ME/CFS Australia (SA) Inc: Information and Support 2004

ME/CFS AUSTRALIA (SA) INC

Registered Charity 3104

Email:
sacfs@sacfs.asn.au

Mailing address:
PO Box 28,
Hindmarsh,
South Australia 5007

Office:
Suite 506,
North Terrace House,
19 North Terrace,
Hackney, SA, 5069

Phone:
1300 128 339

Office Hours:
Wednesdays, 11am-3pm

ME/CFS Australia (SA) Inc supports the needs of sufferers of Myalgic Encephalomyelitis, Chronic Fatigue Syndrome and related illnesses. We do this by providing services and information to members.

ME/CFS Australia (SA) Inc aims to keep members informed of various research projects, diets, medications, therapies, news items, etc. All communication, both verbal and written, is merely to disseminate information and not to make recommendations or directives.

Unless otherwise stated, the views expressed on this Web site are not necessarily the official views of the Society or its Committee and are not simply an endorsement of products or services.

What is this appeal for?

ME or Chronic Fatigue Syndrome (ME/CFS) is a debilitating condition that affects up to 0.5% of the population. As yet we do not understand the cause of it, nor do we have a diagnostic test. The condition is poorly understood by the medical community, and society in general. People with ME/CFS often have family members that do not understand them, and they may even be ridiculed and described as being ‘lazy’ when then they are not. Many sufferers find themselves isolated, without support and at their wits’ end. Children are particularly vulnerable; if they are forced to spend the bulk of their time at home, they are often denied a proper education and it is more difficult for them to develop socially and emotionally. We provide information and emotional support to such people and their families.

Improve our Information and Support Line...

The Information and Support 2004 project aims to improve our Information and Support Line. An 1800 number phone line is open to the general public, and is staffed by volunteers. We are able to provide understanding, emotional support and information to people with ME/CFS and their families. To improve this service we will amongst other things be developing and producing additional resource materials available for distribution to the public, through our website and through the Information and Support Line.

Key areas of expenditure for funds donated:

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Recruitment – we need to expand our team of workers in 2003

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Training – new workers need to be trained

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Production of information booklets/sheets and for phone calls

Visit the Information and Support 2004 Web site, where tax-deductible donations can be made online.