: The University of South Australia is about to conduct ME/CFS research and is calling for participants.

Hormonal Changes May Affect Fibromyalgia Onset
Wednesday 9 September 2015: To determine if the clinical features and timing of hormonal changes have a relationship in a cohort of ethnically diverse individuals, a group of US researchers conducted a year-long review of Fibromyalgia patients.

Otago University Locals Programme Raises Funds For Fibromyalgia Foundation In Bake Sale
Tuesday 8 September 2015: A New Zealand university's "Locals" programme raised over $700 for Fibromyalgia Foundation as part of their fundraising campaign for the charity.

Multidisciplinary Treatment Versus CBT For Patients With ME/CFS
Tuesday 8 September 2015: The results of a study entitled "Multidisciplinary rehabilitation treatment versus cognitive behavioural therapy for patients with chronic fatigue syndrome: a randomized controlled trial".

Daytime Napping Associated With Increased Symptom Severity In Fibromyalgia Syndrome
Monday 7 September 2015: A study that explored how people use daytime naps and to determine the links between daytime napping and symptom severity in Fibromyalgia.

Stage Your Screening Of Forgotten Plague
Monday 7 September 2015: The ME/CFS documentary, Forgotten Plague, can be screened in a variety of places depending on demand.

New Research Gives Insight Into Chronic Fatigue Syndrome
Sunday 6 September 2015: Researchers have discovered that critical cell receptors are damaged in people who suffer from ME/CFS.

Bestselling Author's Latest Novel Features Girl With ME/CFS
Sunday 6 September 2015: The latest novel by Irish crime fiction author John Connolly features a character with ME/CFS.

New Business In The UK Says Floating Therapy Can Help
Saturday 5 September 2015: UK MP Alok Sharma visited a new business in Pangbourne which could help people with Fibromyalgia.

Ian Lipkin Gets ME/CFS Grant – And So Do Others: The NIH Grants Of 2015
Friday 4 September 2015: A report by Cort Johnson on the state of funding for ME/CFS research by the US National Institutes of Health.

New Book From Dr Rosamund Vallings
Thursday 3 September 2015: New Zealand ME/CFS specialist Dr Rosamund Vallings has published a book entitled Managing ME/CFS: A Guide for Young People.

Megan Schartner's Foggy Frog And The Pain Gang Helps To Explain Chronic Fatigue And Constant Pain
Wednesday 2 September 2015: A profile of South Australian ME/CFS sufferer, and now children's author, Megan Schartner.

Interview With Australian ME/CFS Researcher Professor Don Staines
Tuesday 1 September 2015: An interview with Professor Don Staines on Australian radio station 612 ABC Brisbane.


The ME/CFS Severely Ill Big Data Study – Update
Monday 31 August 2015: The latest in the Open Medicine Foundation's ME/CFS Severely Ill Big Data Study, as part of the End ME/CFS Project.

New Potential Therapeutic Strategy For Severe Pain Based On Nanorods
Sunday 30 August 2015: Researchers at Kyoto University’s Institute for Integrated Cell-Material Sciences in Japan recently reported a novel technique with potential therapeutic relevance for the management of pain.

Juvenile Fibromyalgia: Intensive Therapy Relieves Pain
Saturday 29 August 2015: Children with Fibromyalgia experienced significant improvements in pain and function without medications after an intensive program of physical therapy, occupational therapy, and psychosocial services, according to a new study.

A Doctor Treating Fibromyalgia Who Also Has Fibromyalgia
Friday 28 August 2015: An interview with US Fibromyalgia specialist and sufferer Ginevra Liptan, MD.

Duloxetine Effective For Fibromyalgia Patients In Japan
Thursday 27 August 2015: A study recently published in the journal Arthritis Research & Therapy revealed new data from a phase III clinical trial showing that duloxetine (Cymbalta) is a safe and effective therapy for Fibromyalgia patients.

Fibromyalgia – Does Melatonin Help?
Wednesday 26 August 2015: An article about the use of melatonin to help alleviate sleep problems in people with Fibromyalgia.

Southern Research Receives $4.5M NIH Grant To Develop Opioids With Milder Side Effects
Tuesday 25 August 2015: US drug research company Southern Research was recently awarded a grant from the National Institute on Drug Abuse of the National Institutes of Health to fund the development of opioid drugs for chronic pain.

NeuroMetrix Reports Positive Preliminary Results On Quell Wearable Pain Relief Device For Chronic Pain
Monday 24 August 2015: Healthcare company and wearable medical device developer, NeuroMetrix, Inc., has just announced it arrived at positive preliminary clinical trial results with Quell Wearable Pain Relief, an easy-to-use, over-the-counter device for chronic pain.

How Poetry Can Empower People Living With Chronic Illness
Sunday 23 August 2015: For Camisha Jones, the managing director of US-based poetry organization Split This Rock, poetry helped give voice to the experience of chronic illness.

Researchers Find Potential Targets To Improve Sleep In Patients With Fibromyalgia
Sunday 23 August 2015: In a new study published in the Journal of Neurophysiology, researchers constructed a computational model that recreated the sleep patterns observed in patients with Fibromyalgia to understand how the abnormal patterns arose.

Primary Health Care Review – Online Survey
Saturday 22 August 2015: Painaustralia is asking people to complete an online survey about pain management.

Suffering In Silence
Saturday 22 August 2015: A profile of Canadian Fibromyalgia sufferer Leah, who will participate in the "Just One More Step" Fibromyalgia awareness walk.

Lobbyists Seek New Funds For Chronic Fatigue Syndrome Research
Friday 21 August 2015: Patient advocates and scientists have joined forces in a new campaign to boost research funding for the mysterious and debilitating disease ME/CFS.

For Disabled Music Writer, A Note Of Hope
Thursday 20 August 2015: An article about a concert being held to help US music journalist and ME/CFS sufferer, Kevin Ransom.

How This Couple Fought Through Illness To Find A New Destiny
Wednesday 19 August 2015: A profile of chronically ill couple Randy Ordonio and Franky Dolan.

Melatonin Helps Fibromyalgia Pain: A Double-Blind Study
Tuesday 18 August 2015: Melatonin is popularly used as a sleeping pill, but several double blind studies suggest that Melatonin might also help in combating Fibromyalgia pain.

Lack Of Sleep May Exacerbate Chronic Illnesses
Monday 17 August 2015: Getting a good night's sleep can be difficult for the average person, but for those living with chronic illness the struggle can be much worse.

Gender Differences In Chronic Fatigue Syndrome
Sunday 16 August 2015: A study from Spain that aimed to assess whether there are gender-related differences in CFS, and to define a clinical phenotype in men.

Time To Recognise Chronic Pain With Effective Health Policy
Saturday 15 August 2015: People living with chronic pain, and the health professionals working to help them, have a one-off chance to tell their stories and make recommendations to a federal parliamentary inquiry into the management of chronic disease in Australia.

Latest Non-Invasive Medical Treatment Stimulates Neurons To Reduce Symptoms Of Fibromyalgia
Friday 14 August 2015: In a unique double-blind study, the Monash Alfred Psychiatry Research Centre (the Research Centre) is investigating the clinical potential of repetitive Transcranial Magnetic Stimulation (rTMS), a non-invasive treatment that uses magnetic fields to stimulate neurons in the brain, for the treatment of Fbromyalgia.

Myofascial Pain Syndrome And Fibromyalgia: Similar Symptoms, Distinct Diseases
Thursday 13 August 2015: An article on the similarities and differences between myofascial pain syndrome and Fibromyalgia.

Fibromyalgia Symptoms May Mimic High Disease Activity In Patients With RA
Wednesday 12 August 2015: Symptoms of Fibromyalgia may mimic high disease activity in patients with rheumatoid arthritis, according to recently presented data.

Jade Plans To Fight Through The Pain On 200-Mile Walk
Tuesday 11 August 2015: An aricle about Jade Pierce, a Welsh woman with Fibromyalgia who plans to walk 150 miles (241 km) across England for charity.

How Social Media Inspired A Chronic Fatigue Sufferer
Monday 10 August 2015: A profile of 19-year-old ME/CFS sufferer Felicity Fernandez.

Humans Of ME/CFS: Share Your Story
Sunday 9 August 2015: The Solve ME/CFS Initiative is launching a campaign to help increase awareness of – and ultimately research funding for – ME/CFS.

Society Seminar Today
Saturday 8 August 2015: One more reminder that the society's next seminar is today (Saturday), 8 August at 1:30 pm in Sophia House, Cumberland Park.

Fibromyalgia: Battling An Invisible Internal Enemy
Saturday 8 August 2015: Australian photographer Desiree Robinson was diagnosed with Fibromyalgia in 2009, and has made a video about the disease.

Fibromyalgia Drinking Therapy Concerns Doctors
Friday 7 August 2015: A new study reveals that drinking therapy may help reduce the symptoms of chronic pain and Fibromyalgia, but doctors are concerned that encouraging patients to drink more alcohol will lead to serious consequences and make their health worse.

Can Car Crashes Cause Fibromyalgia?
Friday 7 August 2015: A new study has found that people with Fibromyalgia had more than double the risk of being in a serious automobile accident, landing them in an emergency room, compared to others.

US Rapper With ME/CFS Releases Music Video
Thursday 6 August 2015: An interview with US rapper and ME/CFS sufferer Trip Lee about his latest music video and book, both of which were made to promote his latest album, Rise.

One More Step For Fibromyalgia
Thursday 6 August 2015: An article about Cheryl Young, a Canadian woman with Fibromyalgia who has created a charity walk called Just One More Step.

Society Seminar Reminder
Wednesday 5 August 2015: A reminder that the society's next seminar will be held this Saturday, 8 August at 1:30 pm in Sophia House, Cumberland Park.

Tramadol/Paracetamol Improves Quality of Life in Chronic Pain Patients
Tuesday 4 August 2015: A study entitled "Impact of Fibromyalgia Pain on Health-Related Quality of Life Before and After Treatment With Tramadol/Acetaminophen" that was published in the journal Arthritis & Rheumatism.

Chronic Fatigue Syndrome Causes Early Menopause, Other Gynecological Problems
Monday 3 August 2015: A new study assessed whether gynecologic conditions are associated with CFS, and the findings published in the August edition of the journal Menopause.

Ex-Squaddie Given £8,000 Of Free Dentistry So He Can Smile At His Wedding
Sunday 2 August 2015: An ex-soldier from Scotland who completed three tours during his military service with the Royal Scots is receiving the ultimate wedding gift – having his smile rebuilt by a team of dental experts.

Aquatic Aerobic Exercise Offers Therapeutic Benefits To Fibromyalgia Patients
Saturday 1 August 2015: Researchers at Cukurova University in Turkey recently revealed that aquatic aerobic exercise offers clinical benefits to patients with Fibromyalgia.


The Next Lyrica?
Friday 31 July 2015: A Japanese drug company, Daiichi Sankyo, is making a huge bet on a new drug called mirogabalin for Fibromyalgia and other diseases.

New HOPE For You And ME
Thursday 30 July 2015: An article by Rich Carson, the founder of ProHealth, a website specialising in ME/CFS/Fibromyalgia news.

Reflections On The Institute Of Medicine's Systemic Exertion Intolerance Disease
Wednesday 29 July 2015: An article by Dr Leonard A Jason about the US Institute of Medicine's recent recommendation to change the name of Chronic Fatigue Syndrome to Systemic Exertion Intolerance Disease.

Watching "Cake" A Painful, But Validating Experience
Tuesday 28 July 2015: An article by Jennelle Janci about her reaction to the movie, Cake, starring Jennifer Aniston as a chronic pain sufferer.

Oral Colostrum For ME/CFS
Monday 27 July 2015: A study entitled "Oral Colostrum Macrophage-activating Factor for Serious Infection and Chronic Fatigue Syndrome: Three Case Reports".

Canadian Drivers With Fibromyalgia More Likely To Be Involved In Serious Traffic Accidents: Study
Sunday 26 July 2015: Canadian drivers who have been diagnosed with Fibromyalgia appear to have an elevated risk of being involved in motor vehicle crashes, even years after their initial diagnosis, research suggests.

New Syndrome Links Anxiety And Physical Disorders
Saturday 25 July 2015: Patients with anxiety disorder may suffer from a range of comorbid physical conditions that constitute a novel syndrome, say US researchers, who claim that the syndrome has been overlooked by physicians who have previously dismissed the connections as simply somatic disorders.

Fibromyalgia Sleep Study
Friday 24 July 2015: A US doctor has published a sleep study that simplifies the diagnosis for Fibromyalgia, could improve pain and stress, as well as address the lack of sleep in patients affected by the syndrome.

Kayla's Recovery Story
Friday 24 July 2015: Reseachers found that people with chronic widespread pain who drank the equivalent of two pints of beer a day were better off than those who did not touch a drop.

Alcohol And Fibromyalgia
Thursday 23 July 2015: Reseachers found that people with chronic widespread pain who drank the equivalent of two pints of beer a day were better off than those who did not touch a drop.

The 50/10 Guide For Fibromyalgia Mobility
Thursday 23 July 2015: An article about strategies to counter stress in people with Fibromyalgia.

Canadian ME/CFS/FM Group In The Running For Good Karma Contest
Wednesday 22 July 2015: Canada's National ME/FM Action Network has been nominated to win $2000 for research in the Karma Wellness Water contest.

Online Tools Help Ease Chronic Pain
Wednesday 22 July 2015: Washington State University researchers have found that people can manage chronic pain and reduce their reliance on opioids through an Internet-based program that teaches non-medical alternatives like increased physical activity, thinking more positively, and dealing with emotions.

US Couple Uses Mustang Week To Raise Fibromyalgia Awareness
Tuesday 21 July 2015: A couple in South Carolina is using Myrtle Beach Mustang Week to raise fibromyalgia awareness by introducing the first "Fibromyalgia Awareness Mustang."

How Persona 3 Helped Me Overcome Chronic Fatigue Syndrome
Tuesday 21 July 2015: An article by Alex O'Neill about how a video game helped him overcome ME/CFS.

Fibromyalgia Common In Sleep Apnea
Monday 20 July 2015: Researchers in Italy recently reported that Fibromyalgia is common among patients with obstructive sleep apnea.

Vitamin D Levels Associated With Fatigue, Musculoskeletal Pain In Patients With Fibromyalgia
Sunday 19 July 2015: Researchers from South Korea have presented study results on vitamin D deficiency in patients with rheumatic diseases such as Fibromyalgia.

Virus Hunters Turn To Social Media – And Chili Peppers
Saturday 18 July 2015: Why were two of the world's most eminent scientific researchers sitting down to munch their way through a plate of chili peppers, flavored with Tabasco sauce, setting their mouths on fire?

Heart Abnormalities In Chronic Fatigue Syndrome
Saturday 18 July 2015: Research is suggesting that ME/CFS is asociated with several irregularities in the heart.

BBC Broadcaster John Darvall on ME/CFS
Friday 17 July 2015: BBC broadcaster John Darvall discusses his reaction to speaking with ME/CFS sufferer Naomi.

Nancy Klimas: This Illness Is Wicked – Myalgic Encephalomyelitis
Friday 17 July 2015: A video featuring Nancy Klimas talking about ME/CFS.

When Fibromyalgia Strikes
Thursday 16 July 2015: An article about the difficulties of life for people with Fibromyalgia in Malta.

The Kaplan Center: Understanding And Treating ME/CFS
Thursday 16 July 2015: Three videos of Dr Gary Kaplan, from The Kaplan Center for Integrative Medicine, talking about ME/CFS.

Neurodynamic Mobilization Alleviates Symptoms Of Fibromyalgia
Wednesday 15 July 2015: According to a new study, a form of exercise called neurodynamic mobilization may be able to help with reducing Fibromyalgia pain and other ailments associated with Fibromyalgia.

B Cell Depletion Benefits ME/CFS Patients
Tuesday 14 July 2015: ME/CFS patients showed clinical improvement after extended treatment with the anti-B-cell monoclonal antibody rituximab.

Cholecalciferol Injection May Help Fibromyalgia
Monday 13 July 2015: Patients with Fibromyalgia may have improvements in fatigue and musculoskeletal pain by increasing vitamin D levels through monthly, intramuscular cholecalciferol injection, according to recently presented research.

Chronic Fatigue Syndrome Saps Its Victims, But New Research May Find The Cause
Sunday 12 July 2015: In this article from California newspaper, Palo Alto Weekly, ME/CFS patients offer first-hand accounts of their illness.

Validity Of Chronic Fatigue Bolstered By Research
Saturday 11 July 2015: An article about the scientific inroads being made with ME/CFS research.

Canadian Resident's Home To Be Rebuilt By Habitat
Friday 10 July 2015: A Canadian woman suffering from Multiple Chemical Sensititivies is having her home rebuilt by Habitat for Humanity.

Fibromyalgia: UK MP Suggests Soap Operas Could Raise Awareness
Thursday 9 July 2015: A UK Member of Parliament is urging writers of hospital soap operas to consider storylines about Fibromyalgia.

How Multiple Chronic Illnesses Shaped One Woman Into A Patient Advocate
Thursday 9 July 2015: A profile of ME/CFS/Fibromyalgia and patient advocate Michele Krisko.

UK Petition Acknowledging Those Suffering From Chronic Illnesses
Wednesday 8 July 2015: A petition on that seeks to alert the UK Government to the plight of the chronically ill.

UK Cracking Down On The Sick And Defenceless
Wednesday 8 July 2015: An article on the potential ramifications of the UK Government's current stance on those with disabilities.

Alternative Lab Tests May Not Reliably Diagnose Lyme Disease
Tuesday 7 July 2015: Detailed clinical and laboratory evaluation cannot distinguish alternatively diagnosed chronic Lyme syndrome diagnosed by alternative laboratory methods from ME/CFS, according to a case-control study.

The Big Joy Of Small Villages
Tuesday 7 July 2015: An item from the BBC about the art of making model villages.

The Advertiser Family Forum
Monday 6 July 2015: A question about ME/CFS in the Family Forum section of the Saturday edition of Adelaide newspaper The Advertiser.

A Pathway To Progress: The Final P2P Report On ME/CFS Highlights Needs
Monday 6 July 2015: An analysis by Cort Johnson of the US National Institutes of Health's "Pathways to Prevention" program which focused on ME/CFS.

Ambrosia Movie
Sunday 5 July 2015: A new Australian film that deals with the psychological impact of chronic pain in a young woman's life.

UK Snooker Players And Their Battles Off The Baize
Saturday 4 July 2015: A profile of UK snooker player Jason Weston who suffers from ME/CFS.

Unintended Consequences Of Not Specifying Exclusionary Illnesses For Systemic Exertion Intolerance Disease
Friday 3 July 2015: A study that investigated the Institute of Medicine's recent proposal for a new case definition for ME/CFS, as well as a new name, Systemic Exertion Intolerance Disease (SEID).

Antibody Wipeout Found To Relieve Chronic Fatigue Syndrome
Thursday 2 July 2015: There have been promising results in a trial of the drug rituximab for ME/CFS patients.

UK ME/CFS Teenager's Support Dog To Have Vital Hip Operation
Wednesday 1 July 2015: A UK teenager with Chronic Fatigue Syndrome who launched a campaign to raise cash for her beloved German Shepherd to have vital hip surgery is over the moon after vets offered to carry out the operation.


Fibromyalgia Considered Lifelong Central Nervous System Disorder
Tuesday 30 June 2015: Fibromyalgia is now considered to be a central nervous system disorder, according to University of Michigan professor of anesthesiology, Daniel J Clauw, MD.

Researchers Compare Twins' DNA To Discover Fibromyalgia Diagnosis
Monday 29 June 2015: Researchers from King's College London are trying to develop an effective strategy to diagnose Fibromyalgia by comparing the DNA of twins in which one has the disease and the other one does not.

Thieves Steal Mobility Scooter, Walking Stick
Sunday 28 June 2015: Australian ME/CFS sufferer Geoffrey Brown, 73, says he has lost his independence after thieves stole his mobility scooter and walking stick from outside his home.

UK ME Sufferers Want To Set Up New Support Group
Saturday 27 June 2015: A new row is erupting over claims ME – or Chronic Fatigue Syndrome – is all in the head.

New Focus On Chronic Fatigue in Australia
Friday 26 June 2015: A renewed focus on improving the diagnosis and management of patients with chronic fatigue has been welcomed, but an Australian expert says there is a long way to go before this complex illness is well understood.

Conflicts Of Interests Affect Fibromyalgia Drug Development
Thursday 25 June 2015: Studies have demonstrated that industry-funded research into Fibromyalgia is linked to an increased probability of pro-industry results.

The Fractured Self: Poetry Of Chronic Illness And Pain
Wednesday 24 June 2015: A proposed anthology of Australia poetry that aims to further the discussion of living with chronic illness or pain.

Diagnostic Methods For ME/CFS – A Systematic Review
Tuesday 23 June 2015: A research paper that reviewed methods to diagnose ME/CFS in adults and identify research gaps and needs for future research.

Extended-Release Gabapentin May Hold Promise For Treatment Of Fibromyalgia
Monday 22 June 2015: A new study has revealed that gabapentin, a drug originally developed to treat epilepsy, may hold promise for treating Fibromyalgia as well.

Norwegian Prime Minister Gives Opening Speech At Awareness Event
Sunday 21 June 2015: The Norwegian Prime Minister, Erna Solberg, opened an arts and crafts exhibition entitled "Creating my freedom", which was organised by the Oslo & Akershus branch of the Norwegian Myalgic Encephalopathy Association and supported by the Norwegian government.

Chronic Fatigue Syndrome And Increased susceptibility To Upper Respiratory Tract Infections And Illnesses
Saturday 20 June 2015: Research that investigates if people with Chronic Fatigue Syndrome are more likely to suffer from upper respiratory tract illnesses than others.

Conscious Crafties
Friday 19 June 2015: Conscious Crafties is a craft buying and selling website for anyone living with chronic illness, disability or caring for those affected.

Chronic Fatigue Syndrome Versus Systemic Exertion Intolerance Disease
Thursday 18 June 2015: A US study paper headed by Dr Leonard A Jason.

Study Assesses Economic Burden Of Fibromyalgia In The US
Wednesday 17 June 2015: A team of scientists recently conducted research to assess the economic burden of those suffering with Fibromyalgia and chronic widespread pain in the United States.

About-To-Be-Dismissed Lawsuit Reveals Details Of Chronic Fatigue Syndrome-XMRV Research Fiasco
Tuesday 16 June 2015: A case filed by Chronic Fatigue Syndrome researcher Judy Mikovits — and about to be dismissed on technical grounds — reveals that Mikovits believes her firing from a research institute was in retaliation for blowing the whistle on activities there.

'She Always Gave Me The Option To Walk Away': Life As A Young Carer For 24-Year-Old Paul Davies
Monday 15 June 2015: A profile of UK carer Paul Davies, and his wife, ME/CFS sufferer Kate.

Recovery Rates For Children With ME/CFS
Sunday 14 June 2015: A study from the US that describes how recovery from paediatric CFS/ME is defined, how many children recover, and how long it takes.

US Football Star Dominique Easley Helps Raise Awareness Of Treatment For Fibromyalgia
Saturday 13 June 2015: US footballer, New England Patriot star Dominique Easley has partnered with the Centers for Integrative Medicine and Healing to educate and generate awareness on Fibromyalgia and an all-natural treatment of Fibromyalgia.

Online Publisher Battles Fibromyalgia Symptoms
Friday 12 June 2015: A profile of Fibromyalgia sufferer, Joe Steck, who is the publisher of online newspaper,

Society Seminar Reminder
Thursday 11 June 2015: A reminder that the society's next seminar will be held this Saturday, 13 June at 1:30 pm in Sophia House, Cumberland Park.

A Simple Bacteria May To Be Blame For Unexplained Inflammatory Conditions
Wednesday 10 June 2015: The National Treatment Centers for Environmental Disease has made a discovery about a condition called endotoxemia, which may help in the diagnosis and/or treatment of a variety of inflammatory syndromes such as ME/CFS, Irritable Bowel Syndrome, Crohn’s Disease etc.

Nelly Battles Chronic Fatigue To Become A Published Author
Tuesday 9 June 2015: A profile of UK ME/CFS sufferer Nelly Harper, who has published her first book.

New Blood Test Can Identify Every Virus You've Ever Had
Monday 8 June 2015: Researchers say a new blood test can pinpoint all the viruses in your body and may help explain the causes of complex diseases like type 1 diabetes and chronic fatigue syndrome.

ME/CFS And Fibromyalgia As Functionally Impairing As Major Diseases In Medical World
Sunday 7 June 2015: An in-depth look by Cort Johnson at ME/CFS, Fibromyalgia, and other diseases classified as "functionally somatic syndromes", meaning that they have an unexplained pathology.

Report Finds Graded Exercise Therapy Worsens Symptoms Of ME/CFS
Saturday 6 June 2015: An extensive article from the UK on why Cognitive Behavoural Therapy, Graded Exercise Therapy, and pacing are harmful to ME/CFS patients.

US Biotech Firm Agrees To Pay $2.75M Settlement
Friday 5 June 2015: A Philadelphia biotechnology company has tentatively agreed to pay $2.75 million to resolve a lawsuit brought by its shareholders, who allege the company made “material misrepresentations and omissions” regarding the status of a new drug application for its lead new drug candidate, Ampligen.

Hyperbaric Hope For Fibromyalgia Sufferers
Thursday 4 June 2015: Women who suffer from Fibromyalgia benefit from a treatment regimen in a hyperbaric oxygen chamber, according to researchers at Rice University and institutes in Israel.

UK ME/CFS Teenager Sophie Perkins In Desperate Bid To Raise Money For Beloved Pet Hunter
Wednesday 3 June 2015: A UK teenager who suffers from ME/CFS is desperately trying to raise £9,000 for her beloved German Shepherd dog who needs two hip operations.

Tai Chi Practice Can Help Fibromyalgia Patients
Tuesday 2 June 2015: A study published in the journal Cell Transplantation demonstrated the benefits of Tai Chi in terms of aging and in Fibromyalgia patients.

'Fibromyalgia Falsehoods, Fakers, And Facts': Author's Interview
Monday 1 June 2015: An interview with Dr. Kenneth Muhich, the author of his book, Fibromyalgia Falsehoods, Fakers, and Facts.


A Father Responds: Riding Hard For ME/CFS Research
Sunday 31 May 2015: Peter Spearing, father of ME/CFS sufferer Stephanie, will be riding 100 kilometers in Tour de l'Île de Montréal cycling event to raise funds for the Simmaron Research Foundation.

Misdiagnosis On A Grand Scale?
Saturday 30 May 2015: An article from the UK about two research papers that back up claims of misdiagnosis with ME/CFS.

Australian Study Pinpoints Possible Gene Issues In Chronic Fatigue Syndrome
Friday 29 May 2015: An article on the work being done at Griffith University's National Centre for Neuroimmunology and Emerging Diseases.

Beckie Butcher's 2012 Book To Be Presented At 2015 LA Pitchfest Event
Thursday 28 May 2015: My Battle with Chronic Fatigue Syndrome, a book by US ME/CFS sufferer Beckie Butcher, will be featured at the Book-to-Screen Pitchfest Los Angeles 2015 event.

New Group Intervention Program Improves Self-Management Of Fibromyalgia
Wednesday 27 May 2015: A study recently published in the journal PLoS One showed that a group intervention program called PASSAGE was effective in helping patients with Fibromyalgia cope with the disease.

Examination Of Single Nucleotide Polymorphisms In Transient Receptor Potential Ion Channels
Tuesday 26 May 2015: Research headed by Professor Sonya Marshall-Gradisnik at Griffith University's National Centre for Neuroimmunology and Emerging Diseases.

Isabel's Story Of A Life Worth Living
Monday 25 May 2015: A profile of UK ME/CFS sufferer Isabel Walter.

Old Acquaintances Catch Up, Discover Shared Rare Disease At Support Meeting
Sunday 24 May 2015: A profile of two New Zealand friends, Graham Cozens and Paul Clegg, who reunited after 20 years at an ME/CFS support group meeting.

ME/CFS Sufferer Rachel To Participate In HBF Run For A Reason
Saturday 23 May 2015: Australian ME/CFS sufferer Rachel Goodsell will raise funds for the ME/CFS and Lyme Association of WA by participating in the 2015 HBF Run For A Reason.

Doctors Urged To Take Chronic Fatigue Syndrome More Seriously
Saturday 23 May 2015: ME/CFS sufferers like Christine Lisio hope the US Institute of Medicine's recent report, which states that chronic fatigue syndrome is a legitimate and serious disease, will get doctors to pay closer attention to their concerns.

Strong Correlation Discovered Between Fibromyalgia Pain And Quality Of Sleep
Friday 22 May 2015: Research has found that not only does poor sleep result in more pain for Fibromyalgia patients, but it is also linked to a lower pain threshold.

Post-Exertional Malaise Questionnaire
Thursday 21 May 2015: DePaul University is conducting a research study to try and learn more about what occurs before and during post-exertional malaise for individuals with ME/CFS, as well as how these individuals define the term post-exertional malaise.

Australian National Register Of Environmental Sensitivities
Wednesday 20 May 2015: The formation of the Australian National Register of Environmental Sensitivities aims to provide the background evidence to highlight the need for recognition and assistance for affected people.

Fibromyalgia Origins Found In Central Nervous System
Tuesday 19 May 2015: Research suggests that Fibromyalgia is a lifelong central nervous disorder, which causes chronic pain.

UK Charity Fundraiser Gets Mr T Haircut For Chronic Fatigue Charity
Monday 18 May 2015: A charity fundraiser with ME/CFS took on an unusual challenge – subjecting himself to a 'Mr T' haircut.

New Research Could Lead To A Blood Test For Fibromyalgia
Sunday 17 May 2015: Scientists at King's College London are hoping their latest research into Fibromyalgia will lead to a reliable blood test to enable doctors to make a proper diagnosis.

Struck Down With Chronic Fatigue
Saturday 16 May 2015: A profile of New Zealander ME/CFS sufferer Marie Dent.

Definitive Tests For Irritable Bowel Syndrome Developed
Saturday 16 May 2015: Millions of people afflicted by irritable bowel syndrome can now be diagnosed quickly and accurately with two simple blood tests developed by a Cedars-Sinai Hospital gastroenterologist.

ME/CFS Severely Ill Big Data Study Crowdfund Campaign
Friday 15 May 2015: A "ME/CFS Crowdfunding Campaign" Facebook page has been created to promote the ME/CFS Severely Ill Big Data Study.

Mother And Daughter Fight Chronic Fatigue
Friday 15 May 2015: A profile of New Zealand ME/CFS sufferers Wendy and Sophie Matthews.

Griffith Research Sheds New Light On Cause Of CFS
Thursday 14 May 2015: New research findings from Queensland's Griffith University may shed new light on the potential cause of ME/CFS.

Video: ME/CFS is Not An Invisible Disease
Thursday 14 May 2015: A video from Josefine Rausand that shows ME/CFS sufferers at their best and at their worst.

Illnesses No Laughing Matter
Wednesday 13 May 2015: A profile of ME/CFS sufferer Kerri Stephenson and her parents John and Winsome.

Mini-Documentary: Mom Needs To Lie Down
Wednesday 13 May 2015: "Mom Needs To Lie Down: The years and live slept away by ME/CFS" is an informational video about Myalgic Encephalomyelitis/Chronic Fatigue Syndrome.

Adelaide Oval Will Light Up Blue For International ME/CFS Awareness Day
Tuesday 12 May 2015: Today Adelaide Oval will be lighting up blue to commemorate International ME/CFS Day.

Canadian Clock Tower To Light Up For International Fibromyalgia Day
Tuesday 12 May 2015: In order to bring attention to the often misunderstood condition of Fibromyalgia, the City of Mississauga will be joining various places across the globe that will be lit up in purple, blue or green to mark International Fibromyalgia Day on Tuesday (May 12).

Kate Mincher Shares Her Reflections On Being Diagnosed With ME
Monday 11 May 2015: A profile of UK ME/CFS sufferer Kate Mincher.

Distinct Plasma Immune Signatures In ME/CFS
Sunday 10 May 2015: A study published in Science Advances entitled "Distinct plasma immune signatures in ME/CFS are present early in the course of illness".

UK Fibromyalgia Sufferer Receives Insulting Note In Parking Lot
Saturday 9 May 2015: A mum who battles chronic pain and used a disabled parking space in Tesco found a note on her car saying "being fat and ugly doesn't count as disabled - park elsewhere".

UK Wellbeing Fair To Aid Research And Awareness Into ME And Related Illnesses
Friday 8 May 2015: Integrated holistic health therapies will be on offer at a special Spring Wellbeing Fair in the UK that aims to raise funds and awareness into ME/CFS and other related disease such as Fibromyalgia.

UK ME Sufferer Rachel Ephgrave To Embark On Unique Challenge
Thursday 7 May 2015: While her friends are embarking on a 100km trek, ME sufferer Rachel Ephgrave is taking on a challenge of her own to raise awareness for the illness.

Martine McCutcheon's Gig For ME
Wednesday 6 May 2015: UK actress Martine McCutcheon is returning to singing with an intimate gig in support of Action for M.E..

Kelly Organises Sponsored Walk To Raise Money For Invest In ME
Tuesday 5 May 2015: UK woman Kelly Meadows has organised a charity walk for her husband, ME/CFS sufferer Richard.

Wearable Device For Fibromyalgia, Back Pain, And Diabetic Nerve Pain Comes With iOS App
Monday 4 May 2015: A new wearable device for chronic pain uses electrical stimulation to help people with Fibromyalgia, back pain and diabetic nerve pain gain relief, and it comes with its own iOS app to work the device.

Shining A Light: The End ME/CFS Project's Severely Ill Patient Study
Sunday 3 May 2015: An article about the Open Medicine Foundation's ME/CFS Severely Ill Big Data Study.

All Fired Up For Latest Awareness Challenge
Saturday 2 May 2015: A profile of Irish ME/CFS sufferer Nicola Lavin, a Galway woman spearheading the worldwide Chilli ME Challenge.

When Physical Trauma And Infection Trigger Fibromyalgia
Friday 1 May 2015: A study entitled "Physical Trauma and Infection as Precipitating Factors in Patients with Fibromyalgia".


Interview: New UK Support Group For Others With ME/CFS
Thursday 30 April 2015: An interview with UK ME/CFS sufferer Hannah Thompson who is hoping to set up a support group in her local area.

US Students To March To White House in Support Of ME Patients
Wednesday 29 April 2015: ME sufferers and students carrying photographs of bed-bound ME patients will march to the White House in a bid to raise awareness of the disease and urge the US Department of Health and Human Services to take urgent action.

New Broadway Extravaganza Raises Funds For ME/CFS/FM Awareness Week
Tuesday 28 April 2015: Multi-award-winning young performers from Vancouver's Opera Mariposa raise voices for Awareness Week by performing hit songs from 'Wicked,' 'Spamalot,' 'Sweeney Todd' and more in support of the National ME/FM Action Network.

Brain-Derived Neurotrophic Factor Concentration May Not Be Depressed In ME/CFS
Monday 27 April 2015: A study published in the medical journal Fatigue: Biomedicine, Health & Behavior.

A Biological Basis For Chronic Fatigue Syndrome
Sunday 26 April 2015: New research shows that ME/CFS sufferers have differences in their immune systems, a finding the authors hope will lend some legitimacy to the still-mysterious condition.

Canadian MCS Sufferer Fights Eviction Notice
Saturday 25 April 2015: A Canadian woman with a severe case of Multiple Chemical Sensitivity is fighting an eviction notice from her local housing authority, taking her case to the Nova Scotia Supreme Court.

Fibromyalgia Sufferer Shares Experience In Theatre Performance
Friday 24 April 2015: Nathan Barone details his life as a male with Fibromyalgia in a spoken-word piece of theatre in the US.

ME & My CFS Documentary
Thursday 23 April 2015: UK ME/CFS sufferer Andrew Love is hoping to make a documentary.

Hoping For A Cure
Wednesday 22 April 2015: A mother talks about how her family copes with their daughter who has ME/CFS.

Patients With Fibromyalgia Have Eye Differences
Tuesday 21 April 2015: Women with Fibromyalgia had a thinner average stromal nerve thickness in their eyes, as well as decreased corneal sub-basal plexus nerve density per square millimeter compared with healthy control participants, and corneal confocal microscopy could be a useful tool to identify patients with FM, according to the results of recently published research.

Abnormalities Of AMPK Activation And Glucose Uptake In Cultured Skeletal Muscle Cells From Individuals With ME/CFS
Monday 20 April 2015: The results of a study entitled "Abnormalities of AMPK Activation and Glucose Uptake in Cultured Skeletal Muscle Cells from Individuals with Chronic Fatigue Syndrome".

Debilitating Fatigue Reported By Patients With Autoimmune Diseases
Sunday 19 April 2015: Fatigue was reported by 98% of patients with autoimmune disorders polled, and fatigue that prevented completion of everyday tasks was reported by 68% of the patients, according to a press release from the American Autoimmune Disease Related Diseases Association.

Mercy Of The Wind By Naomi Flanagan
Saturday 18 April 2015: Australian musician and ME/CFS sufferer Naomi Flanagan has released an EP called Mercy of the Wind.

"I Didn't Know What Fibromyalgia Was – I Had To Google It To Find Out"
Friday 17 April 2015: A profile of Irish author and Fibromyalgia sufferer Sinead Cox.

Being Me With ME
Thursday 16 April 2015: ABC contributor "chicken_bits" talks about her life with ME/CFS.

IOM's Chronic Fatigue Syndrome Report Released; Includes Westat Statistical Expertise
Wednesday 15 April 2015: An article from statistics company Westat about its involvement in the recent US Institute of Medicine's report on ME/CFS/SEID.

Tiny Terrors: Deer Tick Bites Can Lead To Lyme Disease
Tuesday 14 April 2015: An article from the US about Lyme Disease.

Chronic Fatigue Syndrome: Features Of A Population Of Patients From Northern Italy
Monday 13 April 2015: A study from Italy that found autoimmune disease was more prevalent in the study's CFS subjects than in the general population.

Inverse Correlation Seen Between Symptoms, Fitness Level In Women With FM
Sunday 12 April 2015: In a study of women with Fibromyalgia in southern Spain, physical fitness was inversely correlated with symptom severity, according to data from the al-Ándalus project.

A Safe Space: Support Group A Refuge For Fibromyalgia Sufferers
Saturday 11 April 2015: A profile of Canada's Sudbury Fibromyalgia Support Group.

The Role Of Cytokines In Muscle Fatigue In Patients With Chronic Fatigue Syndrome
Friday 10 April 2015: Research published in The FASEB Journal (the journal of the Federation of American Societies for Experimental Biology).

You Know You Have Chronic Fatigue Syndrome When...
Thursday 9 April 2015: A video from YouTube user "CFS Hope".

Canadian Tribunal: Province Doesn't Have To Pay For Fibromyalgia Diet
Wednesday 8 April 2015: In a decision handed down March 12, Adjudicator Jo-Anne Pickel of the Human Rights Tribunal of Ontario rejected an appeal from a Toronto man who launched a human rights complaint in an attempt to force the province to pay for a high-protein diet he says eases his fibromyalgia symptoms.

National ME/CFS Conference In Queensland
Tuesday 7 April 2015: Details of the first Zing Myalgic Encephalomyelitis & Chronic Fatigue Syndrome Conference that will take place in Cairns, Australia in August 2015.

Public Servant Says She Was Allergic To Her Workplace At Australian Taxation Office
Monday 6 April 2015: The Australian Taxation Office has been drawn into a three-year compensation case after a former worker said she suffered from "sick building syndrome" when working for the public service.

Volunteers Wanted For Griffith University Chronic Pain Research Questionnaire
Sunday 5 April 2015: Griffith University is asking for people who have developed chronic pain in the last 12 months to complete a questionnaire about their experience.

Interview With Belle & Sebastian's Stuart Murdoch
Saturday 4 April 2015: An interview with Scottish musician and ME/CFS sufferer, Belle and Sebastian's Stuart Murdoch.

Nerve Pathways In Exhaustion Disorder Discovered At University Of Florida
Friday 3 April 2015: The mechanism that causes high-performance athletes to “feel the burn” turns out to be the culprit in what makes people with ME/CFS feel exhausted by the most common daily activities, new University of Florida Health research shows.

Study Helps Explain 'Brain Fog' In Chronic Fatigue Syndrome
Thursday 2 April 2015: A new study shows abnormal immune proteins in the spinal fluid of people with Chronic Fatigue Syndrome.

Does Whiplash Really Trigger Fibromyalgia?
Wednesday 1 April 2015: A Canadian researcher reports in RMD Open that whiplash injury most likely does not lead to Fibromyalgia.


The Experience of Sleep in Chronic Fatigue Syndrome
Tuesday 31 March 2015: A study that explored the specific role of sleep in ME/CFS patients' experience of their illness.

Fibromyalgia Patients Have Higher Risk For IBS
Monday 30 March 2015: The risk for developing Irritable Bowel Syndrome was 1.54-times higher in patients with Fibromyalgia, according to recently published data.

New Research Validates Chronic Fatigue Sufferers
Sunday 29 March 2015: A profile of US ME/CFS Esther Siebert, and her welcoming of the Institute of Medicine's new report, Beyond Myalgic Encephalomyelitis/Chronic Fatigue Syndrome: Redefining an Illness.

US Mayor Proclaims May 12 Fibromyalgia Awareness Day
Saturday 28 March 2015: Newark, New Jersey, Mayor Ras Baraka and local citizens are joining communities around the US to raise awareness about Americans living with Fibromyalgia.

Disabled UK Woman Says: Scooters Give Us Freedom, So Please Show Tolerance
Friday 27 March 2015: An article by UK ME/CFS/Fibromyalgia sufferer Janet Warner.

Canadian Woman's Sensitivies Confine Her To House
Thursday 26 March 2015: Canadian Multiple Chemical Sensitivity sufferer Wendy Kearly believes the only place she is safe is inside her home on Munroe Street in New Glasgow – and with some legitimate reasons.

US Vaccine Court's Tough Standards May Face Supreme Court Test
Wednesday 25 March 2015: The US Supreme Court has been asked to assess the case of Ilya Dobrydnev, who has Chronic Fatigue Syndrome, which his family claims was caused by a Hepatitis B vaccination in 2001.

UK Fibromyalgia Sufferer To Complete Monumental Task
Tuesday 24 March 2015: Rosina Thomas, who has severe Fibromyalgia among a range of health issues, is aiming to walk 10,000 steps a day for a week – the equivalent of many kilometres – to raise money and awareness for safer water points in African villages.

Interview: UK Author Lucy Saxon On How Chronic Fatigue Syndrome Gave Her Time To Write
Tuesday 17 March 2015: An interview with UK author and ME/CFS sufferer, Lucy Saxon.

Pfizer's Lyrica Pain Drug Fails FDA Test For Fibromyalgia In Adolescents
Monday 16 March 2015: Pfizer's Lyrica pain drug has failed to meet US Food and Drug Administration requirements in a post-marketing study testing the treatment of Fibromyalgia in adolescents.

Study Shows Why Exercise Magnifies Exhaustion For Chronic Fatigue Syndrome Patients
Sunday 15 March 2015: New research shows the mechanism that causes high-performance athletes to “feel the burn” turns out to be the culprit in what makes people with Chronic Fatigue Syndrome feel exhausted by the most common daily activities.

Chronic Fatigue Syndrome Gets New Name, Enhanced Recognition
Saturday 14 March 2015: A profile of ME/CFS sufferer Tasha Kelemen, and news about the proposed new name for ME/CFS, Systemic Exertion Intolerance Disease.

Changing The Name Of A Medical Condition May Seem Pointless, But It Matters A Lot
Friday 13 March 2015: An article by Serena Gainda about the proposed new name for ME/CFS, Systemic Exertion Intolerance Disease.

Using Wearable Tech To Relieve Chronic Pain
Thursday 12 March 2015: An advertisement for a new wearable device that can administer pain relief on a regular basis.

Welsh Teenager's Auction Will Help Battle Fibromyalgia
Wednesday 11 March 2015: A Welsh student is hoping to raise £400 for charity over the next few weeks by organising a charity event in the city of Newport.

Dr Lucinda Bateman: New Clinical Definitions For ME/CFS
Tuesday 10 March 2015: Lucinda Bateman, MD, discusses the new diagnostic criteria and a new name for ME/CFS, in an OFFER Education Meeting held on March 4, 2015.

SEID Featured On The Dr Oz Show
Monday 9 March 2015: Dr. Oz talks with Dr. Jennifer Caudle and Dr. W. Ian Lipkin about Systemic Exertion Intolerance Disease.

Poor Sleep Quality Linked To Increased Pain And Reduced Activity In Fibromyalgia
Sunday 8 March 2015: A study that tested whether pain, positive affect, and negative affect mediated the association between sleep quality and subsequent activity interference in Fibromyalgia.

US Woman Shares Fibromyalgia Story
Saturday 7 March 2015: A Fibromyalgia sufferer from South Dakota is sharing her story in book form with anyone who wants to read about it.

UK Yoga Project Receives Lottery Grant
Friday 6 March 2015: A project supporting people who suffer from ME/CFS in Yorkshire and the Humber is amongst 108 schemes across the region to receive a share of £979,729 from the UK's Big Lottery Fund.

Dream Makers – Mark Craig
Thursday 5 March 2015: A profile of New Zealand cricketer and former ME/CFS sufferer Mark Craig.

Memory Problems In Patients With Fibromyalgia Not Linked To Risk For Alzheimer's
Wednesday 4 March 2015: Patients with Fibromyalgia and severe episodes of memory problems or cognitive dysfunction, known as "fibrofog," were not at higher risk for the development of Alzheimer’s disease, which has a different profile of memory loss, according to new research in the US.

Distinct Stages To Chronic Fatigue Syndrome Identified
Tuesday 3 March 2015: Scientists in the US say distinct changes in the immune systems of patients with ME or Chronic Fatigue Syndrome have been found.

US Fibromyalgia Patients Kicked Out Because Of Service Dogs
Monday 2 March 2015: Two unrelated Fibromyalgia patients in the US recently encountered problems in public places because of their service dogs.

Scientists Discover Robust Evidence That Chronic Fatigue Syndrome Is A Biological Illness
Sunday 1 March 2015: Researchers at the Center for Infection and Immunity at Columbia University’s Mailman School of Public Health have identified distinct immune changes in patients diagnosed with chronic fatigue syndrome, known medically as Myalgic Encephalomyelitis (ME/CFS) or Systemic Exertion Intolerance Disease.


A Disease Doctors Refuse To See
Saturday 28 February 2015: An op-ed piece by Julie Rehmeyer in The New York Times.

The Pain Brain: Hippocampal Atrophy Found In Fibromyalgia
Friday 27 February 2015: Reduced volume in the brain's hippocampus is the latest of many brain findings in Fibromyalgia.

US Author Uses Marbles To Enlighten Children About Physical Limitations
Thursday 26 February 2015: A book by US author Melinda Malott, in which "A mom uses a jar and some marbles to show her son how she goes about making decisions about what she can and can’t do in terms of activities in a day".

Prefontal Myelination In Chronic Fatigue Syndrome
Wednesday 25 February 2015: A research paper entitled "Evidence in chronic fatigue syndrome for severity-dependent upregulation of prefrontal myelination that is independent of anxiety and depression".

UK Physios And Philosophers Receive £1m Research Grant
Tuesday 24 February 2015: Two physiotherapists are to play their part in a €1.3 (about £1 million) study that will explore what leads to improvements in people's health and wellbeing.

Fighting Back Against Fibromyalgia: US Woman Turns To The Arts To Cope With Her Chronic Illness
Monday 23 February 2015: Fibromyalgia sufferer Kelly Kvenlog Wichlacz has discovered her artistic side, hand-sewing tote bags, crafting jewelry, writing an essay, setting it to her photography on YouTube, and now hoping to publish a book.

IOM Report – Dr Lucinda Bateman's response
Sunday 22 February 2015: A statement from Lucinda Bateman MD about controversy surrounding the Insitute of Medicine's report on ME/CFS, new diagnostic criteria, and the name Systemic Exertion Intolerance Disease.

UK Woman Puts Chronic Pain At The Top Of The Agenda
Saturday 21 February 2015: A profile of UK Fibromyalgia sufferer Ella Vine, chief executive of national charity FibroAction, who took the need to improve diagnosis and care of people living with chronic pain directly to UK parliamentarians.

'We're Not Lazy – Chronic Fatigue Syndrome Is A Real Disease After All'
Friday 20 February 2015: A profile of UK ME/CFS sufferer Carolin Higson.

Music and Acupuncture For Fibromyalgia
Friday 20 February 2015: A study that investigated the effect of music combined with vibration on acupuncture points for the treatment of Fibromyalgia.

How Disease Names Can Stigmatize
Thursday 19 February 2015: An editorial by professor of clinical and community psychology, Leonard A. Jason.

Retired US Police Offer Will Get Enhanced Disability Pension
Thursday 19 February 2015: A retired US police officer who developed Fibromyalgia after being exposed to toxins after the 2001 World Trade Center attack has won a five-year legal battle for an enhanced disability pension.

SEID Report Release Video
Wednesday 18 February 2015: A video of the Institute of Medicine's press conference for the release of their report, "Beyond Myalgic Encephalomyelitis/Chronic Fatigue Syndrome: Redefining an Illness".

Beyond The Roll-Out
Wednesday 18 February 2015: An analysis of the Institute of Medicine's report, "Beyond Myalgic Encephalomyelitis/Chronic Fatigue Syndrome: Redefining an Illness".

The New Science Of Exhaustion
Tuesday 17 February 2015: A US radio program featuring ME/CFS experts discussing the Institute of Medicine's proposed new name, Systemic Exertion Intolerance Disease.

Goodbye Chronic Fatigue Syndrome, Hello SEID
Tuesday 17 February 2015: A committee convened by the Institute of Medicine has proposed a new name for a condition known variously as Chronic Fatigue Syndrome or Myalgic Encephalomyelitis.

Health Care Use Remains High in Patients With Fibromyalgia After Treatment
Monday 16 February 2015: Utilization of the health care system remained high for patients with Fibromyalgia after initiating treatment with either amitriptyline, Cymbalta, Neurontin or Lyrica, according to researchers from Utah's Brigham and Women’s Hospital.

Canberra Autoimmune Self-Management Education Day, 7 March 2015
Monday 16 February 2015: The Autoimmune Resource & Research Centre will be hosting a self-management education workshop in Canberra for people living with autoimmune illness.

Utah Doctor Helps To Legitimize Chronic Fatigue As An Actual Disease
Sunday 15 February 2015: National health experts, including one Utah doctor, released the results of a year of study on Tuesday [February 10] legitimizing the symptoms of chronic fatigue and giving the disorder a new name.

UK Mum Cleared Of Poisoning Daughter By Taking Her Abroad For Treatment Fights To Get Her Back
Sunday 15 February 2015: A UK mother who took her daughter abroad to treat her chronic fatigue with different drugs – and then ended up in court accused of 'poisoning' her – said she is determined to win her back after being cleared by a judge.

US Panel Redefines Chronic Fatigue Syndrome
Saturday 14 February 2015: A panel commissioned by the US Department of Health and Human Services has produced what is sure to be an influential report on how the disease should be diagnosed, by offering guidelines for a new moniker: Systemic Exertion Intolerance Disease (SEID).

Fibromyalgia Imaging Study Shows Unique Brain Connectivity
Saturday 14 February 2015: A new brain imaging study reveals that patients with Fibromyalgia show unique brain activity in response to pain.

Panel Says Chronic Fatigue Syndrome Is A Disease, And Renames It
Friday 13 February 2015: The mysterious and complicated illness that has been called chronic fatigue syndrome has a new definition and a new name: systemic exertion intolerance disease, or SEID for short.

Society Seminar Reminder
Friday 13 February 2015: A reminder that the society's first seminar for 2015 is tomorrow, Saturday 14 February at 1:30 pm in Sophia House, Cumberland Park.

Chronic Fatigue Syndrome Gets A(nother) New Name
Thursday 12 February 2015: The Institute of Medicine has proposed a new name and new diagnostic criteria for the condition that many still call Chronic Fatigue Syndrome.

Tips On How To Live A Normal Life With Fibromyalgia
Wednesday 11 February 2015: The cause of Fibromyalgia is unknown, but a WDSU News New Orleans video featuring Dr Corey J. Hebert, MD, shows there is treatment to help a person cope with the physical and psychological symptoms.

Locklear Fighting To Play
Tuesday 10 February 2015: A profile of US teenage basketballer and ME/CFS sufferer, Elayna Locklear, and her basketball team.

New Criteria Would Double Fibromyalgia Cases
Monday 9 February 2015: More than 5% of the general population fulfill the modified 2010 criteria for Fibromyalgia, compared with less than 2% who fulfilled the 1990 and the proposed 2010 criteria, report researchers in Arthritis and Rheumatology.

ME/CFS Linked To Early Menopause
Sunday 8 February 2015: A new study suggests there's a link between early menopause and Chronic Fatigue Syndrome.

Patients With Fibromyalgia More Likely To Experience Anxiety
Saturday 7 February 2015: Patients with Fibromyalgia were more likely to show symptoms of anxiety than patients with other rheumatic diseases, according to findings by Robert S. Katz, MD, and Frank Leavitt, PhD.

ME/CFS Sufferer's Claim Of Contamination Rejected By Tribunal
Friday 6 February 2015: A CSIRO media manager who says she contracted a virus after drinking water contaminated with faeces at a conference has lost her bid for compensation.

Altered Gait, Biomechanics Seen In Patients With Juvenile Fibromyalgia
Thursday 5 February 2015: Patients with juvenile Fibromyalgia showed alterations in walking patterns, greater knee weakness, lower bilateral hip abduction strength, reduced ankle dorsiflexion and other physical and psychosocial alterations compared with a group of healthy controls, according to researchers.

'I Was So Grateful For My Body': Jennifer Aniston Portrays Chronic Pain
Wednesday 4 February 2015: Jennifer Aniston plays a woman who suffers from chronic pain in the independent film Cake.

New Debate Over Lyme Disease As 16-Yr-Old Girl Bitten By Tick Heads To Germany For Radical Treatment
Tuesday 3 February 2015: The controversy over whether Lyme disease exists in Australia is set to be inflamed by new research that has found no evidence of the bacteria responsible for it around Sydney.

Society Seminar
Monday 2 February 2015: Our first seminar for 2015 is on St Valentine's Day, Saturday 14 February at 1:30 pm.

BBC Documentary Series Features ME/CFS And Fibromyalgia Sufferers
Sunday 1 February 2015: A recent episode of the BBC One documentary series about loneliness, Operation Meet the Street, featured ME/CFS sufferer Kate, and Fibromyalgia sufferer Simon.


A Life Of Helping Women
Saturday 31 January 2015: South Australian Fibromyalgia sufferer Effy Kleanthi has been awarded an Order of Australia Medal on Australia Day.

Patients With RA, Fibromyalgia Less Likely To Achieve Remission, Low Disease Activity
Friday 30 January 2015: Patients with both Rheumatoid Arthritis and Fbromyalgia were less likely to achieve remission or low disease activity scores, according to finding presented recently at the American College of Rheumatology Annual Meeting.

Knowing M.E., Knowing You
Thursday 29 January 2015: A profile of British ME/CFS sufferer Stephen Tudor.

IACFS/ME Chides NIH For Inadequate Funding
Wednesday 28 January 2015: An open letter from the International Association of CFS/ME to US National Institutes of Health about funding for its Pathways to Prevention report.

New US Public Transport Ads Focus On Fibromyalgia And Other Invisible Disabilities
Tuesday 27 January 2015: The Washington Metropolitan Area Transit Authority is focusing on people with health problems and disabilities that may not be visible to others, such as Fibromyalgia.

Fibromyalgia Flares: A Qualitative Analysis
Monday 26 January 2015: A research paper that aimed to describe Fibromyalgia flares in a sample of patients with Fibromyalgia.

Gut Infection Could Underlie Symptoms In Chronic Fatigue Syndrome
Sunday 25 January 2015: Over the past couple of years the Whittemore-Peterson Institute has been quietly digging into the human gut.

Plasma Cytokine Expression In Adolescent Chronic Fatigue Syndrome
Saturday 24 January 2015: A research paper published in the journal Brain, Behavior, and Immunity.

"I'd Rather Have Cancer Than Chronic Fatigue Syndrome"
Friday 23 January 2015: A former cancer patient says she would rather still have the deadly disease than the Chronic Fatigue Syndrome that has plagued the last decade of her life.

US Neuroscientist Says Exercise Worsens ME/CFS Symptoms
Thursday 22 January 2015: A highly regarded American neuroscientist who has researched ME/CFS for more than a decade, has decried media reports based on The Lancet Psychiatry’s recent scientific article that claims graded exercise therapy is an effective treatment for ME/CFS.

Unexplained Medical Symptoms – A Radio National Panel Discussion
Wednesday 21 January 2015: A panel of experts looks into complicated issues surrounding unexplained medical symptoms in this special event for the Ultimo Science Festival in Sydney.

Australian Disability Advocates Say Federal Government Employment Policies Not Working
Tuesday 20 January 2015: Advocates say despite years of Federal Government policies to designed to boost employment, it is as hard as ever for people with a disability to enter the workforce.

Life Is Hard For Us ME Sufferers – And Simplistic News Reports Don't Help
Monday 19 January 2015: Chronic Fatigue Syndrome is misunderstood by the public, and the media must take some of the blame for that.

ME/CFS Research UK Slams Lancet Psychiatry Report Advocating Exercise For Chronic Fatigue Syndrome Sufferers
Sunday 18 January 2015: ME Research UK has slammed an analytical report published in the latest The Lancet Psychiatry that claims ME/CFS patients have “fear avoidance beliefs” that exercise will exacerbate their symptoms.

Fear Of Exercise Exacerbates Chronic Fatigue Syndrome, Say Researchers
Saturday 17 January 2015: The comments for this article from the UK's Telegraph shows the debate about exercise and ME/CFS is still well and truly alive.

Meet The 29-Year-Old Woman Who's Allergic To The World
Friday 16 January 2015: A profile of Multiple Chemical Sensitivity Sufferer Crystal Goodwin.

ME Sufferer Will Go The Extra Mile In Nepal For Charity
Thursday 15 January 2015: A UK pub manager will trek through the Himalayas for Macmillan Cancer Support, despite suffering from Chronic Fatigue Syndrome.

Chronic Fatigue Syndrome Researcher Turns Pilot Study Into Major Grant
Wednesday 14 January 2015: An article about Patrick McGowan's epigenetic research in the US funded by the SolveCFS Initiative.

Society seminars for 2015
Tuesday 13 January 2015: Details for all society seminars for 2015.

Chronic Fatigue Syndrome: Wrong Name, Real Illness
Monday 12 January 2015: An in-depth article about ME/CFS.

Fibromyalgia Sufferer Shares Pain Of Ignorance
Sunday 11 January 2015: Shelly Van Winkle' Fibromyalgia tale is playing out across the globe as other patients face similar problems.

UK Prime Minister's Award For Woman Who Set Up ME/CFS Charity
Saturday 10 January 2015: A retired teacher in the UK has been hailed by the Prime Minister for setting up the UK’s largest charity for children and young people with Chronic Fatigue Syndrome.

Slow Access To The Mental Lexicon In Fibromyalgia
Friday 9 January 2015: A study that looked at lexical access speed (i.e., the time needed for the brain to access the catalogue of words in long-term memory) in Fibromyalgia patients.

"Passing" Is Not A Privilege
Thursday 8 January 2015: Having an invisible disability can mean you're able to choose whether or not to disclose your disability status, but being able to "pass" as a non-disabled person can also mean your access needs are often ignored completely.

A Fibromyalgia Patient's Ten Strategies For Healing
Wednesday 7 January 2015: A post on Cort Johnson's Health Rising blog in which Fibromyalgia sufferer Darden Burns outlines her strategies for dealing with the disease.

'The Chronic Fatigue Changed Everything': House Rules Host Johanna Griggs Opens Up
Tuesday 6 January 2015: A profile of Australian media personality Johanna Griggs.

AVACEN Medical Launches $2M Campaign In Response To Positive Outcomes Of Fibromyalgia Study
Monday 5 January 2015: US medical company AVACEN Medical announced that it has launched a $2 million campaign on to support further company clinical trials and FDA applications.

New Studies Find Causes Of Fibromyalgia, Offer Hope Of Relief
Sunday 4 January 2015: Two new studies on Fibromyalgia focus the problem on the thyroid, pituitary and hypothalamus, and suggest new avenues of relief for sufferers.

Can A Vegan Diet Help Fibromyalgia Patients?
Saturday 3 January 2015: A study from researchers in the United States found that a vegan diet can help some Fibromyalgia patients.

First Of Many Homes For South Australians With Disability
Friday 2 January 2015: The first eight of 135 new homes for South Australians with disability have been completed for the newly-established disability housing organisation, Access 2 Place Ltd.

Happy New Year
Thursday 1 January 2015: All of us here at ME/CFS Australia (SA) Inc wish you a Happy New Year.

In the News – 2014

In the News – 2013

In the News – 2012

In the News – 2011

In the News – 2010

In the News – 2009

In the News – 2008

In the News – 2007

In the News – 2006

In the News – 2005 and earlier

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