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ME/CFS AUSTRALIA (SA) INC

Registered Charity 3104

Email:
sacfs@sacfs.asn.au

Mailing address:
PO Box 322,
Modbury North,
South Australia 5092

Office:
Suite 506,
North Terrace House,
19 North Terrace,
Hackney, SA, 5069


Phone:
1300 128 339

Office Hours:
By appointment

ME/CFS Australia (SA) Inc supports the needs of sufferers of Myalgic Encephalomyelitis, Chronic Fatigue Syndrome and related illnesses. We do this by providing services and information to members.

Disclaimer

ME/CFS Australia (SA) Inc aims to keep members informed of various research projects, diets, medications, therapies, news items, etc. All communication, both verbal and written, is merely to disseminate information and not to make recommendations or directives.

Unless otherwise stated, the views expressed on this Web site are not necessarily the official views of the Society or its Committee and are not simply an endorsement of products or services.

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Talking Point
2002 Issue 1
In this issue:

President’s Report (March 2002)
UK Guidelines Released
EnableNet
Awareness Day
Badge Day
Awareness Evening and Expo
Vale – Tracey Ash
Bank Donation
Healthy Research Subjects Needed
Support Groups

Vale – Tracey Ash

By Glenn and Sandra Ash

Tracey Ash
Tracey Ash

At age 20, Tracey Ash was doing exactly what she desired: living in an apartment in down town Rundle Street, Adelaide amongst intelligent, artistic friends; studying at University; working in cafes and restaurants to sustain her way of life; making web-sites for major functions; and achieving top marks and recognition for her academic endeavours.

Tracey loved to party with friends and family, was sporty, artistic and keenly interested in people from all walks of life and their culture.

She was a person who was prepared to challenge herself emotionally, spiritually and intellectually, not to mention those around her. Her tenacity and resourceful nature stood her well for she did achieve; she was always courageous and had a wonderful ethical basis for her life.

The onset of Tracey’s illness is disputable. True, there was a day when struck down with a virus, she said, “I felt extreme pain in my neck and spine and the fog descended.” But in hindsight there had been a violent trauma in her life 2 years earlier and she had been “sicker than most of my friends.”

From then onwards her life gradually changed as her condition worsened. During the following years Tracey constantly searched for new possibilities of getting well for her greatest desire was to recover from her illness and to heal herself permanently.

Tracey suffered from ME/CFS, Fibromyalgia, Multiple Chemical Sensitivity, Rickettsia, and an unbearable, undiagnosed source of pain. This caused difficulty in speaking and an inability to do even the most simple of routine tasks to care for herself.

She also suffered the frustrating normality of many standard medical tests and the indignity and tendency of orthodox medicine to attach a psychiatric label to her collection of illnesses. Added to this was the inability of being able to travel, tolerate hospital environments or see medical specialists. All she had was a local doctor, striving to understand and find answers to support her and her family.

The words of one of Tracey’s friends describe Tracey in a beautiful way. She wrote:

“Tracey will live on in my heart forever as a great teacher and friend and is a major contributor to who I am today. She was a great support for me in my experience of CFS; she was a spark igniting my growth. Tracey was a great artist, communicator, dancer, writer, motivator, philosopher, interior designer, teacher and friend. One of the greatest lessons I learned and hold dear to my heart is that love is all that matters. Tracey told me this last year and I try to apply it wholly in my life.”

In the end Tracey’s mountain became too high and too steep with too many obstacles in her path. Wellness became a faded and unreachable distant light. And so it was that Tracey, with dignity, thoughtfulness and great courage gently and peacefully commended her soul to God.

It is a tragedy that Tracey, a person with such zest for life had to spend such a lot of it in excruciating and relentless pain. She so much wanted to live. This and other desires that Tracey had will now remain as dreams unfulfilled. We are thankful for all the great memories we have of her.

Our wish is that people who knew Tracey will find strength comfort and joy in her memory. That her unique and beautiful character will live on forever and her spirit will continue to influence our lives. Remember her compassion, wit, intellect and the brilliance of her smile.

It is hoped that Tracey’s untimely death will light the way for health professionals to improve their knowledge of ME/CFS and inspire them to view this collection of illnesses in a new light. To this end the Tracey Ash Fund was born.

Glenn & Sandra Ash

The Tracey Ash Fund

The Alison Hunter Memorial Foundation will administer the Tracey Ash Fund.

Donations will be directed towards improving medical care for people suffering from Chronic Fatigue Syndrome group of illnesses.

A particular area of emphasis of the Fund will be:

to work to bridge the gap between research and the local doctor level

to promote the spirit of generosity and openness in information sharing, educational activities and literature

to support partnerships between General Practitioners, carers and sufferers particularly at the severe end of the illness

to work to improve access to a range of appropriate and timely services for severely ill people

Donations in Tracey’s memory may be made to:

The Tracey Ash Fund
C/- Alison Hunter Memorial Foundation
P.O. Box 2093
BOWRAL, NSW 2576

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