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  ME/CFS AUSTRALIA (SA) INC

Registered Charity 698

Email:
sacfs@sacfs.asn.au

Mailing address:
PO Box 28,
Hindmarsh,
South Australia 5007

Office:
266 Port Road,
Hindmarsh,
South Australia 5007
Ph: 1300 128 339

Office Hours:
Wednesdays, 10am-3pm


FIBROMYALGIA HELP:
Contact
Fibromyalgia SA
at the
Arthritis Foundation of SA
118 Richmond Road,
Marleston 5033
Ph: (08) 8379 5711

ME/CFS Australia (SA) Inc supports the needs of sufferers of Myalgic Encephalomyelitis, Chronic Fatigue Syndrome and related illnesses. We do this by providing services and information to members.

Disclaimer

ME/CFS Australia (SA) Inc aims to keep members informed of the various research projects, diets, medications, therapies etc. All communication, both verbal and written, is merely to disseminate information and not to make recommendations or directives.

Unless otherwise stated, the views expressed on this Web site are not necessarily the official views of the Society or its Committee and are not simply an endorsement of products or services.

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Aims of the Society

Mission Statement
Vision
Aims
Goals

Mission Statement

To improve the quality of life and health management of people with ME/Chronic Fatigue Syndrome, whilst supporting community education and research initiatives, which will lead to recognition by government health providers of the need for better outcomes in service provision.

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Vision

People diagnosed with ME/CFS condition should be recognized as having a genuine illness and be entitled to equitable service provision. They should be entitled to fair treatment by medical and health professionals, as well as health and government service providers. They should not be discriminated against by health, medical, housing financial or educational bodies because of their diagnosis. One specific feature of ME/CFS as a condition – that it may fluctuate in severity – should be acknowledged.

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Aims

  1. Information
    The society aims to provide information to persons with ME/CFS, carers of people with ME/CFS, medical and health practitioners, and the general community to enhance understanding of the condition. It also seeks to raise awareness about research, and actively promotes awareness about living with chronic illness.
  2. Support
    The Society seeks to provide positive role models for people with ME/CFS. Using a Model of Recovery the Society seeks to provide and recommend appropriate self-management programs and coping strategies for people with ME/CFS.
  3. Liaison
    To liaise with interstate and international ME/CFS organizations, and like minded organizations, in order to keep abreast of the latest information, research initiatives and medical developments.
  4. Advocacy
    Responding to current developments in policy relating to ME/CFS. The society will continue to keep abreast of these developments and encourage membership to participate in opportunities for comment.

    The Society seeks to keep health, medical, housing, financial and educational bodies up to date on the latest information about ME/CFS, with a view to ensuring people with ME/CFS are not discriminated against.
  5. Cooperation with other agencies
    A cooperative service model is adopted in order to increase its range of services to members, as well as broadening its membership base.
  6. Youth
    The Society recognizes there are unique and specific needs amongst youth with ME/CFS. Since 1994 we have supported and encouraged SAYME (South Australian Youth with ME/CFS). The Society seeks to address the social isolation experienced by young people with ME/CFS, as well as their socialization and educational needs. [see separate Youth section]
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Goals

To maintain and build upon the current services offered by the organization

To increase funding activities to meet increased operating costs

To prioritize the processes for gathering of data to apply for grants

To keep up to date with medical, policy and research initiatives

To explore programs which may assist members to maintain their well-being and to reduce social isolation

To continue to provide responsive, stable and appropriate management

To encourage members to become actively involved in the activities of the organization

To educate every GP in the state about ME/CFS

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