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Links
ME/CFS societies
Australian
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National
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ME/CFS Australia Ltd
PO Box 7100 Dandenong VIC 3175
(03) 9793 4500
(03) 9793 1866
www.mecfs.org.au
ceo@mecfs.org.au
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Australian Capital Territory
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ACT ME/CFS Society Inc
c/o SHOUT, PO Box 717, Mawson ACT 2607
(02) 6290 1984
(02) 6290 4475
www.mecfscanberra.org.au
mecfsadmin@shout.org.au
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New South Wales
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ME/CFS & FM Association of NSW
www.mecfsnsw.org.au
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ME/CFS Society of NSW
PO Box 5403, West Chatswood NSW 1515
www.me-cfs.org.au
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Northern Territory
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ME/CFS Australia (Northern Territory)
PO Box 120, Prahran, VIC 3181
(03) 9529 1344
(03) 9529 1600
www.mecfs-vic.org.au
admin@mecfs-nt.org.au
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Queensland
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ME/CFS/FM Support Association Qld Inc
27 Scott Street, Toowoomba QLD 4350
(07) 4632 8173
(07) 4659 5239
mefmtba@bigpond.com
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South Australia
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ME/CFS Society (SA) Inc
PO Box 28, Hindmarsh SA 5007
Suite 506, North Terrace House, 19 North Terrace, Hackney, SA, 5069
1300 128 339
sacfs@sacfs.asn.au
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Tasmania
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ME/CFS Australia (Tasmania)
PO Box 120, Prahran, VIC 3181
(03) 9529 1344
(03) 9529 1600
www.mecfs-vic.org.au
admin@mecfs-tas.org.au
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Victoria
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ME/CFS Australia (Victoria)
2/240 Chapel Street, Prahran, VIC, 3181
PO Box 120, Prahran, VIC 3181
(03) 9529 1344
(03) 9529 1600
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Western Australia
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ME/CFS Society of Western Australia
The Centre for Neurological Support,
The Niche, 11 Aberdare Road Nedlands, Perth
WA 6009
(08) 9346 7477
(08) 9346 7534
www.mecfswa.org.au
info@mecfswa.org.au
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International
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National ME/FM Action Network
The National ME/FM Action Network is a registered, charitable, non-profit organization dealing with ME/CFS and FM, offering support, advocacy, education and research into the many and varied anomalies connected with these illnesses.
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| Italy |
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Associazione Malati di CFS Onlus
The Associazione Malati di CFS Onlus is trying to find new resources for CFS research, and is helping the growth of a CFS project at the University of Pavia. The association is also trying to convince Italy’s politicians that the problem of CFS needs much more attention than it is given now.
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| New Zealand |
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ANZMES (Australia and New Zealand ME/CFS group)
ANZMES is proactive and busy serving existing members and assisting those who are newly diagnosed, as well as helping those who may only suspect they are sufferers.
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| UK |
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Action for M.E.
Action for M.E. is a national charity campaigning to improve the lives of people with ME in the UK.
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The ME Association
The ME Association, founded in 1976, fulfils its strategic aims by funding and supporting research and providing information and support, education and training.
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M.E. Support
M.E. Support is a website providing information, advice, and support on Myalgic Encephalomyelitis.
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Overton Studios Trust
A UK Registered Charity providing holistic online and offline support for sufferers of ME, CFS, PVS, CFIDS and fibromyalgia.
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The 25% M.E. Group
This UK site offers information and support for severely affected ME sufferers.
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| USA |
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International Association for CFS/ME
The mission of the IACFS/ME is to promote, stimulate and coordinate the exchange of ideas related to CFS, ME and fibromyalgia (FM) research, patient care and treatment.
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Solve ME/CFS Initiative
The Solve ME/CFS Initiative is the largest and most active charitable organization dedicated to conquering chronic fatigue syndrome.
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The Unify Coalition
Advocacy and help for “invisible” illnesses.
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Best sites for ME/CFS information
Australia
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Alison Hunter Memorial Foundation
Alison Hunter was a young Australian who died from complications from ME/CFS. This foundation was started by her mother to honour her, and is a great source of information.
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International
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Het Alternatief
Het Alternatief (The Alternative) is a Dutch website with a lot of biomedical information about ME.
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The ME/CFS Information Page
By Mary Schweitzer. A great source of links to other sites.
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The CFIDS Report
By Craig Maupin. Cutting-edge news and commentary for the CFIDS community.
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CFS Italia
Informative site from Italy (in Italian).
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CFS News
Tons of links to other sites – a great resource.
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MayoClinic.com: Women’s Health: Chronic Fatigue Syndrome
A comprehensive overview of ME/CFS in the Women’s Health section of the Mayo Clinic’s website.
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M.E. Support
M.E. Support is one of the leading websites on Myalgic Encephalomyelitis providing information, advice and support.
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Phoenix Rising
By Cort Johnson. This website is a library that CFS patients and interested parties can access in order to get overviews of particular areas of CFS research.
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ProHealth ImmuneSupport.com
A great place to find out about news, research and treatments. Immune support is run by a private nutritional supplement company.
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Research/Medical
Australian
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CFS Discovery
Dr DP Lewis has been involved in the care and management of patients with chronic fatigue syndrome (CFS) since 1985. In order to provide effective treatment for his patients, which now number more than one thousand, Dr Lewis has established a medical practice that is dedicated solely toward the diagnosis and treatment of CFS.
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Dr Mark Donohoe’s Website
Dr Donohoe has been one of Australia’s best known doctors in the field of environmental medicine, and has been involved in many areas of change within medicine, especially regarding the environment’s impact on human health.
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International
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CFS-ME Registry
CFS-ME Registry is a community specifically for people suffering from CFS-ME.
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CDC (Centers for Disease Control and Prevention): Chronic Fatigue Syndrome
This web site offers information about Chronic Fatigue Syndrome and its diagnosis and treatment.
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Center for Complex Infectious Diseases
The primary mission of CCID is to determine the nature, origin, disease associations, modes of transmission, methods of diagnosis and responses to therapy of complex infectious diseases, and to disseminate such information.
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Institute for Molecular Medicine
The mission of the Institute for Molecular Medicine is to contribute to the understanding of and the prevention and cure of catastrophic human chronic diseases, such as autoimmune diseases, fatigue illnesses, rheumatic diseases, cancer, AIDS, and infectious and genetic diseases.
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MedRefs Medical References Management Database & The Chronic Fatigue Syndrome & Fibromyalgia Database
A Microsoft Access database of medical references to ME/CFS.
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National CFIDS Foundation
Founded in 1997 by two 14-year CFIDS (Chronic Fatigue Immune Dysfunction Syndrome) advocates, the goals of the Foundation are to help fund medical research to find a cause, expedite treatments and eventually a cure for this devastating disease.
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Diet-related
Journals
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HighWire Press
A division of the Stanford University Libraries, HighWire Press hosts the largest repository of high impact, peer-reviewed content, with 1,065 journals and more than 4 million full text articles from over 130 scholarly publishers.
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Free Medical Journals
Over the next few years, many important medical journals will be available online, free and in full-text. The unrestricted access to scientific knowledge will have a major impact on medical practice. Open access medical textbooks will soon become the standard in medical publishing.
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Youth-related
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Association of Young People with ME (AYME)
AYME is a UK-based independent registered charity dedicated to giving help, friendship, support and vital contact to children and young people with ME.
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Band-Aides and Blackboards
A fantastic resource for kids, teens and adults. Covers a wide range of issues concerned with growing up and coping with a medical problem.
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CFIDS in Youth
From the CFIDS Association of America.
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For Parents of Sick and Worn-Out Children
When your child persistently suffers from symptoms of Chronic Fatigue and related syndromes, you as a parent have special kinds of problems. This page is devoted to developing and pointing toward help on these problems.
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Young Action Online
Our central principle is to create and maintain a concentrated resource of solid information from creditable sources for young people with ME, their families and professionals.
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Miscellaneous
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An Eye Opening Guide to Chronic Fatigue Syndrome
A list of links providing information and support for CFS sufferers.
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Axford’s Abode: ME/CFS
The ME/CFS Web site at Axford’s Abode aims to provide factually accurate, reliable and up-to-date information about chronic fatigue syndromes. The summaries of the research are compiled and checked by qualified health professionals with more than ten years experience in this field. The editor is a chartered health psychologist and psychophysiologist who has followed the research on ME since 1984.
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Brainfog
Keeping the lighter side of ME/CFS and life well and truly alive! Brainfog flies in the face of all preconceived notions that the illness ME/CFS is a creation of psychological disorders.
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CFS Days
Be it information on Chronic Fatigue Syndrome, Fibromyalgia or the healing tonic of a good laugh at them, this is the place to go.
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Chronic Fatigue Treatments
Chronic Fatigue Treatments is a forum for people to talk about what treatments have worked for them.
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The Chronic Syndrome Support Association
The CSSA was founded in order to educate the general population and health-care professionals who lack current knowledge of the research being done (and potential research that needs to be done) on serious, yet invisible, chronic immunological and neurological diseases.
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Co-Cure
This mailing list has been established with the goal of furthering co-operative efforts towards finding the cure for the illness commonly referred to as Chronic Fatigue Syndrome and Fibromyalgia.
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Drug3k
Drug3k is a website that provides information on prescription drugs.
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Energy Meltdown
This website, by Pippa Kearnes, contains miscellaneous contributions from ME/CFS sufferers.
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Health Consumers Alliance South Australia
The Health Consumers Alliance Inc of South Australia (HCA) is the not for profit, peak community organisation for health consumers using SA health services.
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Healthline: Fibromyalgia Learning Center
As consumers increasingly migrate online to self-manage their health, more companies are realizing the importance of delivering rich, contextually relevant health information to help their customers make better decisions. Healthline Networks powers intelligent health search, advertising and content services to a growing network of publishers, advertisers, destination sites and health plans.
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Healthopedia.com
Healthopedia.com is a medical and health consumer information resource containing comprehensive and unbiased information in patient-friendly language from trusted sources on over 1,500 health topics (including Chronic Fatigue Syndrome), 70 focussed health centers, and more than 11,000 drugs and medications.
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Help-With-Arthritis-Pain.com
A website designed to help with the pain of arthritis and other joint diseases such as bursitis, gout and fibromyalgia.
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Human Services Finder
The Human Services Finder is the place to access information about health, housing, family and community services from the private, public and community sectors in South Australia.
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Irritable Bowel Tales
Information on the range of treatments available for IBS, from drugs to alternative therapies.
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The Long-term Medical Conditions Alliance
LMCA is the umbrella body for national voluntary organisations working to meet the needs of people with long-term health conditions.
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MCS-Aware
MCS Aware was started by Nicki Greenham as a support network for people living with chemical, food, and electro-sensitivities.
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MCS Global Awareness
A website by Diane Drayton Buckland that focuses on raising awareness about global chemical pollution.
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The ME Tips Collection
Zoë Williams maintains this site which contains some great tips on living with ME/CFS.
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National Welfare Rights Network
Australia's National Welfare Rights Network provides free and independent information, advice and representation about Social Security law and its administration.
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Previous Page
Registered Charity 3104
Our new website is: https://mecfssa.org.au/
The website you are currently visiting remains live as an historical document and is no longer being updated.