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ME/CFS Australia Ltd

 
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  ME/CFS AUSTRALIA (SA) INC

Registered Charity 698

Email:
sacfs@sacfs.asn.au

Mailing address:
PO Box 28,
Hindmarsh,
South Australia 5007

Office:
266 Port Road,
Hindmarsh,
South Australia 5007
Ph: 1300 128 339

Office Hours:
Wednesdays, 10am-3pm


FIBROMYALGIA HELP:
Contact
Fibromyalgia SA
at the
Arthritis Foundation of SA
118 Richmond Road,
Marleston 5033
Ph: (08) 8379 5711

ME/CFS Australia (SA) Inc supports the needs of sufferers of Myalgic Encephalomyelitis, Chronic Fatigue Syndrome and related illnesses. We do this by providing services and information to members.

Disclaimer

ME/CFS Australia (SA) Inc aims to keep members informed of the various research projects, diets, medications, therapies etc. All communication, both verbal and written, is merely to disseminate information and not to make recommendations or directives.

Unless otherwise stated, the views expressed on this Web site are not necessarily the official views of the Society or its Committee and are not simply an endorsement of products or services.

Talking Point
March 2000
In this issue:
Pat carries the torch
Health management
World CFS Congress
Cures’

’Cures’ – keep cool, calm and collected

By Jennifer Tosolini

So you’ve heard about a wonderful cure for CFS and you’ve made an appointment to see the practitioner who is going to deliver this hoped-for return to normal life.

Remember that this person is providing a service, and as such you need to know a few things: just what service is being provided; the total cost of the service; and if the results are guaranted.

Just because you’ve been ill for years and are desperate to recover doesn’t absolve you from taking responsibility when entering into a treatment program. Don’t rush into anything. Gather information – from the health practictioner, other people with CFS, and articles published by reputable people.

If, after careful consideration, you go ahead with the treatment, set a reasonable time-frame for a change in the state of your health – say six months – and decide that at the end of that time, if you can’t honestly say that there’s been definite improvement, and you are not experiencing it on a day-to-day basis, then it’s likely that the ‘cure’ isn’t working and it’s time to re-evaluate the situation.

Remember, just like every other situation where money changes hands in return for services, differences of opinion can occur with health practitioners about what was said or promised, and in the end it’s your word against theirs – and they usually win. However, various patient advocacy groups in the USA suggest to people that they take small tape recorders with them to all consultations. One places it on the desk and says, “I’m sure you won’t mind if I record this consultation; I can never remember a thing once I get home.” The sight of a tape recorder can apparently make the most zealous health practitioner very careful about promising cures.

Finally, be smart, be selective, be responsible, and be assertive. After all, you’re the person paying the bill.

PS: If the health practitioner you choose is a doctor who is actually selling a product which he/she claims is going to cure you, and tells you that you will need to take it for the rest of your life, and in order to be able to afford it suggests that you may like to become a distributor to pay for your use of it, this implies that he/she is being compromised by commercial interests. This can be reported to the Medical Board of South Australia.

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