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ME/CFS AUSTRALIA (SA) INC
Registered Charity 698
Email:
sacfs@sacfs.asn.au
Mailing address:
GPO Box 383,
Adelaide,
South Australia 5001
Office:
266 Port Road,
Hindmarsh,
South Australia 5007
Ph: (08) 8346 3237
('834 MECFS')
Office Hours:
Wednesdays, 10am-3pm
Support Line:
(Mondays and Thursdays,
10am-3pm)
Ph: (08) 8346 3237
SA country callers:
Ph: 1300 128 339
(local call)
FIBROMYALGIA HELP: Contact Fibromyalgia SA at the Arthritis Foundation of SA 118 Richmond Road, Marleston 5033 Ph: (08) 8379 5711 |
ME/CFS Australia (SA) Inc supports the needs of sufferers of Myalgic Encephalomyelitis, Chronic Fatigue Syndrome and related illnesses. We do this by providing services and information to members.
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Disclaimer
ME/CFS Australia (SA) Inc aims to keep members informed of the various research projects, diets, medications, therapies etc. All communication, both verbal and written, is merely to disseminate information and not to make recommendations or directives.
Unless otherwise stated, the views expressed on this Web site are not necessarily the official views of the Society or its Committee and are not simply an endorsement of products or services.
Talking Point
2003 Issue 1
In this issue:
Editorial
Management Committee report
Ciguatera and ME/CFS
Canadian medical milestone
Awareness Seminar
Badge Day
Support Groups
Editorial
Best wishes to Farah Tate who has moved on from co-editing this journal with me.
This last month has seen one of the most significant documents released relating to CFS: The Canadian Consensus Clinical Guidelines for CFS. A bit of a mouthful YES, but nonetheless a seminal work.
An international team of researchers / clinicians worked with the Canadian government and the Canadian consumer group, the National ME/FM Action Network, to produce a comprehensive set of guidelines for health professionals and government to tackle CFS. Such collaborations between consumers, government and health professionals represent the best-practice. And in this case the result was achieved amicably, though with a lot of hard work. This contrasts with the difficulties consumers have had working with health pro fessionals and governments in this country and in the UK.
I would also like to draw your attending to the three major events the Society is conduction in May: a seminar, a film night and a badge day (see pp 26-28 for details).
I hope to see as many of you as possible at these events.
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