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ME/CFS Australia Ltd

 
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  ME/CFS AUSTRALIA (SA) INC

Registered Charity 698

Email:
sacfs@sacfs.asn.au

Mailing address:
PO Box 28,
Hindmarsh,
South Australia 5007

Office:
266 Port Road,
Hindmarsh,
South Australia 5007
Ph: 1300 128 339

Office Hours:
Wednesdays, 10am-3pm


FIBROMYALGIA HELP:
Contact
Fibromyalgia SA
at the
Arthritis Foundation of SA
118 Richmond Road,
Marleston 5033
Ph: (08) 8379 5711

ME/CFS Australia (SA) Inc supports the needs of sufferers of Myalgic Encephalomyelitis, Chronic Fatigue Syndrome and related illnesses. We do this by providing services and information to members.

Disclaimer

ME/CFS Australia (SA) Inc aims to keep members informed of the various research projects, diets, medications, therapies etc. All communication, both verbal and written, is merely to disseminate information and not to make recommendations or directives.

Unless otherwise stated, the views expressed on this Web site are not necessarily the official views of the Society or its Committee and are not simply an endorsement of products or services.

The ME/CFS Society wishes to thank the following advertisers who supported Talking Point:

Adobe
BankSA & Staff Charitable Fund
Direct Nutritional Supplies
Efamol
The Pure Water Shop
Microsoft
Natural Food Supermarket

Talking Point

Talking PointTalking Point is a quarterly magazine produced by ME/CFS Australia (SA) Inc. It provides members with news, coming events, reports of medical research, and much more.

Here are available back issues:

PDF

2011 Autumn

PDF

2010 Issue 4

 

2010 Issue 3 (Talking Point articles printed in Emerge)

 

2010 Issue 2 (Talking Point articles printed in Emerge)

 

2010 Issue 1 (Talking Point articles printed in Emerge)

 

2009 Issue 4 (Talking Point articles printed in Emerge)

 

2009 Issue 3 (Talking Point articles printed in Emerge)

 

2009 Issue 2 (Talking Point articles printed in Emerge)

PDF

2009 Issue 1 (PDF, 2.98MB) (view contents)

PDF

2008 Issue 4 (PDF, 2.86MB) (view contents)

PDF

2008 Issue 3 (PDF, 3.30MB) (view contents)

PDF

2008 Issue 2 (PDF, 1.91MB) (view contents)

PDF

2008 Issue 1 (PDF, 4.84MB) (view contents)

PDF

2007 Issue 4 (PDF, 2.87MB) (view contents)

PDF

2007 Issue 3 (PDF, 2.06MB) (view contents)

PDF

2007 Issue 2 (PDF, 1.47MB) (view contents)

PDF

2007 Issue 1 (PDF, 1.55MB) (view contents)

 

2006 Issue 4 (no issue printed)

PDF

2006 Issue 3 (PDF, 1.72MB) (view contents)

PDF

2006 Issue 2 (PDF, 1.72MB) (view contents)

PDF

2006 Issue 1 (PDF, 2.44MB) (view contents)

PDF

2005 Issue 4 (PDF, 1.89MB) (view contents)

PDF

2005 Issue 3 (PDF, 2.69MB) (view contents)

PDF

2005 Issue 2 (PDF, 1.67MB) (view contents)

PDF

2005 Issue 1 (PDF, 1.70MB) (view contents)

PDF

2004 Issue 4 (PDF, 996KB) (view contents)

PDF

2004 Issue 3 (PDF, 2.42MB) (view contents)

PDF

2004 Issue 2 (PDF, 2.12MB) (view contents)

PDF

2004 Issue 1 (PDF, 1.22MB) (view contents)

PDF

2003 Issue 4 (PDF, 1.22KB) (view contents)

 

2003 Issue 3 (no issue printed)

PDF

2003 Issue 2 (PDF, 2.71MB) (view contents)

PDF

2003 Issue 1 (PDF, 2.89MB) (view contents)

PDF

2002 Issue 4 (PDF, 1.53KB) (view contents)

PDF

2002 Issue 3 (PDF, 2.76MB) (view contents)

PDF

2002 Issue 2 (PDF, 1.20MB) (view contents)

PDF

2002 Issue 1 (PDF, 2.76MB) (view contents)

PDF

2001 Issue 4 (PDF, 1.12KB) (view contents)

PDF

2001 Issue 3 (PDF, 1.17MB) (view contents)

PDF

2001 Issue 2 (PDF, 1.45MB) (view contents)

PDF

2001 Issue 1 (PDF, 1.09MB) (view contents)

 

Earlier issues

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Contents of each issue

2009 Issue 1

PDF

Download 2009 Issue 9 (PDF, 2.98MB)

Society matters
President’s report, by Peter Cahalan
Membership Application Form
The last Talking Point
Society meetings for the rest of 2009
Riders for Chronic Fatigue Syndrome

Medical pages
CFS Checklist, by Dr Sarah Myhill
Mitochondrial dysfunction in ME/CFS, by Dr Sarah Myhill
CFS treatments which are not worth trying, by Dr Sarah Myhill
How your doctor can help if you have CFS/ME, by Dr Charles W Lapp, MD
Virus is passed from parent to child in the DNA, by Maggie Fox

Articles
Taking action helps defeat negative emotion, by Sally Price
The first federally approved drug for ME/CFS?, by Cort Johnson
Get a better night’s sleep, by Elisabeth Deffner
The Whittemore-Peterson Institute comes out of the closet, by Cort Johnson
Swimming in the ocean, by Glynis Scrivens
Taking action helps defeat negative emotion, by Sally Price
Poem: Beautiful Big Red Balloons, by Christine Benson

Miscellaneous
Information about ME/CFS
Contact numbers
Support groups

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2008 Issue 4

PDF

Download 2008 Issue 4 (PDF, 2.86MB)

Society matters
President’s report, by Peter Cahalan
Riverland Support Group’s 1st birthday, by Raelene & Simon Jackson

Medical pages
Orthostatic intolerance, by David S. Bell, MD, FAAP
Immunomodulation by vitamin B12

Special feature
Interview with Dr John Chia, by Cort Johnson

Articles
Being elderly with ME/CFS (believe it or not – there are advantages), by Maureen Jepson
Explaining the inexplicable, by Johanna Tesson
Coming to terms with ME, by Cathy Stillman-Lowe
Going to hospital when you have ME/CFS and FMS, by Mary Campbell
A Marshall Protocol experience, by Andrea Rowland
On my way, by Johnathan Raimondi

Miscellaneous
Information about ME/CFS
Contact numbers
Support groups

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2008 Issue 3

PDF

Download 2008 Issue 3 (PDF, 3.30MB)

Society matters
President’s report, by Peter Cahalan
Society meetings 2008
Riverland Support Group meeting, by Raelene Jackson
Riverland Field Days, by Raelene & Simon Jackson
Letters to the Editor
Annual General Meeting

Medical pages
International ME/CFS Conference Report, by Dr Ros Vallings
What a Pain!, by Alan Spanos

Articles
Scepticism in CFS/ME, by Dr Ros Vallings
Disabled Persons Parking Permits
Reflections on a diary: growing up with M.E., by Leigh Fenton
A Weird Business, by Susanna Argady
A Short Story about a Long Story, by Katy Wimhurst
Physically handicapped, ME, by Marlene Pooley
On the lighter side
You know you’re having a fibro fog day when…
Jokes

Miscellaneous
Information about ME/CFS
Contact numbers
Support groups

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2008 Issue 2

PDF

Download 2008 Issue 2 (PDF, 1.91MB)

Society matters
President’s report, by Peter Cahalan
Talking Point: old issues, by Jenni Gay

Medical pages
M.E.: All in the Brain?
Interview with Dr Abhijit Chaudhuri

Articles
Travelling with ME/CFS, by Peter Mitchell
My Travels with ME/CFS, by Julie Gilbert
ME/CFS Awareness in Hospital, by Maureen Jepson
My Little Lucky Life, by Mary Edwards
Managing My Illness, by Mary Campbell
Book Review, by Barbara Seccombe
Do What You Can, by Glynis Scrivens
Society meetings for 2008
‘Liar liar pants on fire!’: Coping with Disbelief, by Val Rubie
Using Self-Help to Recover from CFIDS, by Bruce Campbell
Healthy Lifestyle Guide

Miscellaneous
Information about ME/CFS
Contact numbers
Support groups

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2008 Issue 1

PDF

Download 2008 Issue 1 (PDF, 4.84MB)

Society matters
President’s report, by Peter Cahalan
Society meetings for 2008
Talking Point: old issues, by Jenni Gay
Free DVD with your Talking Point
Lactic acid study
2 February meeting photos

Articles
Profile: Dr David S Bell, by Kristy Katzmann
Drained by the brain, by Clara Pirani
Poetry
Coping with depression, by Jackie Fenwick
On a fairground ride, by Andy Brown
To B12 or not to B12?, by Jacki Carter

Medical pages
A real-time assessment of the effect of exercise in chronic fatigue syndrome
Majority of ME/CFS patients negatively affected by Cognitive Behaviour Therapy
Cellular and genetic studies under way
Neuroimaging tracks mental fatigue in CFS
CFS heart rate dysfunction persists in sleep

Miscellaneous
Information about ME/CFS
Contact numbers
Support groups

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2007 Issue 4

PDF

Download 2007 Issue 4 (PDF, 2.87MB)

Society matters
President’s report for 2006/2007, by Peter Cahalan
Talking Point: old issues, by Jenni Gay
Social Support and Fibromyalgia Research, by Jane C Mulcahy
Riverland CFS Support Group meeting report, by Simon Jackson
Riverland CFS Support Group photos, by Peter Cahalan

Articles
ME/CFS Gets the Nod, from ImmuneSupport.com
Tips for surviving Christmas, by Jenni Gay
Healthy eating made easy, by Jane Harries

Feature: Parenthood and ME
Mum’s the word – or is it?, by Yvette Keitley
Baby in waiting: your guide to a healthy pregnancy, by Yvette Keitley
Bringing up baby, by Yvette Keitley

Medical pages
CFS symposium report, by Dr Nicole Phillips

Miscellaneous
Information about ME/CFS
Contact numbers
Support groups
Changes

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2007 Issue 3

PDF

Download 2007 Issue 3 (PDF, 2.06MB)

Society matters
From the President, by Peter Cahalan
Patiently Progressing with MCS, by Peter Evans
Thank you to our Patron

Articles
Single, with child and ME, by Luca Clark
OzME Internet Mailing List
Learning, by Maureen Jepson
CFS Advisory Committee testimony, by Mary Schweitzer, PhD
Some terminology
Acceptance, Discipline, and Hope, by Peter Mitchell
Study: dealing with the effects of brain fog, by David Lindsey
Accen-chu-ate the positive, by Vicki Bailey

Medical pages
CFS research study, by Janice Sutton
Exercise and chronic fatigue syndrome
Amitriptyline, by Dr Charles Shepherd
Can vaccinations induce CFS
Recall of Prexige
Q Fever, Rickettsia and CFS, by Melanie Cocker
CFS: not in the mind but in the cell nucleus

Miscellaneous
Information about ME/CFS
Contact numbers
Support groups

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2007 Issue 2

PDF

Download 2007 Issue 2 (PDF, 1.47MB)

Society matters
From the President, by Peter Cahalan
Photos from the 25 March meeting
Adelaide Support Group closes
It was twenty years ago today…
Is it our 20th birthday this year?, by Jenni Gay
Kadina meeting, by Jane Gill
DIRC wants you to tell your story

Articles
My relapse, by Heather Roberts
Relapses in CFS, by Dr Rosamund Vallings
ME – my story, by Mary Gibson
The Spoon Theory, by Christine Miserandino
Managing stress and inflammation
Alternative medicine – a sensible approach, by Mary Campbell
Men with CFS, by Pamela Young
The loneliness of the long-distance sufferer, by Pat Mathewson

Special feature
IACFS Professional Conference report, by Cort Johnson

Medical pages
Cardiac symptoms
Adelaide ME/CFS Research Forum report, by Colin Neathercoat

Miscellaneous
Information about ME/CFS
Proposed Meeting Programme for 2007
Contact numbers
Support groups

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2007 Issue 1

PDF

Download 2007 Issue 1 (PDF, 1.55MB)

Society matters
From the President, by Peter Cahalan
25 March 2007 – ME/CFS: The breaking news from around the world
1 April 2007 – A Public Pain Symposium

Articles
How I learned to stop worrying and love my wheelchair, by Jesse Kaysen
Is there a pot of gold at the end of the murky CFS/ME rainbow?, by Ursula Kielewska
Mental “self-help” and CFIDS, by Mary Schweitzer
Spacing out at the mall, by Mary Schweitzer

Special feature
IACFS Conference report, by Cort Johnson

Medical pages
Welsh study points to need for CFS education for general practitioners
Research on CFS and working memory
Study: How is memory and concentration affected in CFS?
Carnitine Study
Redlabs U.S.A.
New therapy for chronic fatigue syndrome to be tested at Stanford University School of Medicine

Miscellaneous
Information about ME/CFS
Support groups and contact numbers

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2006 Issue 3

PDF

Download 2006 Issue 3 (PDF, 1.72MB)

Society matters
President’s annual report 2006, by Peter Cahalan
Photos: ME/CFS Society (Inc) SA meeting – October 14, 2006
What happens on Wednesdays in the Society’s office?, by Mike Ritter

Articles
School and kids with CFS, by Mary Campbell
How hard it is to be me!, by Michelle Lee
Massage: releasing the tension and the fear, by Mary Campbell

Medical pages
The debate: myalgic encephalomyelitis and chronic fatigue syndrome, by Dr Charles Shepherd
Genes and chronic fatigue: how strong is the evidence?
Harvard Health Letter: any help on the horizon for chronic fatigue syndrome?
The biology of stress, by Pamela Young
CFS blood test?

Miscellaneous
Information about ME/CFS
Support groups and contact numbers
Notes

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2006 Issue 2

PDF

Download 2006 Issue 2 (PDF, 1.72MB)

Society matters
President’s report, by Peter Cahalan
Fundraising, by Peter Cahalan
Simon Molesworth wins Tattersall’s Award for work in CFS
SA Task Force on MCS: update, by Peter Evans
The MCS Report: we hear from the public servant
MCS: your rights
Christine Hunter now AM
The MCS Report: responses from state Ministers
Badge Day, by Peter Cahalan
A new CSF research foundation, by Peter Cahalan
Letter to the Editor

Articles
A passion for photography, by Carolyn Chase
My own worst enemy, by Sue Stevenson
Interview with Leigh Hatcher, by Meg Beach
Dealing with guilt, by Linnea Smith Noyes

Medical pages
Is CFS a brain disorder?
Major depressive disorder in Chronic Fatigue Syndrome
CFS/ME definition

Miscellaneous
Information about ME/CFS
Support groups and contact numbers
Notes

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2006 Issue 1

PDF

Download 2006 Issue 1 (PDF, 2.44MB)

Society matters
Annual General Meeting, by Peter Mitchell.

Special feature: Multiple Chemical Sensitivity Inquiry
Part 1: The Inquiry
Part 2: The Government’s Response and Community Rebuttal

Articles
Studying – CFS/ME style, by David Lindsey
A carer’s perspective, by Roderick Floud
The shed, by Mary Campbell

Medical pages
Finally, it’s official – stress makes you sick
CFS redefined. Again
Chronic fatigue gene signs found

Miscellaneous
Information about ME/CFS
Support groups and contact numbers

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2005 Issue 4

PDF

Download 2005 Issue 4 (PDF, 1.89MB)

Society matters
President’s Report, by Peter Cahalan
Herbicide protest, by Peter Evans

Articles
Not so macho: A male perspective on ME, by Dave Lamont
Number plate: CFS001, by Sandra Cowan
Chronic Fatigue Syndrome is a Real Pain…, by Linda Wylie
Off-White and the Seven Dwarfs, by Tod Whitehouse

Feature
CFS/ME Forum – the Victorian report, by Dr Nicole Phillips

Medical pages
The ultra-comprehensive ME/CFS symptom list, by Jodi Bassett

Miscellaneous
Information about ME/CFS
Support groups and contact numbers

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2005 Issue 3

PDF

Download 2005 Issue 3 (PDF, 2.69MB)

Society matters
From the president, by Peter Cahalan

Feature: CFS researchers conference
Introduction
Where to now?, by Michael Barratt MBBS FRCPA
Report, by Valerie McKeown
Report, by John Duley

Articles
Book review: “Chronic Fatigue Syndrome: A Biological Approach”, reviewed by Peter Mitchell
Profile: Leigh Hatcher
Getting the best out of a chronic illness, by Jennifer Tosolini
Getting sucked in, by Lenny DeRoma
Keeping an open mind, by Rose Mercer
Von’s jigsaw puzzle, by Von Dubbeld
Cartoon: Mission possible, by Peggy Lowell
A lady’s companion, by Selina O’Brien
Communicating with free email, by Mike Ritter
Poetry, by Pamela Du-Valle
Wisdom from the Rose Pavilion, by Sharon Stormer Cherry

Medical pages
The role of the HPA axis in perpetuating CFS
Non-invasive test for distinguishing HPA axis function
Altered central nervous system signals in CFS/ME
Abnormal immune cells in CFS/ME
Paradoxical Stress Response Test
Cognitive performance slow in CFS/ME

Miscellaneous
Information about ME/CFS
Support groups and contact numbers

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2005 Issue 2

PDF

Download 2005 Issue 2 (PDF, 1.67MB)

Society matters
From the President, by Peter Cahalan
Management Committee meeting photos
Northern Yorke Peninsula Support Group news
Arthritis SA

Articles
“Moving Towards Wellness 2005” course
WEA course guide
Letter to the editor
Federal Budget announcement for people with disabilities
DSP – bias against people with CFS, by Rosemary Smith
Connect to the Internet cheaply, by Michael Ritter
IT learning/support opportunities for CFS members in South Australia, by I and D Chessell
Educating a child with ME/CFS in South Australia, by Jenni Gay
Kirsty Prior and her research
Review of Osler’s Web, by Peter Mitchell
Internet resource on the case against graded exercise therapy and CBT, by Jodi Bassett
Fatigue schmatigue, by Jodi Bassett

Medical pages
Dietary guidelines in CFS, by Dr Rosamund Vallings
Coeliac Disease – the great mimic, by Dr Ian Brighthope
Exercise and allergens possible biomarkers

Miscellaneous
Information about ME/CFS
Support groups and contact numbers

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2005 Issue 1

PDF

Download 2005 Issue 1 (PDF, 1.70MB)

Society matters
President’s report, by Peter Cahalan
Notes from the Annual General Meeting
News
“Moving Towards Wellness 2005” course
Awareness Night 2005

Articles
The invisible burden, by Jackie Mulrooney
Venturing out, by Michelle Grant
Hummingbirds, by Jodi Bassett
Evidence for graded exercise, by Susanna Agardy
The exercise problem, by Mary Jahne

Medical pages
Address by Dr Peter Del Fante
AACFS 7th International Research Conference

Miscellaneous
Information about ME/CFS
Support groups and contact numbers

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2004 Issue 4

PDF

Download 2004 Issue 4 (PDF, 996KB)

Society matters
President’s report, by Peter Cahalan
Northern Yorke Peninsula Support Group report, by Jane Gill
Annual General Meeting photos

Articles
Gone in a puff, by Rod Lewis
CFS/ME is not chronic fatigue: misnomer causes extra suffering
A day in the life of Ima Bitovamessovitch, by M.I. Somaticsahertszyn, Ph. D (Philosophical Dag)
Is my personality my problem?, by Anelie Walsh
Preface to new book on CFS, by John Graham
A tough act to swallow, by Zoë Williams
AACFS conference report
Psychological features play no role in CFS/ME, by Christine Hunter

Medical pages
Doubts cast on herbal remedy: Echinacea found to lack enough ingredients to work
CFS: Intracellular immune deregulation as a possible aetiology for abnormal exercise response
Salivary cortisol response to awakening in CFS
Ambrotose: lifting the lid on an ‘essential’ supplement, by Dr Ken Jolly
Standing up for ME, by Dr Vance Spence and Prof Julian Stewart
Exercise therapy for CFS, by M Edmonds, H McGuire, and J Price
Genes may determine who developed Gulf War Syndrome
CFS/ME definition – 2002 Oxford Concise Medical Dictionary

Miscellaneous
Information about ME/CFS
Support groups and contact numbers

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2004 Issue 3

PDF

Download 2004 Issue 3 (PDF, 2.42MB)

Society matters
From the president, by Peter Cahalan
MCS Workshop report, by Peter Evans

Articles
An age-old issue, by Val Rubie
Insurance company accepts CFS as a real condition, by Toula Mantis
Media Watch
The road less travelled, by Zoe Williams
Ambulance transfers – another option, by Ricky Buchanan
Self-hypnosis for CFS pain, by Ricky Buchanan
Personal story: How I contracted CFS, by Wendy Dorey
Personal story: Susan McGregor

Medical pages
Paced exercise helps CFS/ME
Exercise, explanation key to the CFS puzzle
Depression not cause of cognitive symptoms
Pre-CFS/ME patients visit doctors more often
A comparison of pregnancies that occur before and after the onset of CFS
Essential fatty acids associated with symptom remission in CFS
NIAID collaboration yields new test for Lyme disease

Miscellaneous
Awareness Night photos
Multiple Chemical Sensitivity Workshop photos

Information about ME/CFS
Support groups and contact numbers

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2004 Issue 2

PDF

Download 2004 Issue 2 (PDF, 2.12MB)

Society matters
President’s report, by Peter Cahalan
Awareness Night report, by Kirsty Cordingley
Awareness Night talk: ME self-management, by Kristin Clark
SAYME Camp 2003, by Skye Yuill
Raising awareness at the South-East Field Days, by Donna Smedley

Articles
Eef and Riet – twins together after 40 years, interviewed by Jeannette Bosman
Relapses and remissions, by Mike Reynolds
Stressed out? Fight back!, by Fiona Agombar
Gonna be a bear
Preparedness, by Liz Burlingame
Pacing: one step at a time, by Virginia Haydon
Media Watch
“All the usual suspects”
Slanderwatch

Medical pages
High levels of type 2 cytokine-producing cells in Chronic Fatigue Syndrome
JAMA studies may be misleading – behavioural therapies no cure for CFS/ME
Variability in diagnostic criteria for Chronic Fatigue Syndrome
Dr. Bell’s Disability Scale
Characteristics of long-duration CFS/ME
Flu shots: weigh the risks
Fibromyalgia
“Moving Towards Wellness 2004” course
Multiple Chemical Sensitivity
Ideas needed

Miscellaneous
Information about ME/CFS
Support groups and contact numbers

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2004 Issue 1

PDF

Download 2004 Issue 1 (PDF, 1.22MB)

Society matters
President’s report, by Peter Cahalan
CFS/ME Forum: “Impact on the community”

Articles
What price glory? Interview with Laura Hillenbrand, author of Seabiscuit
Fibromyalgia
Feeling her pain, by January Payne
“Moving Towards Wellness 2004” course
Multiple Chemical Sensitivity
Public Health Alert / Rally
Ideas needed

Medical pages
CFS shifting to clinical studies
Influenza vaccination – is it appropriate in Chronic Fatigue Syndrome?
CFIDS research goes micro
Only a third of people with chronic fatigue have Chronic Fatigue Syndrome
Cytokine causes rapid increase in CFS symptoms
Nutritional supplement has no effect on symptoms
Mycoplasma found in European CFS patients
CFS glossary – terms you need to know
Low brain essential fatty acids found in CFS

Miscellaneous
Information about ME/CFS
Support groups and contact numbers

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2003 Issue 4

PDF

Download 2003 Issue 4 (PDF, 1.22MB)

Society matters
President’s report: AGM November 8, 2003
Raising awareness at the Paskeville Field Days
Southern Communities Transport Scheme

Multiple Chemical Sensitivity
Multiple Chemical Sensitivity – ideas needed
Inquiry into Multiple Chemical Sensitivity

Interview
Alastair Lynch

Coping with ME/CFS
A sideways look at pacing, by Julia Derbyshire
Where are my meaning-laden bits?, by Danielle Gamble
Hope… after ten years, by Goldie Freedman
Phone pals
As good as it gets, by Christine Low
Why I volunteer, by Sonya

Medical Pages
Sleep and ME/CFS, by Dr Nicole Phillips
CFS and decreased red cell volume – a new treatment trial
Publication of new vascular research
Exercise, by Dr Charles Shepherd

CFS/ME Severe Symptoms Questionnaire

Information about ME/CFS

Support groups and contact numbers

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2003 Issue 2

PDF

Download 2003 Issue 2 (PDF, 2.71B)

SECTION 1: GENERAL
Management Committee Report
Sponsor Thankyou: Paul Newman’s Own and the Department of Human Services
Sponsor Thankyou: HomeStart Finance
NEWS: UK Government Announces ME/CFS funding of £8.5 million pounds over three years
Life with Multiple Chemical and Environmental Sensitivities
Both Sides Now, by Ken Jolly

SECTION 2: MEDICAL MATTERS
CFIDS and Overlapping Disorders: Variations on a Theme?, by Katrina Berne, PhD
US Center for Disease Control Shifting to Clinical Studies, by Richard Podell, MD, MPH
ME: All in the Brain? Interview with Abhijit Chandhuri
AACFS 6th International Research and Clinical Conference, Summary of Presentations, by Charles W. Lapp, MD

SECTION 3: SOCIETY MATTERS
Leading the Way Seminar – summary
Film Night Photo Gallery
Film Night Summary & Raffle Winners
Badge Day

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2003 Issue 1

PDF

Download 2003 Issue 1 (PDF, 2.89MB)

SECTION 1: GENERAL
Editorial
Management Committee Report
News: Ciguatera and ME/CFS
News: Canada Leads the World with a Medical Milestone
An age-old issue, by Val Rubie
I Found My Light, by Kelly Gooch

SECTION 2: MEDICAL MATTERS
Q&A: Procrit Trial Focuses on Red Blood Cells, by Mark Giuliucci
Research Q&A: CFIDS and the Autonomic Nervous System, by Mark Giuliucci
Sleep Dysfunction in CFS, by Richard Podell
Grief and Depression, by Dr Nicole Phillips
Summary of Canadian CFS Case Definition
New Theory Links Neurotoxins with Chronic Fatigue Syndrome, Lyme, MCS and Other Mystery Illnesses, by Patti Schmidt

SECTION 3: SOCIETY MATTERS
Awareness Week 2003 May 10th Seminar
Film Night: May 16th 2003
I Remember Me, by Kym Snyder
Badge Day, 30th May 2003
Contacts

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2002 Issue 4

PDF

Download 2002 Issue 4 (PDF, 1.53MB)

SECTION 1: GENERAL
Editorial
Management Committee Reports
Letters to the Editor
CFS discussion in the Medical Journal of Australia
Motion on MCS put to the Legislative Council in South Australia
PHAA – letter to the NHMRC
Successful Grant Applications
Commotion on the Murray
What gets in the way of being sensible?, by Frankie Campling
Personal Story: An M.E. clinic turned my life around, by Abigail Owen
Special Feature: School and Kids with Chronic Fatigue Syndrome, by Mary Campbell
Miscellaneous News

SECTION 2: MEDICAL MATTERS
Persistent Pain in Patients with Chronic Fatigue Syndrome, by Laurence A. Bradley, PhD
Neuroendocrinology, Genetics and Chronic Fatigue Syndrome, by Dr David Torpy
Miscellaneous Journal Abstracts
Brain Abnormalities and CFS Pain

SECTION 3: SOCIETY MATTERS
Awareness Week 2003
SAYME End of year report
Questionnaire
Volunteer Positions Available
Food For Thought
Support Group Report
Support Groups
What is ME/CFS?

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2002 Issue 3

PDF

Download 2002 Issue 3 (PDF, 2.76MB)

SECTION 1: GENERAL
Editorial
Cartoon
Management Committee Report
Letters to the Editor
CFS Sufferer Wins Superannuation Disability Claim
Debrief on the RACP Guidelines, by Peter Evans, QLD
CSIRO Report: New Car Drivers Exposed to Toxic Emissions
A Sideways Look at Positive Thinking
My Life With ME/CFS, by Aoife Ryan

SECTION 2: MEDICAL MATTERS
Infections in CFIDS (ME/CFS)
A sociological perspective on CFS, by Neville Millen
The Neuroanatomy of Post-Polio Fatigue, by Dr Richard Bruno
CFS Research: The Need for Better Standards, by Nancy Klimas
ME in families: from AfME
Miscellaneous Abstracts
Pharmacists Offer Home Visits: from CHF

SECTION 3: SOCIETY MATTERS
Upcoming Meeting: “Meet the Real Experts”
Commotion on the Murray
Future Badge Days
Merchandise
Weed Spraying
Recipes
Support Groups
What is ME/CFS?

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2002 Issue 2

PDF

Download 2002 Issue 2 (PDF, 1.20MB)

SECTION 1: GENERAL
Editorial
Management Committee Report
Letters to the Editor
Debrief on the RACP Guidelines
Joint Letter: Professor Richard Larkins and Mr Simon Molesworth
‘Report on chronic fatigue fuels row’, by Julie Robotham (published in The Age)
‘Riddle of the quiet killer’, by Julie Robotham (published in the Sydney Morning Herald)
Time Magazine Article: ‘Neurotic or Misunderstood?’, by Daniel Williams
People Profile: Jo Tonkin

SECTION 2: MEDICAL MATTERS
‘The Place of Psychiatry in the CFS debate – Prejudice, Power and Pitfalls’, by Dr Nicole Phillips
‘Battle Fatigue’, by Jerome Burne
‘The cause and Treatment of Post-Polio Fatigue’, by Richard L. Bruno, Nancy M. Frick, Susan J. Creange, Todd Lewis, and Terry Molzen
Letter: New Directions for Newcastle University Researchers of Chronic Pain Disorders

SECTION 3: SOCIETY MATTERS
Meeting with Fibromyalgia SA
Awareness Evening and Expo, May 13th
Video Available of Awareness Evening and Expo
Badge Day, May 31st, CBD
Badge Day, May 31st, Burnside Village Shopping
Centre
People Profile: Peter Worsley
Merchandise
Out and About with Sue Heard
Recipes
Support Groups
What is ME/CFS?

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2002 Issue 1

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SECTION 1: GENERAL
Editorial
Management Committee Report
Letters to the Editor
CFIDS Association: Immunological symposium consensus statement News Release
UK Report Response, by Moira Smith
EnableNet
Action for ME Response
ME Association Responses
Chronic fatigue syndrome: a step towards agreement, by Christopher Clark, Dedra Buchwald, Anne MacIntyre, Michael Sharpe, Simon Wessely
Caring for patients with chronic fatigue syndrome, by Stephen E Straus
Recognising chronic fatigue is key to improving outcomes, by Lynn Eaton
25% ME Group Letter to BMJ
Campaigner Welcomes Government U-Turn
Getting Rid of Mould, by Catherine McIver
Reflections on Recovery, by Val Rubie
‘Well-Being’ and Being Well, by Joy Stevenson

SECTION 2: MEDICAL MATTERS
The Onset of CFS, by Dr David S. Bell
Follow-Up Survey of Lyndonville Children, by Mark Giuliucci
ME/CFS/PVFS, by Dr Charles Shepard
Research Abstracts – Various
Serotonin in Chronic Fatigue Syndrome & Fibromyalgia, by Melvyn R. Werbach
Laboratory and Clinical Differences between CFS and Depression, by E. Stein

SECTION 3: SOCIETY MATTERS
Poem: ‘Two Days in a Row’, by Brian Caire
Meetings
Events
Vale ~ Tracey Ash
Merchandise
Adelaide Bank Donation
Research Subjects Needed
Recipe Corner: 4 Delicious Recipes
Support Groups and Country Contacts
What is ME/CFS?

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2001 Issue 4

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SECTION 1: GENERAL
Editorial
Management Committee Report
Letters to the Editor
News: NEW SURVEY REVEALS Chronic Fatigue Syndrome is as Disabling or Debilitating as Lupus, Multiple Sclerosis, and Rheumatoid Arthritis
Sydney Morning Herald: Chemicals Linked to Chronic Fatigue Syndrome
National Association Response to the RACP Guidelines
Disability Support Pensioners Australia Inc.
Zöe’s Story: Severe ME
Sticks and Stones, by Val Rubie
Helpful Hints: A Guide to Understanding, Supporting and Encouraging People With Chronic, Debilitating Illness - Part 4, by Sherri L Connell
Book Review: Shattered

SECTION 2: MEDICAL MATTERS
Report on Public Meeting 25th August 2001
Sydney 2001 Conference Report
Rest, Pacing and Graded Exercise
Multiple Chemical Sensitivity – Toxicant Induced Loss of Tolerance (TILT)
A Closer Look at Cognitive Behaviour Therapy

SECTION 3: SOCIETY MATTERS
Merchandise
Member Writings
Annual Report
NE Support Group Report
Support/Social Group Details

What is ME/CFS?

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2001 Issue 3

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SECTION 1: GENERAL
Editorial
Management Committee Report
Letters to the Editor
Name Change for ME Association
Response to Guidelines
Severely Neglected ME in the UK
ME/CFS Society (SA) Inc.’s Response to the 2nd Draft of the CFS Guidelines
Superannuation and Insurance, by John Berril
Between a rock and a hard place – the costs of chronic illness and poverty, by Fiona Tito
Coping with Chronic Illness: “Helping Hints”, by Sherri L. Connell – Part 3 (Second half)
Dr Charles Shepherd Responds on Behalf of Patient Groups to a CFS Treatment Review

SECTION 2: MEDICAL MATTERS
Sydney 2001 Clinical and Scientific Meeting
The Biology of CFS, by A. Komaroff
CFIDS and Anasthesia: What are the risks?, by Elisabeth A. Crean
CDC Payback Funds Put to Use
CBT: Good or Bad?, by Theresa Coe
CFS, Bias and the British Medical Journal, by E. Goudsmit
‘Live’ Blood Analysis for CFS patients – exciting breakthrough or pure hype?, by Andy Wright, MD
Response to an Article in Australian Doctor, by Dr Peter Del Fante

SECTION 3: SOCIETY MATTERS
Upcoming Events: Notice of AGM
Books & Videos: For Sale and for Loan
RED, by Stephanie McCarthy
DIRC Book and Video List
Volunteer Positions
Help Needed
‘Understanding and managing ME/CFS/CFIDS’ Project
MEMBER FEEDBACK – From July Meeting To Discuss How the RACP Guidelines Might Affect Members in the Community
Youth Outlook: Captain ME
ME/CFS/CFIDS Project
Support Groups: Adelaide Report
Support Groups/Contacts Listing

What is ME/CFS?

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2001 Issue 2

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SECTION 1: GENERAL
Editorial
Management Committee Report
Letters to the Editor
News: Pesticide Blues, by Peter Evans
News: Consumers to get refunds for alleged CFS treatments
News: ME Plague hits 2500 young Scots
News: ME/CFS Guidelines – Write To Your MPs
Media Watch: “Tired for Life” appeared in the Courier Mail
Dietary Corner: “Was it something you ate?”, by Sabine Spiesser
Coping with Chronic Illness: “Helping Hints”, by Sherri L. Connell – Part 3 (First half)
Coping with Chronic Illness: “Dear CFIDS/FM Friends”, by Eunice Beck
Poem: “ME/CFS Awareness”, by L.A. Snow
Funding Requests

SECTION 2: MEDICAL MATTERS
South Australian Fibromyalgia research: New discoveries about cerebral blood flow
Dealing with chronic severe pain (From a Sufferers Perspective), by Kit
Abstract: Thirteen-Year Follow-Up of Children and Adolescents With Chronic Fatigue Syndrome
“In search of quality in general practice”, by Mark Harris
Considerations for seeing CFS patients
“[AACFS] Conference Expands CFS Findings”, by Dr Charles Shepherd
“Is CFS Linked to Vaccinations?”, by Dr Charles Shepherd
Summary of lecture delivered May 12th: An update on ME/CFS research at the University of Newcastle
“Evaluating Medical Breakthroughs”, by Professor John Dwyer
How Significant are Primary Sleep Disorders and Sleepiness in the Chronic Fatigue Syndrome?
Relationship of brain MRI abnormalities and physical functional status in chronic fatigue syndrome
Medical Seminar: August 11th

SECTION 3: SOCIETY MATTERS
Upcoming Events
Reports from last Management Committee
Photos
Volunteer Positions Available / Help Needed
‘Understanding and managing ME/CFS/CFIDS’ Project
Youth Outlook: Duke of Ed Awards
Support Groups

What is ME/CFS?

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2001 Issue 1

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SECTION 1: GENERAL
Editorial
Management Committee Report
FORUM PAGE: Poem included
NEWS: “Five Years Funding for Sydney Researchers”, by Moira Smith
NEWS: “The Latest on the CFS Name Game”, by Lisa Lorden
Call for participants in new study
Dietary Corner: “Dietary hints for managing hypoglycaemia”, by Melanie Stratil
Coping: Don’t Give Up Your Dreams
Helpful Hints, by Sherri Connell
Maintaining Self-Esteem by Val Rubie
Humour: CFS Happens

SECTION 2: MEDICAL MATTERS
Obituary: Dr Tapendra Mohan Mukherjee
Medical Seminar (May 12)
Neurocognitive impairment in CFS
Fludrocortisone acetate to treat neurally mediated hypotension in chronic fatigue syndrome
Childbearing and CFIDs: Making a Difficult Decision
Randomised controlled trial of patient education to encourage graded exercise in chronic fatigue syndrome
Graded Exercise Therapy for ME/CFS? – A response to: Randomised controlled trial of patient education to encourage graded exercise in chronic fatigue syndrome
Media Watch: ABC Health Report: Graded Exercise For Chronic Fatigue Syndrome
Exercise Capacity in Chronic Fatigue Syndrome

SECTION 3: SOCIETY MATTERS
Awareness Week
Report on General Meetings 10th Feb 2001
Report from Tertiary Education Meeting 18th Feb 2001
Report from Election General Meeting 24th Feb 2001
Chronic Illness on the Web
Members Talk: Jonathan Foote
Volunteer Positions Available
Book Review: “Adolescence and Myalgic Encepalomyelitis / Chronic Fatigue Syndrome”, by Naida Edgar Brotherston
Handy Hints
Home Assist Programs
Report on Support Groups
Youth Outlook
Support Groups and Contact Numbers

What is ME/CFS?

Earlier issues

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2000

September 2000
Articles include:
Drug Treatments Update
 

June 2000
Articles include:
Newcastle Lecture
Food and Chemical Sensitivities
 

March 2000
Articles include:
Pat carries the torch
Health management
World CFS Congress
Cures’

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1999

December 1999
Articles include:
Improved services
Colostrum study
Magnesium
Recent papers
Notice to vendors

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