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ME/CFS AUSTRALIA (SA) INC
Registered Charity 698
Mailing address:
GPO Box 383,
Adelaide,
South Australia 5001
Office:
266 Port Road,
Hindmarsh,
South Australia 5007
Ph: (08) 8346 3237
('834 MECFS')
Office Hours:
Wednesdays, 10am-3pm
Support Line:
(Mondays and Thursdays,
10am-3pm)
Ph: (08) 8346 3237
SA country callers:
Ph: 1300 128 339
(local call)
FIBROMYALGIA HELP: Contact Fibromyalgia SA at the Arthritis Foundation of SA 118 Richmond Road, Marleston 5033 Ph: (08) 8379 5711 |
ME/CFS Australia (SA) Inc supports the needs of sufferers of Myalgic Encephalomyelitis, Chronic Fatigue Syndrome and related illnesses. We do this by providing services and information to members.
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Disclaimer
ME/CFS Australia (SA) Inc aims to keep members informed of the various research projects, diets, medications, therapies etc. All communication, both verbal and written, is merely to disseminate information and not to make recommendations or directives.
Unless otherwise stated, the views expressed on this Web site are not necessarily the official views of the Society or its Committee and are not simply an endorsement of products or services.
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Reports
President’s report (AGM Nov
8, 2003)
Management Committee report (Jan 2003)
President’s end of year reports (2002)
President’s report (Mar 2002)
President’s report (Jan 2002)
President’s report (Nov 2001)
Nat. Assn. President’s report
(Nov 2001)
President’s report (Sep 2001)
Miscellaneous reports (Jun
2001)
Vice-president’s report (Jun
2001)
Vice-president’s report (Mar
2001)
Management Committee Report
January 2003
By Paul Leverenz
From the President
Hello and welcome to new members for whom this is their first edition of Talking Point. I have made a conscious effort to get this edition out on time and plan to keep on track. We received a great boost in December when the Adelaide Bank Charitable Foundation donated $5300 to assist with Talking Point for this year – hence the logo on the front cover. We thank them very much for their assistance. Without this we would be looking at a concerning loss for this financial year. More about that later.
More on Talking Point for 2003
The Management Committee has decided to limit Talking Point to 32 pages for 2003. This is because of necessity to reduce our costs, and to minimize my considerable workload. I believe we can still retain the quality with this adjustment. I remind you all that the “Society Matters” section of Talking Point contains valuable information about upcoming Society news and events. If you can’t get time (or you are not well enough) to read all of Talking Point, then please make sure you flick through that section first of all – we count on you reading it.
May 2003 Awareness Events
I am very excited to let you know about our Awareness Week (May 10 to 16) events. You may be aware that May 12 is International ME/CFS/FM Awareness Day. Wear a blue ribbon on this day to draw attention to these conditions.
Seminar – May 10
On May 10 we have a seminar from 12:30pm to 5:00pm with David Torpy, Endocrinologist RAH, as our keynote speaker. Dr David Gillis, Immunologist, will speak on the differences between FM and CFS, and Dr Peter Del Fante will give a summary of the research being conducted here in Adelaide into these conditions. In addition, Jenny Bennett from the Arthritis Foundation will speak briefly on self-management.
The seminar is being conducted in conjunction with Fibromyalgia SA and will provide a lot of information. Representatives from other related organizations will have trade stalls, and be there to let you know about other services in the community that you might benefit from. Each person who attends the Day seminar will receive a goodie bag containing useful items and information.
Film Night – May 16
On the evening of Friday May 16 we are holding a film night to raise awareness about CFS and hopefully raise a bit of money for the Society. Please bring your friends along to this event – it will be a great night with great food and drinks.
Taking a Risk
In organizing these events we are taking a big risk. We have tried to keep the costs down, and to offer a significant member discounts. I hope that you can understand that unless we can find major sponsors we do have to charge for such events. And well organized and professional events cost. (At last year’s awareness event, which cost approx. $4000, we charged a nominal entry fee but was only able to do this because we had been given $3000 from a sponsor.)
So we are taking a gamble by running two events that have costs involved. I hope that with the notice given, you can budget ahead of time.
(As per usual our seminar will be taped and those tapes made available to our country support groups.)
Badge Day – May 30
On May 30 we rattle our tins once again in the city of Adelaide for Badge Day.
Government Support
Government support has continued to eluded us, but it is high on our list of priorities. The Management Committee is committed to expanding the Society’s services, and to the necessary task of convincing the State Government that it needs to support us financially.
Finance
We are looking at a $5000 to $8000 loss for this financial year (this assumes too a successful Badge Day appeal on May 30.) We have the financial reserves to cover this sort of loss for a couple of years, but obviously it is not the ideal situation. All the more reason why we need the government funding above.
Talking Point Electronically
A number of people have taken up the option of receiving Talking Point electronically. By doing so you save us at least $6 p.a.
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Hope to see you during Awareness Week!
Paul Leverenz
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