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ME/CFS AUSTRALIA (SA) INC
Registered Charity 698
Mailing address:
GPO Box 383,
Adelaide,
South Australia 5001
Office:
266 Port Road,
Hindmarsh,
South Australia 5007
Ph: (08) 8346 3237
('834 MECFS')
Office Hours:
Wednesdays, 10am-3pm
Support Line:
(Mondays and Thursdays,
10am-3pm)
Ph: (08) 8346 3237
SA country callers:
Ph: 1300 128 339
(local call)
FIBROMYALGIA HELP: Contact Fibromyalgia SA at the Arthritis Foundation of SA 118 Richmond Road, Marleston 5033 Ph: (08) 8379 5711 |
ME/CFS Australia (SA) Inc supports the needs of sufferers of Myalgic Encephalomyelitis, Chronic Fatigue Syndrome and related illnesses. We do this by providing services and information to members.
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Disclaimer
ME/CFS Australia (SA) Inc aims to keep members informed of the various research projects, diets, medications, therapies etc. All communication, both verbal and written, is merely to disseminate information and not to make recommendations or directives.
Unless otherwise stated, the views expressed on this Web site are not necessarily the official views of the Society or its Committee and are not simply an endorsement of products or services.
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In the News – 2007
Norwood Concert Hall meeting DVD (4 Apr)
M.E India (3 Apr)
Interview with Peter Cahalan (1 Apr)
ME/CFS Guidelines from The University of York (30 Mar)
Dr Dan Peterson speaks to the ABC (29 Mar)
Photos from the 25 March meeting (28 Mar)
Family health and chemicals (22 Mar)
Chronic Fatigue Syndrome and diet (20 Mar)
Support our salaried colleagues (15 Mar)
MCS America Seeks Recognition for Environmental Illness (12 Mar)
High Beam Festival – celebrate after the big event! (11 Mar)
From our mates in Wollongong (11 Mar)
What’s in a name? (9 Mar)
Radio interview (8 Mar)
Phoenix Rising Special Edition: IACFS Conference, part 2 (8 Mar)
P.A.N.D.O.R.A. International Advocacy Video Contest (5 Mar)
New website: Energy Meltdown (5 Mar)
TV ad campaign for CFS in the US (26 Feb)
MCS Public Health Rally update (24 Feb)
Taskforce on Care Costs: “Who Cares?” campaign (24 Feb)
ME/CFS meeting: The breaking news from around the world (18 Feb)
A Public Pain Symposium (16 Feb)
IACFS Conference report (12 Feb)
The Carnitine Study – we can do better (8 Feb)
MCS: our first rally for 2007 (7 Feb)
Experts Recommend New Name for CFS (5 Feb)
A good deal at the Adelaide Zoo (4 Feb)
Anna Jacobs (3 Feb)
Phoenix Rising Special Edition: IACFS Conference (30 Jan)
Drained by the brain (29 Jan)
Fatigue syndrome is not all in the mind (27 Jan)
A Hummingbirds Guide e-Newsletter – Jan 2007 (25 Jan)
CFS Phoenix: Jan 2007 edition (19 Jan)
The Carnitine Study – roll up your sleeves and help (18 Jan)
New DWP medical guidance (17 Jan)
CFIDSLink January 2007 e-newsletter (15 Jan)
US petition for recognition for MCS (13 Jan)
New therapy for CFS to be tested at Stanford (9 Jan)
Newly revised guideline booklet on ME/CFS (8 Jan)
Calendar 2007 (6 Jan)
CFS Phoenix: The IACFS Conference Edition (5 Jan)
In the News – 2006
In the News – 2005 and earlier
New Research Project
Looking for a specific gene mutation that may cause ME/CFS
Recently, we have discovered a mutation in a specific gene. This mutation causes chronic fatigue. It is possible that this mutation exists in people with Chronic Fatigue Syndrome since many standard clinical tests would not show any marked abnormality. Hence, we wish to test to find if this mutation may be the cause of CFS in some people. The study is important because it may allow for a treatment to compensate for absence of the protein due to the mutation in those chronic fatigue sufferers who have the mutation. This will, however, require further study in the affected individuals.
We wish to offer testing for this mutation and a related protein in blood following a single blood test taken in the early morning (before 9:00am). We also wish you to complete a questionnaire regarding fatigue and your medical history, if you consent to the study.
The results of testing will be sent to you by mail as soon as possible. Those who test positive for the mutation will be invited to meet one of the physicians involved in the study for an interview. Results will be made available only to the individual tested and not to any other individual. Your confidentiality will be closely respected.
If you may be interested in participating in the study, please contact us and register your interest. We will send you a package containing instructions on having a blood sample taken at your local pathology collection centre, as well as a consent form for you to sign.
Contact details
(When you contact us, please leave your name and mailing address)
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Phone: |
(07) 3394 7284 |
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Fax: |
(07) 3394 7789 |
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E-mail: |
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Mail: |
Dr D Torpy, Senior Lecturer |
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or |
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Mail: |
Prof J Whitworth, Director |
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