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ME/CFS AUSTRALIA (SA) INC
Registered Charity 698
Mailing address:
GPO Box 383,
Adelaide,
South Australia 5001
Office:
266 Port Road,
Hindmarsh,
South Australia 5007
Ph: (08) 8346 3237
('834 MECFS')
Office Hours:
Wednesdays, 10am-3pm
Support Line:
(Mondays and Thursdays,
10am-3pm)
Ph: (08) 8346 3237
SA country callers:
Ph: 1300 128 339
(local call)
FIBROMYALGIA HELP: Contact Fibromyalgia SA at the Arthritis Foundation of SA 118 Richmond Road, Marleston 5033 Ph: (08) 8379 5711 |
ME/CFS Australia (SA) Inc supports the needs of sufferers of Myalgic Encephalomyelitis, Chronic Fatigue Syndrome and related illnesses. We do this by providing services and information to members.
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Disclaimer
ME/CFS Australia (SA) Inc aims to keep members informed of the various research projects, diets, medications, therapies etc. All communication, both verbal and written, is merely to disseminate information and not to make recommendations or directives.
Unless otherwise stated, the views expressed on this Web site are not necessarily the official views of the Society or its Committee and are not simply an endorsement of products or services.
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President’s Report
AGM November 8, 2003
1: Introduction
2: Management Committee
3: Achievements
4: Grants
5: Finances
6: Key directions and issues
7: Thanks
8: Conclusion
Reports
President’s report (AGM Nov
8, 2003)
Management Committee report (Jan 2003)
President’s end of year reports (2002)
President’s report (Mar 2002)
President’s report (Jan 2002)
President’s report (Nov 2001)
Nat. Assn. President’s report
(Nov 2001)
President’s report (Sep 2001)
Miscellaneous reports (Jun
2001)
Vice-president’s report (Jun
2001)
Vice-president’s report (Mar
2001)
President’s Report (continued)
Key directions and issues
I believe that we need to find ways to sustain services to members and to lobby on their behalf without burning out the few members and volunteers who come forward to work for the common good. To this end we will look at ways of working with other disability societies.
This year we investigated collocating with Cystic Fibrosis SA. The aim was to reduce our rental costs, share resources, maintain extended reception desk hours and go for grants together. In the end the idea fell through but we hope to maintain our links with CFSA and shared accommodation remains on the table. We also this year took another step in this direction. To rationalise the effort which goes into Talking Point, especially with the departure of Paul Leverenz, we have negotiated with the Victorian ME/CFS Society. Henceforth we will use key material from its journal whilst maintaining South Australian content.
My personal view is that we must continue to look for ways to share resources. We must value our identity as a supporter of and a voice for people suffering from one of society’s less high profile illnesses. But we remain only a means to an end and if we can find better ways to work for our members by sharing resources then we should be happy to go that way.
I am certainly mulling as I write this as to whether our membership alone is adequate to sustain some of the programs for which we work hard. The low response to the SAYME camp and the self-management course lead me to think that we would do better to keep broadening the catchment of our users by sharing projects with other societies in this State. This is an issue on which I would appreciate members’ feedback.
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