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ME/CFS AUSTRALIA (SA) INC

Registered Charity 3104

Email:
sacfs@sacfs.asn.au

Mailing address:
PO Box 322,
Modbury North,
South Australia 5092

Office:
Suite 506,
North Terrace House,
19 North Terrace,
Hackney, SA, 5069


Phone:
1300 128 339

Office Hours:
By appointment

ME/CFS Australia (SA) Inc supports the needs of sufferers of Myalgic Encephalomyelitis, Chronic Fatigue Syndrome and related illnesses. We do this by providing services and information to members.

Disclaimer

ME/CFS Australia (SA) Inc aims to keep members informed of various research projects, diets, medications, therapies, news items, etc. All communication, both verbal and written, is merely to disseminate information and not to make recommendations or directives.

Unless otherwise stated, the views expressed on this Web site are not necessarily the official views of the Society or its Committee and are not simply an endorsement of products or services.

Talking Point
2002 Issue 2
In this issue:

Editorial
Badge Day
Support Groups
What is ME/CFS?

Editorial

Greetings to all our members and readers out there.

Best wishes to Farrah, my usual co-collaborator, who has been unable to assist with this edition of Talking Point.
This edition is somewhat simple with coverage of various recent events dominating the content.

The medical section is dominated by three substantial articles. Each are important in their own right and deserve publication – they are worth making their way through.

A bit about each.

Nicole Phillips, Psychiatrist, presented a paper at the recent International CFS Conference in Sydney. We have been fortunate to gain that paper for publication.

There are similarities between Post-Polio syndrome and CFS. Post-Polio research is years ahead of CFS research so perhaps we have bit to learn from them. This Post-Polio paper provides a good overview of the condition.

Jerome Burne has done a fantastic job as an investigative journalist to probe the ME/CFS debate in the UK in ‘Battle Fatigue.’ I believe he has wonderfully outlined the subtleties (confusing vagueness?) of those we would consider on the ‘other side of the debate.’ It is important to be properly informed. The ‘other side of the debate’ do not maintain that CFS is ‘all in the head.’ No-one seriously believes that CFS is purely Psychiatric. The debate is in how much the illness is maintained by our psychology and learned behaviours.

As I outline on page 8, if you come across a medical practitioner who suggests that CFS is ‘all in the head’ please let us know. It is ‘not-on.’

Enjoy reading!

Paul Leverenz
Editor

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