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ME/CFS AUSTRALIA (SA) INC
Registered Charity 698
Mailing address:
GPO Box 383,
Adelaide,
South Australia 5001
Office:
266 Port Road,
Hindmarsh,
South Australia 5007
Ph: (08) 8346 3237
('834 MECFS')
Office Hours:
Wednesdays, 10am-3pm
Support Line:
(Mondays and Thursdays,
10am-3pm)
Ph: (08) 8346 3237
SA country callers:
Ph: 1300 128 339
(local call)
FIBROMYALGIA HELP: Contact Fibromyalgia SA at the Arthritis Foundation of SA 118 Richmond Road, Marleston 5033 Ph: (08) 8379 5711 |
ME/CFS Australia (SA) Inc supports the needs of sufferers of Myalgic Encephalomyelitis, Chronic Fatigue Syndrome and related illnesses. We do this by providing services and information to members.
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Disclaimer
ME/CFS Australia (SA) Inc aims to keep members informed of the various research projects, diets, medications, therapies etc. All communication, both verbal and written, is merely to disseminate information and not to make recommendations or directives.
Unless otherwise stated, the views expressed on this Web site are not necessarily the official views of the Society or its Committee and are not simply an endorsement of products or services.
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President’s Annual Report
November 24, 2001
1: Introduction
2: Where we started this year
3: Office
4: Finances
5: Membership
6: Professionalism
7: Human Resources
8: Constitution
9: Better understanding
10: Managing the Society
11: Thankyous
12: Conclusion
Reports
President’s report (AGM Nov
8, 2003)
Management Committee report (Jan 2003)
President’s end of year reports (2002)
President’s report (Mar 2002)
President’s report (Jan 2002)
President’s report (Nov 2001)
Nat. Assn. President’s report
(Nov 2001)
President’s report (Sep 2001)
Miscellaneous reports (Jun
2001)
Vice-president’s report (Jun
2001)
Vice-president’s report (Mar
2001)
President’s Annual Report (continued)
Towards developing a broader / better understanding of our Society and ourselves
It is very important that we are kind to ourselves. If there is one thing that has been impressed upon me this year, it is that ME/CFS is an emotional illness. Many things compound that to mean we have an ‘emotional’ Society. It is important we recognise the following things:
- It’s not fair that we have this illness ME/CFS (but we have to deal with it)
- It’s not fair that circumstances conspire against us such that the government is slow to recognise ME/CFS (but we have to keep at them)
- It’s not fair that we have to not only try to help each other, but we have this added burden of convincing the Government and medical practitioners that we are genuine
- It’s not fair (and painfully ironic) that people with an energy draining condition (and debilitating) have to do everything for themselves without government funding (especially when the government does so much for people who voluntarily damage their own health through smoking, drug addiction, alcohol abuse etc…)
- It’s not fair that many of us are financially crippled by ME/CFS, and yet we are having to maintain our Society by our memberships and donations (bigger organisations can offer free membership)
Step one to maintain emotional health is to acknowledge these things. It is easy to fall into the trap of becoming conditioned to abuse, injustice and inequity. Let’s not unduly beat ourselves up – life is tough enough as it is.
Step two is to channel frustration / anger / pain into the right channels. This will vary from person to person but whatever the approach the goal must be to take control of our lives in ways appropriate to our situation. We understand that whilst many of our members cannot offer physical or financial support – everyone can offer moral support at the very least. One card or phone call a year from every member would give us some energy to go on.
Until ME/CFS receives official recognition, and the Society receives Government assistance, I put it to you that we are fighting for a cause as well as running an organisation. And an important one too. It is important that we hold on until the aforementioned relief comes.
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