ME/CFS AUSTRALIA (SA) INC Registered Charity 698 Mailing address: GPO Box 383, Adelaide, South Australia 5001 Office: 266 Port Road, Hindmarsh, South Australia 5007 Ph: (08) 8346 3237 ('834 MECFS') Office Hours: Wednesdays, 10am-3pm Support Line: (Mondays and Thursdays, 10am-3pm) Ph: (08) 8346 3237 SA country callers: Ph: 1300 128 339 (local call)
ME/CFS Australia (SA) Inc supports the needs of sufferers of Myalgic Encephalomyelitis, Chronic Fatigue Syndrome and related illnesses. We do this by providing services and information to members.
Disclaimer ME/CFS Australia (SA) Inc aims to keep members informed of the various research projects, diets, medications, therapies etc. All communication, both verbal and written, is merely to disseminate information and not to make recommendations or directives. Unless otherwise stated, the views expressed on this Web site are not necessarily the official views of the Society or its Committee and are not simply an endorsement of products or services. |
Vice-President’s Report Reports |
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Vice-President’s Report (continued)Immediate issues to addressThe biggest issue we face – and I’m going to say it right out – is this committee going to burn out? Ultimately that is the management committee’s responsibility BUT I suggest there is also a corporate responsibility to ensure this doesn’t happen. As I said earlier I think we have a great team, and I think it needs to be valued, encouraged and supported. You may have been surprised by our mailout in March, outlining drastically reduced office hours. We have been finding it difficult even to meet these obligations. Our new management committee is faced with many tasks: orientation, updating job descriptions, writing policies, doing a financial audit and financial planning, upgrading our office, grant writing, improving our core services, making up doctors and new member packs, making a brochure to go into doctor’s surgeries, as well as restarting the volunteer project. There really is a lot. You may say, “We need to scale back what we are doing with the society” – but it is very hard to see where we can cut back in terms of our responsibilities – we are doing a bare minimum as it is now. Support groups, the support line, Talking Point, SAYME, public meetings and awareness week are all valuable. To cut back services would be disastrous. I believe we actually need to spend even more time improving each of these core services, as well as offer more things for the long term sufferers. The latter is needed to help retain members long-term. I believe we have simple choice right now: curl up and die (scale back), or have a crack at improving what we do (with a view to expanding). And I’m not one to give up easily.
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